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Long Covid impact in Ireland highlighted in report

Almost 90% of those living with Long Covid in Ireland have not returned to their pre-Covid level of health, according to a new report.

The study of 988 participants was carried out by APC Microbiome Ireland, a research centre based at University College Cork (UCC), in conjunction with Cork University Hospital and Long Covid Advocacy Ireland.

It found that more than two-thirds of participants in the study continued to experience fatigue, memory problems, chest pain, stomach upset, and muscle pain.

Those surveyed also reported that they were suffering from new symptoms that had not been present before catching Covid.

These included tinnitus (38%), mouth ulcers (28%), new allergies (16%) and sexual dysfunction (13%).

They said these prolonged symptoms can significantly impact their quality of life, affect their ability to work and cause significant disability.

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Source: BBC News, 7 November 2022

Further reading and resources can be found in our dedicated area of the hub on Long Covid.

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Nurses set to hold biggest-ever strike

The biggest ever strike by nurses looks set to go ahead.

The Royal College of Nursing is due to unveil the results of its ballot, which ended last week, in the next few days.

The final results are being counted but RCN sources say a large majority of nurses have voted in favour of action in a dispute over pay.

The RCN had recommended to its 300,000 members that they walk out. If strikes take place, they would affect non-urgent but not emergency care.

The vote has involved a series of individual workplace-based ballots across the UK and if nurses do not back action at a local level it is possible some hospitals and services will not be involved.

The government had appealed to nurses to "carefully consider" the impact on patients.

But Pat Cullen, RCN general secretary and chief executive, said: "Huge numbers of staff - both experienced and newer recruits - are deciding they cannot see a future in a nursing profession that is not valued nor treated fairly.

She added: "Our strike action will be as much for patients as it is for nurses. We have their support in doing this."

Cabinet minister Oliver Dowden said the government had "well-oiled contingencies in place" for dealing with any strike action by nurses.

Speaking on Sky News, Mr Dowden said essential services would be prioritised, "but of course there would be an impact as a result of a strike like that".

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Source: BBC News, 6 November 2022

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West Lane Hospital: Staff concerns 'ignored' at Middlesbrough site

A whistleblower at a mental health trust criticised over the deaths of three teenagers has said bosses ignored workers when they raised concerns.

Christie Harnett and Nadia Sharif, both 17, and Emily Moore, 18, who were friends, all took their own lives within eight months of each other.

The whistleblower said agency workers fell asleep on duty at Middlesbrough's West Lane Hospital and staff struggled "to keep children alive".

The trust has apologised for failings.

Reports into the women's care found 120 failings at Tees, Esk and Wear Valleys NHS Foundation Trust (TEWV), which ran the hospital, and other agencies.

Speaking after the reports were published, the health trust worker, who did not wish to be identified, told the BBC staff were "ignored" when they tried to warn bosses about conditions in the hospital.

"Staff repeatedly raised concerns with managers, some of the time we just didn't have enough staff to keep the children safe," the worker said.

"We warned them something serious was going to happen, but they just ignored us.

"Senior managers looked at numbers, rather than the skillset that staff actually had.

"The agency staff would sometimes fall asleep on duty or watch the telly rather than engage with patients."

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Source: BBC News, 4 November 2022

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Horror as women are facing major medical procedures without anaesthetic, warn experts

Hysteroscopy Action says thousands of women are in extreme pain during and following the invasive procedures to treat problems in the womb, with many suffering for days.

It says some are left with symptoms of post-traumatic stress and subsequently feel unable to have intimate relationships with partners. Others avoid important examinations such as smear tests.

The group has written to Women’s Minister, Maria Caulfield, to raise its concerns.

In its letter, it claims women are not always given the choice of intravenous sedation or general anaesthetic to reduce pain because of an NHS drive to cut costs. 

Some are given local anaesthetic which is often painful and doesn’t work. Others are given no drugs at all and expected to cope with distraction techniques  - known as “vocal locals.”

Hysteroscopy Action has urged Ms Caulfield to open more theatre space for women to have procedures under general anaesthetic as well as offering women the choice of intravenous sedation. 

Yet Hysteroscopy Action, which has been in touch with thousands of patients who have undergone such examinations, says women are not made aware of this.

