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Showing results for tags 'Inclusivity'.
Found 59 results
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Content ArticleIt’s nearly 30 years since the Food and Drug Administration (FDA) Modernization Act of 1997, when Congress instructed the US Health and Human Services (HHS) secretary to consult with the National Institutes of Health (NIH) director and the pharmaceutical industry to “review and develop guidance, as appropriate, on the inclusion of women and minorities in clinical trials." In this JAMA article, Rita Rubin examines concerns that the Trump administration’s dismantling of diversity, equity, and inclusion (DEI) efforts at the FDA and NIH will result in a reversion back to the days when new treatments were tested mainly in cisgender White men—and not even all shapes and sizes of them.
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Content ArticleThe EDI Framework is a consensus-based guide developed by the Equality, Diversity, and Inclusion (EDI) Lead and working group of the NIHR’s Clinical Research Network North West London. This work involved analysing challenges to integrating EDI within the clinical research process, for example, in clinical trial protocols as directed by industry sponsors and NHS investigator teams. The framework is targeted at clinical research teams, industry sponsors, and academic investigators. The framework recognises that the lack of diverse clinical research populations fuels health inequalities in the UK and the need to reverse this. It aims to embed equity, diversity, and inclusion processes within clinical trials and health and social care research. Key objectives include: To provide a practical framework for positive action integrating EDI into clinical research design, protocols, and implementation. Establish accountable clinical research systems that are trustworthy to the public and accessible to diverse communities. It advises an interconnected approach to embedding EDI throughout the entire clinical research lifecycle. By following this framework, the EDI working group aspires to guide clinical research towards a more equitable, inclusive, and representative model that better serves the needs of all populations. It highlights the opportunity benefit of embedding EDI processes within clinical research and health care innovation. Integrating EDI is presented as a critical commitment for commercial sponsors and academics beyond profit or reputation.
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Content ArticleTechnology plays an increasingly important role in our health and care system. It allows us to consult specialists and receive care from home, order medications using our phones, and receive new digital treatments. This shift towards technology can, and should, be positive; technology can drive change, facilitating better patient outcomes and experiences. However, NHS patients struggle with aspects of digital health care, such as having multiple apps with siloed records, fragmented digitalisation, a lack of digital options, and insufficient accessibility features. This study from the King's Fund aimed to understand the skills, knowledge and capabilities needed for health and care systems to do this well.
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Content ArticleDiverse ethnic groups are under-represented in health research, which can mean healthcare treatments and services are less safe, accessible and effective for these groups. This spoken word video aims to increase the number of people with lived experience from diverse ethnic groups who are actively involved in health research, and ultimately improve health treatments and services. The film focuses on why diversity in patient and public involvement (PPI) and in health research matters for people, families and communities. Related reading “Our message about public involvement is don’t be afraid to start.” Interview with Barbara Molony-Oates from the NHS Health Research Authority
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EventuntilHealth inequalities are associated with social exclusion, structural and physical violence and reduced development, which in turn are linked to adverse health and social outcomes, social conflict and even civil unrest. These issues have clear consequences for personal, community and societal safety. Public services are key institutions through which social inequities are created and maintained, through common drivers of exclusion that affect diverse populations, including the quality of service provision. This presentation identifies strategies that are known to reduce social exclusion that could potentially work across populations, public service sectors and country contexts. Findings are presented from studies in the UK and seven low- and middle-income countries, focused on women, young people, ethnic and religious minorities, migrants and rural populations. Common themes across these studies include: reducing the invisibility of disadvantaged communities in public service planning and delivery, addressing the neglect, restrictions and discriminatory practices that are linked to poor life chances, illness, physical abuse and death. Register
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Content ArticleHow can we ensure that health and care staff from all backgrounds feel respected, valued and listened to at work? Siva Anandaciva sits down with Karen Bonner, Chief Nurse at Buckinghamshire Healthcare NHS Trust, to talk about the value of having a diverse workforce, and how we can make the health and care system fairer for staff, patients, and communities from ethnic minority groups.
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Content ArticleThis study looked at nursing within the UK and The Netherlands' health sectors, which are both highly regulated with policies to increase inclusiveness. It aimed to investigate the interplay between employment conditions and policy measures at sectoral level, in order to identify how these both facilitate and limit employment participation for disabled workers.
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Content ArticleInvolvement activities enable people to influence and improve policies and services that affect their lives through activities such as focus groups, patient involvement forums and research studies. My Involvement Profile is a tool for lived experience experts to record and share their access needs when taking part in involvement activities in health and social care. My Involvement Profile has two parts: A personal information form to record your contact details and other experience you have A form to record your access and support requirements.
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Content ArticleIn this blog, Sophie Jarvis, NIHR Public Partnerships Manager, Una Rennard, a public contributor, and Bryher Bowness, a PhD Student at King’s College London, highlight the role of people who care for friends and family in health and social care research, and why they should be involved.
