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Found 36 results
  1. Content Article
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  4. News Article
    An endometriosis sufferer has said her reproductive organs are so damaged by a three-year delay for surgery, it has affected her ability to have children. Claire Nicholls, 29, has been in pain for years with the condition - which involves tissue similar to the lining of the womb growing elsewhere. Ms Nicholls said she was passed from "pillar to post" and for 10 years, medical professionals did not seem to believe how much pain she was actually in. She has stage four endometriosis, which is the most severe and widespread. "The pain can be excruciating, at times I can't get o
  5. News Article
    A woman says she was forced to pay around £25,000 for private healthcare to treat endometriosis after her symptoms were “overlooked” for eight years. Aneka Hindocha, 34, started voicing her concerns about painful periods when she was aged 25 but says she was initially told by doctors this was normal. Ms Hindocha, who described the pain of endometriosis as “someone ripping your insides out”, says the condition should have been diagnosed sooner but argued women’s pain often gets overlooked and ignored. Endometriosis is a very common chronic inflammatory condition, impacting an est
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    Key findings Pregnant women in prison are more likely to experience preterm labour than women in the general population. There are no official data on the number of women in prison who have children. Our work can fill in some of this gap. In 2019/20, 212 women had given birth in hospital within the four years before going to prison, 109 within the two years before. Access to hospital services is poor and this is a long-term issue. Hospital data highlight the complex needs of women in prison, particularly around trauma and substance misuse. Substance misuse plays
  8. News Article
    Women and girls across England will benefit from improved healthcare following the publication of the first ever government-led Women’s Health Strategy for England today. Following a call for evidence which generated almost 100,000 responses from individuals across England, and building on 'Our Vision for Women’s Health', the strategy sets bold ambitions to tackle deep-rooted, systemic issues within the health and care system to improve the health and wellbeing of women, and reset how the health and care system listens to women. The strategy includes key commitments around: N
  9. Content Article
    The 6-point plan Within the next 10 years, the Women’s Health Strategy for England will have: boosted health outcomes for all women and girls radically improved the way in which the health and care system engages and listens to all women and girls. It will achieve this by: taking a life course approach focusing on women’s health policy and services throughout their lives embedding hybrid and wrap-around services as best practice boosting the representation of women’s voices and experiences in policy-making, and at all levels of the health and c
  10. News Article
    A woman who has been waiting three years for a hysterectomy says she feels she and other women have been pushed to the bottom of the list. Jessica Ricketts, from Barry, is one of 164,000 patients who have been on various NHS waiting lists for more than a year, compared to less than 7,000 two-years-ago. But it will take another three years to tackle the backlog. Welsh government's plan to tackle long waits is due to be published later. But for Jessica, she remains in pain with endometriosis despite six gynaecological surgeries over the past 10 years and is now waiting for the hys
  11. Content Article
    The report covers the following topics: The state of the UK gynaecology waiting list The impact of gynaecology waiting lists The challenge ahead It makes the following recommendations to ensure the effective and equitable recovery of elective gynaecology services: Prioritisation of care as part of NHS recovery must look beyond clinical need to also consider the wider impacts on patients waiting for care. There needs to be a shift in the way gynaecology is prioritised as a specialty across the health service. This must also include action to move away fro
  12. News Article
    Doctors too often "ignore" women's pain, Sajid Javid said as he called for change in the wake of the Shrewsbury maternity scandal. Writing for The Telegraph, the Health Secretary said the wider NHS needed to do much more to listen to women, adding that too many are left in pain and ignored by clinicians. On Wednesday, the Ockenden report revealed that the deaths of 201 babies and nine mothers at Shrewsbury and Telford NHS Trust could have been avoided, citing a failure to listen to women. Mr Javid wrote: "This week we have seen the tragic reality of what can happen when women's
  13. News Article
    Clinical care for sufferers of endometriosis is not meeting "base level", according to new research seen by BBC Scotland. The debilitating condition affects 100,000 women in Scotland and is more common than diabetes, yet it takes eight and a half years to be diagnosed. Almost half of those with endometriosis are in pain most days. The study, commissioned as part of the Scottish government's Women's Health Plan, found that services were lacking. The charity Endometriosis UK said the condition costs the UK economy £8.2bn each year in treatment, healthcare costs and loss of wo
  14. Content Article
  15. News Article
    A woman with stage 4 endometriosis said she was told she needed to "be more positive" before her diagnosis - despite heavy blood loss and pain. Anna Cooper, from Newbridge, Wrexham, started her periods at 11 and by the time she turned 14, her mother was pushing for a referral. Since then she has had 13 surgeries, with a 14th due in the coming months. She said: "It is not taken seriously enough. It seems to be that we are just not being heard at the minute." Watch video Source: BBC News, 9 September 2021
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    A 23-year-old woman who begged doctors to remove her womb to relieve chronic pain says the surgery is being refused due to her age and childless status. Hannah Lockhart has endometriosis, a condition that can cause debilitating pain, heavy periods and infertility. Although she has always wanted her own children, Hannah says her daily pain is now so severe she wants a hysterectomy. "It's heartbreaking that just because I'm so young I have to keep suffering," she told the BBC's Evening Extra. Ms Lockhart, from Bangor in County Down, has been in hospital seven times in the pas
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  20. News Article
    New stats from Endometriosis UK this week for Endometriosis Awareness Month reveal that 62% of women (aged 16-54) would put off going to a doctor with symptoms of endometriosis. Reasons include they don’t think it’s serious enough to bother a doctor with, they’d be embarrassed, they don’t think they’d be taken seriously, or they think symptoms including painful periods are normal. This statistic rises to 80% of 16-24-year-olds. 1.5 million UK women are currently living with endometriosis, with average diagnosis time standing at an unacceptable 8 years Endometriosis UK says it i
  21. News Article
    Endometriosis is not uncommon – in fact, it’s believed to affect one in 10 women/people who menstruate. Yet it’s still widely misunderstood, and those affected can struggle for years before getting proper help. Because it’s associated with the menstrual cycle (it occurs when cells similar to those that grow in the womb lining grow outside the womb too, resulting in inflammation, scar tissue or adhesions and blood-filled cysts/endometriomas), it’s often dismissed as being ‘just bad periods’. But endometriosis is a medical condition which can have a huge impact. To mark Endometriosis M
  22. Content Article
  23. Content Article
    Claire was waiting for her diagnosed 14 years. Now she describes how she manages the condition. Lauren's symptoms were overlooked for many years and it wasn't until she experienced a ruptured cyst that she was diagnosed. Melissa experienced endometriosis symptoms from a very young age, before finally being diagnosed at 18. Learn how Stephanie was diagnosed with endometriosis and how she took action afterwards.
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