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Showing results for tags 'Patient involvement'.
Found 57 results
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News ArticleThe Health Research Authority has launched a new strategy to ensure information about all health and social care research – including COVID-19 research - is made publicly available to benefit patients, researchers and policy makers. The COVID-19 pandemic has highlighted the importance of sharing details of research taking place - to understand the virus and find the tests, treatments and vaccines - so that results can inform best quality care and preventive measures. This also means researchers do not duplicate efforts and can build on each other’s work while the public can see what research is going on. Now the new Make it Public strategy aims to build on this good practice and make it easy for researchers to be transparent about their work. The strategy, delivered by the HRA in partnership with NHS Research Scotland (NRS), Health and Care Research Wales and Health and Social Care Northern Ireland, is about making transparency ‘the norm’ in research and making information more visible to the public. New measures set out in the strategy – will improve transparency and openness in health and social care studies, by: expecting researchers to plan how they will let research participants know about the findings of the study from the beginning introducing additional monitoring to check that researchers are reporting results and to collect information about study findings making information on individual research projects – and their transparency performance - available to the public introducing a system to consider past transparency performance when reviewing new studies for approval and in the future introducing sanctions.
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Content ArticleThis leaflet includes patient information on: why is patient safety important how you can help your medicine recognising acute illness what happens if your Early Warning Score increases? what should relatives or friends do if they are worried that your health is worsening or not improving? blood clots safe surgery infections falls prevention advice preventing pressure ulcers.
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Content ArticleThe report suggests that it’s time for a fresh look at how we evaluate and capture patient experience. While there is no shortage of measures of ‘patient experience’, they tend to measure the performance of the system. Few truly start from the patient’s perspective and illuminate what being a patient is like. Nor are they reliable drivers of improvement in the health and care system. Being A Patient investigated possible new approaches to capturing patient experience, which go beyond the traditional model of evaluating the experience of receiving care, and instead consider the experience of living with a health or care need. So far we have suggestions for possible new factors to consider, including the nature of a person’s illness and its impact on their life. This report completes the first stage of the patient experience programme.
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Take part in a conception & pregnancy study COVID-19
Patient Safety Learning posted a news article in News
CAP-COVID are conducting essential research on how the COVID-19 pandemic affects pregnant women and their babies. If you are a pregnant woman at any stage of pregnancy, you can take part in the study. This includes whether you have just had a positive pregnancy test (even if you are unsure what to do about your pregnancy), whether you are in the middle of pregnancy, or you are about to have your baby. Take part -
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Short surveys will support better connected social care and health services
Patient Safety Learning posted a news article in News
The Professional Record Standards Body would like you to take part in two surveys about the information that should be shared between health and social care. The project aims to improve connections between different services, to allow people better access to the personalised care and wellbeing support they need. They’ve also produced an easy read version for anyone who has difficulty reading, which can be found here. -
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Health NHS patient feedback is not being used to improve services, report warns
Patient Safety Learning posted a news article in News
The NHS is spending millions of pounds encouraging patients to give feedback but the information gained is not being used effectively to improve services, experts have warned. Widespread collection of patient comments is often “disjointed and standalone” from efforts to improve the quality of care, according to a study by the National Institute for Health Research (NIHR). Nine separate studies of how hospitals collect and use feedback were analysed. They showed that while thousands of patients give hospitals their comments, their reports are often reduced to simple numbers – and in many cases, the NHS lacks the ability to analyse and act on the results. The research found the NHS had a “managerial focus on bad experiences” meaning positive comments on what went well were “overlooked”. The NIHR report said: “A lot of resource and energy goes into collecting feedback data but less into analysing it in ways that can lead to change, or into sharing the feedback with staff who see patients on a day-to-day basis. NHS England's chief nurse, Ruth May, said: "Listening to patient experience is key to understanding our NHS and there is more that that we can hear to improve it. This research gives insight into how data can be analysed and used by frontline staff to make changes that patients tell us are needed." Read full story Source: 13 January 2020 -
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Content ArticleBella is a Wellcome Trust Engagement Fellow and Director of Public Programmes at Manchester University NHS Trust. She is passionate about the democratisation of science; her Fellowship explores how public engagement with scientific research can act as a catalyst for social change.
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Community Post"There is an aspect of information exchange that has attracted less attention and fewer resources: that patients are experts in their experience and know much more than clinicians about their own health and the needs and goals important to them." From: https://catalyst.nejm.org/information-asymmetry-untapped-patient/ Such an important point to see patients as knowledge hubs on their own care experiences.
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Oxford Academic Health Science Network: Good Hydration!
Patient Safety Learning posted an article in AHSNs
Key outcomes UTI hospital admissions reduced by 36% in the four pilot care homes (150 residents). UTIs requiring antibiotics reduced by 58%. The gap between UTIs increased from an average of nine days in the baseline period to 80 days in the implementation and sustainability phase. One residential home was UTI-free for 243 consecutive days. Similar outcomes noted in pilot 2 care homes (215 residents). -
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Content ArticleThe standards are: a description of what good public involvement in research looks like designed to encourage self reflection and learning, including where lessons have been learned when public involvement has failed to lead to expected outcomes. a tool to help people and organisations identify what they are doing well, and what needs improving intended to be used with any method or approach to public involvement in research adaptable to your own situation and can be used alongside other resources such as case studies, public involvement checklists, and toolkits.
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WHO: Empowering patients (April 2012)
PatientSafetyLearning Team posted an article in WHO
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Content ArticleKey findings: Though PPI is increasingly common in healthcare research, there is limited agreement about how, when, and why it should best be done. Patients and the public get involved in research for a variety of reasons but often because they want to help others and contribute to a better healthcare system. To enable involvement, PPI needs to be funded adequately, opportunities need to be clearly communicated, and support needs to be available for researchers and PPI contributors. More PPI on its own doesn’t necessarily mean better research, and doing PPI just for the sake of it can discourage researchers and disenfranchise people who get involved. PPI should be relevant and meaningful for the research and the people involved. PPI has the potential to improve research and empower contributors, but evidence about how that actually happens, to what extent, and to what effect, is limited. To monitor and evaluate PPI, researchers will need to agree on what study designs are appropriate, be clear about what PPI activities are meant to achieve, and focus evaluations on the process of PPI and/or its contributions to research.
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