The report makes the case that shared decision making, when patients and doctors work together to decide treatment options, provides benefits to patients and the health service. It also outlines that patients, and the professionals treating them, face many barriers in making this work in practice.
It sets out a number of recommendations aimed at making shared decision making a reality:
National health leaders must address the barriers in the health system to shared decision making and champion the practice.
There should be greater promotion of the inform
In the two weeks before his death Robbie was seen seven times by five different GPs. The child was seen by three different GPs four times in the last three days when he was so weak and dehydrated he was bedbound and unable to stand unassisted. Only one GP read the medical records, six days before death, and was aware of the suspicion of Addison's disease, the need for the ACTH test and the instruction to immediately admit the child back to hospital if he became unwell.
The GP informed the Powells that he would refer Robbie back to hospital immediately that day but did not inform them that
What's new in the NICE shared decision making guideline?
The three main areas of recommendations are:
and recommendations on communication and documentation.
On an organisational level, the 2021 NICE guideline on shared decision making asks organisations to consider the following:
making a senior leader accountable for the leadership and embedding of shared decision making
appointing a patient director to work with this senior leader.
The guidance also states that for effective shared decision making, appointments or c
The document includes the following advice for patients:
How You Can Help Avoid Aquiring an SSI?
Hospitals and other healthcare facilities have developed extensive infection prevention and control programs to prevent SSIs. However, medical experts also recommend some things you, as a patient, can do to help prevent an SSI:
If you smoke, stop - at least until after you have recovered from surgery. (Your healthcare provider may be able to provide medical help for this.)
Eat a good diet, avoid alcohol, and get plenty of rest before and after surgery.
If you are a diabe
In 2018, SIM was selected for national scaling and spread across the Academic Health Science Networks (AHSNs). The High Intensity Network (HIN) has been working with the three south London Secondary Mental Health Trusts: The South London and Maudsley NHS Foundation Trust, Oxleas NHS Foundation Trust and South West London and St George’s Mental Health NHS Trust, and the Metropolitan Police, London Ambulance Service, A&E, CCG commissioners, and the innovator and Network Director of the High Intensity Network.
The model can be summarised as:
A more integrated, infor
About the framework
This sets out how NHS organisations should involve patients in patient safety and is divided into two parts:
Part A: Involving patients in their own safety
Part B: Patient safety partner (PSP) involvement in organisational safety
Part A: Involving patients in their own safety
The first part of this framework describes how organisations should support patients, their families and carers to be directly involved in their own or their loved one’s safety. It provides guidance on the following approaches to this:
Encouraging patients to ask questions
In its investigation of the serious patient safety failings regarding hormone pregnancy tests, sodium valproate and pelvic mesh implants, the Independent Medicines and Medical Devices Safety (IMMDS) Review (also known as the Cumberlege Review) highlighted significant concerns about the MHRA’s role in this. In its recommendations it stated:
“The MHRA needs substantial revision, particularly in relation to adverse event reporting and medical device regulation. It needs to ensure that it engages more with patients and their outcomes. It needs to raise awareness of its public protection roles
The UK Government committed to establishing a Patient Safety Commissioner for England in the Medicines and Medical Devices Act 2021.
The introduction of a Patient Safety Commissioner also acts on the second recommendation of the Independent Medicines and Medical Devices Safety Review, First Do No Harm, published in July 2020 by Baroness Cumberlege, which examines the consequences of the use of Primodos, sodium valproate and pelvic mesh and its effects on patient safety.
The consultation process opened on the 10 June 2021 and closes on the 5 August 2021
In September 2020, the Scottish Government formally announced as part of its Programme for Government 2020-21 that it would establish a Patient Safety Commissioner for Scotland. This was one of the key recommendations set out in the First Do No Harm report, published earlier that year by the Independent Medicines and Medical Devices Safety Review (more commonly known as the Cumberlege Review).
Here we will briefly provide the background to this proposal before outlining the key elements of our response to the public consultation on this under the following headings:
“Access to health information to help people make informed choices about their health and wellbeing is vital. More so when an illness becomes long term and stops people living their normal life. When trusted information is missing, misinformation and disinformation can fill the gap and cause real harm. People with long Covid should not be left to Dr Google, particularly when we know Covid has hit disadvantaged communities hardest.…”
Sophie Randall, Director at Patient Information Forum
Symptoms of Long Covid
Patients with Long Covid report wide-ranging symptoms affecting all body