Last week RCOG President Dr Edward Morris, said it was “working to improve clinical practice around outpatient hysteroscopy”.

He added: “No patient should experience excruciating pain and no doctor should be going ahead with outpatient hysteroscopy without informed consent.”

"Hysteroscopy Action has collated more than 3,000 accounts of “brutal pain, fainting and trauma during outpatient hysteroscopy.”  

Hysteroscopy Action's spokeswoman, Katharine Tylko said: “We are counselling hundreds of patients with PTSD, who for various medical reasons find the procedure extremely painful, some even find it torturous."

“This does not happen for other invasive procedures such as colonoscopy. We urge the Women’s Minister to act and are demanding an end to this gender pain-gap.”

The letter, which has over 20 signatories, including Helen Hughes, Chief Executive of the Patient Safety Learning charity, Baroness Shaista Gohir, civil rights campaigner, and women’s rights activist, Charlotte Kneer MBE, calls for women to be given informed consent and choice about whether and what type of sedation they want.

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Source: Express, 6 November 2022

Read hub members experiences of having a hysteroscopy in the Community thread and Patient Safety Learning's blog on improving hysteroscopy safety.

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NHS England considers substantive return to ‘payment by results’

NHS England is considering a substantive shift to a ‘payment by results’ model from April, in a bid to drive up elective activity.

Under rules for this financial year, elective care is paid for through block contracts, with additional payments for areas that treat more patients, and supposed penalties for those that fall short.

One well-placed source told HSJ there was “strong momentum” towards reviving PbR for elective care, which could mean trusts being paid purely for each unit of activity delivered, without a block contract element.

There is a belief this could help drive up activity levels, which have remained below the levels recorded before the  pandemic.

Returning to PbR would be a controversial move, as many believe it drives competitive behaviour between providers and goes against the grain of collaboration within health systems.

Other options for changes to the payment system being considered include increasing the rate of incentives and penalties.

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Source: HSJ, 4 November 2022

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Regulator investigates lawyers acting for NHS trust over ‘gagging’ clauses

Lawyers acting for an NHS trust are being investigated over “gagging” clauses proposed in a settlement agreement with a whistleblower who raised concerns that mistakes by paramedics in the deaths of patients were being covered up.

In June, the then health secretary, Sajid Javid, announced an NHS review into “tragic failings” by North East Ambulance Service after Paul Calvert went public with claims that reports into deaths were doctored to cover up failings by staff.

The Guardian has learned that NEAS’s lawyers, Ward Hadaway, are also under scrutiny – by the Solicitors Regulation Authority (SRA) – over the terms proposed by the trust for his exit agreement. The agreement, offering him £41,000 in compensation, initially included confidentiality clauses relating to future disclosures.

A SRA investigation does not mean there has been wrongdoing and it does not confirm or deny whether it is examining a solicitor. However, the Guardian understands that the regulator has been in contact with Calvert about the proposed agreement.

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Source: The Guardian, 3 November 2022

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'Distressing' 999 wait highlights South West Ambulance delays

South West Ambulance has the longest waits in the country for people to get through to the operator. It takes almost a minute on average for ambulance control to answer 999 calls compared with just five seconds for the West Midlands service.

Jean and Claire Iles called 999 six times to request an ambulance for Steven Iles' internal bleeding and two of their calls were unanswered for 10 minutes

"He just looked at me and he just passed away before they could even get to him," 41-year-old Claire Iles said.

"I rang about 4pm and said he has gone grey, and I said if you don't come now he is going to die, and it was still 20 minutes before the ambulance turned up."

She was at home with her parents in Yate, near Bristol, when her father, Steve, 63, fell ill.

It took 11 hours for a South West Ambulance crew to arrive, but Jean said by that time it was too late.

Mr Iles died at 17:10 GMT on 19 March from a strangulated hernia that cut off the blood supply to his heart.

The trust has apologised for the distress and anxiety caused but said it remained under "enormous pressure".

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Source: 4 November 2022

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East Kent maternity deaths: Trust has lost confidence of patients

A boss at a trust which was heavily criticised in a damning report says patients have lost confidence in the care they provide.

