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  1. Yesterday
  2. Community Post
    Hi Jo, I completely agree - if we we better at diagnosing and supporting children with ADHD, it would make an immense difference. Thanks for sharing your daughter's experience, it must be very hard having additional diagnoses. I really hope she can get some answers and appropriate support quickly.
  3. Last week
  4. Community Post
    Hi @Flávia Thank you for responding. Your collaborative project sounds very interesting, we would love to hear more. Please do get in touch via content@pslhub.org.
  5. Earlier
  6. Community Post
    @perbinderI would be interested, would like to know more
  7. Community Post
    Hi @Illumi123 So sorry to hear of your horrific experience when you went to get an IUD fitted. No-one should have to experience this type of pain. Although many women have only mild discomfort when they have an IUD, as you can read from this thread, many like yourself have a much worse experience. If possible, please do speak to a trusted friend or adult about you concerns and experience. We would also encourage you to go and see a healthcare professional, potentially with a friend or trusted adult for support, to discuss your concerns and the pain relief options that are available to you. Having more information may help you feel in a stronger position when the time comes to have your IUD removed. Also, if possible through school or the community, it may be helpful to speak to a counsellor about how you may be able to manage your fears in relation to this if this is something you would feel comfortable doing. Please continue following this thread as there may be a healthcare professional or patient who has gone through something similar who could advise you further on the options available to you in the US.
  8. Community Post
    Research suggests that women may receive poorer medical attention when it comes to pain, including being misdiagnosed or undertreated. This may be due to historical lack of representation of women in clinical trials for pain medication and implicit biases held by healthcare providers. To address this issue, it is important to raise awareness among healthcare providers and ensure that women are adequately represented in clinical trials. Patients can also advocate for themselves by being open and honest about their symptoms and advocating for the pain treatment they need.
  9. Community Post
    Heartily endorse the great people at CAPH, terrific campaigners and providing compassionate support to so many sufferers
  10. Community Post
    Infiltration is when fluid or intravenous drugs are administered to a patient (which are given to patients into a vein through a cannula or other device) inadvertently leak into the tissue surrounding a vein by mistake. Extravasation is when infiltration occurs but the drugs involved are called vesicants which can damage the tissue and cause serious harm to the patient. The National Infusion and Vascular Access Society (NIVAS) are leading a campaign, to improve awareness of infiltration and extravasation and reduce avoidable harm. Do you have insights to share on this topic? Perhaps you are a patient who has had an extravasation injury? Or a healthcare professional who has insights to share around making improvements? Share your thoughts below (you'll need to register for free here first).
  11. Community Post
    Thanks for sharing Sian. We have some resources on the hub from AHRQ on TeamSTEPPS which uses CUS if hub members want to find out more: AHRQ course- TeamSTEPPS® for diagnosis improvement AHRQ - TeamSTEPPS teamwork system AHRQ: TeamSTEPPS® – tools and tactics for good teamwork
  12. Community Post
    I worked in the USA for 20 years and as an ED manager, we started a "Phew" campaign in my department. Basically, any near miss ,where inside, you literally have that "Phew, thank goodness that did not happen" moment, then that is reported as a near miss. Staff easily recognised that feeling, either kept it internally or shared with colleagues but we asked staff to report these on our patient safety software, so we could address patient safety issues, trends or system issues. Staff were commended for their openess and rewarded for their contribution to patient safety and prevention of a bad outcome. Happy for anyone to emulate. 🙂
  13. Community Post
    Thank you but I’ve tried everything you mention and more. because I wasn’t really told the full extent of my complication ( enterocutaneous fistula), I never complained, I assumed it would heal or could be fixed. When I did take it up with the hospital they said they had no responsibilities for patients, private hospitals are merely hosts. The consultant was and is still seeing me, as I was private there are no other means of support. ( no PALS, no Community Health Council, no ombudsman ). AvMA have been helpful but say my only option is the legal route but I’m out of time. Phin just provided statistics to help you decide what hospital or surgeon to chose in the private sector. the regulatory body for Independent hospitals is ISCAS who will only help if you’ve put in a first tier complaint. But as I say I was told I had nothing to complain about. ( 3 stoma bags !). I cannot see where private patients are advised of any of this prior to surgery. How can that be right, I would have certainly managed my expectations better . thank you for taking the trouble to reply, it is much appreciated.
  14. Community Post
    Good morning, I am hoping to gain some insights into how other organisations assess the level of harm for incidents of anaphylaxis or severe drug reactions? I work within a private homecare setting with the vast majority of our patients receiving administration of medication via a clinician - ranging from antibiotics to chemotherapy. Currently, within our organisation incidents reporting a severe drug reaction/anaphylaxis are graded as moderate-severe harm. There has been some discussion recently around the harm grading of these incidents, and I was hoping to seek guidance from external patient safety colleagues as to how their organisations assess the harm level for these types of incidents? Many thanks
  15. Community Post
    Hello, I am looking at designing a training for those individuals in the organisation who do not require approved training, but may be involved in investigations around the new learning responses and when they may be appropriate and what will change and what will remain the same after PSIRF. Just wondering if anyone has seen anything or is working on something similar. Looking for something a little more concise/practical/specific to PSIRF than the current HSIB Level 2. Thanks, Callum
  16. Community Post
    It's essential for medication to be distributed with accurate information and warnings so that people can make informed decisions about their health
  17. Community Post
    Hi @Sophie Osullivan It might be worth contacting @Kirsty Wood who has done a lot of work in this area. She provides her contact details above. Best wishes Stephanie
  18. Community Post
    Hi Anne As part of informed consent you should be given all of the options available to you and talked through the pros of cons of each. This should include general anaesthetic. This will help you to make an informed decision that feels right for you. You could ask to speak to your GP about this and it is worth mentioning your previous experience in relation to pain. You can also request to have a chaperone with you for the procedure which may help you feel supported. If you are awake for the procedure, speak to the staff performing the procedure about how they will check in with you to make sure they obtain continued consent throughout and that you are happy for them to continue. Talk to them about your previous experiences and the importance of being able to pause or stop the procedure if you do need to. Some people have found it useful to have someone there with them to drive them home afterwards too, even if this hasn't been highlighted as a necessity in any of the info given to you beforehand. I am so sorry you have had a difficult experience previously and did not feel you had been informed of what what going to take place. That is not in line with informed consent and should not have happened to you.
