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Found 500 results
  1. Content Article
    This report summarises a World Health Organization (WHO) technical consultation focused on strengthening newborn screening, diagnosis and management of birth defects within national health systems in low- and middle-income countries (LMICs). Conducted through a series of global consultations between 2024 and 2025, the initiative examined state-led programmes and operational models from front-runner LMICs and selected upper-middle-income countries. The report addresses the growing contribution of birth defects to child mortality and disability as infectious causes of death decline, emphasising the need for LMICs to integrate newborn screening, diagnosis, management and long-term care for one or a few priority conditions into routine health services and universal health coverage.
  2. Content Article
    The Independent review of maternity services at Nottingham University Hospitals NHS Trust was commissioned in June 2022 and looks at the provision of maternity and neonatal care at the Trust between 2012 and 2025. More than 2,500 families and over 800 staff have contributed to this review. It concluded that there were potentially avoidable outcomes relating to 444 maternity cases examined up to May 2025, alongside 76 neonatal cases. Key issues identified in this report include insufficient staffing and funding across perinatal care settings; the inability of staff to undertake even basic (often, mandatory) training; a persistent failure to listen to and believe mothers and fathers; and a corresponding failure to investigate, and therefore learn from, mistakes. The Review identifies 18 immediate and essential actions to improve care and safety in maternity services across England, which are summarised below: 1. Strengthening women-centred communication and informed choice All women must be provided with clear, consistent and accessible information throughout pregnancy to support informed decision-making. This should include information about labour and birth, pain relief options in labour, anaesthetic care for operative delivery, and the potential benefits and risks of different interventions. 2. Support a nationally agreed perinatal workforce planning methodology as a critical enabler of perinatal improvement at pace and scale Investment should be made in the development and implementation of a robust, evidence-based workforce planning tool across perinatal services. The tool should move beyond birth rates alone to reflect population complexity, including factors such as maternal age, co-morbidities, deprivation, acuity and service configuration. 3. National immediate and essential actions labour ward coordinator (LWC) role Implement a nationally recognised LWC programme for all Band 7 LWC midwives undertaking the LWC role. Provide structured opportunities and support to achieve the competencies and standards outlined across the six domains of the national LWC Framework. Introduce 360-degree feedback for all LWCs to support reflection, performance development and understanding of the impact of behaviour on the multidisciplinary team. 4. All trusts must support training for midwives in the use of speculum examination All Trusts must ensure that midwives are supported to achieve local training competencies to perform speculum examinations for women at any gestation of pregnancy, with clear escalation pathways for women in pre-term labour or those requiring immediate ongoing care. 5. Enhanced maternal care All staff caring for pregnant women must receive regular, structured multidisciplinary training to ensure timely recognition and effective management of the deteriorating woman. Training must equip midwives, obstetricians, anaesthetists, critical care teams and outreach services with the skills, knowledge and confidence to deliver safe, high-quality enhanced maternal care. National education programmes must cover key areas of maternal care and include the recognition and management of lesser-known but clinically important conditions, such as maternal ketosis, to ensure consistent, safe and excellent care across all maternity services. 6. Delivering safe, personalised and equitable maternity care through early risk recognition, coordinated care and responsive services All Trusts must ensure women receive the appropriate ‘safety-netting’ within their care, enabling them to access services and treatments, including the consideration of reducing barriers to enable to the provision of safe maternity care. 7. National standard for standardisation and recording of fetal growth risk assessment There must be standardisation of fetal growth risk assessment, management and audit across RCOG, SBLCB and NICE guidance, with clear concise recommendations on the choice of pathways and charts to ensure consistency of the approach to the reduction in stillbirth. All practitioners performing ultrasound growth scans should have training to undertake and report examinations to meet the standardised methods used in the recommended charts. 