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Found 152 results
  1. News Article
    GPs and hospitals will be required to share patient data under legislation to be announced in the king’s speech on Wednesday. Legislation to create a single patient record (SPR) for each person, which would be used across all healthcare providers, is part of a £10bn digitisation of the health service. The health secretary, Wes Streeting, said making the data accessible in one place would be a “gamechanger” that would save lives. The legislation aims to spare patients from constantly having to repeat their medical history when turning up at hospital or being discharged back to their GP. “As patients, there’s nothing more frustrating than having to repeat your medical history at every appointment,” Streeting said. “When paramedics arrive to heart attack and stroke patients, they can’t see the patients’ medical records, putting them in even greater danger. “For the first time ever, the single patient record will mean patients are given real control over their care through a single, secure and authoritative account of their data. “It will be a gamechanger that means NHS staff can see patients’ medical records, allowing them to deliver better care faster and more conveniently, and even saving lives.” Although some emergency information is already available – such as current medicines and known allergies – hospitals often cannot access the full medical history of a patient. GPs have to wait for letters, sent by email, from consultants to be informed of what happened to their patient in the hospital. Read full story Source: The Guardian, 10 May 2026 Related reading on the hub: The challenges of navigating the healthcare system
  2. Content Article
    Despite advances in treatment, many patients with heart failure still experience delays in diagnosis, variation in care and avoidable hospital admissions. To support systems in addressing these challenges, the Health Innovation Network has developed a suite of practical guides designed to improve the heart failure pathway from early identification through to long-term management and end-of-life care. This resource set brings together two complementary guides: Heart Failure Blueprint for Healthcare Professionals A comprehensive overview of the optimal heart failure pathway, structured across seven stages from case finding and diagnosis to ongoing management and palliative care. It includes data, best practice examples, and innovations from across health systems to support pathway redesign. Improving the Heart Failure Pathway Through Quality Improvement: A How-To Guide A practical, step-by-step guide to help teams identify gaps, design solutions, and implement sustainable improvements using a structured quality improvement approach. These guides are designed to: Support earlier diagnosis and intervention. Improve coordination across primary, community and secondary care. Enable adoption of evidence-based treatments and innovations. Reduce avoidable admissions and improve patient outcomes. Provide a practical ‘playbook’ for local transformation. These resources are intended for multidisciplinary teams working across the pathway, including: Cardiologists, GPs and clinical leads. Nurses, pharmacists and allied health professionals. Service managers and commissioners. Quality improvement and transformation leads. The guides can be used flexibly: As a complete programme to redesign your pathway end-to-end. To target specific challenges such as diagnosis or optimisation. As a facilitation tool for workshops and system-wide collaboration. Used together, they provide both the what (the blueprint) and the how (the improvement approach) to support meaningful and sustainable change.
  3. News Article
    Two-thirds of patients (66%) have experienced at least one NHS admin problem in the past year, according to a new study. The report from the King’s Fund, Healthwatch and National Voices exposed the admin “doom loop” with patients being forced to chase NHS test results, receiving appointment reminders after the date has passed, not being kept informed about waiting times and being given incorrect information. The report, based on responses from 1,908 adults in December, said: “The results overall make for difficult reading. Not only has there been little change in people’s experience of NHS admin since our previous polling (2024), but general perceptions of NHS admin and communications have actually gotten worse. “Less than half of those polled think the NHS is good at communicating with patients about things like appointments and test results, and around a third think it is poor at various aspects of communication with patients. “When we asked people how good or poor the NHS is at communicating with patients about things like appointments and test results, over two in five (43%) said it was good, while nearly one in three (30%) said it was poor. “This is worse than in 2024, when over one in two (52 per cent) said it was good and one in four (25 per cent) said it was poor.” The study found responses to particular aspects of admin have got worse. For example, in 2025, 32% of people said the NHS is good at ensuring patients have someone to contact about ongoing care (down from 43% in 2024), while just over 34% said it is poor (compared with 28% in 2024). People with long-term health conditions were more likely to say the NHS is poor, while carers and those on lower incomes were also more likely to say the same. Read full story Source: The Independent, 16 April 2026 Related reading on the hub: The challenges of navigating the healthcare system
  4. Content Article
    Latest research from the King's Fund shows no improvement in people’s experiences of NHS admin. NHS admin plays a central role in shaping how people experience and perceive the NHS. Our findings point to a major opportunity for government and NHS leaders to act. Key findings Two thirds (66%) of patients and carers who used NHS services in the past 12 months experienced at least one administrative problem. There has been no improvement since the same polling was conducted the previous year. While the number of people experiencing admin issues has remained unchanged, what has shifted is wider public awareness: administrative failings are increasingly recognised as a frequent and persistent problem across the NHS. In 2025 less than half (43%) of the public said that the NHS is good at communicating with patients about things like appointments and test results, down from 52% in 2024. The percentage of the public who said the NHS was good at keeping people informed about what is happening with their care and treatment has fallen from 42% in 2024 to 32% in 2025. 33% of people who had used NHS services in the previous 12 months said they had not been kept updated about how long they would have to wait for care or treatment. Almost 1 in 4 people who had used NHS services in the previous 12 months (23%) reported being invited to an appointment after the date of the appointment – a 3 percentage point increase since 2024. 3 in 5 people who had experienced admin issues (60%) said it made them think that NHS money is being wasted. People living with a long-term health condition are more likely to say the NHS is poor at keeping people informed about what is happening with their care and treatment (45%), compared with 36% of people who do not have a long-term condition. 4 in 5 patients and carers (81%) who report they are struggling financially have experienced an issue with NHS admin, compared with 63% of those who are comfortable financially. Related reading on the hub: The challenges of navigating the healthcare system
  5. Content Article
    Advice and Guidance (A&G) has been used in the NHS for years. It helps GPs get advice from specialists on a patient’s condition to decide the best course of treatment. The Department of Health and Social Care sets out the facts following media reports with a letter from the Health and Social Care Secretary Wes Streeting, published in the Daily Telegraph on 31 March.