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Content ArticleThis strategy sets out how the Care Quality Commission (CQC) will listen, inform and involve people and work in partnership with organisations that represent people. The new strategy will run to 2026 and has four objectives: Build a trusted feedback service where people’s experiences drive improvements in care Create a trusted, accessible public information service designed around people’s expectations and needs Develop an inclusive approach to proactively involving people who use services, their family, carers and organisations that represent or act on their behalf in shaping our plans, policies and products Work in partnership with organisations that represent or act on behalf of people who use services to improve care
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Content ArticleThis improvement plan sets out targeted actions to address the prejudice and discrimination – direct and indirect – that exists through behaviour, policies, practices and cultures against certain groups and individuals across the NHS workforce. It has been co-produced through engagement with staff networks and senior leaders.
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Content ArticleA new guide to help health service trusts tackle racial discrimination in disciplinary procedures and promote inclusivity has been launched by NHS Providers. The report, which has been published in collaboration with specialist healthcare law firm Hempsons, features case studies from several NHS trusts, including: Barking, Havering and Redbridge University Hospitals NHS Trust Black Country Healthcare NHS Foundation Trust Pennine Care NHS Foundation Trust Yorkshire Ambulance Service NHS Trust. The guide has been developed to show health leaders actionable insights and practical interventions, ultimately giving them a roadmap to tackle racial discrimination and improve the experience for staff from diverse backgrounds. Some of the most common themes across the report are ensuring staff learn from mistakes and see them as opportunities for growth, deploying anti-racism training, and the power of data analysis to identify inequalities.
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Content ArticleThis guide aims to help health and social care workers provide dementia care, which corresponds to the needs and wishes of people from a wide range of ethnic groups, especially minority ethnic groups. Research and various surveys have shown that people with dementia and their relatives from minority ethnic groups do not use healthcare services, such as daycare, home care and respite care to the same extent as others. When trying to provide good quality dementia care to people from all ethnic groups, you may be faced with challenges, such as: how to reach people with dementia and carers who need support and care how to understand people’s needs and wishes in the light of different values and traditions how to establish trust how to tackle racism and discrimination (especially within the healthcare system) how to provide person-centred care how to overcome barriers linked to language and education how to adapt care and support to religious beliefs and cultural traditions. There are no neat, readymade answers to these questions because every situation is different and involves different people, at different moments in time, looking for solutions within different social and healthcare systems. However, it is possible to develop an approach to working with and supporting people from all ethnic groups to gradually increase your ability to provide good quality intercultural care and support.
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Content ArticleHealth literacy, defined as an individual's ability to access, understand, and use health information to make informed decisions about their health and healthcare, plays a critical role in determining health outcomes. Wider determinants of health, on the other hand, refer to a range of social, economic, and environmental factors that influence an individual's health status. This article aims to explore the relationship between health literacy and the wider determinants of health, and how understanding this connection can contribute to more effective population health management and health equity.
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Content ArticleCompassionate leadership builds connection across boundaries, ensuring that the voices of all are heard in the process of delivering and improving care. In order to nurture a culture of compassion, organisations require their leaders – as the carriers of culture – to embody compassion and inclusion in their leadership. Where leaders model a commitment to high-quality and compassionate care, this impacts everything from clinical effectiveness and patient safety to staff health, wellbeing and engagement. The King's Fund's work, through courses, blogs and articles, explores the role of, and supports, leaders in creating a culture of compassion and inclusion.