8. There must be a national standard and documentation for maternity triage and record keeping in maternity care provision Trusts must develop a robust method of training for midwives providing triage care. This must include minimum competency standards for telephone risk assessment, agreed pathways for mandatory attendance for review and a holistic review of physical, mental and social wellbeing assessment. Suppliers of Electronic Patient Record (EPR) systems must ensure there is a standardised national maternity handover tool that addresses interoperability gaps between Trust systems. All Trusts must implement the standardised national Maternity Early Warning System (MEWS) with clearly defined escalation pathways wherever they are being cared for. 9. Support the development and implementation of a structured assessment framework for the latent phase of labour, ensuring clarity when the ‘latent phase of labour’ becomes abnormal requiring escalation Develop and implement a structured assessment framework for the latent phase of labour, incorporating maternal and fetal wellbeing, the woman’s preferences and narrative, social circumstances, potential barriers to accessing care (e.g. language or socioeconomic factors), time of day, and distance from the unit when determining the appropriateness of admission. 10. All Trusts must define criteria for the safe use of telephone postnatal follow-up, indicating when telephone follow-up is acceptable or when face-to-face follow-up is mandatory The first risk assessment for this should be documented in the woman’s notes in the antenatal period (by 34 weeks gestation), and the risk assessment reviewed before postnatal discharge from the hospital, and after every postnatal community visit. 11. National standard for obstetric anaesthetic record-keeping All Trusts must introduce and use standardised approaches to key areas of maternity anaesthetic care to reduce variation and improve outcomes. An agreed minimum standard for obstetric anaesthetic documentation must be implemented. This should include routine recording of intra-operative pain scores and accompanying narrative log, particularly during unexpected or critical events. 12. Safe, accessible and comprehensive maternity anaesthetic documentation All Trusts must strengthen maternal anaesthetic and critical care documentation, ensuring it is clear, contemporaneous and readily accessible, ideally within a single unified electronic patient record. Documentation must capture all relevant multidisciplinary discussions and care plans, and be woman centred, reflecting the woman’s needs, preferences, and involvement in decisions. 13. Department of Health and Social Care/NHS England (DHSC/NHSE) should introduce and support access to coordinated multidisciplinary debrief and psychological support. DHSC/NHSE must support Trusts to ensure that maternity services provide timely, accessible psychological support for women and families following traumatic events. This must include clear referral pathways, adequately resourced specialist provision, and processes that proactively identify and respond to unmet emotional and psychological needs 14. Funding for implementation of maternity Patient Safety Incident Reporting Framework (PSIRF) DHSC/NHSE must provide adequate funding to address the systemic resource gap that prevents Trusts from operationalising new national policy, enabling women and families to experience safer, more consistent care, with improvement demonstrated through full implementation, audit compliance, and sustained delivery of required standards. DHSC/NHSE should develop clear maternity-specific definitions and guidance on patient-safety incidents to resolve national inconsistency in interpretation, ensuring women and families receive transparent and accurate reporting of harm, with improvement evidenced by nationally standardised grading and reliable national data. 15. Strengthened multidisciplinary governance and learning All Trusts must ensure protected time for multidisciplinary governance, review and learning. This must include learning from both adverse events and examples of good practice to support continuous improvement in the quality and safety of care provided to women. Learning from neonatal PSIRF investigations should be considered alongside maternity investigations, recognising the opportunities for shared learning across perinatal services. 16. Foster a compassionate, psychologically safe, and learning culture All Trusts must actively foster a culture of safety, compassion and respect across all maternity services. Staff must feel supported to speak up and raise concerns without fear of reprisal. Women must feel listened to, respected, and fully involved in decisions about their care. Trusts must promote compassionate leadership, a civil and kind workplace, and the use of positive feedback as a tool to reinforce good practice and drive continuous improvement. A psychologically safe and learning culture is essential to improving clinical outcomes, supporting staff wellbeing and enhancing the experiences of women and their families. 17. DHSC/NHSE should recommend and support recruitment processes and implement a consistent onboarding package for new starters Trusts must streamline recruitment processes and implement a consistent onboarding package for all staff involved in the delivery of perinatal care with named supervision and support during initial shifts. 18. All Trusts to ensure compliance, audited annually, with the NHS Records Management Code of Practice post-death care The report also notes that in post-death care, Trusts should cease the practice of conducting post mortem examinations anywhere except the mortuary. They should ensure all investigations or reviews into after-death care include an independent post-death care specialist. Nationally there should be statutory regulation of Anatomical Pathology Technologists introduced.
