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Found 41 results
  1. Content Article
    Key messages 60% of those who died from Covid-19 in the first year of the pandemic were disabled. The health inequalities disabled people already faced were made worse by the pandemic and a decade of austerity. In this context, it’s vitally important to include disabled people in designing and planning health and care system responses. Health and care services need to understand the broad diversity of disabled people’s identities and experiences, and adopt a social model approach to disability, understanding that people are disabled by barriers in society, rather than by impairmen
  2. News Article
    People with disabilities must be helped more by health providers to access information, a report has found. Over 300 people in North Yorkshire were asked about communication from GPs, hospitals, and healthcare providers in a survey by watchdog Healthwatch. The report said there is "some good practice" but many patients are not being contacted in their preferred format. This leads to missed appointments which "costs time and money". Since 2016, the Accessible Information Standard means health and care organisations must legally provide a "consistent approach to identifying, recor
  3. News Article
    A quadriplegic man was told his care funding would be revoked, after NHS officials deemed him not disabled enough to qualify for support. Simon Shaw, 54, has received 24-hour care since he was left paralysed from the neck down after a car accident in 1984. He relies on carers at night to help him with everything from turning in bed to having a drink of water. They also intervene with medical aid if he develops life-threatening complications related to his paralysis, which could happen at any time, without warning. But a recent NHS assessment controversially ruled Shaw’s health n
  4. Content Article
    Key points Research conducted by public bodies has shown that COVID-19 has had a greater impact, both directly and indirectly, on people who share certain protected characteristics (such as belonging to particular ethnicities or age categories, having a disability, or being women or from the LGBTQ+ community). Health and care services have a major role to play in both identifying the extent of these impacts as well as working together to reduce them. This report showcases examples of health and care systems across the country devising innovative approaches to mitigate the direct e
  5. News Article
    The mothers of two teenage boys who died after failures in their care have called on the government to make "urgent improvements" to how children with disabilities are assessed. Sammy Alban-Stanley, 13, and 14-year-old Oskar Nash both died in 2020. Inquests for both boys recorded they had received inadequate care from local authorities and mental health services. The calls were made in an open letter to the secretaries of state for health and social care, and education. Patricia Alban and Natalia Nash asked Sajid Javid and Nadim Zahawi to make fundamental changes to several care
  6. News Article
    Doctors who worked on the frontline during the pandemic and have been left with long Covid say they have been denied financial support by the UK government, with some left with little option but to sell their house. Months or even years after an initial Covid infection some people continue to have symptoms, from fatigue to brain fog. According to the Office for National Statistics, as of 1 May an estimated 2 million people in the UK reported having long Covid, as the condition is known. Now healthcare staff in the UK have told the Guardian that despite being left with serious impairm
  7. News Article
    Record numbers of chronically ill patients living with disabilities are being denied funding for their care, The Mail on Sunday has reveal. An analysis of official figures shows only a fifth of those with disabling conditions such as Parkinson's disease, dementia and spinal injury asking for Government-funded help are being granted it this year. This is the lowest figure on record, with the exception of the pandemic years when assessments stopped altogether. Every year about 160,000 people apply for NHS funding called 'continuing healthcare', money available to those with significant
  8. News Article
    Women, low earners and ethnic minorities are faring worse on NHS waiting lists, according to research. Healthwatch, a patient watchdog, warned there was a risk that those with “more demands on their lives” such as long hours or caring responsibilities could end up at the back of the queue. It urged hospitals to be proactive in managing waiting lists and communicate with patients who might otherwise be left in limbo. The Healthwatch survey found 54% of women had waited more than four months for treatment, compared with 42% of men. They were also more likely to have had treat
  9. Content Article
    Impact on people from poorer households This group has been hit hardest when it comes to how long they wait for treatment and the impact this has on their mental health and wellbeing and ability to work: Over half (54%) of respondents from lower income householders said they were either still waiting for NHS treatment or had to wait over four months before getting hospital treatment. This compares to 34% of people from higher income households. Fewer people on lower incomes (44%) reported being given a clear point of contact with the NHS. This compares to 55% of p
  10. Content Article
    "Many years ago I argued that there is a bogus contract between doctors and patients.1 Patients have an exaggerated idea of how much doctors can heal them, while doctors are painfully conscious of their limited powers. Doctors are reluctant to be fully honest about their limitations, partly worrying that their therapeutic potential might be reduced, but also perhaps worrying about loss of status, salary, and even power. For patients it's satisfying to think that doctors can fix whatever is wrong with you, meaning the bogus contract continues. But I see signs of it cracking. It's time for patie
