At just 12 years old, a terrified Zaynah Ahmed lost so much blood during her period that she was left in a life-threatening condition and needed an urgent blood transfusion.
Doctors and nurses rushed around her, using words like the pill and haemoglobin levels – all things that, as a child, she could not understand.
One medic even joked, “imagine you'd been shot in your leg and you just like bled out” in a bid to explain how serious her blood loss had been.
“The doctor... basically said that if you hadn't come within that week, it would have had a life-threatening impact on my life,” Ms Ahmed, now aged 19, told The Independent.
Years later, in 2023, she was finally diagnosed with endometriosis, which affects millions of women in the UK.
Figures from the charity Endometriosis UK show that it takes an average of eight years to get a diagnosis.
After her frightening admission at age 12, Ms Ahmed’s severe symptoms resurfaced again when she was in Year 11 at school.
She suffered periods so painful and frequent that they would leave her crying in her teacher’s office, and she was forced to miss school weekly.
“I had really bad pain. But it wasn't just when I was on my period; it was all the time now.
“I thought period cramps were normal, but when I was on my period. So if I was getting them all the time, then that wasn’t normal. It was hard to understand.”
While she had been referred to gynaecology services previously, she received no appointment, but she was finally referred again after a second A&E visit.
To help others in a similar situation, Ms Ahmed is now taking part in a research project that aims to improve care for young people living with period pain.
However, the long waiting list, worsened by delays caused by the Covid pandemic, meant it took four years for her to be seen by a specialist.
She is calling for more young people, aged 18 to 24, to join by signing up to Be Part of Research, as part of a national recruitment campaign from the National Institute for Health and Care Research (NIHR).
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Source: The Independent, 11 October 2025
“I think that a lot of young girls shouldn’t have to go through that on their own because, regardless of whether they have supportive parents or teachers, or friends around them, if you don’t know what they are dealing with, there’s not much that you can do.”