  3. News Article
    Mollie Sutton has spent the past seven years waiting for answers. Her son Rupert, aged 7, was born with severe disabilities and is now unable to walk or talk. He also has the mental capability of a four-month-old baby. Ms Sutton, 27, endured a harrowing labour before Rupert’s birth and believes failures by Nottingham University Hospitals (NUH) NHS Trust, both before and during her labour, may have caused his severe physical and mental disabilities. She is one of hundreds of families now seeking answers as to why their babies died or were left with disabilities at Nottingham hospitals. An inquiry by Dame Donna Ockenden, which has looked at thousands of cases of alleged poor care at the hands of the trust, is due to publish a report into its failings on Wednesday as part of what has become the largest ever maternity review in NHS history. Ms Sutton told The Independent: “This can't continue to happen. How many more dead babies, dead mothers, harmed babies, harmed mothers do we have to see until somebody actually finally puts their foot down and does something about it?” It was in September 2018, at 34 weeks pregnant, that Ms Sutton was admitted to the hospital and diagnosed with sepsis. Three weeks later, at 37 weeks, her labour was induced. Ms Sutton, who was aged 19 at the time of the birth, described the intense pain she experienced during her labour. But she believes her begs for help were ignored due to her age. “I was begging for pain relief. But I was told that I'm only two centimetres – I'm being dramatic. ‘I don't know why you're screaming because there are women on this ward with real problems,” she said. At 4am, Ms Sutton, alone with her husband, said the baby suddenly seemed close to arrival so her husband pressed the emergency buzzer. Midwives came running into the ward, Ms Sutton remembers. The curtains had to remain wide open due to the number of people, and Ms Sutton says she was given no dignity at all. Ms Sutton is now waiting to find out whether her son’s disabilities were caused by her care during and after her labour. But, as she awaits a report from the Nottingham inquiry team and a separate one from NUH, she said she wants urgent change. She said: “They [the government, regulators and NHS] knew what was happening and they did nothing to stop it. The [watchdogs] CQC, the GMC, the NMC, and previous secretaries of state, they all knew what was happening. And they should be held accountable in a judge-led inquiry.” Read full story Source: The Independent, 24 June 2026
  4. Content Article
    The long-awaited report into maternity failures at Nottingham University Hospitals NHS trust, the largest investigation of its kind in the UK, involving about 2,500 families, will be published shortly. Led by the senior midwife Donna Ockenden, the inquiry investigated stillbirths, neonatal deaths, maternal deaths and babies or mothers who suffered brain damage and other injuries between 2012 and 2025. In this article some of the families affected share their stories about what happened to them in Nottingham, and explain why this is such a landmark moment.
  5. News Article
    The family of a girl left brain-damaged at birth have agreed to accept £28m in damages after the NHS trust involved admitted that its mistakes led to the tragedy. Barking, Havering and Redbridge university hospitals NHS trust failed to monitor the baby’s heart rate while her mother was in labour or ask an obstetrician to review the case, either of which might have led to the girl being born in a healthy condition. The girl, who is six, suffered severe hypoxia-ischaemia – loss of oxygen to her brain – while she was being born at Queen’s hospital in Romford, east London, in July 2019. That left her badly disabled. She has epilepsy, experiences unpredictable seizures and is expected to lose mobility throughout her life. She will need lifelong care to help with her cognitive and language impairments. She will also need constant supervision because she has no awareness of danger and is overly friendly with strangers. The girl’s mother demanded urgent action by ministers and NHS bosses to overhaul maternity care, which is in the spotlight after a series of scandals at trusts across England. “My daughter is thriving and doing well. But it’s impossible for me to forget that I was robbed of the precious experience of most mothers giving birth by the horror of what happened to us,” said the mother. Neither she nor her daughter can be identified for legal reasons. “Seven years on, I’m still deeply affected by seeing the hospital’s name crop up in the press regarding tragedies for other families and their babies. This is despite the repeated promises of the government and endless reviews into maternity safety. Surely someone must take the bull by the horns and take action to change things.” Read full story Source: The Guardian, 4 June 2026
  6. News Article
    New parents require enhanced guidance on the safe use of baby slings, according to new research. Baby sleep experts at Durham University are advocating for improved education for parents, both pre-purchase and at the point of sale. A survey of 1,470 parents with infants under one year old revealed that nearly nine out of ten acquired their sling or carrier online. Of these, a mere three per cent received assistance from a virtual sales assistant or chat function, highlighting a significant gap in direct support. Researchers stress the need for more accessible and comprehensive safety information to prevent potential misuse. The survey found that even experienced parents had difficulty with positioning the baby in a sling, creating comfort for the carrier and securing the infant safely. Unsafe use of baby slings has been linked to accidental deaths from suffocation or falls. In 2023, six-week-old James Alderman died in a carrier during hands-free breastfeeding, leading a coroner to issue a warning. With incorrect sling or carrier fitting, a baby’s nose or mouth can be pressed against the parent’s body or blocked by fabric. In other cases, the baby can slump down in the carrier and their windpipe can become pinched. Read full story Source: The Independent, 4 June 2026
  7. Event