  6. News Article
    An integrated care board is rethinking its approach to crisis mental health care after “confusion” contributed towards the deaths of four people. Multiple trusts in Staffordshire and Stoke-on-Trent ICB raised concerns about the “Right Care Right Person” (RCRP) policy, a national agreement between police and the NHS, which means that police should not need to attend a mental health-related incident unless there is a risk to life. North Staffordshire Combined Healthcare Trust and Midlands Partnership University Foundation Trust told the ICB that police support was “not forthcoming” on several occasions and that “harm was potentially being caused because of this”. Last year, coroners issued multiple warnings following a series of deaths linked to the controversial national policy, which was introduced despite concerns in the NHS and from patient groups. The ICB commissioned a joint thematic review of four cases between October 2024 and March 2025, where people were found dead, and the RCRP process may not have been followed. The review was finished at the end of last year and has only now been released to HSJ under the Freedom of Information Act. Findings included that “system challenges” contributed to delays in gaining access to patients’ properties to check on them when there was a concern for their safety. The review found that while RCRP had been launched by the trusts involved, “there were a number of healthcare staff in the community and in hospitals who were not fully aware or had a full understanding of the process and its needs and requirements”. Read full story (paywalled) Source: HSJ, 31 March 2026
  7. Content Article
    When Stuart Ball previously wrote for the hub, he described how his wife Rachel’s death was not the result of one single missed appointment or one incorrect clinical decision. It was the result of fragmentation—significant red flags recorded across time and across specialties, but never structurally reviewed together. Since then, Rachel’s case has been raised through a Parliamentary Question, Stuart has received written replies and there has been renewed discussion around the NHS 10 Year Health Plan. The Plan sets out a long-term ambition to move from reacting to illness towards predicting and preventing it. It speaks about digital integration, genomics and a single patient record. In this follow up blog, Stuart explains why this direction of travel is welcome, but how ambition and infrastructure are not the same as accountability. Stuart asks for an accountable model, with clear ownership, for cumulative hereditary risk review across time and specialties. "Rachel’s Rule: Protecting Today, For Tomorrow" In recent Parliamentary correspondence, it has been confirmed that hereditary cancer services are delivered through the Genomic Medicine Service, with referral based primarily on clinical and family history criteria, and with clinicians expected to maintain appropriate knowledge. The 10 Year Health Plan has been cited as the framework for longer term genomic expansion and reform. These responses clarify direction and capability. However, they do not clearly describe a mandated, accountable model for cumulative hereditary risk review across time and specialties. Rachel’s case was not a technology failure Rachel did not lack access to doctors. She did not lack access to records. She did not lack access to treatment. What she lacked was a defined point where someone was responsible for stepping back and asking: Does this pattern mean something more? She was diagnosed with ovarian cancer at a young age. Later, she developed a second primary ovarian cancer, and years later breast cancer. She had multiple liver hamartomas and ongoing clinical indicators recorded across different specialties. Each event was documented. None were structurally joined. There was no named owner for cumulative hereditary risk recognition. There was no mandated checkpoint requiring a review of the whole picture. And after diagnosis, there was no single, coordinated surveillance plan owned by one accountable role. This was not about individual clinicians failing. It was about system design. The 10 Year Plan: capability versus structure The NHS 10 Year Health Plan outlines important ambitions: Expansion of genomic capability. Better data integration. Personalised risk information. Digital coordination through shared records. These are enabling tools. But tools do not automatically create safety standards. A record is not a review. A risk score is not accountability. Current public responses confirm that hereditary cancer services operate through the Genomic Medicine Service, with referral based on clinical and family history criteria, and with clinicians responsible for maintaining knowledge. That describes capability and professional expectation. It does not clearly describe: A mandated longitudinal hereditary risk review checkpoint. A named accountable owner when cumulative red flags emerge. An automatic re-review trigger after second primary cancers. A defined operational standard for coordinated post-diagnosis surveillance. Without those elements, expanded genomics may still sit within a structurally fragmented system. The gap before diagnosis In Rachel’s case, hereditary risk was not recognised early enough. Importantly, she did not have a strong family history. Her risk lay in the pattern of events over time. If risk recognition depends heavily on family history or opportunistic identification, patients without obvious family clustering remain vulnerable. A structured, repeatable review process—triggered by defined criteria such as early cancer, second primaries, unusual pathology, or cross-specialty indicators—introduces a simple but powerful safeguard: Someone must pause. Someone must review the whole picture. Someone must document a decision. Ownership reduces diffusion of responsibility. The gap after diagnosis Diagnosis does not end the safety question. In many cases, it increases the need for coordination. In cancer, the consequences of missed hereditary risk often unfold over years. Surveillance can become fragmented across hospitals, clinics and appointment systems. Imaging may focus on one organ or site without stepping back to ask whether a broader, coordinated plan is required. Rachel received treatment and follow-up. At the time, we believed the cancer had been dealt with. Six years later, it returned and she died. Earlier recognition does not guarantee different outcomes in every case. But delay reduces available options. Fragmented surveillance compounds risk. That is why Rachel’s Pathway calls for: One named owner for surveillance coordination. One written, shared plan across services. Defined re-review points when new pathology emerges. Clarity about what surveillance is intended to detect, and what it is not. This is not about demanding universal scanning. It is about preventing predictable fragmentation. Why interim standards matter The 10 Year Plan is long term. Delivery will be phased. Large reforms are subject to operational pressures and parliamentary cycles. Meanwhile, patients continue to present. In safety critical systems, known vulnerabilities are usually mitigated while reform is being built—not left exposed until infrastructure is complete. An interim standard does not compete with the 10-Year Plan. It complements it. It introduces structural accountability now, while contributing to durable long-term design. The central question This ultimately comes down to one question: Who owns cumulative hereditary risk recognition and coordinated surveillance when patterns emerge across time and across specialties? If the answer is “all clinicians,” responsibility risks being diluted. If the answer is “no one specifically,” then the vulnerability remains. Clear ownership is not a technological issue. It is a patient safety issue. Rachel’s Rule is not a rejection of genomic ambition. It is a call to translate ambition into accountable structure: One owner. One review. One coordinated plan. That is how patterns stop being missed. That is how fragmentation is reduced. And that is how long-term ambition becomes real patient safety. Further information about the full proposals for Rachel’s Rule and Rachel’s Pathway can be found at rachelsrule.org. If you would like to support the campaign, please consider signing and sharing the petition at change.org/RachelsRule. Further reading on the hub: How one woman’s missed referrals exposed a systemic gap in hereditary cancer care: Why I'm campaigning for Rachel's Rule 10 Year Health Plan for England: fit for the future Rachel's Rule: Signs in plain sight by Stuart Ball Top picks: Rare diseases
  8. News Article
    More than 400 lives may have been saved as a result of Martha’s rule, which lets NHS patients request a review of their care, official figures reveal. Helplines received more than 10,000 calls in the first 16 months of the scheme after its introduction in England in 2024, according to data seen by the Guardian. Thousands of patients were either moved to intensive care, received drugs they needed or benefited from other changes as a direct result of the calls. The system is named after Martha Mills, 13, who died in 2021 from sepsis after a bicycle accident. A coroner found she would probably have survived if she had been moved to the intensive care unit at King’s College hospital in London when she began deteriorating. Martha’s rule helplines received 10,119 calls between September 2024 and December 2025 from patients, relatives or staff who were worried about care, the figures show. That led to 446 people receiving improvements to their care that may have saved their life. One in three calls (3,457) identified a rapid worsening of a patient’s condition, helping raise the alarm more quickly and enable crucial interventions to be made. The NHS England data shows 1,885 patients had their treatment changed as a result. In addition, about 6,000 calls had addressed clinical, communication or coordination concerns, which led to “meaningful improvements” in care or navigating the healthcare system for patients and their families, health officials said. Read full story Source: The Guardian, 8 March 2026
  9. News Article
