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Showing results for tags 'Patient / family involvement'.
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Content ArticleNadia Leake and Rachel Collum discuss the need for Family Integrated Care (FIcare) in neonatal intensive care units (NICU). FIcare is an approach that facilitates parents to be primary caregivers to their child while they are in NICU, allowing them to love and nurture their child. For it to work well, it requires a culture in the hospital that encourages bonding and family. Nadia and Rachel discuss their own experiences of FIcare, and of units where it has not yet been fully developed, and underline how the approach enables families to bond and supports better outcomes for premature babie
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Bleed Out: HBO documentary (2018)
Patient Safety Learning posted an article in Investigations and complaints
In 2009, Steve Burrows’ mother, Judie, an active and independent retired teacher, fell while riding her bike and was rushed to the hospital for hip surgery. After months of painful recovery, she fell again. Then, after eight days in the hospital and a second hip surgery, in which she lost approximately half her blood, the 69-year-old fell into a coma and suffered permanent brain damage. Questioning whether his mother received adequate care in surgery and in the hospital’s “e-ICU” unit, in which doctors sometimes monitor patients remotely by camera, Burrows consulted friends and lawyers, e -
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1 Medication delays: A huge risk for inpatients with Parkinson’s In this blog, Laura Cockram, Head of Policy and Campaigning at Parkinson's UK talks about the serious health implications of medication delays for people living with Parkinson's disease. She also offers recommendations for how hospitals can reduce the risk of harm. 2 Improving safety for diabetic inpatients: 4 key steps In this short film, National Specialty Advisor for Diabetes, Partha Kar shares 4 steps for improving the safety of diabetic inpatients. 3 Neonatal herpes: Why healthcare staff with cold sores s -
Content ArticleAlice Ladur talks to Gill about her pilot study to determine the effect of engaging Ugandan men in bringing about culture change and improving maternity outcomes in Uganda. Alice discusses how she adapted Whose Shoes?® for a new audience. She also talks about the initial findings of her study, which include the men involved becoming more concerned, caring and aware of the impact of their behaviour and attitudes on their spouses. Related reading Whose Shoes: an exciting and innovative way for health and care staff to explore concerns, challenges and opportunities together Whose Sh
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The empty chair, a blog by Dr Chris Tiplady
Patient-Safety-Learning posted an article in Blogs
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Content ArticleThe webinar panel: Rachel Power (chair) - Chief Executive, Patients Association Ruby Bhatti OBE – Patient/Carer, Patients Association member Hameed Khan - Patient/carer, Patients Association member Alexandra Freeman - Executive Director, Winton Centre for Risk and Evidence Communication Jonathan Berry - Personalised Care Group, NHS England & Improvement Victoria Thomas - Head of Public Involvement, NICE You can also view the presentation slides from the webinar
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Content ArticleFindings Findings of this investigation included: The existing systems for triage do not always take into account the colour of a patient’s skin. This may influence a healthcare professional’s assessment of an infant’s/child’s physical signs. Staffing standards that relate to the treatment of children in emergency departments cannot always be met due to workforce challenges, particularly in hospitals without a dedicated paediatric emergency department. Sometimes parents describe feeling powerless when trying to articulate their concerns for their child. Some healthcare
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I love and support the NHS. But when things go wrong for patients and service users, the system is often too slow to change or respond effectively. I have been through complaints, the Ombudsman and Inquest processes around the poor end of life care of my late mother. Those processes took years and were almost as stressful as those last few days of my mother’s life. I would not do it again. At the time, I reported the incident in detail to the CQC (inspectors), to the CCG (commissioners), to Healthwatch (local and national), but I noted no evidence of change. In fact, the CQC continued for -
Content ArticleThe UK government’s handling of the coronavirus pandemic was “grossly negligent” and amounted to misconduct in public office, an inquiry set up by the campaign group Keep our NHS Public has concluded. In a foreword to the inquiry’s report Mansfield said, “From lack of preparation and coherent policy, unconscionable delay through to preferred and wasteful procurement, to ministers themselves breaking the rules, the misconduct is earth-shattering. The public deserves the truth, recognition and admissions.” The report highlights the government’s failure to prepare for a pandemic despite
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News Article
Elizabeth Dixon: Lessons not learned after baby death cover-up, says family
Patient Safety Learning posted a news article in News