    The World Health Organization (WHO) are pleased to invite you to the fourth webinar in a five-part global webinar series on the implementation of the World Patient Safety Day Goals for safe care for every newborn and every child. This webinar will bring together global experts and practitioners to discuss practical solutions and evidence to reduce risks for small and sick newborns The webinar will focus on: Why reducing risks is essential for the safety of small and sick newborns. How Goal 5 can be implemented in practice at the point of care. What health care workers, leaders, managers, and policymakers can do to reduce risks for small and sick newborns. This webinar series is co-hosted by the World Health Organization, the International Pediatric Association, and the Child Health Task Force. Register
  8. Content Article
    Group B Streptococcus (GBS) is the leading cause of serious bacterial infection in the first few weeks of life and is a major global cause of neonatal meningitis, sepsis and pneumonia. This report examines clinical negligence claims related to early onset GBS disease in neonates. The analysis reviewed 19 closed claims notified between January 2016 and March 2023, of which 11 were settled with damages paid. The total cost of these closed claims was £1,430,894, including claimant legal costs, NHS legal costs and damages. The report makes practical recommendations for maternity and neonatal services, including improved triage systems, robust processes for tracking and communicating test results, and enhanced staff training in recognising signs of sepsis. Did you know? Most babies in this group were symptomatic within the first 24 hours of life. Most babies in this cohort presented as being unwell at the time of birth or with early jaundice or poor feeding. 79% of infants required a prolonged inpatient admission, with the mean stay being 6.6 days and the maximum being 21 days. Across all these claims, this included days on neonatal units (NICUs), paediatric intensive care units (PICUs), postnatal wards and paediatric wards. Only 25% of babies in this group received antibiotics within the nationally recognised 1-hour target. In this group of babies with early onset GBS disease, the proportion of mothers known to be colonised during pregnancy, found to be colonised during or after the delivery, and not known to be carrying GBS at all were almost equal (i.e. around a third in each of these categories). Further reading on the hub Top picks: 7 resources about Group B Strep
  9. Content Article
    The Maternity and Newborn Safety Investigation (MNSI) has reviewed 20 investigations into the cooling of term babies across England. The findings show that national guidance on continuous temperature monitoring during cooling was not followed in half of cases. Ensuring continuous temperature monitoring during newborn cooling is an important area of learning identified through our neonatal investigations. A review of 20 investigations found opportunities to strengthen practice in line with national guidance in half of cases. The new MNSI safety briefing draws on what we have learned through our investigations and aims to support the safe care of babies undergoing cooling in maternity and neonatal settings. The briefing shares our evidence and insight on this topic and provides prompts for maternity and neonatal providers to consider: Whether local guidance on cooling aligns with national guidance, including when to commence passive cooling and the use of rectal temperature probes. Whether staff have the training and equipment they need to initiate cooling safely and consistently.
  10. News Article
    Hard-won successes in efforts to stop women and babies dying in childbirth have faced a serious setback with recent cuts to foreign aid – and the trend is now reversing in some countries, new figures show. Significant progress in tackling preventable maternal mortality across the globe had seen the rate decline by 40% in the last two decades. However, the latest data from the World Health Organisation (WHO) suggests this progress has slowed in recent years, and recent aid cuts by the US, as well as other countries including Britain, will start to reverse those crucial gains. With Donald Trump in particular slashing America’s foreign assistance programmes by 57%t last year, global aid fell by 23% cent in 2025 compared to 2024, and is projected to drop by a further 5.8% in 2026. Maternal mortality is particularly acute in parts of Africa, and is already playing out in the Central African Republic, which has the second-highest rate of neonatal deaths globally, according to the UN. Monica Ferro, head of the United Nations Population Fund’s London office, said that the work over the last 20 years had given the world “hope that finally the world would be on track to reach zero preventable maternal deaths”. “We know that when funding is cut, services are shut down and women die. It is that simple. It may sound cruel, but it is that simple, and we have the evidence to prove it.” “It is very disappointing. The women and girls who are losing access to services will not forgive us for promising them a world with more dignity and then failing them because funding is being withdrawn.” Read full story Source: The Independent, 10 May 2026
  11. Content Article
    Following the publication of their 2025 to 2027 strategy in December 2025, Maternity and Newborn Safety Investigations (MNSI) shared more about their work and future ambitions with stakeholders across maternity and neonatal services. The event featured four presentations covering: Structured Perinatal Analysis Report Coding (SPARC) explored how we use coded, thematic data from MNSI investigations to identify patterns and support learning at both local and national level. Culture of Organisations and its iMpact on PatientS' Safety (COMPASS) focused on how we measure and support improvement in safety culture across maternity and neonatal services. Health Equity Warning Score and Health Equity Assessment and Resource Toolkit (HEART) looked at how we identify and address health inequalities through our investigations, ensuring that the findings we generate reflect the experiences of all families. Our investigations and the wider stakeholder environment set our work in context, exploring how MNSI investigations connect with the broader landscape of maternity and neonatal safety improvement. If you missed the event, recordings are available on the MNSI website.
