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richard vA

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Everything posted by richard vA

  1. Content Article Comment
    Great work Tim . The link to the press release does not appear to work?
  2. Content Article Comment
    No luck with RCEM. Other routes being pursued for treating pain management seriously . Will report back later.
  3. Content Article Comment
    Please respond to this summary of a harmful system for whistleblowrs, so patients https://minhalexander.com/2017/04/08/engineered-failure-to-investigate-nhs-whistleblowers-concerns/
  4. Content Article Comment
    There are many very differing views on the crisis and scandal around NHS whistleblowrs and a much less optimistic account by a remarkable fearless campaigner is linked below deserving coverage on this site. There are real dangers of powerful interests causing additional mayhem, and I am not exaggerating one iota ! https://minhalexander.com/2023/05/09/the-whistleblowing-hunger-games-why-we-should-reject-the-whistleblowing-appg/
  5. Content Article Comment
    Let's focus on patient empowerment element. That is where most change potential resides. No sign. Patient voices, issues, concerns, insights are actively excluded from safety learning process too often. We need Patient Leadership in processes. Great ideas developed by David Gilbert at InHealth but so very very little done along these lines. Even just reporting (eg here attached) or including in so called model 'engagement ' processes. No evidence sought. More to report from the front line soon.
  6. Content Article Comment
    Little Optimism. When I see the lack of harmed patient voices at the new Patient Safety Commissioners advisory body I wonder how and why the voice of patients, without any other interest apart from harm prevention and learning , are still kept away from the centre. What do governing bodies fear and are trying to hide, deny, cover up, under play? Very worrying, annoying, heart breaking, infuriating... legitimate feelings at this time.
  7. Content Article Comment
    shocking.sickening.perhaps HSIB expert system investigation needed, not sure if it meets criteria https://www.hsib.org.uk/who-we-are/about-hsib/ as loing as patient voice adequately heard throughout any review
  8. Content Article Comment
    Simple but powerful points Which organisations have engaged with this ? I know one patient leader who leads the way, but not primarily in patient safety : David Gilbert I know one safety expert who respects patient expertise. I will not name her. I urge her to speak out more on this! When patient safety is personal. For both sides My experience is patients are kept at bay, all extra work done to protect services. Especially in how the story is told! The starting point. And so from harmed patient perspective where bias, being ignored, dis respected, powerless ..all starts....and so never ends. Never resolved. And so very little learning emerges. It takes exceptional patients like JamesTitcombe to get their story heard.told and re told. Exceptions prove the rule. So wrong. Unhealthy. Excluding. Uneducating . And literally dangerous for patients, and also the vital alliance they should be building with health care staff and systems who truly want to improve. Dangerous. Deadly. And Wrong.
  9. Content Article Comment
    1. Does this mean anything without a safety learning system? HSIB looking at that. And that can be anything 2.without Whistle-blowers protection which does not exist , follow Minh Alexander and 3.without a proper independent expert route for patients to report harm events ( not complaints system)? ( latter on for consultation sometime, somewhere, I fear plans to be scrapped by NHSEpatientsafety). I am very pessimistic and considering leaving the game where patients voices are fundamentally excluded despite token gestures, rhetoric, recognition things could be much better......
  10. Content Article Comment
    1. Does this mean anything without a safety learning system? HSIB looking at that. And that can be anything 2.without Whistle-blowers protection which does not exist , follow Minh Alexander and 3.without a proper independent expert route for patients to report harm events ( not complaints system)? ( latter on for consultation sometime, somewhere, I fear plans to be scrapped by NHSEpatientsafety). I am very pessimistic and considering leaving the game where patients voices are fundamentally excluded despite token gestures, rhetoric, recognition things could be much better......
  11. Content Article Comment
    How will patients voices be central when there is no patient harm reporting system with independent experts which is easily accessible and fit for purpose. In fact it is up for being phased out. and when you Henrietta say it is not a subject for your office. Deeds not words is what patients families want and need NOW . one year on no progress just more deaths, harm and institutional scandals
  12. Article Comment
    I believe this needs more coverage on the hub I draw your attention to an excellent campaigner leading the way with two recent tweets saying it all https://twitter.com/alexander_minh/status/1613818537046417409?t=fomCyxh5kpG6FGM0uBBZHA&s=19 https://twitter.com/alexander_minh/status/1614040424192299013?t=gHcO3CZxXJtjDn-W8Dlk9Q&s=19 Richard Patient safety advocate from patient family perspective Without whistleblowrs protection and empowerment little change can be achieved
  13. Article Comment
    I believe this needs more coverage on the hub I draw your attention to an excellent campaigner leading the way with two recent tweets saying it all https://twitter.com/alexander_minh/status/1613818537046417409?t=fomCyxh5kpG6FGM0uBBZHA&s=19 https://twitter.com/alexander_minh/status/1614040424192299013?t=gHcO3CZxXJtjDn-W8Dlk9Q&s=19 Richard Patient safety advocate from patient family perspective Without whistleblowrs protection and empowerment little change can be achieved
  14. Content Article Comment
    Here is the advert. I think it is an important opportunity for a patient perspective to be institutionalised in what hopes to develop as an exemplar service https://apply-for-public-appointment.service.gov.uk/roles/5141
  15. Content Article Comment
    Ta. Yes I wrote about it here I fear it will be downgraded even further. Patient leaders as worked out and articulated by David Gilbert vital. This paper below should be adapted for harmed Patient learning. I am starting on something. Anyone there on hub team or linked want to help co write something? Ta Richard CentreforMentalHealth_HumanisingHealthCare.pdf
  16. Content Article Comment
    Will you be interviewing the new Patient Safety Commissioner perhaps asking questions based on those raised by a blog here. I would focus mine on the vital value of harmed patients being in a leadership role in her Office and all undertakings, and consider role of patients reporting harm events as there is no current system used.i could say more!
  17. Content Article Comment
