Welcome to the hub.
A platform to share learning for patient safety.

Sunday is Rare Disease Day. The main objective of the day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

1 in 20 people will live with a rare disease at some point in their life. Despite this, there is no cure for the majority of rare diseases and many go undiagnosed. Rare Disease Day improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases.

Take a look at some of the patient safety resources on rare diseases we have on the hub.