Everything posted by richard vA
- The systemic silent killer – ending the stigma around whistleblowing: a blog by Steve Turner
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The systemic silent killer – ending the stigma around whistleblowing: a blog by Steve Turner
Dd1fe5ec47b8c413e5acb12372b1e21eThere are many very differing views on the crisis and scandal around NHS whistleblowrs and a much less optimistic account by a remarkable fearless campaigner is linked below deserving coverage on this site. There are real dangers of powerful interests causing additional mayhem, and I am not exaggerating one iota ! https://minhalexander.com/2023/05/09/the-whistleblowing-hunger-games-why-we-should-reject-the-whistleblowing-appg/
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World Patient Safety Day 2023
Dd1fe5ec47b8c413e5acb12372b1e21eLet's focus on patient empowerment element. That is where most change potential resides. No sign. Patient voices, issues, concerns, insights are actively excluded from safety learning process too often. We need Patient Leadership in processes. Great ideas developed by David Gilbert at InHealth but so very very little done along these lines. Even just reporting (eg here attached) or including in so called model 'engagement ' processes. No evidence sought. More to report from the front line soon.
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How can patients' voices be heard and acted upon when they attempt to report incidents of harm?
Dd1fe5ec47b8c413e5acb12372b1e21eLittle Optimism. When I see the lack of harmed patient voices at the new Patient Safety Commissioners advisory body I wonder how and why the voice of patients, without any other interest apart from harm prevention and learning , are still kept away from the centre. What do governing bodies fear and are trying to hide, deny, cover up, under play? Very worrying, annoying, heart breaking, infuriating... legitimate feelings at this time.
- A mesh ‘audit’ is meaningless unless we have reliable data and hear from those who have been harmed - a blog by Kath Sansom
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Presentation from Linda Kenward: Engaging patients and service users for safety (October 2019)
Dd1fe5ec47b8c413e5acb12372b1e21eSimple but powerful points Which organisations have engaged with this ? I know one patient leader who leads the way, but not primarily in patient safety : David Gilbert I know one safety expert who respects patient expertise. I will not name her. I urge her to speak out more on this! When patient safety is personal. For both sides My experience is patients are kept at bay, all extra work done to protect services. Especially in how the story is told! The starting point. And so from harmed patient perspective where bias, being ignored, dis respected, powerless ..all starts....and so never ends. Never resolved. And so very little learning emerges. It takes exceptional patients like JamesTitcombe to get their story heard.told and re told. Exceptions prove the rule. So wrong. Unhealthy. Excluding. Uneducating . And literally dangerous for patients, and also the vital alliance they should be building with health care staff and systems who truly want to improve. Dangerous. Deadly. And Wrong.
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NHS Education for Scotland: Safety Culture Discussion Cards
Dd1fe5ec47b8c413e5acb12372b1e21e1. Does this mean anything without a safety learning system? HSIB looking at that. And that can be anything 2.without Whistle-blowers protection which does not exist , follow Minh Alexander and 3.without a proper independent expert route for patients to report harm events ( not complaints system)? ( latter on for consultation sometime, somewhere, I fear plans to be scrapped by NHSEpatientsafety). I am very pessimistic and considering leaving the game where patients voices are fundamentally excluded despite token gestures, rhetoric, recognition things could be much better......
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NHS Education for Scotland: Safety Culture Discussion Cards
Dd1fe5ec47b8c413e5acb12372b1e21e1. Does this mean anything without a safety learning system? HSIB looking at that. And that can be anything 2.without Whistle-blowers protection which does not exist , follow Minh Alexander and 3.without a proper independent expert route for patients to report harm events ( not complaints system)? ( latter on for consultation sometime, somewhere, I fear plans to be scrapped by NHSEpatientsafety). I am very pessimistic and considering leaving the game where patients voices are fundamentally excluded despite token gestures, rhetoric, recognition things could be much better......
