The National Institute for Health Research (NIHR), Chief Scientist Office (CSO) Scotland, Health and Care Research Wales, and the Public Health Agency Northern Ireland invites people to use the UK Standards for Public Involvement in all types of research activity. People, teams and organisations in health research often ask "What does good public involvement in research look like?". High quality public involvement can make a real difference to research and healthcare; however, it needs to evolve and improve over time.
The UK Standards for Public Involvement provide clear, concise statements of effective public involvement against which improvement can be assessed.
The NICE 2010 guidance (CG92) requires that all adult hospital inpatients undergo a VTE risk assessment (RA) using a standardised national VTE RA template – upon admission, again 48 hours later, and whenever the patient’s clinical condition changes.
Based on the national template, clinicians at Colchester Hospital University NHS Foundation Trust (CHUFT) pioneered an electronic VTE RA tool that enables the assessment to be completed in 30 seconds. This tool has the added benefits of calculating the risk of VTE and recommending appropriate prophylaxis using a pharmacological and/or mechanical agent. This decision support tool is web-based and is now available to any organisation across the globe. The tool and the VTE prevention programme at Colchester Hospital won the 2010 NHS Innovation Award for Patient Safety.
This document has been developed to support trusts that are developing or updating their supportive observation/engagement policy. The policy should guide a consistent and auditable approach to:
meeting individualised needs of service users
agreeing an appropriate level of observation based on the individual’s needs
reviewing the level of supportive observation
engaging with service users where enhanced observation is required.
The Act did two key things:
Put a duty on the Government to produce and regularly review an autism strategy to meet the needs of autistic adults in England. The first ever strategy for autistic people in England, Fulfilling and rewarding lives, was published in 2010 with a commitment to review this strategy three years later. The new strategy, Think Autism, was published in April 2014.
Put a duty on the Government to produce statutory guidance for local authorities to implement the strategy locally.
'Gathering feedback from families and carers when a child or young person dies' is a resource designed to help support professionals in their work with bereaved families and carers. It sets out the key principles of ideal bereavement care, provides guidance as to how and when feedback may be collected and by whom. Importantly, it includes the Childhood Bereavement Experience Measure, a suite of questions to inform local questionnaires. Commissioned by NHS England (London Region) and supported by Sands, the Stillbirth and Neonatal Death Charity, this resource has been informed by the experiences and expertise of a wide range of families, healthcare professionals, charities and third sector organisations. It builds on the success of 'Gathering feedback from families following the death of their baby' and the 'Maternity Bereavement Experience Measure'.
This resource does not seek to redefine bereavement care, rather consolidate the principles and themes outlined within existing published literature, much of which has been co-developed with bereaved families. It has been tested with bereaved families and bereavement support staff to ensure that it effectively and sensitively captures the experiences of bereaved parents and carers.
It is hoped that this resource will inform the development of any new, and the review of existing, feedback mechanisms. It is hoped that local bereavement support teams, clinical teams, patient experience teams, patient advice and liaison services, third sector organisations, and charities find it useful in supporting local improvement in bereavement care.
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There is an urgent need to respond to the challenges experienced by carers at the point of transition and beyond, by ensuring early and coordinated planning, effective information sharing and communication and clear transition processes and guidelines. A person‐centred and family‐centred approach is required to minimise negative impact on the health and well‐being of the young adult with intellectual disabilities and their carers.