  19. Community Post
    A new blog, published on the hub, tells the story of Jenny who passed away from pulmonary embolism, having been misdiagnosed. Her son Tim is campaigning for improvements in pulmonary embolism awareness and care to reduce the risks of misdiagnosis. Have you, or someone you know, been affected by a pulmonary embolism? Was there a misdiagnosis? Please share your experiences, and thoughts on Tim's blog, in the comments below. You'll need to be a hub member to comment below, it's quick and easy to do. You can sign up here.
  20. Community Post
    @Hugh Wilkins - aren't all politicians experts in everything then? 😉
  21. Community Post
    As discussed at the network meeting as I can find the relevant folder, this is my simplified approach to SEIPS and open to suggested changes. It's nothing new per se (interactions), just the way I am approaching it at the moment which, as the new world order (PSIRF) moves into play I am trying to test it out in a meaningful way. I have included a simplified example. Regards Keith Understanding System Interactions.pdf
  22. Community Post
    As discussed at the recent forum meeting, I have attached example slides of how HSIB bring SEIPS into the investigation framework taken from their recent 2022 conference. There is not a lot of narrative, but I hope you get the gist. I will post an example of how I have blended SEIPS into investigations and also thematic analysis shortly. Regards arterial line example HSIB.pdfKeith
  23. Community Post
    Over the pandemic the topic of greater use of prefilled syringes and other ready to administer medicines especially in critical care areas was highlighted. The European Association of Hospital Pharmacists have set up a special interest to review this area of practice. I am a member of the special interest group and we are very interested to receive the view of critical care nurses on this topic. Ther is a short survey for nursers to complete - please complete by 9th November 2022 to help inform our work on this topic. See link below. https://www.surveymonkey.com/r/PFSenglish2
  24. Community Post
    If there are any Mental Health and Community Trusts in the northern region who would be interested in joining a forum to discuss and share learning from deaths best practice and insight please post a response below or you can contact me on alison.rushton@lscft.nhs.uk
  25. Community Post
    Is it time to change the way England's healthcare system is funded? Is the English system in need of radical structural change at the top? I've been prompted to think about this by the article about the German public health system on the BBC website: https://www.bbc.co.uk/news/health-62986347.amp There are no quick fixes, however we all need to look at this closely. I believe that really 'modernising' / 'transforming' our health & #socialcare systems could 'save the #NHS'. Both for #patients through improved safety, efficiency & accountability, and by making the #NHS an attractive place to work again, providing the NHS Constitution for England is at the heart of changes and is kept up to date. In my experience, having worked in healthcare for the private sector and the NHS, and lived and worked in other countries, we need to open our eyes. At present it could be argued that we have the worst of both worlds in England. A partially privatised health system and a fully privatised social care system. All strung together by poor commissioning and artificial and toxic barriers, such as the need for continuing care assessments. In my view a change, for example to a German-style system, could improve patient safety through empowering the great managers and leaders we have in the NHS. These key people are held back by the current hierarchical crony-ridden system, and we are at risk of losing them. In England we have a system which all too often punishes those who speak out for patients and hides failings behind a web of denial, obfuscation and secrecy, and in doing this fails to learn. Vast swathes of unnecessary bureaucracy and duplication could be eliminated, gaps more easily identified, and greater focus given to deeply involving patients in the delivery of their own care. This is a contentious subject as people have such reverence for the NHS. I respect the values of the NHS and want to keep them; to do this effectively we need much more open discussion on how it is organised and funded. What are people's views?
  26. Community Post
    Just read it. Very interesting. I would argue furiously if I was an in patient and anyone tried to take my insulin pump or cgm off me. Direct complaint to senior management if they even tried and I was able to do so. Hospitals and health professionals in general or unrelated care will typically understand the diabetes rule book - which is ok for generic ‘how it works’ but not for someone who is on a pump who has taken a few months to get your levels balanced on a pump - plus often needs tweaking. Applying generic rules simply is not good enough to deprive someone of a working system if they already have a pump and are able to use it. Visits to doctors ‘specialist’ nurses often results in their gaining useful information and insights as to diabetes, certainly I don’t get anything out of it given my understanding is much greater than theirs. Even my pump consultant can’t necessarily offer much apart from fine tuning settings and control options, she is fully aware that I know best how my body works and reacts to insulin given I’ve been administering it to myself since 1985. It really is frightening prospect as a diabetic to think that your hard work could be undone by someone with no practical working knowledge of diabetes and their ‘attitude’ to anyone who actually does know better than them. posted in response to my Facebook post by my cousin, Steve Smith
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