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My ambition is to see patients’ voices at the heart of the design and delivery of healthcare (Henrietta Hughes, 11 January 2023)
Dd1fe5ec47b8c413e5acb12372b1e21eHow will patients voices be central when there is no patient harm reporting system with independent experts which is easily accessible and fit for purpose. In fact it is up for being phased out. and when you Henrietta say it is not a subject for your office. Deeds not words is what patients families want and need NOW . one year on no progress just more deaths, harm and institutional scandals
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Harmed Patient Safety Governance role: An open letter from a patient safety campaigner
Dd1fe5ec47b8c413e5acb12372b1e21eHere is the advert. I think it is an important opportunity for a patient perspective to be institutionalised in what hopes to develop as an exemplar service https://apply-for-public-appointment.service.gov.uk/roles/5141
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Independent Medicines and Medical Devices Safety (IMMDS) Review: update report on government implementation (12 December 2022)
Dd1fe5ec47b8c413e5acb12372b1e21eTa. Yes I wrote about it here I fear it will be downgraded even further. Patient leaders as worked out and articulated by David Gilbert vital. This paper below should be adapted for harmed Patient learning. I am starting on something. Anyone there on hub team or linked want to help co write something? Ta Richard CentreforMentalHealth_HumanisingHealthCare.pdf
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Independent Medicines and Medical Devices Safety (IMMDS) Review: update report on government implementation (12 December 2022)
Dd1fe5ec47b8c413e5acb12372b1e21eWill you be interviewing the new Patient Safety Commissioner perhaps asking questions based on those raised by a blog here. I would focus mine on the vital value of harmed patients being in a leadership role in her Office and all undertakings, and consider role of patients reporting harm events as there is no current system used.i could say more!
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Patient Safety Learning - Mind the implementation gap: The persistence of avoidable harm in the NHS (7 April 2022)
Dd1fe5ec47b8c413e5acb12372b1e21ea damning indictment on the non existent and at best very fragmented tokenistic patient safety system. my only comment is more attention must be paid to patients views throughout the processes, which currently are even worse than the system itself. 1. Even reporting of harm is not catered for, but pushed to a complaints model or a now very restricted incident investigation system PSIRF where i cannot see a strong patient voice. This needs remedy as i argued earlier this year and this is on the backburner and probably will be downgraded further from what i have heard read here when i was slightly more optimistic 2. but more substantially the patient voice needs to be empowered as is increasingly recognised in some services, like mental health and the same needs to be done for the whole safety and harm investigation and learning process. i refer to a leading expert in this area https://www.centreformentalhealth.org.uk/publications/humanising-health-care
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The National State of Patient Safety: What we know about avoidable harm in England (29 November 2022)
Dd1fe5ec47b8c413e5acb12372b1e21ea damning indictment on the non existent and at best very fragmented tokenistic patient safety system. my only comment is more attention must be paid to patients views throughout the processes, which currently are even worse than the system itself. 1. Even reporting of harm is not catered for, but pushed to a complaints model or a now very restricted incident investigation system PSIRF where i cannot see a strong patient voice. This needs remedy as i argued earlier this year and this is on the backburner and probably will be downgraded further from what i have heard read here when i was slightly more optimistic 2. but more substantially the patient voice needs to be empowered as is increasingly recognised in some services, like mental health and the same needs to be done for the whole safety and harm investigation and learning process. i refer to a leading expert in this area https://www.centreformentalhealth.org.uk/publications/humanising-health-care
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Will lessons be learned? An analysis of the systemic failures in the East Kent Maternity report
Dd1fe5ec47b8c413e5acb12372b1e21eagree with above further: 1. until patients reports on harm events are properly requested and responded to (there is no single harm focused expert system- then the insights and expereinced of patients will be lost, ignored, unheard, taken as a @complaint' 2. until patients and their advocates as Berwick argued are empowered in all aspects of the system, not merely tokenistic as editors, campaigners, writers then there will be no pone with pure patient interests to fight for change. we need patient leaders, the work of David Gilbery shows how it should be done https://www.inhealthassociates.co.uk/articles-reports/ and attached. empowering those harmed throughout the system is vital CentreforMentalHealth_HumanisingHealthCare.pdf
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Mind the implementation gap: the persistence of avoidable harm in the NHS (Editorial, 17 May 2022)
Dd1fe5ec47b8c413e5acb12372b1e21eplease provide accessible version
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Harmed Patient Safety Governance role: An open letter from a patient safety campaigner
Content ArticleThis open letter from patient safety campaigner Richard von Abendorff calls for patients, their families and safety campaigners to help improve patient investigation and patient inclusive systems. Richard highlights a new role coming up at the new Health Services Safety Investigations Body (HSSIB).
