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Showing results for tags 'Patient involvement'.
Found 93 results
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Content Article
This blog calls for action on the careful review of established pain medication when a patient is admitted to hospital. Richard describes the experience of two elderly patients who suffered pain due to their long term medication being stopped when they were admitted to hospital. Pain control needs must not be ignored or undermined, there needs to be carer and patient involvement and their consent, and alternative pain control must be considered.- Posted
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Content ArticleMental health is an important component of individual well-being and social participation. According to the Organisation for Economic Co-operation and Development (OECD) between one in six and one in five people experience a mental health problem in any given year and an estimated one in two people experience a mental health problem in their lifetime. There is a need to measure patients’ experience of mental health care delivery and effects of mental health treatment approaches. Patients are in a unique position to contribute to the quality of health care since they are the only ones who experience the whole episode of care from primary care in communities through hospital care to rehabilitation and follow up in general practice. Health professionals in contrast experience only a snap shot of the entire patient’s journey in the health care system. PREMs ((patient-reported experience measures) and PROMs (patient-reported outcomes measures) are means to assure that the patient voice in health care will be heard and institutionalised. This supplement focuses on how to include the patient voice in mental health, in terms of PREMs and PROMs.
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Content Article
Using patient stories to reflect on care (2016)
Patient Safety Learning posted an article in Patient stories
There is an increasing emphasis on, and commitment to, using patient narratives in nursing practice and nurse education. Listening to the voices of those receiving our care is just the beginning. The challenge is to use these narratives to improve practice and the patient experience. This seven-part series in the Nursing Times presents narratives from three fields of nursing: adult, mental health and learning disability. Each article includes opportunities to reflect on the stories presented and consider their implications for practice. -
News Article
Huge leap in breast cancer survival rate
Patient Safety Learning posted a news article in News
The number of people who die after a breast cancer diagnosis has decreased by two-thirds since the 1990s, a study of more than half a million women in England has shown. The research has taken ten years to complete, says Carolyn Taylor, lead author of the study and an oncologist at the University of Oxford, UK. The analysis includes the 512,447 women in England who were diagnosed with early invasive breast cancer between January 1993 and December 2015. The results published in the BMJ found women who were diagnosed in 1993–99 had a 14.4% risk of dying within 5 years. This fell to 4.9% for women diagnosed in 2010–15. Patient involvement was important to the study, Taylor says. The scientists appointed two patient representatives to guide their research. “They helped us in the questions to be addressed. They looked at the analyses and gave comments and suggestions throughout the study. And they helped us to interpret the results in the way that patients can understand.” Read full story Source: Nature, 23 June 2023 -
Content ArticleDavina McCall’s documentary Pill Revolution missed an opportunity to validate painful experiences of intrauterine devices and promote better practice, writes Stephanie O'Donohue, Patient Safety Learning's Content and Engagement Manager, in an opinion piece for the BMJ.
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Content ArticleThis article highlights three questions tabled in the House of Commons relating to the Yellow Card Scheme, the system for recording adverse incidents with medicines and medical devices in the UK.
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Community Post"There is an aspect of information exchange that has attracted less attention and fewer resources: that patients are experts in their experience and know much more than clinicians about their own health and the needs and goals important to them." From: https://catalyst.nejm.org/information-asymmetry-untapped-patient/ Such an important point to see patients as knowledge hubs on their own care experiences.
