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Showing results for tags 'Patient engagement'.
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Content ArticleIn this editorial for BMJ Quality & Safety, Dr Tamasine Grimes makes the case for greater patient involvement in managing medication, particularly at points of transition in care. She comments on a recent report on the effects of MARQUIS2, an evidence-based toolkit trialled in North American hospitals to help manage complex medication. The report found that interventions that involved patients in managing their medication had a significant effect in decreasing medication discrepancies, while purely system-level interventions did not.
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'Whistleblowing': a definition for reflection in Speak Up Month
Steve Turner posted an article in Whistle blowing
It's that time again. 'Speak Up Month' in the NHS. In this blog, I discuss the definition of 'whistelblowing' and why this is important. I believe that although the Francis Report has stimulated some positive changes, the only way to successfully move forward on this is to celebrate and promote genuine whistleblowers. This includes using the word 'whistleblowing', not a euphemism. It also needs us to involve everyone, including patients, in the changes. "Whistleblowing isn’t a problem to be solved or managed, it’s an opportunity to learn and improve. The more we move away for labelling and stereotyping the more we will learn. Regardless of our position, role or perceived status, we all need to address this much more openly and explicitly, in a spirit of truth and reconciliation." What is whistleblowing? "In the UK, NHS bodies have been guilty of muddying the waters. Sometimes implying that whistleblowers are people who fail to use the proper channels, or are troublemakers, especially when they go outside their organisation with their concerns. In fact, the Public Interest Disclosure Act makes no distinction between ‘internal’ and ‘external’ whistle-blowers..."- Posted
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Content ArticleThis opinion piece for the BMJ is written by Miles Sibley, Director for the Patient Experience Library, and Rebecca Steinfeld, Head of Policy at National Voices. They highlight the avoidable harm that has impacted on thousands of women in recent years, drawing on several inquiries to evidence the need to put women's voices at the centre of their care (a core theme for the Women's Health Strategy). They argue that patient experience is too often undervalued when it comes to evidence gathering, and that supporting systems must be improved in order to make positive changes for patient safety.
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In this anonymous blog, the author draws on her son’s experience of glandular fever to highlight the value of listening to parents, in order to reduce avoidable harm. -
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Samaritans: Our work in prisons
PatientSafetyLearning Team posted an article in Prison setting
People in prison are significantly more likely to die by suicide. Samaritans work with prison services to reduce suicide and self-harm in prisons. Follow the link below to find out how people in prison, and prison staff, can access Samaritans' services. -
Content ArticleThis course, run by Samaritans, will benefit anyone whose role brings them into contact with vulnerable customers or colleagues. Conversations with vulnerable people will equip you with the skills and confidence to handle challenging conversations in a sensitive and professional way.
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Content ArticlePatient views on ladders of engagement, including a review of Arnstein's ladder of participation, the IAP2 Public Participation Spectrum, and an exploration of patient views on meaningfulness, professionalisation, and representativeness in the context of patient engagement in research.
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Content ArticleNHS England's Ladder of Engagement and Participation is a widely recognised model for understanding different forms and degrees of patient and public involvement in healthcare.
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Content ArticleWhile COVID-19 has worsened patient waiting times across the NHS, patients with pelvic disorders have long been an under-served population experiencing unacceptable delays in care. Pelvic floor disorders are varied and can be complex, but treatment is available. However, patients, particularly those requiring surgery, can wait years from presentation before receiving the treatment they need.
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Content ArticleIn the Patients Association 2020 survey, patients told us about their experiences of living with health and care needs during the COVID-19 pandemic. Their testimony painted a bleak picture in many ways. This follow-up survey finds that many aspects of their experiences are not much better, and some are worse.
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Content ArticleThis report from Macmillan Cancer Support takes stock of how far the UK’s health and care services still need to go on integration for high-quality, personalised cancer care to be a reality for everyone. The analysis suggests there are four key dimensions to personalised, integrated cancer care that need to be addressed: everyone with cancer can access personalised, joined-up care; people with cancer are supported by health and care professionals consistently working together; people with cancer receive personalised, integrated care across services provided by different parts of the system; and services are designed, commissioned and funded around the goal of personalised, integrated cancer care.
