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Found 60 results
  1. Event
    There are so many organisations that are doing great work related to Patient and Family Advisory Councils (PFACs) but an astounding number are not and this work is crucial to performance improvement. Meaningful and sustainable incorporation of the patient and family perspective is no longer optional for organisations that strive for high reliability. In this Patient Safety Movement webinar, the panelists will discuss the background of person-centred care, the history of its incorporation in the clinical setting, and the introduction of PFACs, current organisational barriers to implementin
  2. Content Article
    Findings The men spoken to had been struggling for years with poor mental health and suicidal thoughts and feelings. Despite experiencing many well-known risk factors for this group, many opportunities to help them at critical points before they reached crisis were missed. Importantly, the men spoken to didn't see community-based support services, focused on fostering connection and community, as relevant to them before they reached crisis. "There exists a vacuum of responsibility in which opportunities to engage and support these men, before they hit crisis point, were neglecte
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  4. News Article
    The Health Research Authority has launched a new strategy to ensure information about all health and social care research – including COVID-19 research - is made publicly available to benefit patients, researchers and policy makers. The COVID-19 pandemic has highlighted the importance of sharing details of research taking place - to understand the virus and find the tests, treatments and vaccines - so that results can inform best quality care and preventive measures. This also means researchers do not duplicate efforts and can build on each other’s work while the public can see what resea
  5. News Article
    The NHS is spending millions of pounds encouraging patients to give feedback but the information gained is not being used effectively to improve services, experts have warned. Widespread collection of patient comments is often “disjointed and standalone” from efforts to improve the quality of care, according to a study by the National Institute for Health Research (NIHR). Nine separate studies of how hospitals collect and use feedback were analysed. They showed that while thousands of patients give hospitals their comments, their reports are often reduced to simple numbers – and in
  6. Community Post
    "There is an aspect of information exchange that has attracted less attention and fewer resources: that patients are experts in their experience and know much more than clinicians about their own health and the needs and goals important to them." From: https://catalyst.nejm.org/information-asymmetry-untapped-patient/ Such an important point to see patients as knowledge hubs on their own care experiences.
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    CAP-COVID are conducting essential research on how the COVID-19 pandemic affects pregnant women and their babies. If you are a pregnant woman at any stage of pregnancy, you can take part in the study. This includes whether you have just had a positive pregnancy test (even if you are unsure what to do about your pregnancy), whether you are in the middle of pregnancy, or you are about to have your baby. Take part
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    Bella is a Wellcome Trust Engagement Fellow and Director of Public Programmes at Manchester University NHS Trust. She is passionate about the democratisation of science; her Fellowship explores how public engagement with scientific research can act as a catalyst for social change.
  16. News Article
    Today, Sir Liam Donaldson is chairing a patient safety meeting at the World Health Organization (WHO) 'A Global Consultation – A decade of Patient Safety 2020–2030' to formulate a Global Patient Safety Action Plan. His introductory address this morning focused on the task ahead – to maintain the World Health Assembly resolution momentum and patient safety as a global movement. "Patients are not empowered to prevent their own harm", Donaldson said, as he highlighted patient stories of unsafe care and the alarming parallels of patient and family experiences across the world. So where
  17. News Article
    The Professional Record Standards Body would like you to take part in two surveys about the information that should be shared between health and social care. The project aims to improve connections between different services, to allow people better access to the personalised care and wellbeing support they need. They’ve also produced an easy read version for anyone who has difficulty reading, which can be found here.
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    Key findings: Though PPI is increasingly common in healthcare research, there is limited agreement about how, when, and why it should best be done. Patients and the public get involved in research for a variety of reasons but often because they want to help others and contribute to a better healthcare system. To enable involvement, PPI needs to be funded adequately, opportunities need to be clearly communicated, and support needs to be available for researchers and PPI contributors. More PPI on its own doesn’t necessarily mean better research, and doing PPI just for the
  23. Content Article
    Key outcomes UTI hospital admissions reduced by 36% in the four pilot care homes (150 residents). UTIs requiring antibiotics reduced by 58%. The gap between UTIs increased from an average of nine days in the baseline period to 80 days in the implementation and sustainability phase. One residential home was UTI-free for 243 consecutive days. Similar outcomes noted in pilot 2 care homes (215 residents).
  24. Content Article
    The standards are: a description of what good public involvement in research looks like designed to encourage self reflection and learning, including where lessons have been learned when public involvement has failed to lead to expected outcomes. a tool to help people and organisations identify what they are doing well, and what needs improving intended to be used with any method or approach to public involvement in research adaptable to your own situation and can be used alongside other resources such as case studies, public involvement checklists, and toolkits.
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