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Found 184 results
  1. Content Article
    Key messages People have a right to expect: access to the care they need, when they need it and that appropriate reasonable adjustments are made to meet people’s individual needs. This starts from the first point of contact with a hospital. This is not just good practice – it is a legal requirement. staff to communicate with them in a way that meets their needs and involves them in decisions about their care that they are fully involved in their care and treatment. the care and treatment they receive meets all their needs, including making reasonable adjustments w
  2. News Article
    Patients are not always getting the care they deserve, says the head of NHS England. Amanda Pritchard told a conference the pressures on hospitals, maternity care and services caring for vulnerable people with learning disabilities were of concern. She even suggested the challenge facing the health service now was greater than it was at the height of the pandemic. Despite making savings, the NHS still needs extra money to cope, she said. Next year the budget will rise to more than £157bn, but NHS England believes it will still be short of £7bn. Ms Pritchard told the Ki
  3. News Article
    Mandatory training for treating people with autism and learning disabilities is being rolled out for NHS health and care staff after a patient died. It comes after Oliver McGowan, 18, from Bristol, died following an epileptic seizure. At the time, in November 2016, he had mild autism and was given a drug he was allergic to despite repeated warnings from his parents. His mother Paula lobbied for mandatory training to potentially "save lives". A spokesman for the NHS said the training had been developed with expertise from people with a learning disability and autistic people
  4. Content Article
    Key points The health and social care system is gridlocked. People are struggling to access care. Inequalities pervade and persist. The quality of maternity care is not good enough. The care for people with a learning disability and autistic people is still not good enough. Mental health services are struggling to meet the needs of children and young people. Ongoing problems with the Deprivation of Liberty Safeguards process. Depleted workforce. Challenges and opportunities in local systems.
  5. Content Article
    Tommy Jessop is an actor and campaigner who wants to use his voice to make sure people with a learning disability are heard. He's known to millions for his role as Terry Boyle on the UK TV series Line of Duty. He also has Down's syndrome, which puts him among the 1.5 million people with a learning disability in the UK at risk of having their lives cut short by illnesses that can be treated or prevented. For a BBC Panorama, he has been investigating the failures of healthcare which contribute to people with a learning disability having a life expectancy 20 years shorter than non-disabled p
  6. News Article
    New research led by Queen Mary University of London (QMUL) and King's College London (KCL) has shown that children with Down Syndrome (DS) are up to 10 times more likely to be diagnosed with diabetes. Although elevated rates of both type 1 diabetes and obesity in DS were already recognised, this is the first time that the incidence of these comorbidities has been mapped across the life span, in one of the biggest DS cohorts in the world. The authors concluded: "Our study shows that patients with DS are at significantly increased risk of diabetes at a younger age than the general popu
  7. News Article
    A troubled trust’s inpatient wards for people with a learning disability or autism have been rated “inadequate”, with staff criticised for resorting to restraint too readily which sometimes injured patients. Care Quality Commission inspectors visited Lanchester Road Hospital in Durham and Bankfields Court in Middlesborough, run by Tees, Esk and Wear Valleys Foundation Trust, in May and June. They found most people were being nursed in long-term segregation and some patients had very limited interaction with staff. Among the CQC’s main criticisms was of high levels of restrictive
  8. Content Article
    Rocco Friebel and Laia Maynou examined the prevalence of five avoidable in-hospital patient safety incidents (adverse drug reactions, hospital-acquired infections, pressure ulcers, postoperative pulmonary embolism or deep vein thrombosis, and postoperative sepsis) for four developmental disability groups (people with intellectual disability, chromosomal abnormalities, pervasive developmental disorders, and congenital malformation syndrome) in the NHS during the period April 2017–March 2019. The authors found that the likelihood of experiencing harm in disability groups was up to 2.7-fold
  9. Content Article
    The final guideline mirrors the draft guidance in advising that self-harming patients, when treated in primary care, must receive: regular follow-up appointments regular reviews of self-harm behaviour a regular medicines review. The guidance also said: After an episode of self-harm, the format and frequency of initial aftercare and which services will be involved must be discussed with the patient. If the psychosocial assessment after a self-harm episode was made by a GP, initial aftercare must be provided by the GP within 48 hours of the assessment.