The family of a baby who died after errors in her care have criticised the failure of the NHS to learn lessons. Elizabeth Dixon died due to a blocked breathing tube shortly before her first birthday and a subsequent independent investigation found a 20-year cover-up. A year on, Elizabeth's mother Anne told the BBC: "My daughter has not been a catalyst for change." The Department of Health said it was working on the report's recommendations and will publish "a full response". Elizabeth Dixon, known as Lizzie, was born prematurely at Frimley Park Hospital, in Surrey, in Decem -
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Content ArticleFurther reading Blog by Kristin Flanary: The Quiet Place (15 November 2021)
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Content ArticleFurther reading Video: Journal of Cardiac Failure Full Length Interview with Kristin And Will Flanary
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Content ArticleAs educators and narrators, patients, service users and carers can share their experiences of care with healthcare leaders on development programmes. The storytellers we have share a range of experiences, some very positive with a ‘why can’t all care be like this?’ focus to those who have had very poor care. As an experience of care partner, you will have some preparation to do and will be debriefed afterwards. You will be supported throughout sessions, as it can often get emotional. You can find out more about what the role involves and register your interest by using the link below
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Content ArticleThe Comprehensive Model for Personalised Care has been co-produced with people with lived experience and a wide range of stakeholders and brings together six evidence-based and inter-linked components, each of which is defined by a standard, replicable delivery model. The components are: Shared decision making Personalised care and support planning Enabling choice, including legal rights to choice Social prescribing and community-based support Supported self-management Personal health budgets and integrated personal budgets. Through these standard mo
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Content ArticleOn her admission to hospital, the patient had been assigned the NHS number of another patient, who had the same date of birth and a similar name. During her stay she initially received medication prescribed to her based on her own supply, brought in by her family. However, following a pharmacy review on day 7 of admission, the medications were changed to those of the patient whose NHS number she had been incorrectly assigned. The patient declined to take the incorrect medication and the error was subsequently identified by a pharmacist the following day. Findings The investigation ide
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Content ArticleWhilst there have been examples of good practice and praise from carers, the report found a number of areas of consistent concern: Patients, in some cases, were provided with very low levels of care but needed much more. This questions whether they should have been placed on a higher pathway and given an adequate level of support. Carers were not consulted about or involved in discharge. Consideration was not always given to a patient’s ability to remember or recall important information putting the patient’s and, at times, the carer’s health at risk. Some carers were
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News ArticleThe family of a woman who died after being repeatedly overdosed with paracetamol in an NHS hospital have demanded action over her death amid allegations of an NHS cover up. Laura Higginson, a trainee solicitor and mum of two, died after seeking medical help for sickness and pneumonia. She died two weeks later from multi-organ failure and sepsis. Whiston Hospital, in Merseyside, has admitted to the overdose but denied it caused her death and rejects any suggestion of wrong doing. But expert reports, seen by The Independent, including from a liver specialist, questions the trust’s
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Content ArticleThis report analysed the survey responses of 8,119 people currently providing care in the UK. It highlights the impact of the Covid-19 pandemic on unpaid carers' lives because of the increased amount of care they are having to provide, and the knock-on affect this has on other areas of life. Carers UK estimates that an additional 4.5 million people became unpaid carers in March 2020 due to the pandemic. The report makes a number of recommendations to the Government relating to: carers and their finances, including increasing the carers allowance and changing eligibility for other
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Content ArticleThe report highlights difficulties experienced by people with dementia in hospital during the early stages of the Covid-19 pandemic, including: visiting restrictions, which led to isolation, loneliness and lack of stimulation. frequent bed moves and disrupted continuity of care. communication difficulties exacerbated by staff wearing PPE. loss of specialist staff due to redeployment, sickness and shielding. It also highlights changes implemented as as result of the pandemic that have resulted in care improvements, including: new methods of joint working
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Content ArticleMain session videos Investigation science: Fundamentals of a professional safety investigation In this session the HSIB investigation education, learning and standards team discuss the features and current progress of the science of investigation, or Investigation Science as it has been named by Dawn Benson, our head of investigation education. The team highlights the foundations of Investigation Science in the implementation of national, organisational and team-based incident investigations in healthcare. Download the presentation View the video What HSIB has lear
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