Raymond Anakwe, executive director of East Kent Hospitals Trust, said regaining patient trust would be "possibly the largest challenge".

He was speaking at a board meeting two weeks after a review found a "clear pattern" of "sub-optimal" care.

Mr Anakwe said: "The reality is we have lost the confidence of our patients."

He also said the trust has lost the confidence "of our local community and sadly also many staff".

The trust's chief executive, Tracey Fletcher, told the meeting that she believed many staff thought "enough is enough", and that the trust has to be "brave" if it's to move forward.

Stewart Baird, a non-executive director, said: "I think it's clear the buck stops here with the people sat round this table, and where there are bad behaviours in the trust, it's because we have allowed it.

"Where people don't feel able to speak up, it's because we have not provided an environment for them to do that."

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Source: BBC News, 3 November 2022

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Poorer areas in England suffer most from GP shortage, study finds

The gap between the number of GPs per patient in richer and poorer parts of England is widening, according to analysis by University of Cambridge.

The study for BBC Newsnight saw "stark inequalities" in GPs' distribution.

Separate BBC research also found patient satisfaction on measures such as how easy a practice is to reach by phone is lower in deprived areas.

The Department of Health and Social Care said it was focusing support on those who need it most.

Earlier this year, public satisfaction with GP care - as measured by the British Social Attitudes poll - fell to its lowest level across England since the survey began in 1983. The fall was widespread across all income groups.

The finding chimes with a Health Foundation analysis of official checks on the quality of services carried out by the Care Quality Commission (CQC).

It found practices serving patients living in the most deprived areas are more likely to receive CQC ratings of "inadequate" and "requires improvement" than those serving patients who live in the most affluent areas.

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Source: BBC News, 4 November 2022

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Trusts should seek extra funding to be ready for major incidents, says inquiry

Ambulance trusts should review their ability to respond to mass casualty incidents and press commissioners for any additional resources they need, the report into the Manchester Arena bombing has said.

Only 7 of the 319 North West Ambulance Service Trust vehicles available on the night of the attack, in 2017, were able to deploy immediately, the report said. It said experts believed that “such a situation would almost inevitably be replicated if a similar incident were to occur again anywhere in the country”, given current resources and demand.

Ambulance trusts are now hugely more stretched than in 2017, with response times having significantly lengthened due to lack of resources.

The second volume of the report from the inquiry, chaired by Sir John Saunders, published today, is critical of the emergency services’ response to the bombing which killed 22 people. NWAS “failed to send sufficient paramedics into the City Room [an area adjoining the Arena]” and did not use available stretchers to remove casualties in a safe way, it says. A key role for managing the incident – that of ambulance intervention team commander – was not allocated for half an hour.

But it also raised issues of ambulance capacity and availability for major incidents involving mass casualties. “Around the UK, ambulance services are always ’playing catch up,’” it said, with no spare frontline capacity.

With demand doubling over the last 10 years, the inability to respond to such incidents is only going to get worse – and lives will be lost if they do not attend the scene quickly and in sufficient numbers, the report said.

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Source: HSJ, 3 November 2022

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GPs giving antidepressants to children against guidelines

GPs are breaching medical guidelines by prescribing antidepressants for children as young as 11 who cannot get other help for their mental health problems, NHS-funded research reveals.

Official guidance says that under-18s should only be given the drugs in conjunction with talking therapies and after being assessed by a psychiatrist.

But family doctors in England are “often” writing prescriptions for antidepressants for that age group even though such youngsters have not yet seen a psychiatrist, according to a report by the National Institute for Health and Care Research (NIHR), the NHS research body.

The report linked the prescriptions to the long wait many young people, some self-harming or suicidal, face before starting treatment with NHS child and adolescent mental health services (CAMHS). Under-18s are prescribed the drugs for anxiety, depression, pain and bedwetting.

The guidance on antidepressants has been issued by the National Institute for Health and Care Excellence (NICE), which advises the NHS on which treatments are effective.

Referencing NICE’s recommendation of a two-step approval process, the NIHR study said “this often” did not happen. “No antidepressants are licensed in the UK for anxiety in children and teenagers under 18 years, except for obsessive compulsive disorder. Yet both specialists [psychiatrists] and GPs prescribe them. Thousands of children and teenagers in the UK are taking antidepressants for depression and anxiety. The numbers continue to rise and many have not seen a specialist.”