    Patients are struggling to navigate the “maze” of NHS services, with health leaders warning that the current system is “confusing, frustrating and demoralising”. A new report from the Royal College of GPs and the Patients Association highlights an urgent need for the Government to simplify access to the health service. They describe the NHS as a “complex web of organisations”, making it increasingly difficult for individuals to receive the care they require. Read full story Source: Independent, 23 February 2026
  10. Content Article
    This is the story of a woman who should still be here. A woman who spent her life lifting others, never knowing the danger quietly growing inside her. It is also the story of a husband who loved her with every part of his being, and who now fights to make sure what happened to her never happens to anyone else. Rachel Ball was funny, gentle, stubborn in the best way, and endlessly kind. She lit up classrooms, steadied frightened pupils, and brought out the good in everyone she met. For decades, her body was sending small signs, clues scattered across appointments, hospitals, and years, but no one ever joined them together. By the time the full picture emerged, it was too late. The missing piece revealed itself only at the very end, when nothing could change what it meant. In this memoir, Stuart Ball takes readers through the love they built, the life they shared, the warnings no one recognised, and the final fight that changed everything. Further reading on the hub: How one woman’s missed referrals exposed a systemic gap in hereditary cancer care: Why I'm campaigning for Rachel's Rule
  11. News Article
    “Extended emergency medicine” areas will be opened in hospitals for A&E patients whose care can’t be turned around within the four-hour target, according to new national guidance. NHS England has released new guidance on a “model emergency department” to provide a blueprint for A&Es to meet national targets. The guidance – delayed since last year amid internal concerns about its usefulness – recommends the use of new “extended emergency medicine ambulatory care areas” (EEMACs). They are intended for patients who are expected to be sent home following investigation and treatment, rather than admitted, but would likely be in A&E for more than four hours. It is a similar approach to the “same day emergency care” units now running in many hospitals. However, SDECs are primarily run by specialists, rather than A&E staff, whereas EEMACs are for patients needing more general emergency attention. If a patient is moved to an EEMAC within four hours, they will count as having met the headline waiting target, NHSE confirmed to HSJ. However, if they reach 12 hours, they will be counted as a breach against the 12 hours in the department measure. The same approach applies to SDEC. Read full story (paywalled) Source: HSJ, 9 February 2026
  12. Content Article
    This guidance sets out the core principles and components of high-performing emergency departments. It is accompanied by a detailed guide to the core operating principles for extended emergency medicine ambulatory care (EEMAC) activity. Together, they offer a structured, actionable approach to improving urgent and emergency care pathways and patient experience, as well as reducing waiting times. This guide is designed for providers, including: emergency department leaders (medical, nursing and operational leaders) considering implementing an EEMAC model hospital managers responsible for service implementation and resource allocation emergency department workforce (medical, nursing, allied health professions and administration) involved in patient triage, assessment and treatment. How to implement EEMAC successfully emergency department leadership team should establish the intended role and desired outcomes of EEMAC emergency department leadership team should ensure there is a well-understood model of emergency medicine, purpose and direction of travel Board-level medical, nursing and operational leadership should ensure multidisciplinary collaboration between local service teams emergency department clinical leaders and wider clinical teams should define clear patient pathways that align with the inclusion and exclusion criteria Estates teams and the ED team should together design the physical environment to optimise patient flow and comfort emergency department leadership team should establish a dedicated staffing model with appropriate clinical leadership Business intelligence and analytics teams should support the ED team to implement robust data recording practices for tracking and evaluating service performance. Core principles These principles apply to patients who attend the ED with an acute presentation. this EEMAC model applies to adult patients only the term EEMAC applies to patients expected to be discharged on the same day and whose care can be concluded by the ED team within 8 hours of transfer to the EEMAC unit. Patients requiring longer periods of observation will usually require admission to an inpatient area (for example, a CDU or short-stay ward) in common with other forms of SDEC, some EEMAC patients will require hospital admission – between 5% and 15% is expected patients suitable for existing medical, surgical, frailty or other SDEC pathways should be managed within those pathways as usual. Inclusion criteria patients who at initial assessment or via the rapid assessment and treatment (RAT) process are classified as acuity 3 or 4. Some acuity 2 patients, depending on individual patient needs and local departmental factors patients requiring advanced diagnostics, for example, CT or MRI or troponin result and senior clinical decision-making, but who have a high likelihood of being discharged within 8 hours patients whose investigation, management and treatment of their clinical condition is likely to take more than 4 hours, but who are likely to be suitable for discharge within 8 hours Exclusion criteria patients under the age of 16 patients suitable for existing medical, surgical, frailty or other SDEC pathways should follow those established routes low-risk primary care presentations should be directed to urgent treatment centres (UTCs). Acuity 5 patients are excluded patients requiring resuscitation facilities, those who are clinically unstable or those with presentations highly likely to result in admission should remain in the ED or be directed to appropriate alternative assessment and inpatient pathways patients with an acute mental health crisis who are at risk to themselves or the public or who are likely to require a medical or mental health admission patients who are acutely confused or intoxicated patients who are awaiting discharge or transfer; an EEMAC area is neither a discharge lounge nor an ‘overflow’ unit for other services patients awaiting admission to an inpatient bed patients who are being transferred from the ED without a valid clinical reason, where the only benefit from doing so would be to improve service time-based metrics – that is, the 4-hour standard patients requiring planned care (for example, follow-up or hot clinic activity). Location and environment EEMAC should ideally be co-located with ED but not within the ED footprint this estate should not be used for additional inpatient capacity or as an escalation space as part of a full capacity protocol the environment should be designed as an ambulatory clinic model, with chairs and minimal reliance on trolleys promoting efficient patient turnover. Comfortable waiting areas with access to refreshments should be available, and all other estate requirements should comply with the standards set out in the SDEC specification patients should have access to toilet facilities there should be no thoroughfare for staff or the public EEMAC facilities and estate should not compromise delivery of existing SDEC services or the ED. there should be provision for private discussions with patients, and the design of examination facilities should ensure patient comfort and support patient mobility (for example, access to recliner chairs and trolleys). Staffing and process the EEMAC area should have dedicated staffing, including a designated senior clinical decision-maker available during opening hours to ensure patient safety and maintain flow by ensuring rapid assessment and decision-making. There should be a separate, dedicated staff roster for EEMAC that includes, but is not limited to, senior decision-makers, medical and nursing staff, supported by administrative and operational support staff investigation and diagnostic turnaround times must be the same as for the ED all patients must have observations recorded at initial assessment to support assessment of acuity before transfer to the EEMAC area patients should be transferred to the EEMAC area as soon as possible after initial assessment patients who deteriorate while in EEMAC should be returned to the ED, following the hospital’s local standard process used in other specialty SDEC areas. Patients requiring admission should only remain in EEMAC while they wait for a bed and only if bed allocation is anticipated within the 8-hour time standard.
  13. Content Article
    The NHS in England has introduced various innovations to keep up with the growing demand for elective care, one of which is patient-initiated follow-up (PIFU). This evaluation sought to understand staff experiences of implementing PIFU. The authors of this study conducted a rapid qualitative service evaluation between June 2022 and July 2023, based on semi-structured interviews with operational/managerial and clinical NHS staff from five English NHS Trusts, and an online workshop with 21 additional members of staff from the English NHS. The study found that implementation of PIFU affected staff roles, workload, and job satisfaction. Levels of PIFU uptake, and experience with similar models, affected the extent to which participants experienced the impact of PIFU. How PIFU was implemented varied. Some staff saw changes in their role because of new administrative demands, safety-netting procedures (such as proactive measures by specialty teams to mitigate the risk of patients not initiating appointments when necessary), and selection of suitable patients. PIFU was felt by some staff to increase, and by others to decrease, workload. PIFU affected intensity of work, interrelated with other factors such as the size of waiting lists, and conditions experienced by patients. Whether staff were satisfied with PIFU related to its impact on their role and workload. Satisfaction was also affected by whether staff believed PIFU delivered benefits for patients, and by the aims they felt were driving rollout.