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Just Culture and incident investigation
Attend Comment
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Please don’t undermine my pain relief! A call for learning and respect for patients with long term needs
Dd1fe5ec47b8c413e5acb12372b1e21eThe Royal College of Emergency Medicine have a Safe Care Committee which are considering the question! I am hopeful. A valuable forum for others here to consult? https://rcem.ac.uk/safety-3/#:~:text=What%20is%20the%20Royal%20College,the%20speciality%20of%20Emergency%20Medicine
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How can patients' voices be heard and acted upon when they attempt to report incidents of harm?
Dd1fe5ec47b8c413e5acb12372b1e21eWatch for update. Further delays in any improvement at all so continuing failure to allow patients families and public to properly record harm events . Dangerous health care where and when it occurs allowed to continue
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Letter from Keith Conradi, Chief Investigator at HSIB to the Secretary of State for Health and Social Care (18 July 2022)
Dd1fe5ec47b8c413e5acb12372b1e21erichard vA commented on Patient-Safety-Learning's article in Organisations linked to patient safety (UK and beyond)seem my comments in PSH blog on this letter. more concerns..
- HSIB: Blog - Knowledge exchange with Norway (28 June 2022)
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A lack of attention and interest? Serious concerns raised about senior NHS leaders’ approach to patient safety
Dd1fe5ec47b8c413e5acb12372b1e21erichard vA commented on Patient-Safety-Learning's article in Organisations linked to patient safety (UK and beyond)Patients need more than 'engagement'. I will write more soon following being engaged in various processes over the last 11 years. Experts by experience need to be at the core of all processes. Understanding the harm and its consequences, and restorative learning and justice are essential . The interests of patients and communities of patients including harmed and neglected patients must spearhead this culture change. It hasn't even started. The treatment of whistleblowers and patients complaints via Trusts and PHSO illustrate the profound second level harms and injustices being perpetuated, opposite to the learning from harm perspective urgently required.
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A lack of attention and interest? Serious concerns raised about senior NHS leaders’ approach to patient safety
Dd1fe5ec47b8c413e5acb12372b1e21erichard vA commented on Patient-Safety-Learning's article in Organisations linked to patient safety (UK and beyond)So worrying indeed shocking. I am soon to update my blog from just a few months ago with more negative news about NHSE Patient Safety where the massive potential role of patients families and public in raising safety concerns based on harmful events is being delayed further due it appears to a lack of resource indeed cuts in the area. Even just the chance to discuss the future options for patient reporting with experts , outside the 'not fit for safety purpose ' both administratively focused ' complaints ' system and the blame focussed litigation system is being delayed to start at earliest april 2023 despite the patient role in this area being still suggested in NHS policies in mid 2021. I will write more updating this blog soon but invite personal messages with insights, concerns, encouragement etc. On what I think ( am I alone thinking this?) Is an urgent topic and massive lacunae in the (non)system. The patient voice is needed throughout systems and processes as Berwick reported but it is still being sidelined, deprioritised, delayed ( you pick the word ) by the powers with the role and responsibility in this area. Agree PSLHUB and your subscribers??
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A series of failures: a relative's story
Dd1fe5ec47b8c413e5acb12372b1e21ethe complaint framework is completely and by definition , i believe ,inadequate to the task to get learning-wrong people, wrong skills and goals. learning and action is needed. yet there is no route for families to pursue apart from complaints system that is widely shared. hence i wrote my blog, there are potential routes for all but they have to be fought for
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