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Source: The Guardian, 4 November 2022

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Ministers may order inquiry or review over English mental health care failings

Ministers may order a public inquiry into mental health care and patient deaths across England because of the number of scandals that are emerging involving poor treatment.

Maria Caulfield, the minister for mental health, told MPs on Thursday that she and the health secretary, Steve Barclay, were considering whether to launch an inquiry because the same failings were occurring so often in so many different parts of the country.

They would make a final decision “in the coming days”, she said in the House of Commons, responding to an urgent question tabled by her Labour shadow, Dr Rosena Allin-Khan.

An independent investigation found this week that that three teenage girls – Christie Harnett, 17, Nadia Sharif, 17, and Emily Moore, 18 – took their own lives within the space of eight months after receiving inadequate care from the Tees, Esk and Wear Valleys (TEWV) NHS mental health trust in north-east England.

They died after “multifaceted and systemic failings” by the trust, especially at its West Lane hospital in Middlesbrough, the inquiry found.

Allin-Khan pointed to a series of scandals that have come to light, often through media investigations, about dangerously substandard mental health care being provided by NHS services and also private firms in England, including in Essex and in Greater Manchester.

“Patients are dying, being bullied, dehumanised, abused and their medical records are being falsified, a scandalous breach of patient safety,” Allin-Khan said. “The government has failed to learn from past failings.”

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Source: The Guardian, 3 November 2022

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State of social care in England ‘never been so bad’, social services boss warns

The state of social care in England has “never been so bad”, the country’s leading social services chief has said, with half a million people now waiting for help.

Sarah McClinton, president of the Association of Directors of Adult Social Services (ADASS), told a conference of council care bosses in Manchester: “The shocking situation is that we have more people requesting help from councils, more older and disabled with complex needs, yet social care capacity has reduced and we have 50,000 fewer paid carers.”

Over 400,000 people rely on care homes in England and more than 800,000 receive care at home. But care services are struggling with 160,000 staff vacancies, rising demand and already tight funding for social care that is being squeezed by soaring food and energy inflation.

About a third of care providers report that inability to recruit staff has negatively affected their service and many have stopped admitting new residents as a result. Last month the Care Quality Commission warned of a “tsunami of unmet care” and said England’s health and social care system was “gridlocked”. Problems in social care make it harder to free up beds in hospitals, slowing down the delivery of elective care.

“The scale of how many people are either not getting the care and support they need, or are getting the wrong kind of help, at the wrong time and in the wrong place is staggering,” said McClinton, who is also director for health and adult services in Greenwich. “It is also adding to the endless pressures we see with ambulances and hospitals, and adding to the pressures we see in our communities, more people requesting help with mental health and domestic abuse.”

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Source: The Guardian, 2 November 2022

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More than two-fifths of people in Britain have chronic pain by mid-40s

More than two-fifths of people in Britain suffer from some form of chronic pain by the time they are in their mid-40s, research suggests.

Scientists have found that persistent bodily pain at this age is also associated with poor health outcomes in later life – such as being more vulnerable to Covid-19 infection and experiencing depression.

The findings, published in the journal Plos One, suggest chronic pain at age 44 is linked to very severe pain at age 51 and joblessness in later life.

Study co-author Professor Alex Bryson, of University College London’s Social Research Institute, said: “Chronic pain is a very serious problem affecting a large number of people.

“Tracking a birth cohort across their life course, we find chronic pain is highly persistent and is associated with poor mental health outcomes later in life including depression, as well as leading to poorer general health and joblessness.

“We hope that our research sheds light on this issue and its wide-ranging impacts, and that it is taken more seriously by policymakers.”

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Source: The Independent, 2 November 2022

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NHS boss Amanda Pritchard says patients not always getting care they deserve

Patients are not always getting the care they deserve, says the head of NHS England.

Amanda Pritchard told a conference the pressures on hospitals, maternity care and services caring for vulnerable people with learning disabilities were of concern.

She even suggested the challenge facing the health service now was greater than it was at the height of the pandemic.