  14. News Article
    A father-of-three died of a brain haemorrhage following failings at the hospital where he worked, health bosses have admitted. Craig Green, 39 was a catering assistant who worked at the QE and was referred by his GP to the hospital following hearing loss. He attended an ear, nose and throat emergency clinic on the 1 April 2025. An MRI scan was later carried out and doctors found an aneurysm in one of the arteries to his brain, which was flagged as a high priority to be reviewed by the neurovascular team at the trust. However, the referral was never finished and neither Craig Green nor his GP were made aware of the findings. "What's very hard to understand is that, if he knew, he could've put things in place. He could've spoken to his family," his father, Dennis Green, said. A spokesperson for the University Hospitals Birmingham NHS Trust said there were failures in communication by their staff over Craig Green's case. The Department of Health said the failure was unacceptable. Read full story Source: BBC News, 3 February 2026
  15. Content Article
    When Stuart Ball's wife Rachel passed away in August 2025, she was just 47 years old. Her death was not inevitable. It was the result of years of missed opportunities—signs that were there in plain sight but never joined together. What happened to Rachel should never happen to another family. Stuart shares Rachel's story and tells us why he is campaigning for Rachel's Rule—a call for a system safeguard that ensures hereditary risks are not missed. "Rachel’s Rule: Protecting Today, For Tomorrow" From childhood, Rachel faced several health challenges, including asthma, massive urticaria and recurring skin lesions. In 2006, she was diagnosed with her first ovarian cancer. She was still young, and while her gynaecological care was appropriate for the time, there was no referral for genetic assessment. The key moment came in 2012, when a second ovarian cancer and multiple liver hamartomas were discovered—clear indicators of an inherited syndrome. This was the point at which a referral to clinical genetics should have been made and early identification could have changed the course of her care. By 2019, after more than a decade of fragmented treatment, Rachel was diagnosed with breast cancer. Only then was a referral finally made. Cowden Syndrome was confirmed. But by this stage, the damage was already done. Surveillance was started for some organs, but still not for others, including her liver—the very place her cancer would later return. In 2024, she developed advanced breast cancer recurrence with liver metastases. It was treatable, but not curable. Less than a year later, she was gone. A caring, proactive patient failed by a fragmented system Rachel did everything right. She attended every appointment, followed every piece of advice, and even chose preventative surgery to reduce her risk of further cancers. She trusted the system completely. But the system was not joined up. At every stage, she was seen by good people working within a structure that divided her symptoms into separate boxes—each specialist treating their own part, without anyone looking at the whole picture. The NHS has the expertise, the science and the technology to detect hereditary cancer risk early, but without an integrated approach, patients like Rachel fall through the gaps. Her death is not just a personal loss but a case study in systemic fragmentation—how information sits in silos, how guidelines are inconsistently applied and how, without oversight, warning signs can go unnoticed until it’s too late. From personal loss to systemic change In the months following her death, I channelled my grief into something constructive: a campaign called Rachel’s Rule: Protecting Today, For Tomorrow. Its aim is simple—introduce annual hereditary risk reviews for patients with multiple red-flag cancers or associated health issues. These reviews would act as a safety net within the NHS, ensuring that patterns like Rachel’s are recognised early. They would trigger automatic referrals to genetic services when warning signs appear, standardise practice across Trusts and raise public awareness so families know to ask for hereditary risk checks. Around one in ten cancers have a hereditary component. NICE guidelines exist, but application is inconsistent. The NHS Genomic Medicine Service provides world-class infrastructure, but patients can only benefit if they are referred in the first place. Rachel’s Rule would bridge that gap—turning awareness into action and preventing future tragedies. The human story behind the campaign Rachel wasn’t a statistic—she was a wife, sister, daughter and aunt, as well as a much-loved teaching assistant known for her warmth and humour. Even through years of treatment, she never lost her ability to lift others. At her school, Bishop Rawstorne, colleagues remember her laughter and empathy. At home, she made every season brighter: decorating for Christmas, photographing sunsets, planting marigolds in memory of her father. She found beauty in ordinary moments and shared it generously with others. To everyone who knew her, Rachel was the heartbeat of the room. Losing her has left a silence that can’t be filled—but in that silence there is also purpose. Her life now speaks through the campaign that bears her name. Learning from Rachel’s story Patient safety begins with pattern recognition. Just as Martha’s Rule was created to empower families to call for a second opinion, Rachel’s Rule calls for a system safeguard that ensures hereditary risks are not missed. It asks a simple question of our health system: when a patient has multiple serious illnesses or cancers under the age of 50, who is responsible for joining the dots? Rachel’s story exposes what happens when that responsibility is no one’s job. She represents thousands who may be living with undiagnosed hereditary syndromes—people who trust the system, attend every appointment, yet are never given the full picture. Protecting today, for tomorrow The legacy of Rachel’s life is more than memory — it’s momentum. Her campaign is supported by her local MP who continues to raise the issue nationally, and by a number of organisations that have already pledged their support. The Change.org petition is steadily growing, each new signature representing another voice calling for change, another family determined to prevent future harm. Earlier answers save lives. Genetic testing protects families. Structured hereditary risk reviews would turn hindsight into foresight, ensuring that what happened to Rachel will not happen again. You can read more and support the campaign at www.change.org/RachelsRule and download the campaign poster attached below. Rachel's Rule poster.pdf Because the best way to honour her story is to make sure it never needs repeating. Further reading on the hub: From ambition to accountability: why hereditary risk needs ownership now
  16. News Article
    The NHS is failing osteoporosis patients, diagnosing them via text message only to then "forget" them, a damning parliamentary inquiry has found. Some individuals told MPs they received no scheduled follow-up after their diagnosis, while others faced years-long waits for crucial bone scans. Further highlighting the systemic issues, a new report by the All-Party Parliamentary Group (APPG) on osteoporosis and bone health revealed that only 34% of eligible patients are receiving medication to prevent fractures. Experts condemned the findings, stating they expose a "deep, structural failure in how the NHS treats a condition affecting millions", putting patients at risk of losing their independence and facing premature death. The patient survey found that more than half had not been contacted by a healthcare professional about their condition in the past year, while almost one in four (23%) had not been contacted in more than three years. Fewer than a third (30%) said they were satisfied with how their osteoporosis is monitored by the NHS. These satisfaction levels differed in deprived areas (28%) compared to wealthier areas (50%). Meanwhile, the research found that half of all integrated care boards (ICBs) and health boards have no defined osteoporosis care pathway connecting hospitals and primary care. The APPG said a “particularly troubling” theme to emerge from the inquiry is the “sense of abandonment felt by many people with osteoporosis as a result of the lack of clinical ownership of their condition”. Read full story Source: The Independent, 22 January 2026
  17. News Article
    Urgent and emergency care services in the East Midlands are letting down people with ”serious but not immediately life-threatening” conditions, a coroner has warned after the death of a “fit and well young man”. Adam Hussain, 23, died from complicated appendicitis at the Queen’s Medical Centre in Nottingham in May, after repeatedly asking for help for abdominal pain over the previous four days. Mr Hussain called emergency and urgent care services five times during the days before his collapse at home on 15 May. He was sent to a walk-in-centre after his first call on 12 May then sent home, but was not seen again face to face. The coroner found East Midlands Ambulance Service and the Nottingham Emergency Medical Service – the system’s single urgent care triage system – had failed to recognise the need for further face-to-face assessment and necessary treatment. She also said there was “confusion” in the system about how to manage category 3 ambulance calls, the classification for urgent but not immediately life-threatening conditions, and where triage suggests the patient can be managed at home. Elizabeth Didcock, assistant coroner for Nottinghamshire, said: “Had Adam been seen face to face [when he sought help], it is very likely that the intra-abdominal sepsis would have been recognised and treatment provided, likely leading to him surviving what is a treatable condition in a previously fit and well young man.” Read full story (paywalled) Source: HSJ, 15 January 2026
  18. Content Article
    Adam Hussain died from complicated appendicitis with perforation and peritonitis on 16 May 2025. This illness developing over a three day period, with worsening abdominal pain, vomiting and clear evidence of sepsis on the day prior to his final admission, which followed a cardiac arrest at home. The Coroner in their report states that there were many opportunities missed by the East Midlands Ambulance Service (EMAS) and by the Nottingham Emergency Medical Service (NEMS) to recognise the severity of his illness, and to ensure a face to face assessment, most particularly and obviously on 14 May, the day prior to his collapse at home on 15 May. No organisation with whom there was contact, recognised that there were repeated calls for assistance over the days prior to his death. The Coroner lists matters of concern in this case as follows: The urgent care pathway across Nottinghamshire, whilst working well for most patients, poorly serves patients with systemic illness that is serious, but not immediately life threatening, (such as is seen in sepsis), and where clinical assessment disposition reached is for a Category 3 ambulance response. There remains detailed information in the EMAS Computer Aided Dispatch (CAD) transferred from the 111 service that is not reliably read or considered by EMAS staff, when cancelling a requested ambulance response and referring a case on to the Clinical Assessment Service provided by NEMS. Families, waiting for an ambulance response, following a clinical assessment by a 111 clinical adviser are not told by EMAS that an ambulance will not be sent. Category 3 calls are viewed by non- clinicians at the EMAS Emergency Operations Centre, who do not have sufficient skills to safely transfer calls to NEMS, as the inclusion/exclusion criteria are open to interpretation. There is no agreement between EMAS and NEMS as to the criteria for transfer of a category 3 call, including whether or not a previous clinical validation would preclude transfer to NEMS.