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EventuntilThe Medicines and Healthcare products Regulatory Agency (MHRA) will be holding a joint virtual Innovative Licencing and Access Pathway (ILAP) information and update session. This event will provide an opportunity for patient groups and patient experts to receive an update on the work of the ILAP, how the MHRA involve patient and public representatives, and future developments about how the MHRA are accelerating the time to market and facilitating patient access to innovative medicines. This event is open to all patient and public representatives who are involved in the work of any of the ILAP partners. Along with presentations from some of the ILAP team, a patient representative will share their experiences as a member of the pilot ILAP Patient and Public Reference Group. There will also be a panel discussion session with plenty of opportunity for questions from participants. Register
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EventuntilThe King's Fund and Healthwatch England join forces on 28–31 March 2022 to explore how meaningful engagement and listening to people’s experiences can result in better-quality care. We will all need to use health and social care services at some point in our lives. Many complex factors can influence the quality of care we receive. However, policy-makers and researchers are increasingly highlighting the importance of putting people's voices at the centre of organising and planning health care services. Although seen as important, listening to people properly, harnessing the lessons from feedback and implementing them to make changes is not always straightforward. How can the NHS and social care services ensure that they really listen to and learn from people and communities? Event topics How to listen well – we'll show you examples of good-quality engagement and the methods you can use to implement these How you can improve commissioning and service delivery by listening to people How public engagement is a critical asset in the battle against health inequalities How people’s voices are already making a difference to strategy and policy-making The opportunities to ensure people’s voices are used meaningfully within integrated care systems. Buy tickets
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EventuntilThis conference will focus on measuring, understanding and acting on patient experience insight, and demonstrating responsiveness to that insight to ensure Patient Feedback is translated into quality improvement and assurance. Through national updates and case study presentations, the conference will support you to measure, monitor and improve patient experience in your service, and ensure that insight leads to quality improvement. Sessions will include learning from patients, improving patient experience during and beyond Covid-19, a national update, practical sessions focusing on delivering a patient experience based culture, measuring patient experience, using the NHS Improvement National Patient Experience Improvement Framework, demonstrating insight and responsiveness in real time, monitoring and improving staff experience, the role of human factors in improving quality, using patient experience to drive improvement, changing the way we think about patient experience, and learning from excellence in patient experience practice. Chair and speakers include: Cristina Serrao, Lived Experience Ambassador NHS England and Improvement Clare Enston, Head of Insight & Feedback NHS England and Improvement David McNally, Head of Experience of Care NHS England and Improvement. Book a place Patient experience conference brochure 25 Nov 2021.pdf
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Event
Leveraging PFACS for patient safety
Patient Safety Learning posted an event in Community Calendar
There are so many organisations that are doing great work related to Patient and Family Advisory Councils (PFACs) but an astounding number are not and this work is crucial to performance improvement. Meaningful and sustainable incorporation of the patient and family perspective is no longer optional for organisations that strive for high reliability. In this Patient Safety Movement webinar, the panelists will discuss the background of person-centred care, the history of its incorporation in the clinical setting, and the introduction of PFACs, current organisational barriers to implementing and sustaining PFACs, recommendations to nurture involvement in and meaningful use of PFACs, and strategies for participant onboarding into PFACs on the journey towards high reliability. Register -
Content Article
Vaginal mesh: The forgotten women (4 July 2022)
Patient Safety Learning posted an article in Women's health
Mesh survivors Katherine Cousins and Mary McLaughlin talk about their ongoing fight for justice for women suffering due to vaginal mesh. -
Content ArticleThe Framework for Involving Patients in Patient Safety (PSP) identifies the requirement for individual organisations to develop local approaches to recruiting, working with and supporting Patient Safety Partners based on the principles provided. As integrated care systems (ICSs) are established opportunities for recruiting PSPs at ICS level to work across the system are being locally considered at system level. A focus group was held in May 2022 with Patient Safety Specialists from both provider and commissioning organisations to discuss the benefits and risks of recruiting PSPs at both provider and system level. This presentation is intended to support organisations when determining the most appropriate approach for their needs.
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Content ArticleThe Quality Network for Inpatient Working Age Mental Health Services (QNWA) based within the Royal College of Psychiatrists' Centre for Quality Improvement are pleased to announce the publication of their 8th edition standards. Since the publication of the first edition standards in 2006, the Network has grown to include over 140 members from the NHS and private sector. This new edition of standards aims to reflect the changes in working practices and legislation over the last two years in addition to placing greater emphasis on equality, diversity and inclusion as well as sustainability in inpatient mental health services. The eighth edition standards have been drawn from key documents and expert consensus and have been subject to extensive consultation with professional groups involved in the provision of inpatient mental health services, and with people and carers who have used services in the past.
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Content ArticleThe Belfast Health Trust failed to intervene quickly enough in the practice of a doctor which led to Northern Ireland's largest ever patient recall, the Independent Neurology Inquiry has found. More than 5,000 former patients of neurologist Michael Watt were invited to have their cases examined for possible misdiagnoses. Among the conditions being treated were stroke, Parkinson's disease and multiple sclerosis (MS). The inquiry found "numerous failures". The Independent Neurology Inquiry concluded that the combined effect of the failures ensured that patterns in the consultant's work were missed for a decade.
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Content ArticleThis study, published in the Journal of the Royal Society of Medicine, examines national policies of complaint handling in English hospitals, how they are understood by those responsible for enacting them, and explores if there are any discrepancies between policies-as-intended and their reality in local practice.