Despite making savings, the NHS still needs extra money to cope, she said.

Next year the budget will rise to more than £157bn, but NHS England believes it will still be short of £7bn.

Ms Pritchard told the King's Fund annual conference in London that demand was rising more quickly than the NHS could cope with.

"I thought that the pandemic would be the hardest thing any of us ever had to do," she said.

"Over the last year, I've become really clear.... it's the months and years ahead that will bring the most complex challenges."

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Source: BBC News, 2 November 2022

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Just 10 trusts responsible for half of ‘unacceptable’ placements

Just 10 trusts account for more than half of patients ‘inappropriately’ sent out of their area for a mental health bed – with dozens having to travel up to 300km, according to HSJ analysis.

Official NHS data for adults shows these 10 mental health providers accounted for 9,485 “inappropriate” out of area placement bed days during July, out of 18,705 across the 44 trusts reported nationally. 

At one trust, Sussex Partnership FT, 40 placements were recorded as being between 200km and 300km away in that single month. The trust has revealed in board papers that four were sent to Glasgow. It has cited a shortage of capacity in the Kent and Sussex adult eating disorder service having led to 25 OAPs, and also said “quality concerns” had caused a temporary lack of acute beds in the county.

Nationally, levels of “inappropriate” out of area placement – where people with acute mental health needs are sent up to hundreds of miles for a bed – are rising again, driven by quality failures, bed closures and staffing shortages.

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Source: HSJ, 3 November 2022

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Damning report on surgeon's botched operations

A damning report has highlighted failures in how NHS Tayside oversaw a surgeon who harmed patients for years. 

Prof Eljamel, the former head of neurosurgery at NHS Tayside in Dundee, harmed dozens of patients before he was suspended in 2013. 

The internal Scottish government report into Prof Sam Eljamel, which has been leaked to the BBC, said the health board repeatedly let patients down. It outlined failures in the way Prof Eljamel was supervised and the board's communication with patients.

The report was commissioned last year over unanswered questions and concerns from patients Jules Rose and Pat Kelly.

Mr Kelly has been left housebound and Ms Rose has PTSD after the neurosurgeon removed the wrong part of her body.

After her operation in 2013, Ms Rose discovered that Prof Eljamel had taken out the wrong part of her body. He removed her tear gland instead of a tumour on her brain.

She still has not been told exactly when health bosses knew he was a risk to patients.

The latest Scottish government report said she should receive an apology.

The written apology she received from the board last month said it was sorry she "feels" there has been a breakdown in trust.

"I actually rejected the apology," she said.

Ms Rose said she wanted the chairwoman of the health board to explain why it will not offer a "whole-hearted apology" for its failures.

Scottish Conservative MSP Liz Smith called for a public inquiry, saying there had been a lack of accountability and the investigation had still not got to the truth.

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Source: BBC News, 3 November 2022

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1.5m fewer people on waiting list than thought

NHS England has revealed it estimates there are 5.5 million people on elective referral to treatment waiting lists, rather than the 7 million which is often reported.

No figures have previously been given for the number of separate individuals, but many in politics, policy and the media have often indicated it is the same as the total number of entries on the RTT list – which hit 7 million in August.

NHSE elective recovery chief Sir Jim Mackey, speaking at the King’s Fund annual conference in London yesterday, revealed an estimate for the first time of the number of individuals.

Sir Jim said: “It’s actually 5.5 million people, but seven million entries on the waiting list. There are around a million and a half people, we think, who are on multiple times. So, it’s a lot more complicated than we all think.”

He said it was not clear how many were patients waiting for genuinely separate issues or procedures, and how many were duplicates for the same pathway – essentially errors. Sir Jim said he hoped a new NHSE project would clarify the picture.

He said: “Sometimes there are people on twice, where they need one thing then another thing. Other times it’s a bit more complicated… We’re just about to start a process with a handful of organisations to try and work out what that means.”

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Source: HSJ, 2 November 2022

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Three girls died after major failings in NHS mental health care, inquiry finds

Three teenage girls died after major failings in the care they received from NHS mental health services in the north-east of England, an independent investigation has found.

“Multifaceted and systemic” failures by the Tees, Esk and Wear Valleys (TEWV) NHS trust contributed to the young women’s self-inflicted deaths within eight months of each other, it concluded.