  19. News Article
    When Leigh White remembers her brother Ryan, she thinks of a boy of extraordinary ability who “won five scholarships at 11” including a coveted place at Bancroft’s, a private school in London. He was, she said, “super bright, witty, personable, generous and kind”. Ryan killed himself on 12 May 2024. A report written after his death acknowledged significant shortcomings in the support he received while seeking help for attention deficit hyperactivity disorder. Ryan had followed the “right to choose” pathway, whereby patients can pick a private provider anywhere in the country for assessment, diagnosis and initial treatment. They then ask their GP to enter a shared-care agreement for prescriptions and monitoring. However, Ryan struggled to get the two services to link up. The problem lies in the fact that shared care is voluntary and not all GPs agree to it. Some patients told the Guardian their doctor had rejected their private diagnosis on the grounds that it did not meet their standards. This was even after the NHS had paid for it – and despite there being no official rules for private providers to follow. Some, like Ryan, end up stuck in administrative limbo. Ryan is one of many people who have been failed by the right to choose system. Psychologists and psychiatrists who spoke to the Guardian shared their concerns that allowing NHS patients to obtain ADHD assessments at private providers was “premature” and had led to a “wild west”. Right to choose was introduced for mental healthcare and neurodevelopmental care in 2018, in part to ease pressure on waiting lists that were up to a decade long. But Marios Adamou, a consultant psychiatrist and founder of the UK Adult ADHD Network (UKAAN), said this had come too soon, because “there was no standard in what good assessment looks like and there’s still no standard for what a qualified assessor would look like”. Right to choose was “poorly regulated, poorly managed and some people are making lots of money out of it”, Adamou said, adding: “If you don’t have regulation for that you are inviting a wild west.” Read full story Source: The Guardian, 13 January 2026
  20. News Article
    A man with mental health issues and a history of making violent threats murdered a woman in a Devon park after falling off a waiting list for a care coordinator, possibly because a health trust’s computer records were compromised by a cyber-attack, an inquest has heard. If Cameron Davis had been allocated a care coordinator, a multi-agency meeting on him may have been called before he stabbed Lorna England, 74, the senior coroner for Devon, Plymouth and Torbay, Philip Spinney, concluded. Cameron Davis fatally stabbed Lorna England after warning he would kill a stranger if he was not sectioned. Spinney highlighted that on the day of the murder, a mental health nurse tried to contact the police on their non-emergency 101 line to report that Davis was threatening to kill someone. The nurse waited on the line for about two hours before he was disconnected. The inquest heard that Davis had been known to mental health services in Devon from November 2021. In January 2023, the month before he murdered England, Davis presented himself at a police station in Exeter and told an officer he would “100%” kill someone. He was taken to hospital but discharged. On Saturday 18 February, the morning of the killing, he told a paramedic he would kill a “random person” if he was not detained. He was taken back to hospital but again discharged and went on to attack England that afternoon. The coroner said psychiatric teams had followed the correct procedures in deciding not to detain Davis. But he said: “There was a mistake in 2022 when Mr Davis appeared to be removed from a waiting list. Mr Davis did not have a care coordinator allocated.” He said: “It is my conclusion that Mr Davis would have greatly benefited from a care coordinator as a single point of contact as would the other agencies involved to share information. “A care coordinator may have convened a multi-agency meeting after a decline in Mr Davis mental health at the end of January [2023].” Read full story Source: The Guardian, 22 October 2025
  21. Content Article
    We hear time and time again on the hub about the lack of joined up care and communication within and across organisations. Patients and their families and carers not knowing who to contact to chase up a referral, systems not joined up, lack of communication, having to repeat the patient’s history and medications to every new healthcare professional they see because the notes haven’t been shared or clinicians "don’t have time to read them all". These issues are widespread and urgently need to be addressed if we are to prevent people falling through the gaps and suffering worse health outcomes. In this blog, *Margaret shares her and family's experiences of trying to coordinate their elderly father's upcoming surgery. Interoperability issues My father has dementia and has a complex set of health issues, as a lot of elderly people do. He has a number of comorbidities, including vascular, heart, and cognition and memory problems, that has meant coordinating his care between the care home, his GP, the local hospital and a specialist hospital has been quite complex. There have been multiple issues but there were two that stood out. The first issue was at the diagnostic stage. My father has severe vascular problems and he needed fairly urgent and necessary surgery. In order to assess whether he was suitable for surgery, given his heart condition, he needed a scan. We have had problems in the past in getting access to scans on his heart so the GP said in order to move things on quicker it would be good to get the scan done privately. As the surgery was urgent, we paid to get the scan done at a private diagnostic centre. However, when it came to getting the information from the private diagnostic centre to the tertiary hospital where he was being treated we encountered problems. The hospital couldn’t access the scans from the private hospital because they were two different systems which meant there was an interoperability issue as the two systems ‘didn’t talk to each other’. One of the suggestions I was given was that I could drive to the private diagnostic centre, which was about a 40 mile drive from my house, with a CD, and then they would download the scans onto the CD and I could then drive back to the hospital, which was about another 35 mile drive. There were multiple calls and this was really quite distressing for our family because we knew my father needed access to the scans urgently. In the end they said they’d do another scan in the hospital. Although I don't think there were any kind of safety issues with my father having another scan, it did mean that not only did it cause delays and stress for my father and the family, it was also a cost to the NHS, which could have been avoided. Communication problems between departments Then around the same time, the hospital wanted to do another scan on my father to prepare for the surgery. Again, as it was urgent, I kept ringing the hospital asking if he had his scan yet but because my father was under the vascular and cardiac departments it was often difficult to know who to speak to because one department needed information from the other and they hadn't received it. So I’d get through to one department who then told me to phone another department, or I would be put on hold by someone from admin who didn’t know the answer and would say they’d ring back but didn’t because they were very busy. As a carer/relative you don’t know what’s happening and you become worried that your loved one is lost in the system. I persisted in phoning but, coincidentally, at the same time my sister visited my father’s house to pick up some bits for him. She saw there was a letter from the hospital so she opened it and it was a letter inviting my father in to have an outpatient appointment scan in the hospital he was an inpatient in! I ended up going to PALS. The lady I spoke to was understanding, sympathetic, kind and highly efficient. But she told me this happened all the time as the radiology department doesn't have access to the hospital's IT system, so they wouldn't know my father was an inpatient and would have just invited him in in a timely way but they would have done that as if he was an outpatient. I coordinated between the different departments and we finally got the scan for my father, he had the surgery and survived. However, these delays could have compromised his health because the surgery was urgent and if he had deteriorated whilst waiting that may have killed him. As a family we were very conscious that time was of the essence and we had to push continuously. Lack of information given to families These are just two examples from a multiple of occasions where we as a family were trying to get information. My father was elderly and wouldn’t have questioned the doctor. And because of his cognition issues due to his dementia, and also because he was on high doses of pain medication, he becomes confused and we couldn’t always rely on what he told us. However, often the healthcare professionals wouldn’t tell us things, despite me being next of kin and with documented power of attorney, and told us to speak to my father. So as a carer or relative you are trying to join the dots and work within a health system that isn’t coordinated. What I want to see change On the face of it they may seem like quite small examples, but when they build up, they are significant in terms of risk. My father was a high-risk patient and if it wasn’t for our diligence and persistence he would have fallen through the cracks, to a significant detriment to his health. I didn’t want there to be avoidable harm, an investigation and ‘lessons learned.’ I want us to be working in a coordinated and proactive manner to recognise the risks and void any harm. And for that insight to be used to ensure systems and processes are improved for the benefit of other patients and families. Also, I want opportunities to share my experience, not as a formal complaint but for genuine interest in our family’s customer experience. Again, for learning and future preventative action not for blame. *The names in this blog have been changed to ensure anonymity. Are you a patient, relative or carer frustrated with navigating the healthcare system? Or is your GP practice or Trust doing something innovative to make it easier for patients? We would love to hear your stories. Please add to our community forum (you will need to register with the hub, it's free and easy to sign up) or email us at [email protected]. Related reading The challenges of navigating the healthcare system: David's story The challenges of navigating the healthcare system: Sue's story Navigating the healthcare system as a university student: My personal experience Lost in the system? NHS referrals "I love the NHS, BUT..." Preventing needless harms caused by poor communication in the NHS (DEMOS, November 2023) Robust collaborative practice must become the bedrock of modern healthcare Robbie: A homeless patient’s struggles with the system Digital-only prescription requests: An elderly woman sent round the houses Lost in the system: the need for better admin Digital-only prescription requests: An elderly woman sent round the houses
  22. Content Article
    We hear time and time again on the hub about the lack of joined up care and communication within and across organisations. Patients and their families and carers not knowing who to contact to chase up a referral, having to travel miles for appointments, missing appointments because the letter didn’t arrive on time, or having to repeat the patient’s history and medications to every new healthcare professional they see because the notes haven’t been shared or clinicians "don’t have time to read them all". These issues are widespread and urgently need to be addressed if we are to prevent people falling through the gaps and suffering worse health outcomes. In this blog, Sue* shares her and her husband's experiences of trying to coordinate the healthcare system and highlights the challenges and frustrations they continuously face. Difficulties getting a diagnosis My husband Neil* has a very rare chronic condition that means unfortunately he is not managed in the area we live at as it’s a regional centre some miles away. We live in North Yorkshire, one of the largest geographical areas in the country, and we feed into various health economies. It took over 4 years and three different healthcare organisations before Neil got his diagnosis. Every time we see someone new we have to go through all of Neil’s medical history again, and then they often say that it’s not their area of expertise because they only deal directly with one area or speciality; they don't think of the patient as a whole. Whilst waiting to get the diagnosis, Neil had a heart attack so he was initially treated more locally to us but it was still over 40 miles away from where we live. When we called an ambulance for a second time he was taken to a different hospital from the first one he was treated in. So he was taken to two different geographical areas not even under the same trust. To add to this, Neil is also under lots of different specialities, i.e. rheumatology, general surgery, dermatology, respiratory and lipids. So he is being treated and has appointments in numerous places. Coordinating appointments and results With all these different specialties, even if they are within the same regional centre, none of the information is joined up or accessible, including blood results from the GP. We find that things are incorrect all the time and we spend a lot of time trying to coordinate Neil’s care and following up on test results, appointments, etc. Neil receives appointments in various ways—emails, phone calls, texts, letters, messages left on his answer phone. You might get a phone call followed by a letter, or you could get a message to say ignore the letter. You may miss a call but you don’t know which department to ring back because it usually comes up as an unknown number. Recently, Neil received a text message which said he was on a waiting list, but it didn’t say what it was for or what specialist department it was from. It said in the text that if you no longer wanted the appointment and wanted to cancel it, to follow a link, but we had no idea what the appointment was referring to or where it came from! As a patient you want to have some control over your health and be able to see all blood test results, scan results and letters from the hospitals. For example, it would be so much easier to look at Neil’s medications and patient letters if they were all in one place but you can't look at the medical records to see what's been said. The only way we can get it is waiting for the letter to be seen by the GP and then, eventually, added on to their system, but it's not always quick because again it's a different geographical area and systems that are disconnected. As a patient with a new disorder, you’re not familiar with the system. Neil was referred to other specialities from rheumatology. Unfortunately, the treatment plan. including tests or length of wait for appointments, isn’t shared directly with us. We rely on my note taking to ensure everything is completed and followed up. Often we end up going to an appointment without the tests Neil needs to have done due to the length of wait for the test, or the test being triaged and cancelled but this not communicated either to us or the referring doctor. The waiting for test results at the moment are long for some of these tests but if it was in your capacity to be able to seek or understand when you might possibly get them, you wouldn't then end up wasting an appointment. You would wait until you've had the results back or know when it might be. It could take us over two hours travelling time for a wasted appointment. We don’t want to waste our time and the time of others. Lack of communication Neil has radiotherapy coming up shortly and we've had no communications regarding it. I ended up making a phone call to inquire and was given a date. But we’ve still not received a phone call, no email, no letter or anything about it, even though they've got the date and time in their books. You can’t make plans, for example if you are trying to go away for the summer. If you’re waiting for a treatment, which on the NHS may take a while, you want to know when to expect the appointment. It’s a lot easier to manage your condition or diagnosis if you have the knowledge of when something's going to happen and you can manage your own expectations. Navigating the various healthcare apps To try and help with all of this we’ve been really keen to try and find a way to get all of Neil’s medical information, from many different organisations, together in one place and to rationalise appointments. We signed up to the NHS app which then put us on to System Online and then Neil was directed to AirMid UK. We've also found the Patients Know Best app which has been set up and says that you can access all your records but it seems to be only if an organisation has signed up to it. So we’ve got four apps to supposedly access the information but not one of them has all of Neil's information. We are actively looking for an online place which has all the information but none of it ties up. None of the apps give you the same information. We’ve asked our GP but he couldn’t help and hadn’t heard of some of the apps we’d found. A system that isn't working These are just a few examples of what we’re dealing with. I’m lucky as I have some medical knowledge so I know when we're missing something or waiting for something and I will chase up, but not everyone will have this knowledge. If it’s an older patient, or someone who hasn’t got family to support them, then they are on their own to navigate a very complex system. A system that isn't working. *The names in this blog have been changed to ensure anonymity. Are you a patient, relative or carer frustrated with navigating the healthcare system? Or is your GP practice or Trust doing something innovative to make it easier for patients? We would love to hear your stories. Please add to our community forum (you will need to register with the hub, it's free and easy to sign up) or email us at [email protected]. Related reading The challenges of navigating the healthcare system: David's story The challenges of navigating the healthcare system: Margaret's story Navigating the healthcare system as a university student: My personal experience Lost in the system? NHS referrals "I love the NHS, BUT..." Preventing needless harms caused by poor communication in the NHS (DEMOS, November 2023) Robust collaborative practice must become the bedrock of modern healthcare Robbie: A homeless patient’s struggles with the system Digital-only prescription requests: An elderly woman sent round the houses Lost in the system: the need for better admin Digital-only prescription requests: An elderly woman sent round the houses