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Content ArticleIn this blog, peer researchers Saffron, Bianca and Alysha describe their involvement in a study about violence and mental health funded by the UKRI Violence, Abuse and Mental Health Network. The study looked at how adolescents’ experiences of violence and neighbourhood disorder—such as vandalism and muggings—affects their mental health as they move into adulthood. As peer researchers, they helped analyse data and used their lived experience to interpret the findings and co-author an academic research paper. They highlight the value of involving people with relevant lived experience in research studies.
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Content ArticleThe paradox of representation in public involvement in research is well recognised, whereby public contributors are seen as either too naïve to meaningfully contribute or too knowledgeable to represent ‘the average patient’. Given the underlying assumption that expertise undermines contributions made, more expert contributors who have significant experience in research can be a primary target of criticism. Knowles SE et al. conducted a secondary analysis of a case of expert involvement and a case of lived experience, to examine how representation was discussed in each.
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Content ArticleThe Health and Social Care Select Committee have published a new report reviewing the progress that the UK Government has made in implementing the recommendations of the Independent Medicines and Medical Devices Safety Review, sometimes referred to as the Cumberlege Review. This blog sets out Patient Safety Learning’s reflections on this report.
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Content ArticleDr Henrietta Hughes, England's Patient Safety Commissioner, discusses how the experiences of people from Black and minority ethnic groups has worsened since the pandemic and how this has impacted on patient safety, in a blog for the NHS Race & Health Observatory.
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Content ArticleIn this article, published by Patient Satisfaction News, author Sarah Heath argues that more needs to be done to address the power imbalance between patients and providers. She discusses the dangers of a paternalistic approach and why patient engagement and shared decision making is key to patient safety.
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News ArticleThe Health Research Authority has launched a new strategy to ensure information about all health and social care research – including COVID-19 research - is made publicly available to benefit patients, researchers and policy makers. The COVID-19 pandemic has highlighted the importance of sharing details of research taking place - to understand the virus and find the tests, treatments and vaccines - so that results can inform best quality care and preventive measures. This also means researchers do not duplicate efforts and can build on each other’s work while the public can see what research is going on. Now the new Make it Public strategy aims to build on this good practice and make it easy for researchers to be transparent about their work. The strategy, delivered by the HRA in partnership with NHS Research Scotland (NRS), Health and Care Research Wales and Health and Social Care Northern Ireland, is about making transparency ‘the norm’ in research and making information more visible to the public. New measures set out in the strategy – will improve transparency and openness in health and social care studies, by: expecting researchers to plan how they will let research participants know about the findings of the study from the beginning introducing additional monitoring to check that researchers are reporting results and to collect information about study findings making information on individual research projects – and their transparency performance - available to the public introducing a system to consider past transparency performance when reviewing new studies for approval and in the future introducing sanctions.
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News Article
Take part in a conception & pregnancy study COVID-19
Patient Safety Learning posted a news article in News
CAP-COVID are conducting essential research on how the COVID-19 pandemic affects pregnant women and their babies. If you are a pregnant woman at any stage of pregnancy, you can take part in the study. This includes whether you have just had a positive pregnancy test (even if you are unsure what to do about your pregnancy), whether you are in the middle of pregnancy, or you are about to have your baby. Take part -
News Article
Short surveys will support better connected social care and health services
Patient Safety Learning posted a news article in News
The Professional Record Standards Body would like you to take part in two surveys about the information that should be shared between health and social care. The project aims to improve connections between different services, to allow people better access to the personalised care and wellbeing support they need. They’ve also produced an easy read version for anyone who has difficulty reading, which can be found here. -
News Article
"Patients are not empowered to prevent their own harm", says Sir Liam Donaldson
Patient Safety Learning posted a news article in News
Today, Sir Liam Donaldson is chairing a patient safety meeting at the World Health Organization (WHO) 'A Global Consultation – A decade of Patient Safety 2020–2030' to formulate a Global Patient Safety Action Plan. His introductory address this morning focused on the task ahead – to maintain the World Health Assembly resolution momentum and patient safety as a global movement. "Patients are not empowered to prevent their own harm", Donaldson said, as he highlighted patient stories of unsafe care and the alarming parallels of patient and family experiences across the world. So where is the power? Donaldson went on to to highlight how the six current power blocks are not doing enough to improve safety and that we need to engage and motivate these power blocks to achieve change: Designing of health systems – we have not seen much evidence of systems being designed for safety. Health leaders are not using their power to lead for reduced harm. Educational institutions – these have to happen faster to train staff in. Research community – has patient safety research led to sustainable reduction in risk? Data and information – how has this improved patient safety? Industry – pharma doing very little on medication packaging and labelling; medical devices industry also could do more.