Christie Harnett died aged 17 on 27 June 2019 at the trust’s West Lane hospital in Middlesbrough. Nadia Sharif, also 17, died there six weeks later, on 5 August. Emily Moore, who had been treated there, died on 15 February 2020 at a different hospital in Durham. All three had complex mental health problems and had been receiving NHS care for several years.

The investigation into their deaths, commissioned by the NHS, found that 119 “care and service delivery problems” by NHS services, especially TEWV, had occurred.

Charlotte and Michael Harnett, Christie’s parents, said their daughter had “lost her life whilst in a hospital run by TEWV trust where there was little or no care or compassion”. Emily’s parents, David and Susan Moore, said she received “horrific care” while at West Lane. Services at the hospital were understaffed, “unstable and overstretched”, the investigation’s final report found.

Both families, and also Nadia’s parents, Hakeel and Arshad Sharif, said the dangerous inadequacy of the care provided by TEWV, and the likelihood that other patients with fragile mental health had died as a result, showed that ministers should order a full public inquiry. “This mental health trust is a danger to the public,” the Moores said.

The report said TEWV failed to properly monitor the girls, given their known risk of self-harm; to take seriously concerns about their care and suicide risk raised by their families; and to remove all potential ligature points.

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Source: The Guardian, 2 November 2022

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C-section delay left baby severely disabled

A baby was left "severely disabled" after a delay during his delivery by Caesarean section, a High Court judge has been told.

Betsi Cadwaladr health board will pay £4m in compensation after a negligence claim was brought by one of the boy's relatives.

He has required 24-hour care since his birth in 2018 at Glan Clwyd Hospital in Denbighshire.

The hospital apologised, saying doctors are "working hard" to learn lessons.

"We are extremely sorry," barrister Alexander Hutton KC, representing the health board, told Mr Justice Soole.

"[Betsi Cadwaladr] is working hard to learn lessons from this case," he added.

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Source: BBC News, 2 November 2022

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NHS disruption driving rise in heart deaths, charity says

Extreme disruption to NHS services has been driving a sharp spike in heart disease deaths since the start of the pandemic, a charity has warned.

The British Heart Foundation (BHF) said ambulance delays, inaccessible care and waits for surgery are linked to 30,000 excess cardiac deaths in England.

It has called for a new strategy to reduce "unacceptable" waiting times.

Doctors and groups representing patients have become increasingly concerned about the high number of deaths of any cause recorded this year.

New analysis of the mortality data by the BHF suggests heart disease is among the most common causes, responsible for 230 deaths a week above expected rates since February 2020.

The charity said "significant and widespread" disruption to heart care services was driving the increase.

Its analysis of NHS data showed that 346,129 people were waiting for time-sensitive cardiac care at the end of August 2022, up 49% since February 2020.

It said 7,467 patients had been waiting more than a year for a heart procedure - 267 times higher than before the pandemic.

At the same time, the average ambulance response time for a suspected heart attack has risen to 48 minutes in England against a target of 18 minutes, according to the latest NHS figures.

The BHF said difficulty accessing face-to-face GP and hospital care may have also contributed to the rise.

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Source: BBC News, 3 November 2022

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Gender identity specialists accuse psychology body of ‘contributing to fear’

Some of the most senior gender identity specialists in the UK have accused their professional body of “contributing to an atmosphere of fear” around young people receiving gender-related healthcare.

More than 40 clinical psychologists have signed an open letter to the Association of Clinical Psychologists UK in protest at the organisation’s recent position statement on the provision of services for gender-questioning children and young people. They say they believe there was a failure to properly consult experts in the field or service users, resulting in a “misleading” statement that “perpetuates damaging discourses about the work and gender-diverse identities more broadly”.

About half of those signatories are current or former holders of senior roles – including the current director – at what was the only NHS gender identity service for children in England and Wales, the Gender Identity Development Service (GIDS) at the Tavistock and Portman NHS foundation trust in London.

NHS England announced in July it would be closing the GIDS and replacing it with regional hubs, after being warned by the interim report of the Cass Review into gender services for young people that having only one provider was “not a safe or viable long-term option”.

