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richard vA

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About richard vA

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  • First name
    RICHARD
  • Last name
    VON ABENDORFF
  • Country
    United Kingdom

About me

  • About me
    patient advocate and safety campaigner-involved HSIB Citizens partnership and previously NHSE/O patient voice

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  1. Content Article
    Dear all I write this letter to raise people’s awareness of an imminent advert for a non-executive role at the new independent body, Health Services Safety Investigations Body (HSSIB), aiming to address harm in healthcare. I urge people to think about and share this new role at HSSIB following my own very personal experience and experience from learning from others in trying to improve health service systems following patient harm events. For the last 12 years I have played a role supporting four people, as a carer and advocate for frail older relatives and close friends, includ
  2. Event Comment

    until

    Any free tickets for patient and family safety campaigners ?
  3. Content Article Comment
    The Royal College of Emergency Medicine have a Safe Care Committee which are considering the question! I am hopeful. A valuable forum for others here to consult? https://rcem.ac.uk/safety-3/#:~:text=What%20is%20the%20Royal%20College,the%20speciality%20of%20Emergency%20Medicine
  4. Content Article Comment
    Watch for update. Further delays in any improvement at all so continuing failure to allow patients families and public to properly record harm events . Dangerous health care where and when it occurs allowed to continue
  5. Content Article Comment
    interesting differences...less hierarchical question: in role of patients, families, scoping of investigations?
  6. Content Article Comment
    Patients need more than 'engagement'. I will write more soon following being engaged in various processes over the last 11 years. Experts by experience need to be at the core of all processes. Understanding the harm and its consequences, and restorative learning and justice are essential . The interests of patients and communities of patients including harmed and neglected patients must spearhead this culture change. It hasn't even started. The treatment of whistleblowers and patients complaints via Trusts and PHSO illustrate the profound second level harms and injustices being perpetuated,
  7. Content Article Comment
    So worrying indeed shocking. I am soon to update my blog from just a few months ago with more negative news about NHSE Patient Safety where the massive potential role of patients families and public in raising safety concerns based on harmful events is being delayed further due it appears to a lack of resource indeed cuts in the area. Even just the chance to discuss the future options for patient reporting with experts , outside the 'not fit for safety purpose ' both administratively focused ' complaints ' system and the blame focussed litigation system is being delayed to start at
  8. Content Article Comment
    the complaint framework is completely and by definition , i believe ,inadequate to the task to get learning-wrong people, wrong skills and goals. learning and action is needed. yet there is no route for families to pursue apart from complaints system that is widely shared. hence i wrote my blog, there are potential routes for all but they have to be fought for
  9. Content Article Comment
    important issues, my reflections on issues that need more exploration: 1. building back trust after harm events-one challenge-screen people for that challenge 2. safety netting and red flag issues so important with serious, changeable and particularly terminal conditions 3. how to recognise the power differential recognising the expertise patients and family carers may have in their wishes, values, condition, management issues around condition from past experiences, and then respecting and addressing. one of many aspects of shared decision making 4. transitions in and out o
  10. Content Article Comment
    So sorry to hear . I would like to be connected with 'Susan' as I am about to enter the process of learning from a palliative care investigation and one element was a late diagnosis of metastatic spread where if this had occurred earlier, more valuable vital support could have been offered . Services are still grappling with this issue and in covid times with massive backlogs the danger is growing without better safety netting systems and also systems able to honestly listen to and learn from patients and families feedback
  11. Content Article
    I love and support the NHS. But when things go wrong for patients and service users, the system is often too slow to change or respond effectively. I have been through complaints, the Ombudsman and Inquest processes around the poor end of life care of my late mother. Those processes took years and were almost as stressful as those last few days of my mother’s life. I would not do it again. At the time, I reported the incident in detail to the CQC (inspectors), to the CCG (commissioners), to Healthwatch (local and national), but I noted no evidence of change. In fact, the CQC continued for
  12. Content Article Comment
    I would like to add one thing not adequately addressed. Where is the patient voice? What rights do they have in how care is delivered and the best way to respond to harmful events they report. My story and call for action is one clear example , where the expertise and values of patients are surely paramount or cannot easily be trumped?
  13. Content Article Comment
    Very useful to know. My story is around the risk of chronic pain management being undermined at a crucial time, without consent and how that could be learned from and minimised
  14. Content Article Comment
    Great session on shared decision making here , a real avenue for patient voices to be heard right from the beginning and ultimately with good guidance may help prevent harm described above
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