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richard vA

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Everything posted by richard vA

  1. Content Article Comment
    So worrying indeed shocking. I am soon to update my blog from just a few months ago with more negative news about NHSE Patient Safety where the massive potential role of patients families and public in raising safety concerns based on harmful events is being delayed further due it appears to a lack of resource indeed cuts in the area. Even just the chance to discuss the future options for patient reporting with experts , outside the 'not fit for safety purpose ' both administratively focused ' complaints ' system and the blame focussed litigation system is being delayed to start at earliest april 2023 despite the patient role in this area being still suggested in NHS policies in mid 2021. I will write more updating this blog soon but invite personal messages with insights, concerns, encouragement etc. On what I think ( am I alone thinking this?) Is an urgent topic and massive lacunae in the (non)system. The patient voice is needed throughout systems and processes as Berwick reported but it is still being sidelined, deprioritised, delayed ( you pick the word ) by the powers with the role and responsibility in this area. Agree PSLHUB and your subscribers??
  2. Content Article Comment
    the complaint framework is completely and by definition , i believe ,inadequate to the task to get learning-wrong people, wrong skills and goals. learning and action is needed. yet there is no route for families to pursue apart from complaints system that is widely shared. hence i wrote my blog, there are potential routes for all but they have to be fought for
  3. Content Article Comment
    important issues, my reflections on issues that need more exploration: 1. building back trust after harm events-one challenge-screen people for that challenge 2. safety netting and red flag issues so important with serious, changeable and particularly terminal conditions 3. how to recognise the power differential recognising the expertise patients and family carers may have in their wishes, values, condition, management issues around condition from past experiences, and then respecting and addressing. one of many aspects of shared decision making 4. transitions in and out of hospital-good communications so important but fiendishly complex from beginning to end
  4. Content Article Comment
    So sorry to hear . I would like to be connected with 'Susan' as I am about to enter the process of learning from a palliative care investigation and one element was a late diagnosis of metastatic spread where if this had occurred earlier, more valuable vital support could have been offered . Services are still grappling with this issue and in covid times with massive backlogs the danger is growing without better safety netting systems and also systems able to honestly listen to and learn from patients and families feedback
  5. Content Article
    Sharing his own personal experiences of harm, Richard highlights four routes where patients and families can report patient safety incidents to ensure patients' voices can be heard and, most importantly, acted upon.
  6. Content Article Comment
    I would like to add one thing not adequately addressed. Where is the patient voice? What rights do they have in how care is delivered and the best way to respond to harmful events they report. My story and call for action is one clear example , where the expertise and values of patients are surely paramount or cannot easily be trumped?
  7. Content Article Comment
    Very useful to know. My story is around the risk of chronic pain management being undermined at a crucial time, without consent and how that could be learned from and minimised
  8. Content Article Comment
    Great session on shared decision making here , a real avenue for patient voices to be heard right from the beginning and ultimately with good guidance may help prevent harm described above
  9. Content Article Comment
    This was a really good event , lots of information. NICE have developed general guidance and guidance for particular conditions is now a focus. I think dealing with needs of patients admitted to A&E needs attention, one being when they are on long established essential medication as I argue here https://www.pslhub.org/learn/patient-safety-in-health-and-care/patient-management/pain-management/please-don%E2%80%99t-undermine-my-pain-relief-a-call-for-learning-and-respect-for-patients-with-long-term-needs-r5699/ please read and share.
  10. Content Article
    This blog calls for action on the careful review of established pain medication when a patient is admitted to hospital. Richard describes the experience of two elderly patients who suffered pain due to their long term medication being stopped when they were admitted to hospital. Pain control needs must not be ignored or undermined, there needs to be carer and patient involvement and their consent, and alternative pain control must be considered.
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