In 2021, inspectors rated the service “inadequate” overall and highlighted overwhelming caseloads, deficient record-keeping and poor leadership, suggesting that record waiting lists meant thousands of vulnerable young people were at risk of self-harm as they waited years for their first appointment.

In a position statement published last month, the ACP-UK wrote that “the new, regional services will have to offer a radical alternative [after the closure of GIDS] to meet the needs of all young people with gender dysphoria.”

The letter suggests: “An alternative interpretation is that it is possible to provide support for distress related to gender identity where mental health needs and neurodiversity are also present, and remain cognisant of all factors within formulation-based practice”.

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Source: The Guardian, 2 November 2022

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‘Contentious’ US tech firm to harvest patient data in NHSE waiting list push

NHS England has ordered the collection of identifiable patient data from hospitals by US data firm Palantir, for a pilot scheme aimed at accelerating recovery of elective waiting lists.

The regulator has instructed NHS Digital, with which it will merge in January, to use Palantir’s Foundry platform to collect data about patients’ admission, inpatient, discharge and outpatient activity at acute hospitals.

Identifiable data such as patients’ NHS numbers, date of birth, and postcode will be collected through Palantir’s software. Patients cannot opt out of having their data collected.

But NHS Digital’s Caldicott Guardian – who is meant to safeguard use of data – has identified “risks” in the pilot and said it needs additional work before it can meet confidentiality requirements.

The data collected will be “anonymised in accordance with the ICO’s (Information Commissioner’s) Anonymisation Code of Practice”. However, privacy campaigners Medconfidential claimed this code is not fit for purpose and warned that NHS chiefs were making the same mistakes as previous failed efforts to use patient data appropriately.

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Source: HSJ, 1 November 2022

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Oncologist who attended surgery on two patients while he had covid is suspended for three months

A consultant oncologist who ignored a hospital instruction and attended patients’ cancer surgery on two days when he knew he was still testing positive for Covid-19 has been suspended from the UK medical register for three months.

Andrew Gaya admitted knowingly breaking the rules but told the medical practitioners tribunal he had feared that the patients’ treatments would be postponed if he could not attend the private London Gamma Knife Centre, part of HCA Healthcare UK. The two incidents occurred in the early weeks of the pandemic, at a time of high covid death rates.

“I did not take the decision to attend the centre on 3 April 2020 lightly and was aware it was not in accordance with the instructions I had been given,” Gaya told the tribunal. “At the time I thought that I wasn’t going to do any harm and that I was acting in the best interests of the patient as the case was urgent.

“I know I should have telephoned [the relevant manager] and asked if she would allow me to undertake the treatment, but I was afraid her answer would be ‘no’ and that the patient’s treatment would be cancelled,” he told the tribunal in a witness statement.

Both patients have since died, but after the tribunal concluded Gaya told the Daily Telegraph, “One lived for 6 months with good quality of life.”

Gaya, who was present as part of a multidisciplinary team, wore protective gear and observed social distancing. There is no evidence that he had infected anyone.

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Source: BMJ, 1 November 2022

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Oliver McGowan: NHS autism training mandatory after teen's death

Mandatory training for treating people with autism and learning disabilities is being rolled out for NHS health and care staff after a patient died.

It comes after Oliver McGowan, 18, from Bristol, died following an epileptic seizure.

At the time, in November 2016, he had mild autism and was given a drug he was allergic to despite repeated warnings from his parents.

His mother Paula lobbied for mandatory training to potentially "save lives".

A spokesman for the NHS said the training had been developed with expertise from people with a learning disability and autistic people as well as their families and carers.

The first part of the Oliver McGowan Mandatory Training is being rolled out following a two-year trial involving more than 8,300 health and care staff across England.

Mark Radford, chief nurse at Health Education England said: "Following the tragedy of Oliver's death, Paula McGowan has tirelessly campaigned to ensure that Oliver's legacy is that all health and care staff receive this critical training.

"Paula and many others have helped with the development of the training from the beginning.

"Making Oliver's training mandatory will ensure that the skills and expertise needed to provide the best care for people with a learning disability and autistic people is available right across health and care."

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Source: BBC News, 2 November 2022

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