  10. Event
    The Restraint Reduction Network is a movement of people who want to eliminate the use of unnecessary restrictive practices, protect human rights and make a positive difference in people's lives. This webinar is an opportunity to find out more about participating in this project, which goes live in September 2022. The session will help you understand your practice in relation to use of psychotropic medication with children and young people and will give you the opportunity to compare your practice to other inpatient units through a benchmarking dashboard. Register for the webinar
  11. Content Article
    Survey findings Understanding information and asking for support One in five (20%) said they struggle to understand most of the information given by services. Over half (51%) had asked for support to understand information. Five in ten (53%) had asked for support to contact services. Four in ten (44%) had asked for support to communicate with staff. Getting support Three in ten (30%) said they rarely or never get the support they need. Two in ten (22%) had been refused information in a format they need. Over one in four (28%) had been ref
  12. Content Article
    The report addresses these three key areas: Community support: reducing the number of autistic people and people with learning disabilities in inpatient facilities, and the benefits of the Trieste model The use of restrictive practices in inpatient facilities and wider concerns relating to the appropriateness and continued use of such facilities The wellbeing of and accountability for autistic people and people with learning disabilities including the creation of a new role: the Intellectual Disability Physician, and the need for independent reviews into the deaths of autis
  13. News Article
    Hospital passports need to be more consistently used across the NHS to better support patients with communication difficulties, a learning disability nurse says. Support for patients with communication needs and learning disabilities, as well as the nurses caring for them, is often ‘inconsistent’, according to RCN professional lead for learning disabilities Jonathan Beebee. Coupled with the current system-wide pressure of patient backlogs and high staff vacancy rates it means patients often do not have their communication needs met. A hospital passport, which contains vital info
  14. News Article
    Nearly half (49%) of all deaths of people with a learning disability in 2021 were deemed to be avoidable, a major annual report has found. By comparison, just 22% of deaths were classified as avoidable among the overall general population in 2020. A new report, led by King’s College London and produced for NHS England – identified that of those avoidable deaths among people with learning disabilities, 65.5% died in hospital. The learning from life and death reviews programme (LeDeR) report also revealed that the Midlands and North West showed the greatest difference in avoidable
  15. News Article
    NHS England will ask GP practices to make ‘reasonable adjustments’ for patients with a learning disability or autism such as giving them ‘priority appointments’. They could also be asked to provide ‘easy-read appointment letters’ to the group, the Department of Health and Social Care (DHSC) said yesterday in a new strategy on strengthening support for autistic people and those with a learning disability. It said the measures aim to support Government plans to reduce reliance on mental health inpatient care, with a target to reduce the number of those with a learning disability or aut
  16. News Article
    When Susan Sullivan died from Covid-19, her parents’ world fell quiet. But as John and Ida Sullivan battled the pain of losing their eldest, they were comforted by doctors’ assurance that they had done all they could. It was not until more than a year later, when they received her medical records, that the family made a crushing discovery. These suggested that, despite Susan being in good health and responding well to initial treatments, doctors at Barnet hospital had concluded she wouldn’t pull through. When Susan was first admitted on 27 March 2020, a doctor had written in her
  17. News Article
    An ‘outstanding’ rated mental health trust has been criticised by the Care Quality Commission (CQC) for ‘unsafe’ levels of staffing and inadequate monitoring of vulnerable patients. The CQC said an inpatient ward for adults with learning disabilities and autism run by Cumbria Northumberland Tyne and Wear Foundation Trust “wasn’t delivering safe care”, and some staff were “feeling unsafe due to continued short staffing”, following an unannounced inspection in February. The inspection into Rose Lodge, a 10-bed unit in South Tyneside, took place after the CQC received concerns about the
  18. Content Article
    The Draft Mental Health Bill includes proposed changes to legislation around: Autism and learning disability Grounds for detention and community treatment orders Appropriate medical treatment The responsible clinician Community treatment orders Nominated persons Detention periods Periods for applications and references Patients concerned in criminal proceedings or under sentence Help and information for patients After care
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