  23. Content Article
    This is one of a series of Health Services and Safety Investigations Body (HSSIB) and on the theme of patient safety in mental health inpatient settings. This investigation explored the issue of out of area placements (OAPs) – that is, scenarios where a patient is placed in a mental health inpatient setting that is a long way from their home or usual place of residence. This report examines the reasons for OAPs, the harms caused by them and how patients can be kept safe if an OAP is necessary. In particular it focuses on inappropriate OAPs. These are where a patient is unable to be cared for in their local NHS mental health acute inpatient setting and has to be sent to another, normally independent, mental health provider for ongoing treatment and care. These OAPs can be significant distances from a person’s residence. The investigation recognises that other OAPs exist for specialised commissioned services such as those for patients with eating disorders, but these were not considered in this investigation. The investigation has been informed by work carried out in the other investigations in the series, in particular ‘Creating conditions for learning from deaths and near misses in inpatient and community mental health services’. Findings Relating to patient, family and carer experiences The investigation found that harm (including dying by suicide, physical, psychological, distress and anxiety) was happening to patients, families and carers because of OAPs and the impact of being far away from their normal support network. There was also significant anger, frustration and loss of trust in the mental health system as a result of their experiences. Patients, families and carers rarely want an OAP and their choice and opinions are not always taken into consideration when decisions about sending someone to an OAP are made. The investigation found that OAPs can increase patients’ length of stay in hospital and therefore contribute to harm to patients. Patient, family and carers’ wishes and preferences, as required in the Mental Health Act 1983: Code of Practice, are not documented by health and care staff or routinely monitored during Care Quality Commission inspections. This leaves patient, families and carers feeling they are not listened to and increases anxiety, frustration and anger, leading to harm for people and creating distrust in the system. Advocacy services are vital for a patient to be able to put forward their views for consideration in decision making about their care, but advocacy is not always offered to patients. Relating to conditions in the health and care There is a national drive to reduce OAPs, but there continues to be an increasing trend in their use. OAPs may be the only option for patients if they are acutely unwell and need admission to inpatient services and there are no beds available in their local NHS mental health hospital. If OAPs are not utilised in this situation, people will remain unwell in the community and potentially present a high risk of harm to themselves or others. The rules, governance and legal framework within which health and social care organisations work differ. This can create friction in the system, preventing integration and pooling of funds across organisations, slowing down discharge and patient flow, and is a significant factor in the use of OAPs. It is impossible to look at the mental health inpatient system in isolation; consideration must be given to other health and care services such as community mental health services, social care and social housing provision by local authorities. When patients are sent to OAPs, the sending hospitals do not maintain responsibility for the welfare or clinical oversight of those patients. Limited patient flow through mental health and other services reduces trusts’ ability to discharge patients from hospital, which can increase the use of OAPs. NHS mental health trusts do not always have local authority social workers embedded in their organisations, as used to be the case under previous working arrangements. Embedding social workers within trusts was viewed by social workers and healthcare staff as a benefit to patients and improved patient flow and discharge planning. Some NHS trusts are undertaking some of the functions of local authorities relating to social housing, in order to enable patients to be discharged and reduce the need for OAPs. Beds and patients are managed in an impersonal way without seeing patients as having individual requirements. They are both treated as “commodities” when deciding on the need for an OAP because of the pressure on services and need for acute mental health beds. Crisis resolution and home treatment teams can have a significant influence in the early discharge of patients, that then creates a bed for the most mentally unwell patients in the community. Hospitals that send patients out of area sometimes rely on Care Quality Commission rating to base OAP decisions on, but many of these ratings are out of date and may not reflect the current situation. Many acute mental health patients have neurodevelopmental conditions and would benefit from early testing when they are in contact with community and acute mental health settings. Early assessment makes sure people are placed on the right pathway and may reduce admissions to acute mental health settings and the need for OAP. HSSIB makes the following safety recommendations HSSIB recommends that the Department of Health and Social Care includes the documenting of patient, family and carers’ wishes and preferences within the Mental Health Bill. This will ensure all patient, family and carer voices are considered in decisions relating to where the patient identifies they would like to be close to, for example the patient’s home or a family member, specifically when an out of area placement is needed. HSSIB recommends that the Department of Health and Social Care works across government to review the statutory instruments, business processes and regulations that govern mental health services, social care and housing services impacting on mental health out of area placements and creates a proposal for the future accountability and integration of health and social care. This is to ensure that they are operating to consistent statutory, financial and regulatory frameworks. By addressing system integration and nd local authorities will define accountability and reduce or prevent out of area placements. HSSIB makes the following safety observations NHS organisations can improve patient safety by maintaining clinical and welfare oversight and responsibility for patients being treated in an out of area placement. This can ensure harm is minimised and that patients are returned to their sending hospital as soon as possible. Mental health inpatient services can improve patient safety by offering advocacy to all mental health inpatients at the point of admission, and ensuring that the patient’s decision about whether or not to have an advocate is continually reviewed as their treatment continues and needs may change. This can ensure that patients’ needs and views are taken into account by health and social care staff when decisions about their care are being made, particularly when in an out of area placement. Crisis resolution and home treatment teams can improve patient safety by joining quality networks for crisis resolution and home treatment teams and could consider using continuous clinical reviews of mental health acute inpatients. This can ensure that appropriate patients are discharged early and could maximise acute care bed availability for patients in the community who are at high risk because of their mental health problem, and reduce the need for out of area placements. Health and social care organisations can improve patient safety by working together and embedding mental health social workers from the local authority in mental health acute hospitals. This can ensure that patients’ holistic health and social care needs are considered throughout their acute mental health admission and on into the community, and improve efficiency of working, patient flow and discharge and reduce the use of out of area placements. Mental health services can improve patient safety by reviewing their community mental health services to see if they meet the needs of their population with the aim of keeping as many people as possible out of inpatient services and thus preventing the use of out of area placements. Healthcare services can improve patient safety by conducting assessments for neurodevelopmental conditions such as autism and attention deficit hyperactivity disorder, where it is safe and clinically indicated, at the earliest opportunity when a person is in contact with community and acute mental health services. This can ensure that patients are put on the appropriate pathway early. This can prevent harm that may be caused by receiving inappropriate treatment and reduce admissions to mental health inpatient settings, thus reducing the need to use out of area placements.