  12. News Article
    More babies are suffering life-threatening bleeding across the U.S. as parents skip a basic injection for their newborns with vaccine skepticism rampant in today’s world, and doctors are sounding the alarm about the rising trend. Medical experts say the decline in standard vitamin K injections for newborns is leading to preventable deaths and severe brain injuries. Data from a national study of more than 5 million births, published in the journal JAMA, found that the rate of infants not receiving the shot at birth reached 5% in 2024. This represents a 77% increase since 2017. In some hospital systems, such as St. Luke’s Health System in Idaho, refusal rates have more than doubled since the start of the pandemic, with one facility reporting that 20% of families opted out of the procedure. Medical records and autopsy reports reviewed by ProPublica show a recent string of infant deaths across several states, including Maryland, Alabama, Texas and Kentucky. Pathologists attributed these deaths to vitamin K deficiency bleeding, a condition where the blood cannot clot, causing internal haemorrhaging. Research shows that infants who do not receive the shot are 81 times more likely to develop late-onset bleeding than those who do. According to the Centers for Disease Control and Prevention, one in five babies who develop the condition will die. Read full story Source: The Independent, 6 May 2026
  13. News Article
    A trust whose maternity care is under scrutiny is launching a review of all stillbirths last year, it has confirmed to HSJ. Sandwell and West Birmingham Trust (SWBT) confirmed it was due to begin a review of all 2025 cases. This will include a “comprehensive” review of care provided to identify “themes and learning”. It will also examine the reviews that staff carried out at the time of the stillbirths – a process which uses the national perinatal mortality review tool (PMRT). There have been concerns about whether those reviews were carried out properly at SWBT. The new review will be led and hosted by SWBT, but with experts from NHS England, and clinicians from other trusts in the local maternity and neonatal system (LMNS), taking part. It is the latest in a string of reviews to examine maternity care at SWBT, including the ongoing national investigation by Baroness Amos. The trust’s perinatal mortality has been flagged multiple times as an outlier, but it improved in the most recent data. Read full story (paywalled) Source: HSJ, 24 April 2026
  14. News Article
    A mother who lost her baby a week after an “unsafe” home birth that went against medical advice was failed by the NHS, an inquest has found. Poppy Hope Lomas was seven days old when she died at University College hospital in London on 26 October 2022 after complications during a home birth that, according to her mother, was encouraged by midwives at Barnet hospital. An inquest into Poppy’s death at Barnet coroner’s court concluded that she probably died from a lack of oxygen reaching her brain in the 30 minutes before she was born. The senior coroner Andrew Walker said the Royal Free London NHS foundation trust had agreed to support Poppy’s mother, Gemma Lomas, with an “unsafe home delivery that was against medical advice” and had failed to address “an accumulation of risk factors”. After the inquest concluded on Thursday, Lomas said outside the court: “Nothing will ever bring her back, but hearing the truth today acknowledged means everything to us. “We trusted the professionals who were guiding us,” she said, adding that she hoped lessons would be learned. She previously told the inquest that midwives had actively encouraged her to have a vaginal birth at home, despite the risks because she had given birth to her first daughter, Willow, by caesarean section in 2018. Guidance from the Royal College of Obstetricians and Gynaecologists says vaginal births after caesarean (VBACs) should take place in a “suitably staffed and equipped delivery suite” and “with resources available for immediate caesarean delivery”. “I was encouraged to do what we did,” Lomas said. “I would have never made decisions to harm myself or my baby in any capacity.” Read full story Source: The Guardian, 23 April 2026
  15. News Article
    Limits should be introduced on the "unmanageable" caseloads of health visitors in England, with some now responsible for more than 1,000 families each, the Institute of Health Visiting (iHV) has said. The number of health visitors - qualified nurses or midwives who support families with very young children - has almost halved in the last decade. In January, the Health and Social Care Committee said the government would fail in its ambition to give every child the best start in life, unless it took urgent action to rebuild the workforce. The Department of Health and Social Care (DHSC) says the government is "committed to strengthening health visiting services". Emma Dolan, a health visitor with Humber Teaching NHS Foundation Trust in Hull, says her "top priorities" are to spot potential issues early, and offer advice to parents on things like their baby's wellbeing and sleep to prevent problems arising later. "We want our babies to live long and happy lives [by] giving that support nice and early and making sure that families know what services are out there." However, BBC analysis has shown the number of health visitors