    a damning indictment on the non existent and at best very fragmented tokenistic patient safety system. my only comment is more attention must be paid to patients views throughout the processes, which currently are even worse than the system itself. 1. Even reporting of harm is not catered for, but pushed to a complaints model or a now very restricted incident investigation system PSIRF where i cannot see a strong patient voice. This needs remedy as i argued earlier this year and this is on the backburner and probably will be downgraded further from what i have heard read here when i was slightly more optimistic 2. but more substantially the patient voice needs to be empowered as is increasingly recognised in some services, like mental health and the same needs to be done for the whole safety and harm investigation and learning process. i refer to a leading expert in this area https://www.centreformentalhealth.org.uk/publications/humanising-health-care
  18. Content Article Comment
    a damning indictment on the non existent and at best very fragmented tokenistic patient safety system. my only comment is more attention must be paid to patients views throughout the processes, which currently are even worse than the system itself. 1. Even reporting of harm is not catered for, but pushed to a complaints model or a now very restricted incident investigation system PSIRF where i cannot see a strong patient voice. This needs remedy as i argued earlier this year and this is on the backburner and probably will be downgraded further from what i have heard read here when i was slightly more optimistic 2. but more substantially the patient voice needs to be empowered as is increasingly recognised in some services, like mental health and the same needs to be done for the whole safety and harm investigation and learning process. i refer to a leading expert in this area https://www.centreformentalhealth.org.uk/publications/humanising-health-care
  19. Content Article Comment
    agree with above further: 1. until patients reports on harm events are properly requested and responded to (there is no single harm focused expert system- then the insights and expereinced of patients will be lost, ignored, unheard, taken as a @complaint' 2. until patients and their advocates as Berwick argued are empowered in all aspects of the system, not merely tokenistic as editors, campaigners, writers then there will be no pone with pure patient interests to fight for change. we need patient leaders, the work of David Gilbery shows how it should be done https://www.inhealthassociates.co.uk/articles-reports/ and attached. empowering those harmed throughout the system is vital CentreforMentalHealth_HumanisingHealthCare.pdf
  20. Content Article Comment
    please provide accessible version
  21. Content Article
    This open letter from patient safety campaigner Richard von Abendorff calls for patients, their families and safety campaigners to help improve patient investigation and patient inclusive systems. Richard highlights a new role coming up at the new Health Services Safety Investigations Body (HSSIB). Dear all I write this letter to raise people’s awareness of an imminent advert for a non-executive role at the new independent body, Health Services Safety Investigations Body (HSSIB), aiming to address harm in healthcare. I urge people to think about and share this new role at HSSIB following my own very personal experience and experience from learning from others in trying to improve health service systems following patient harm events. For the last 12 years I have played a role supporting four people, as a carer and advocate for frail older relatives and close friends, including my mother and brother-in-law, as they approached their final months, weeks and days of life. Each sadly had poorly met needs, at times with harm caused, in attempts to address common end of life and palliative care needs. In each case I have then engaged in attempts to get learning from these patient harm events to improve both end of life care services but also to improve the way services learn from such events. Very importantly and most relevant for this brief letter has been my growing awareness of the urgent need for services to listen, respect, and act on the concerns and insights of patients and their advocates, in order to get real learning and change in services. This has been a frustrating long continuing journey, but fortunately I continue to meet inspiring people with similar experiences and goals. At this point, my priority is to find some excellent, fearless, harmed patient campaigners to apply for this non-executive director role at HSSIB, which I have been involved in various advisory roles since its early conception. I believe HSIB (to become HSSIB) is a key cog in the development of a patient safety system. This service has had many challenges and difficulties to contend with and has done some inspiring work in very difficult circumstances. There is a wide recognition from those involved that it needs to develop its patient engagement, involvement and inclusion, and safe care model. I also believe a need to do this at all levels, not only from families referring cases and those being investigated, but also patient family and public involvement in the whole investigation, recommendations and system change process. I am informed also from experience as a family member subject to an investigation and feeding back in many roles. I believe the valuable work of David Gilbert around patient leadership, and the work of those developing a restorative justice model, such as Murray Anderson Wallace and colleagues,[1] [2] when working with and learning from harmed patients is essential to seriously consider the evolution of this innovative, challenging and essential field of service development. Please look out for the advert for a non-executive director at HSSIB in the coming days and consider who you know could apply. This will be an exciting opening for a patient advocate and for patient advocacy! Yours faithfully Richard von Abendorff In personal capacity as an outgoing member of HSIB Advisory Panel and HSIB Citizen Partnership. References Anderson-Wallace M, Shale S. Restoring trust: What is ‘quality’in the aftermath of healthcare harm? Clinical Risk 2014;20(1-2):16-18. Wailling J, Kooijman A, Hughes J, O'Hara JK. Humanizing harm: Using a restorative approach to heal and learn from adverse events. Health Expectations 2002. The advert will be shared on the hub once available.
  22. Event Comment

    until

    Any free tickets for patient and family safety campaigners ?
  23. Content Article Comment
    The Royal College of Emergency Medicine have a Safe Care Committee which are considering the question! I am hopeful. A valuable forum for others here to consult? https://rcem.ac.uk/safety-3/#:~:text=What%20is%20the%20Royal%20College,the%20speciality%20of%20Emergency%20Medicine
  24. Content Article Comment
    Watch for update. Further delays in any improvement at all so continuing failure to allow patients families and public to properly record harm events . Dangerous health care where and when it occurs allowed to continue
  25. Content Article Comment
    seem my comments in PSH blog on this letter. more concerns..

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