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Content Article
Leadership in the NHS (BMJ Leader, 20 December 2019)
Patient-Safety-Learning posted an article in Leadership
In healthcare, leadership has a big influence on quality of care and the performance of hospitals. How staff are treated significantly influences care provision and organisational performance, so understanding how leaders can help ensure staff are cared for, valued, supported and respected is important. Research suggests ‘inclusion’ is a critical part of the answer. In this article, Roger Kline looks at how creating a compassionate, inclusive culture improves patient safety—and by contrast, how a culture of fear and bullying has a negative effect. He examines why toxic leadership cultures develop and what can be done to transform leadership in NHS organisations. -
EventInformation and registration
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EventuntilJoin the National Academies of Sciences, Engineering, and Medicine’s Committee on Improving the Representation of Women and Underrepresented Minorities in Clinical Trials and Research as it discusses its newly released report Improving Representation in Clinical Trials and Research: Building Research Equity for Women and Underrepresented Groups. This new report makes a compelling case for why we need more equitable participation in clinical trials and clinical research, including an economic analysis on the cost of health disparities in the United States. It provides a review of the barriers to having more equitable participation in clinical trials, describes strategies to overcome those barriers, and provides actionable recommendations to drive lasting change on this issue. The webinar will take place at 11:00-13:00 EST (16:00-18:00 GMT+1) Register for the webinar
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EventuntilThe Royal College of Midwives education and research conference 2022 - Ensuring every voice is heard: promoting inclusivity in education, research and midwifery care This exciting annual conference is aimed at all those involved or interested in midwifery education and research and the overall theme is promoting inclusivity in research and education. The conference is free for RCM members and £75 plus an admin fee for non-RCM members. The objectives of the conference are to: Give a platform to midwifery researchers and educators to highlight their work and spread understanding of their findings and of good practice Provide an opportunity for midwifery researchers and educators, those aspiring to be researchers and educators and others working in the maternity field to build their professional networks Enable those attending to learn about the latest evidence and innovations in midwifery education and research, particularly in relation to promoting inclusivity and reducing inequalities in midwifery education, research and practice. The conference has shared plenary sessions which include both education and research and breakout parallel sessions that focus on either education or research. The conference will have both invited speakers and those who have submitted an abstract that has been accepted for presentation. There will also be panel discussions for audience Q&As and practical workshops on literature searching and writing for publication. Overall conference themes The contribution of midwifery education and research to reducing inequalities and improving inclusion in maternity care, Hearing lesser heard voices to improve education, research and practice, Embedding the future midwife standards in education, research and practice Supporting the mental health of midwives, maternity staff, educators, student midwives and the women and families we serve. Book a place
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EventuntilIn this online event, the Chartered Institute of Ergonomics & Human Factors will be launching their new guidance packed with information on how human factors as a discipline can help address Equality, Diversity and Inclusion (EDI) issues. You’ll learn: How human factors can support the different protected characteristics under the Equality Act 2010. How human factors techniques and approaches contribute to EDI by increasing buy-in and engagement. How storytelling of lived experiences helps build a stronger sense of empathy. Who will this be of interest to? Are you an EDI or human factors professional eager to learn more about the relationship between these two areas? Are you a policy maker? Are you involved in dealing with human resources, UX and workplace issues that touch on EDI? If so, this webinar will be of interest to you. About the presenters Courtney Grant is a Senior Human Factors Engineer with twenty years’ experience across industry, consultancy and public service. Amanda Widdowson is Head of Human Factors Capability, Thales UK and Past President of the CIEHF. Abigal Wooldridge is Diversity lead at the US Human Factors & Ergonomics Society. How to book Register for your free place
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EventuntilThe purpose of this online event is to demonstrate how human factors as a discipline can help address Equality, Diversity and Inclusion (EDI) issues. This webinar will explore the different situations that give rise to EDI issues, including the impact of equipment positioning on wheelchair users, the impact of open plan offices on neurodiverse people, and the impact of user interface language and terminology on people with communication difficulties. It will discuss the implications of these EDI issues, including the impact on the people directly experiencing them, as well as the wider impact on society. It will uncover how human factors can make a difference in addressing these issues, including adopting a systems approach, using a participatory design process and applying specific human factors methods to enhance EDI delivery. Register
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Content ArticleThis article, published by the National Health Executive, is written by John Duncan, the Equality, Diversity and Inclusion Lead at Humber Teaching NHS Foundation Trust.John argues that:"Driving positive change around inclusion will help ensure the NHS has a motivated, included and valued workforce; one where everyone has equal access to career opportunities and receives fair treatment in the workplace. This, in turn, will allow us to continue to deliver high quality patient care, achieve increased patient satisfaction and high levels of patient safety."Read the full article through the link below.
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Content ArticleIn this blog for NHS Providers, National medical director's clinical fellow Cian Wade writes about his work with the NHS Improvement national patient safety team on reducing healthcare inequalities. Responding to commitments in the NHS Long Term Plan, this work focuses on two main areas: Determining the extent and causes of unequal experiences of clinical harm among different patient groups. This involved working with patient groups and system leaders to map patient journeys that demonstrate how and why some patients are at heightened risk of harm. Identifying areas for development that may help reduce health inequalities around patient safety. This second phase is in progress and involves gathering input on specific interventions that may reduce the risk of harm.
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Content ArticleFraser Gilmore, Head of Scotland at Care Opinion, outlines the highlights of the 'Annual Review of Stories told on Care Opinion about NHS Boards in Scotland during 2020/21'. He describes an increase in patient feedback and highlights the success of Care Opinion Scotland's online events, including their first conference.
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Content ArticleThis blog in The BMJ Opinion by Steph O'Donohue, content and engagement manager at Patient Safety Learning, looks at the benefits and potential risks of the midwifery continuity of carer model. Steph highlights that seeing the same midwife throughout pregnancy and during labour allows patient and midwife to build a relationship of trust and results in improved outcomes for patients and their babies. She argues that patients and families would be more vocal advocates for continuity of carer if they better understood the benefits of the model. Further reading: Midwifery Continuity of Carer: What does good look like?' Midwifery Continuity of Carer: Frontline insights The benefits of Continuity of Carer: a midwife’s personal reflection