in England has fallen from 10,200 a decade ago, to 5,575 in January - a drop of 45%. iHV chief Alison Morton says families are paying the price for the decline in the workforce. "We need to set a benchmark, otherwise we're just going to continue to see this decline with hugely unmanageable, unsafe caseloads which are impossible for health visitors to work within," she says. "Health visitors are having to prioritise, and actually prioritisation has a human cost. "They're having to tell families: 'I'm sorry, I can't do that extra follow-up visit', when you know it would have made a massive difference to that family." Even if England did bring in safe staffing limits, according to Morton, there aren't enough health visitors currently employed to provide that level of coverage. "We need more health visitors so that we can have manageable caseloads," she says. Read full story Source: BBC News, 20 April 2026
  16. News Article
    A vaccine during pregnancy which protects newborns against nasty chest infections is cutting hospital admissions of babies by more than 80%, UK health officials say. A virus, called RSV, affects many babies in the first few months of life and can leave them gasping for breath and struggling to feed, with more than 20,000 babies ending up seriously ill in hospital in the UK every year. Since 2024, women have been offered a vaccine from 28 weeks of pregnancy to protect their newborns. A new study analysing the impact of the vaccine shows it gives "excellent protection" to babies when they are most vulnerable to RSV, the UK Health Security Agency (UKHSA) says. RSV (respiratory syncytial virus) is one of the main reasons young babies are admitted to hospital before the age of one. Half of newborns catch the virus, which can cause anything from a mild cold to a life-threatening chest infection because of inflammation in the lungs. Small numbers die from it every year. The new vaccine was introduced in the UK in 2024 after clinical trials showed it could boost a pregnant woman's immune system enough to pass on protection to the baby through the placenta. This means babies born to vaccinated pregnant women are protected from the day they are born. This new study shows the protection is nearly 85% when given at least four weeks before baby is born. Some protection is still possible if the jab is given later than this. Read full story Source: BBC News, 18 April 2026
  17. News Article
    A children's nurse has been struck off from practising after the regulator found serious care failings. Elzabeth Lennon, a children's nurse working in Northampton, was reviewed by a Nursing and Midwifery Council (NMC) Fitness to Practise Committee over care provided in March 2022. The panel previously found she failed to carry out regular checks of a cannula location, did not properly respond to repeated infusion pump alarms, and did not escalate concerns for "Baby A", a vulnerable baby when required. "Mrs Lennon's actions breached fundamental tenets of the profession, pose an ongoing risk to patient safety and would be deemed concerning by the members of the public," the panel said. The panel said Lennon had "addressed how she would handle a similar situation differently in the future", and accepted her statement that, although she made mistakes, she believed she was acting in Baby A's best interests. However, the NMC panel found she had not shown a full understanding of the seriousness of her misconduct or its impact on colleagues and the nursing profession. Because of this, the panel said there was an "ongoing risk of repetition", and so "a finding of impairment is necessary on the grounds of public protection". Read full story Source: BBC News, 14 April 2026
  18. News Article
    An inquiry into the preventable deaths of babies in Sussex will fail to learn the lessons as it “systematically” excluded dozens of families, Wes Streeting has been warned before a meeting with bereaved parents. The health secretary has ordered a review of nine infant deaths at the University Hospitals Sussex NHS foundation trust amid maternity scandals across England. However, families are calling on Streeting to expand the investigation to all those who died and might have survived with better care. To date, the families of more than 60 babies who died between 2019 and 2023 have expressed concerns about their care, although the true figure is expected to be higher. Dr Marija Pantelic, a public health expert whose baby Sasha died in the care of UH Sussex in January 2022, said the narrow scope and opt-in nature of the review was dangerous and potentially harmful as it would be based on the experiences of an “overwhelmingly white and British” group of parents. Parents want an expanded investigation to be led by Donna Ockenden, the senior midwife who is leading maternity inquiries into preventable deaths at NHS trusts in Nottingham and Leeds. They also want the Sussex investigation to actively seek out families who are affected so it is not based only on the nine cases whose parents have raised the alarm. Pantelic, an associate professor in public health who specialises in health inequalities, said it should alarm Streeting that the review would be based on the experiences of the “overwhelmingly white and British” families who had come forward. “If you only hear from certain groups, you will only see certain problems,” she said. “For instance, you can be sure not to identify racism if you only hear from white families. If you fail to identify the real drivers of harm, the solutions you propose will be partial at best, and harmful at worst.” Read full story Source: The Guardian, 13 April 2026