  11. News Article
    People suffering from long Covid have reacted with alarm to comments by government’s equalities watchdog that the condition should not be treated as a disability. Under the Equalities Act, anyone with a physical or mental impairment that has lasted for longer than 12 months and substantially impacted their ability to carry out normal day-to-day activities qualifies as disabled and is entitled to protection to ensure that they aren’t discriminated against in the workplace. This includes requesting that their employer makes “reasonable adjustments”, such as flexible working hours or home wo
  12. Content Article
    The Committee is seeking input in the following areas: The invisibility of adult social care and its consequences Better support for unpaid carers Putting co-production at the heart of care The inquiry would like to hear evidence from: experts by experience people with a range of backgrounds
  13. News Article
    Thousands of people unable to work because of the effects of Long Covid are feared to be missing out on financial support, with patients struggling to access and apply for the government’s disability benefits scheme. More than 300,000 people in the UK have been left with debilitating, persistent symptoms after catching the virus – but figures show only a tiny fraction of these have successfully claimed benefits. Politicians and campaign groups warn not enough has been done to remove barriers to applying for financial aid. “A vast number of severely impaired people are simply not
  14. Content Article
    The inquiry will cover people living in residential care homes, hospitals and supported housing, as well as those receiving social care services in their own homes. It will look at: What human rights issues need to be addressed in care settings, beyond the immediate concerns arising from the Covid-19 pandemic? How effective are providers at respecting the human rights of people under their care? How effective are regulators in protecting residents from human rights breaches and in supporting patients and residents who make complaints about their care provider?
  15. News Article
    Long Covid could create a generation affected by disability, with people forced out of their homes and work, and some even driven to suicide, a leading expert has warned. In an exclusive interview with the Guardian, Prof Danny Altmann – an immunologist at Imperial College London – said that the UK’s current approach to Covid fails to take the impact of infections sufficiently seriously, adding that more needs to be done to aid diagnosis and treatment of Long Covid. “It’s kind of an anathema to me that we’ve kind of thrown in the towel on control of Omicron wave infections and have sa
  16. News Article
    The carer who admitted the manslaughter of Adelaide woman Ann Marie Smith, who had cerebral palsy, has been jailed for at least five years and three months for her criminal neglect. Sentencing Rosa Maria Maione in the Supreme Court, Justice Anne Bampton said the 70-year-old was grossly negligent, with her care for Smith falling well short of the standard expected. “You did not mobilise her from the chair in which she was found. You did not toilet her properly and you did not clean her properly,” she told Maione on Friday. “You did not feed her a nutritional diet or monitor her i
  17. News Article
    Deepa Singh, 30, of Louisville, USA, has been seriously ill for two years, racked with extreme fatigue, racing heartbeat and memory problems from Long covid that she says prevent her from working. Adding to her distress, she says, has been a grueling — and so far unsuccessful — battle for disability payments. Singh, who worked as a project manager, is among a cohort of Long Covid patients who have been denied disability benefits, either by private insurance companies, which operate benefit plans offered by employers, or by the Social Security Administration, which manages government disab
  18. Content Article
    The 'Your Care, Your Way' campaign webpage features: Opportunities to share positive and negative experiences of care Information on rights under the Accessible Information Standard Stories from 6,200 people about their experiences of healthcare information Healthwatch's findings around whether NHS organisations are meeting the Accessible Information Standard Recommendations on how to fix the issues.
  19. News Article
    In late July 2019, Sara Ryan tweeted asking families with autistic or learning disabled children to share their experience of “sparkling” actions by health and social care professionals. She was writing a book about how professionals could make a difference in the lives of children and their families. "These tweets generated a visceral feeling in me, in part because of the simplicity of the actions captured. Why would you not ring someone after a particularly difficult appointment to check on them? Isn’t remembering what children like and engaging with their interests an obvious way to ge
  20. News Article
    US President Biden has said people suffering from long-term effects if Covid-19 could be considered a disability under federal civil rights laws. The administration does make clear however that having long covid doesn't automatically mean disability and that an individual assessment may be needed to determine whether a person’s long-term symptoms “substantially limits a major life activity.” President Biden has said the classification of long covid as a possible disability would “help Americans grappling with long-term effects of covid-19 that doctors call long covid.” Read full
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