richard vA
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Everything posted by richard vA
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C5f107d7b033b2909a6be15741a89e40important issues, my reflections on issues that need more exploration: 1. building back trust after harm events-one challenge-screen people for that challenge 2. safety netting and red flag issues so important with serious, changeable and particularly terminal conditions 3. how to recognise the power differential recognising the expertise patients and family carers may have in their wishes, values, condition, management issues around condition from past experiences, and then respecting and addressing. one of many aspects of shared decision making 4. transitions in and out of hospital-good communications so important but fiendishly complex from beginning to end
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C5f107d7b033b2909a6be15741a89e40So sorry to hear . I would like to be connected with 'Susan' as I am about to enter the process of learning from a palliative care investigation and one element was a late diagnosis of metastatic spread where if this had occurred earlier, more valuable vital support could have been offered . Services are still grappling with this issue and in covid times with massive backlogs the danger is growing without better safety netting systems and also systems able to honestly listen to and learn from patients and families feedback
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Sharing his own personal experiences of harm, Richard highlights four routes where patients and families can report patient safety incidents to ensure patients' voices can be heard and, most importantly, acted upon. -
C5f107d7b033b2909a6be15741a89e40I would like to add one thing not adequately addressed. Where is the patient voice? What rights do they have in how care is delivered and the best way to respond to harmful events they report. My story and call for action is one clear example , where the expertise and values of patients are surely paramount or cannot easily be trumped?
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C5f107d7b033b2909a6be15741a89e40Very useful to know. My story is around the risk of chronic pain management being undermined at a crucial time, without consent and how that could be learned from and minimised
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C5f107d7b033b2909a6be15741a89e40Great session on shared decision making here , a real avenue for patient voices to be heard right from the beginning and ultimately with good guidance may help prevent harm described above
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C5f107d7b033b2909a6be15741a89e40This was a really good event , lots of information. NICE have developed general guidance and guidance for particular conditions is now a focus. I think dealing with needs of patients admitted to A&E needs attention, one being when they are on long established essential medication as I argue here https://www.pslhub.org/learn/patient-safety-in-health-and-care/patient-management/pain-management/please-don%E2%80%99t-undermine-my-pain-relief-a-call-for-learning-and-respect-for-patients-with-long-term-needs-r5699/ please read and share.
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This blog calls for action on the careful review of established pain medication when a patient is admitted to hospital. Richard describes the experience of two elderly patients who suffered pain due to their long term medication being stopped when they were admitted to hospital. Pain control needs must not be ignored or undermined, there needs to be carer and patient involvement and their consent, and alternative pain control must be considered.
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