  19. Content Article
    This case study is one in a set of patient safety ‘how we acted on patient safety issues you recorded’ case studies which show the direct action taken in response to patient safety events recorded by organisations, staff and the public, and how their actions support the NHS to protect patients from harm. The National Patient Safety Team were notified by a trust Medical Device Safety Officer (MDSO) of an incident where a baby ingested the cap off a purple colostrum syringe. The baby was being fed expressed colostrum by the parent who was unaware of the presence of the cap when the feed started . Colostrum is the first breast milk the mother produces providing important nutritional benefits for newborns. When pressure was placed on the syringe plunger accidental cap dislodgement occurred and the baby required surgery to remove the cap. Despite the purple colour, the syringe was not licenced for the administration of colostrum. Collaboration with the MHRA resulted in the issuing of a device safety information alert. Working with key midwifery and neonatal stakeholders, a safety communication on reducing the risk of choking was issued to maternity and neonatal units. When advised of the safety issue, the manufacturer ceased production of the syringe and have introduced a new licenced colostrum collection and administration syringe. The new syringe does not have a cap and is available to order from the NHS Supply Chain. This intervention should reduce the risk of accidental ingestion of syringe caps.
  20. News Article
    Former Little Mix star Jesy Nelson has said she is “proud” of having reached a “major milestone” as a rollout of screenings for spinal muscular atrophy (SMA) is to begin earlier than expected. The singer, 34, campaigned for all newborn babies to be screened for SMA after her twins, Ocean Jade and Story Monroe Nelson, were diagnosed with the rare condition, which causes progressive muscle wastage. In a letter addressed to Nelson and Giles Lomax, the chief executive of the charity SMA UK, health secretary Wes Streeting confirmed that screenings will be rolled out earlier than planned and begin as part of in-screening evaluations (ISE) from October 2026 instead of January 2027. Read full article. Source: The Independent, 2 April 2026
  21. News Article
    Four hospital trusts have been assessed as having higher than expected rates of both stillbirth and neonatal deaths, according to HSJ analysis of a national safety audit. Only one of those trusts scoring highly on both measures is part of the ongoing national government maternity inquiry. That is University Hospitals of Leicester Trust. Three other trusts that are not part of Baroness Valerie Amos’ review were also rated “red” for these measures: South Tyneside and Sunderland, East Suffolk and North Essex, and Royal Devon University Healthcare Foundation Trusts. A red rating means their adjusted death rate was at least 5% cent higher than peers. The four trusts are also red rated for “extended perinatal mortality” - which combines the two other metrics - including stillbirths after 24 weeks of pregnancy and “neonatal” deaths up to 28 days after birth. MBRRACE study author Brad Manktelow, from Leicester University, told HSJ the mortality rates reported are not definitive measures of care quality. But he added: “However, given the information that is available, the rates reported by MBRRACE-UK are robust and make an important contribution in highlighting those organisations where extra investigations should be targeted [to] improve the quality of perinatal and neonatal care in the UK.” Read full story (paywalled) Source: HSJ, 26 March 2026
  22. News Article
    A coroner has called for action after the death of baby Madison Bruce Smith, who died after he was placed in an "unsafe sleeping position" in his cot by an unregulated maternity nurse. The four-month-old grandson of football manager Steve Bruce was found unresponsive by his father, ex-Leeds United and Fulham striker Matt Smith, on the morning of 18 October 2024. Madison could not be resuscitated at the family home in Trafford, Greater Manchester, and was taken to Wythenshawe Hospital where he was pronounced dead by paramedics. Mr Smith and his wife, Bruce's daughter Amy, had employed Eva Clements through a company named Ruthie Maternity Services after their son had difficulties sleeping in the afternoons. They believed Ms Clements was skilled, fully trained and vetted, and that the company was a well-established maternity and sleep support service, but Stockport Coroner's Court heard that neither was regulated. In a short, narrative conclusion, senior coroner for south Manchester, Alison Mutch, said: "Madison died in circumstances where his cause of death could not be ascertained while asleep in his cot having been placed in a prone and unsafe sleeping position." She said the "purported expertise" of untrained people posed a risk to all children where those unregulated services were used. Issuing a prevention of future deaths report to the Secretary of State for Health, she said: "I hope the services can be regulated and, going forward, parents are not left in a situation where they believe they are employing someone who is qualified to advise them when they are clearly unqualified." Read full story Source: Sky News, 24 March 2026
