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Found 116 results
  1. News Article
    The critical finding at the inquest into Laura Booth’s death raises alarming concerns about the failing system of investigation into the deaths of people with learning disabilities. Initially, Laura’s death was said to be expected and was attributed to natural causes on the basis of a death certificate signed by a hospital doctor. Without the determination of Laura’s family and the intervention of the media, this inquest would never have happened, and the truth about her death from malnutrition and neglect would not have been uncovered. The concerns about how many other avoidable de
  2. News Article
    The death of a young disabled woman following a routine eye operation was partly caused by malnutrition as a result of neglect, a coroner has ruled. Laura Booth, 21, was admitted to the Royal Hallamshire hospital in Sheffield in September 2016 for a routine eye operation. She died the next month, on 19 October. Booth had a number of learning difficulties and life-limiting complications, having been diagnosed with partial trisomy 13, a rare genetic disorder, shortly after she was born. Her mother, Patricia Booth, told the inquest that her daughter stopped eating shortly after she
  3. News Article
    The mother of a man who died after suffering neglect said she felt "extreme distress and anger" at a critical new report into his care home. James Delaney, 37, died while he was a resident at Sapphire House in Bradwell, Norfolk, in July 2018. After an inadequate rating by the Care Quality Commission (CQC), Mr Delaney's mother said she felt lessons had not been learned from her son's death. A spokeswoman for operator Crystal Care said it had "addressed all concerns". Mr Delaney, who died of a diabetes-related illness, was required to take insulin twice a day, but, despite staff n
  4. News Article
    A child was twice given double the "safe" dose of a rapid tranquilizer at a hospital run by a troubled NHS trust. The child was put at "significant risk of harm" at Telford's Princess Royal Hospital, said inspectors. Rating children's services inadequate, they said Shrewsbury and Telford Hospital NHS Trust (SaTH) must halt seeing under 18s for acute mental health needs. The trust, in special measures, was working to "urgently address concerns". The Care Quality Commission (CQC) carried out a targeted inspection on 24 February prompted by "concerning information" about treatment
  5. News Article
    Seven individuals face prosecution for alleged ill-treatment and wilful neglect of patients at a hospital for people with severe learning disabilities. The alleged offences took place at the psychiatric intensive care unit at Muckamore Abbey Hospital in County Antrim, Northern Ireland. Prosecution follows ongoing police inquiries A police investigation into claims of abuse at the hospital has been ongoing since 2018, following reports of inappropriate behaviour and alleged physical abuse of service users by staff. Read full story Source: Nursing Standard, 19 April 2021
  6. Content Article
    This report from Autistica lays out the evidence and sets out recommendations for action by national and local government, research funders and industry, as well as the NHS and service providers. These recommendations include calling on: Medical research funders to collaborate to rapidly increase our understanding of premature mortality in autism. The government to establish a National Autism Mortality Review and commit to significantly improved data collection. Service providers to develop clear and specific plans to prevent early death in autism.
  7. Event
    until
    The COVID-19 pandemic has exposed huge problems with the way Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions are made, understood and communicated with people with learning disabilities and their families and carers. There have been reports of unlawful blanket decision-making and of DNACPR orders noted without discussion with the people involved. This webinar will focus on some of the questions that have been raised over the past year. What exactly is DNACPR? Why are the terms DNR or DNAR unhelpful, confusing and potentially dangerous? In what circumstances is CPR not a go
  8. News Article
    A flagship government programme to improve care for people with learning disabilities has had an ‘unclear’ and ‘limited’ impact after six years, an NHS England report has found. A report into the national learning disability mortality review programme (LeDer) has criticised it for failing to impact improvement of services both nationally and locally. The national LeDer programme was launched in 2015 after high profile failures by Southern Health Foundation Trust to investigate the deaths of patients with learning disabilities. Since its launch, the programme has consistently struggle
  9. Content Article
    A recent blog I wrote (see link below) brings together key information for clinicians, and especially for prescribers, from a variety of sources, including patients, relatives and carers. The aim is to help to prevent patients with autism and learning disabilities being harmed by inappropriate medicines. I began this in 2018 following the death of Oliver McGowan, which I cover in teaching for (non-medical) prescribing students and in my clinical education work. It links to the NHS Learning Disability Mortality (LeDeR) Review Programme. Key points: Most of the prescribing in thi
  10. News Article
    The unlawful or inappropriate use of “do not attempt cardiopulmonary resuscitation” (DNACPR) orders by some clinicians risks undermining the care of terminally ill patients, almost 40 leading doctors, nurses and charities have warned. During the coronavirus pandemic repeated examples of unlawful decisions have emerged including widespread blanket orders on care home residents and patients with learning disabilities. Now the charity Compassion in Dying along with Marie Curie, Hospice UK and Sue Ryder, as well as more than 30 GPs, nurses and doctors, are warning more must be done to li
  11. Event
    until
    People with learning disabilities are at risk of dying too young, and dying unnecessarily. The Learning Disability Mortality Review (LeDeR) in England has found that too often, those deaths are a result of failings within health and social care provision. Reflecting on this has never been more important – during the pandemic, the inequalities that many people with learning disabilities face have been put into stark focus. Today we focus on the stories of Oliver’s and Richard's deaths, and on what lessons we can all learn from this. Oliver McGowan died in 2016. He was 18 years old. Oliver
  12. News Article
    Patients with learning disabilities were pushed and dragged across the floor while others had their arms trapped in doors by staff working at a private hospital, the care watchdog has found. The Care Quality Commission said instances of abuse caught on CCTV had now been reported to police and staff working at St John’s House, near Diss in Norfolk, have been suspended. Police have said no further action will be taken. The regulator has rated the home, part of The Priory Group, inadequate and put it into special measures after inspectors found a string of failures at the 49-bed home du
  13. Content Article
    The PBS resource includes: 1. What is Positive Behavioural Support? 2. What should Positive Behavioural Support look like? 3. Questions to ask to check whether Positive Behavioural Support is being used well 4. Family carers using Positive Behavioural Support 5. Practical tools Developing a behaviour support plan for your relative is a crucial step in delivering effective Positive Behavioural Support. In this updated resource you can find out about the key components of a behaviour support plan and how it can be used.
  14. Content Article
    Book 1 – will help you to understand more about Positive Behavioural Support. Book 2 – will help you to think about what you need to have a good life. These things need to be in your positive behaviour support plan. Supporters Guide – if you need someone to help you look at these books and write things down, this guide has been written for your supporter to explain what to do. What is behaviour and PBS?
  15. Content Article
    The standards: Improving the quality of Positive Behavioural Support (PBS): The standards for service providers and teams Improving the quality of Positive Behavioural Support (PBS): The standards for training Improving the quality of Positive Behavioural Support (PBS): The standards for individual practitioners All three sets of standards are independent of the establishment of an accreditation process. There is currently no accreditation body responsible for the accreditation of PBS. Establishing standards is a first and necessary step of any accreditation infrastructur
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