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Content ArticleThe King's Fund report is intended primarily for hospital board members, clinicians and managers in hospitals. We hope that it will contribute to and provide support for their continuous efforts to improve patients’ experience, and that it will also be of interest to patients and their representatives, commissioners and policy-makers. The purpose of the report is to consider how we can improve the patients’ experience of care. The report introduces current debates and dilemmas in relation to patients’ experience of care in hospital, presents our view of the factors that shape that experience, and assesses the evidence to support various interventions that are designed to tackle the problems.
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Content ArticlePatient safety and digital experts have given their views on immediate digital priorities that could make a significant difference in the NHS.
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Content ArticleMore and more appointments are happening online. Healthwatch have put together some tips on how to get the most out of the virtual health and care appointments both for patients and health and care professionals.
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Content ArticleEvidence tells us that involving people with diabetes, carers and the public in designing and improving diabetes services can transform people's lives, improve care and develop the resilience of individuals and communities. The link below directs you to the Diabetes UK webpage, where you'll find a number of resources and tools to improve user involvement in diabetes care.
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Content ArticleIn this episode of VISION ZERO Podcast, Dr Abdulealah Alhawsawi interviews Susan Sheridan, a family member of two medical error victims and a global patient safety advocate. In this podcast they explore how we can prevent such medical errors and harm from happening again and the importance of patient / family empowerment.
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Content ArticleA 3 minute, plain English video from Dr Jackie Barker of the nine roles public contributors play when they get involved with health organisations, from the BMJ Open paper titled "Developing a typology of the roles public contributors undertake to establish legitimacy: a longitudinal case study of patient and public involvement in a health network".
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Content ArticleThe shift towards a digital-first healthcare system has accelerated during the COVID-19 pandemic, demonstrating that, given the opportunity for better access, people will engage in new ways with their health and wellbeing services. However, while many individuals have developed a greater awareness of their health and taken meaningful steps to improve it, the pandemic has exposed, and potentially increased inequalities in health outcomes due, in part, to inequalities in access to the technologies, connectivity, and digital and/or health literacy needed to improve outcomes equitably. The move to Integrated Care Systems (ICS) provides an opportunity to give greater priority to patient engagement and to integrate services around a 360 degree view of patient’s needs, focusing on how people experience their lives and health conditions, rather than on specific treatment/disease areas or pathways. This blog from Catherine Skilton, Deloitte, discusses what ICSs can do to realise the long-held vision of a person-centric health and care system.
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Content ArticlePatient complaints are associated with adverse events and malpractice claims but underused in patient safety improvement. The objective of this study, published in BMJ Quality and Safety, was to systematically evaluate the use of patient complaint data to identify safety concerns related to diagnosis as an initial step to using this information to facilitate learning and improvement. Authors conclude that health systems could systematically analyse available data on patient complaints to monitor diagnostic safety concerns and identify opportunities for learning and improvement.
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The theme for this year’s World Health Day (7 April) is building a fairer and healthier world for everyone. Making sure all patients can access and understand healthcare information is absolutely key to this. In this interview, anaesthetist Rachael Grimaldi tells us about CardMedic, the organisation she founded to empower staff and patients to communicate across any barrier. Rachael explains how their tools can be used to support vulnerable groups and reduce inequalities. -
Content ArticleIn this BMJ article, Brenda Denzler describes how earlier traumatic experiences of medical treatment continue to have an impact on her to this day and how medical professionals can make patients feel empowered and in control.
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Content ArticleA glimpse of moving and powerful Rounds discussions that took place at the Massachusetts General Hospital Cancer Center and at Emerson Hospital in Concord, MA, USA
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Content ArticleThe Essentials of Safe Care is a practical package of evidence-based guidance and support that enables Scotland’s health and social care system to deliver safe care.
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Content ArticleThis blog, written by Rageshri Dhairyawan and Darren Chetty for the Cost of Living website, argues that we must reframe conversations on racialised health inequalities. Drawing on COVID-19 as an example, they state: "How we choose to frame conversations about racialised health inequalities is crucial to ensure that historically underserved communities are not further disadvantaged."
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Content ArticleIn my tweets and posts I have suggested that patients themselves need to take more responsibility for the medicines they are prescribed. But what about vulnerable groups who may depend on decisions being made for them, and in their best interests? Whilst there are circumstances where antipsychotic (psychotropic) medicines are an appropriate option for people with autism and learning disabilities, these occasions are limited. In all cases the patient matters most, and any decision to prescribe must be part of a team based, patient-led decision, which is regularly reviewed.
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