Summary
Patient views on ladders of engagement, including a review of Arnstein's ladder of participation, the IAP2 Public Participation Spectrum, and an exploration of patient views on meaningfulness, professionalisation, and representativeness in the context of patient engagement in research.
Content
The objectives of this study from Jennifer Johannesen include determining what relevance such frameworks hold for patients and discovering if there is opportunity to reimagine a framework from a patient perspective. To gain insights into these questions, eight patients were interviewed, the findings of which are discussed in this paper.
Patient views on 'ladders of engagement' (August 2018)
https://www.researchgate.net/publication/327940872_Patient_views_on_'ladders_of_engagement'
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