  24. Content Article
    Effective communication is key to patient safety in healthcare, where clear, consistent exchanges among professionals help prevent medical errors and improve outcomes. Miscommunication—often due to high workloads, time constraints and hierarchical barriers—can lead to treatment delays, errors and even harm to patients. Healthcare facilities that foster open dialogue, use structured protocols (like SBAR) and implement technologies, such as electronic health records, can significantly reduce risks. By promoting a culture that encourages team input, training in active listening and the use of secure messaging, healthcare providers can create safer environments and build trust with patients. Communication is an essential component of delivering high-quality healthcare. In busy environments, where every minute counts, effective interactions between healthcare professionals can significantly affect patient safety, leading to better outcomes and better working environments. Importance of effective communication in healthcare Effective communication is critical in healthcare, where the margin for error is small and the stakes are high. Every interaction between healthcare professionals—whether during handovers, in critical decision-making moments or routine patient care—relies on clear, accurate communication to ensure patient safety. Inconsistent or unclear communication can lead to misunderstandings, such as medical errors, treatment delays and, ultimately, harm to the patient. In fast-paced environments like hospitals, where multiple disciplines and professionals must work in tandem, the ability to communicate effectively ensures that vital information is passed accurately and in a timely manner. This includes everything from verbal exchanges during patient handovers to the use of electronic health records and written communication. Communication in patient safety can be divided into two categories: Preventing adverse events: This involves effective communication among healthcare providers and between providers and patients to prevent errors that could harm the patient. Responding to adverse events: This involves clear and timely communication to address adverse events, including coordination among medical teams, discussions with patients and their families, and implementing changes to prevent similar incidents in the future. Meeting these needs requires all healthcare providers to have solid written, verbal and non-verbal communication abilities. Furthermore, teams must have access to effective electronic communication tools, which can include secure messaging platforms, nurse call systems and specialised two-way radios for hospitals and healthcare facilities. Institutions that implement effective communication benefit in the following ways: Transparent, timely communication reduces errors and misunderstandings that lead to adverse patient outcomes. Solid communication practices result in better and faster decision making. Improved information flow leads to great patient satisfaction and continuation of care where required. Effective communication between healthcare workers reduces stress and increases job satisfaction, leading to higher levels of care. The link between communication and patient safety Poor communication in healthcare settings can compromise patient safety through errors and misunderstandings. In the worst cases, it can even result in harm, leading to a significant loss of trust. Indeed, a recent systematic review protocol suggested that ineffective communication contributed to over 60% of hospital adverse events in the USA.[1] Some of the most frequent communication mistakes led to medication errors, treatment delays, and even wrong-site surgery. Standardised communication devices are also instrumental in coordinating patient transfers and emergency responses, as well as dealing with security threats in a timely fashion. Common communication barriers in healthcare settings Several factors hinder effective communication in healthcare settings. Here are some of the most common barriers. Time constraints Healthcare professionals operate in busy environments, with understaffing a massive issue in many institutions. Operating under these conditions can lead to rushed communications and misunderstandings, which can directly impact patient health. High workloads High levels of stress and burnout are sadly all too common in healthcare. These problems can impact the quality of patient care, leading to communication errors. Environmental factors Lighting, PPE equipment, physical distance, and excess noise are just a few of the environmental factors that hinder communication, potentially contributing to compromised patient safety. Language differences The healthcare system's diverse mix of nationalities and cultures can lead to communication difficulties. These problems can occur between staff and patients, with both scenarios impacting patient safety. Hierarchical bias Hierarchical differences between staff and disciplines can affect patient safety. For example, many junior doctors feel too intimidated to report safety concerns to senior colleagues, while some physicians ignore input from nurses. Communication strategies within healthcare disciplines Solving communication issues in healthcare requires a mix of open dialogue, training, and technology. Additionally, healthcare institutions must also introduce standardised communication protocols. Let’s explore each element below. Open dialogue Fostering open dialogue can help improve patient safety. Establishing a culture that encourages input from all team members is important, as is training on active listening and inclusive leadership. Training Training has a huge role to play in patient safety. Adequate training and education can have a big impact on a wide variety of issues that obstruct effective communication. Teaching time management and prioritization techniques can reduce errors made under pressure. Additionally, as a recent study shows, educating doctors on the benefits of taking a seat while talking to patients enhanced doctor-patient experiences.[2] Furthermore, hospital administrators must provide suitable support for staff and encourage the development of effective workflow management strategies and a bigger focus on wellness and resilience in the face of stress. Technology Technology can solve many of the issues surrounding poor communication in healthcare settings. Electronic Patient Record (EPR) systems can offer a single source of truth, radio-powered communication devices can overcome environmental barriers, and HIPAA-compliant secure messaging platforms can help providers share information in real-time. Communication protocols Establishing clear protocols around communication can measurably improve patient health. Some of the most impactful ideas here include: Using structured communication like SBAR (Situation, Background, Assessment, Recommendation). Clearly defining which roles are responsible for specific types of communication. Standardising how information is shared among co-workers and during handovers. Outlining clear escalation protocols to ensure timely interventions. Promoting a culture of safety by encouraging staff to “speak up” about issues. Closing thoughts In summary, effective communication is fundamental to patient safety, requiring robust protocols, open dialogue, and the integration of technology and training. A recent co-report from the Patients Association and the Practice Managers' Association titled “I Love the NHS, but…” highlighted the severe consequences of poor healthcare communication, revealing that more than half of respondents had experienced communication failures within the NHS, with one in ten indicating adverse health outcomes as a result.[3] To create safer healthcare environments, it is crucial for all stakeholders to advocate for improved communication practices. By fostering transparency and collaboration, we can enhance patient care and build a healthcare system that prioritises safety and trust. References Howick J, Solomon J, Nockels K, et al. How does communication affect patient safety? Protocol for a systematic review and logic model. BMJ Open 2024;14:e085312. doi:10.1136/ bmjopen-2024-085312. Golden BP, Tackett S, Kobayashi K, et al. Wall-mounted folding chairs to promote resident physician sitting at the hospital bedside. J Hospital Med 2024; https://doi.org/10.1002/jhm.13271. Burton-Douglas T, De Costa A, Gomez G, et al. “I love the NHS, but... Preventing needless harms caused by poor communication in the NHS. November 2023.
  25. Content Article
    Nigel Hammond died at 10:20 on 14 March 2024 at the Addenbrooke’s Hospital, Cambridge. On the 11 March 2024, Nigel fell at his home address. An ambulance was called, and Nigel was initially taken to the Ipswich Hospital but was transferred to the trauma centre at Addenbrooke’s hospital due to the extent of his injuries. Nigel succumbed to the injuries received in the fall, three days later. Nigel had suffered with his mental health for a protracted period, and it is more likely than not that his fall from the window was a deliberate attempt to end his life. The investigation concluded at the end of the inquest on 8th October 2024. The conclusion of the inquest was that the death was the result of:   Suicide, whilst the balance of his mind was disturbed. The medical cause of death was confirmed as: 1a Left Middle Cerebral Artery infarction, Traumatic Brain Injury 2  Depression, Lymphoma. Matters of concern: In late 2018 Nigel became seriously mentally unwell and was admitted to a Mental Health Unit, under the Mental Health Act provisions, for a period of 3 months. Whilst admitted, Nigel was diagnosed with advanced lymphoma (a lymphatic cancer) and upon discharge from the Mental Health Unit spent a further 3 months in hospital being treated for this. Nigel found his Mental Health Unit admission very traumatic and was described as ‘terrified’ of the thought of ever being admitted again. Upon his release, his family, carers, Mental Health Home Treatment team, worked together to provide exemplary care for Nigel, whose health stabilised and in 2020 his care was transferred back to his own General Practitioner. Nigel remained well until Friday 8 March 2024, when due to his decline in mental health he was taken to see his GP, and on the 9 March 2024 Nigel was prevented by family intervention from ending his life by jumping into a river. his incident led to Nigel’s family speaking to the on duty Authorised Mental Health Professional (AMHP) from the Suffolk Emergency Duty Service Team, on the evening of 9th March 2024. An AMHP is a mental health professional approved by a local social services authority to coordinate the mental health assessment and admission to hospital, of individuals requiring admission under the Mental Health Act provisions In evidence, the court heard that the AMHP, in line with Nigel’s family and his own wishes, agreed that an admission to hospital would not be in Nigel’s best interest. The AMHP identified that the successful home treatment regime previously in place would be the ideal care package for Nigel. This arrangement would also be consistent with the ‘least restrictive principle’ which surrounds the application of Mental Health legislation. That said, although Nigel did not meet the criteria for immediate admission, the AMHP believed Nigel was mentally very unwell, and in need of immediate support. The court heard that such support would be available within a 4-hour target time, from the emergency Crisis Resolution and Home Treatment Team. However, the court was told that an AMHP, despite their role in the coordination of the mental health assessment and admission to hospital of a patient, were not permitted to make direct referrals to the emergency Crisis Resolution and Home Treatment Team. The court heard that the normal route for such referrals was via the GP Surgery, or primary care Mental Health Nurse, neither of whom in Nigel’s case would have been available before 08:00 on Monday 11 March 2024. Nigel’s fall which led to his death, occurred at 06:25 that morning. I am concerned, as had the AHMP in Nigel’s case been able to directly refer him to the Crisis Resolution and Home Treatment Team on the 9th March 2024, mental health professionals would have attended, and been able to provide additional support, advice and potentially additional treatment for Nigel, in all likelihood preventing his death.
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