  23. Content Article
    The All-Party Parliamentary Group (APPG) on Patient Safety welcomes the National Maternity and Neonatal Investigation (NMNI) led by Baroness Amos, and the opportunity to contribute to its work. To inform this submission, the APPG for Patient Safety convened a roundtable discussion in January 2026 bringing together bereaved families, senior clinicians, Royal College leaders, NHS England representatives, academics and patient safety organisations. The discussion reflected perspectives from those directly affected by maternity failures as well as those responsible for delivering and improving services. A clear consensus emerged across participants. The system is not short of inquiries or recommendations. Over the past decade, investigations into Morecambe Bay, Shrewsbury and Telford, and East Kent have exposed serious failures and produced hundreds of recommendations. Yet many of the same issues continue to recur: poor teamwork, weak accountability, defensive cultures and a failure to translate learning into sustained change. Participants emphasised that further operational recommendations alone will not solve these problems. Instead, the final report from the investigation should focus on a small number of structural reforms capable of transforming how maternity services are organised, led and held accountable. The APPG for Patient Safety has separately urged the Secretary of State for Health and Social Care to maintain the statutory independence of the Health Service Safety Investigation Branch (HSSIB) and not proceed with plans to fold HSSIB into the CQC. Drawing on the roundtable discussion, the APPG urges the investigation not to place disproportionate emphasis on staffing or funding. Both matter, but since 2014, per delivery there are now significantly more staff: 93.1% more neonatal nurses 29.7% more midwives 52.3% more obstetricians and gynaecologists That may have contributed to a fall in the perinatal mortality rate in England - meaning around 700 fewer baby deaths per year. The APPG therefore urge the National Maternity and Neonatal Investigation (NMNI) to look at structural reforms which, in the APPG’s view, are more likely to lead to an immediate improvement in safety and experience.
  24. News Article
    Scotland has become the first part of the UK to test newborn babies for Spinal Muscular Atrophy (SMA). The rare genetic condition causes progressive muscle weakness and, without treatment, can limit life expectancy to just two years. Babies can be identified as having SMA through a heel prick test and early treatment can prolong their lives. As part of a two-year pilot, this test will now be given to all babies born in Scotland. The test has come too late for Grayce Pearson, now three, from Milton, Glasgow, who was diagnosed with SMA when she was a baby. She lacks a protein vital for muscle development which affects everything from walking to swallowing and breathing. Her father Tony said: "Overnight she stopped kicking her legs and wasn't attempting to crawl. She wasn't trying to reach out for things." Getting a diagnosis is a race against time because as nerve cells die, treatment options and outcomes change. After raising concerns about her six-month-old baby's decline in movement, her mother Carrie said she was at first told she was just being an over-anxious mother. "A child just doesn't stop being able to physically move her legs altogether," she said. Grayce was eventually diagnosed with SMA type 2 - which is less severe than SMA type 1 - when was 14 months old. Carrie said: "Grayce's age when she was diagnosed, she couldn't get gene therapy, which would have been a one-off and she probably would have been making her milestones." Read full story Source: BBC News, 23 March 2026
  25. News Article
    At least 58 babies at an NHS maternity unit might have survived with better care, a BBC investigation has found. The deaths included 32 stillbirths and 26 neonatal deaths - which is a death within 28 days - at Oxford University Hospitals Trust (OUH) between 2019 and 2024, according to a Freedom of Information request. Bereaved and harmed mothers have blamed missed chances, "arrogance" among some senior doctors and a "defensive culture". In a statement, OUH said it was sorry some mothers have had experiences that have left them feeling this way. It added the figures included mothers and babies who were referred to the trust for specialist care from across the region and every baby death was reviewed in detail to "fully understand what happened and whether improvements are required". Laura Cook, a partner at Medilaw, told the BBC: "They carry out a tick-box exercise with internal reviews to look like nothing could have been done, it forces families to go to lawyers who then find there's more to it... it puts families through hell. "What stands out with Oxford is its defensiveness, it's clear that reputation is of the upmost importance, it's not the same with other trusts." The trust said it recognises some families remain dissatisfied and it takes feedback seriously. Read full story Source: BBC News, 19 March 2026
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