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Found 123 results
  1. Content Article
    Call for action The report calls on the UK Government, Scottish Government, Welsh Government and Northern Ireland Executive to prioritise services for people with neurological conditions and establish a Neuro Taskforce. The Taskforce would bring together relevant departments, health and social care bodies, professional bodies, people affected by neurological conditions and the voluntary sector to: Assess the current neuroscience workforce and set out plans to ensure it is fit for the future. Share approaches to common problems, such as addressing longstanding barriers to acce
  2. Content Article
    It’s amazing how far we’ve come with medical advancements in neonatal intensive care (NICU) and special care settings over the past decade. Unfortunately, involving families in the care of their infants in NICU does not seem to have progressed at the same pace, despite evidence showing how important this is for the health and wellbeing of premature babies and their families. Changes have started to evolve more rapidly nationally since the Neonatal Critical Care Review and through the integration of family care co-ordinators, but it’s still vital that we keep discussing this model of care
  3. News Article
    An epilepsy drug that caused disabilities in thousands of babies after being prescribed to pregnant women could be more dangerous than previously thought. Sodium valproate could be triggering genetic changes that mean disabilities are being passed on to second and even third generations, according to the UK’s medicines regulator. The Medicines and Healthcare Products Regulatory Agency (MHRA) has also raised concerns that the drug can affect male sperm and fertility, and may be linked to miscarriages and stillbirths. Ministers are already under pressure after it emerged in April
  4. News Article
    A review intended to drive ‘rapid improvements’ to maternity services in Nottingham has been scrapped after just eight months – with some bereaved families saying instead it did ‘irreparable’ damage to their mental health and trust in the system. It was hoped the process would lead to rapid change, restore families’ faith in maternity in Nottingham, and provide a voice for parents who wanted to share both positive and negative experiences. Instead, some families said they found the review process slow, unprepared for the number of people who came forward and lacking the impact neede
  5. Content Article
    A diagnosis of any type of diabetes can be a frightening and lonely experience at any age. You may have read stories about others living with diabetes or heard of “a friend of a friend” who had the condition. Those tales may not have been lavished in positives and, if you’ve been recently diagnosed, may even have had a negative impact upon you. At the time of my own diagnosis with type 1 diabetes, there was little in the way of peer support. That was a long time ago, in 1984. I remember talk of diabetes “camps” but, quite frankly, at the tender age of eight the prospect terrified me and I
  6. News Article
    Record numbers of chronically ill patients living with disabilities are being denied funding for their care, The Mail on Sunday has reveal. An analysis of official figures shows only a fifth of those with disabling conditions such as Parkinson's disease, dementia and spinal injury asking for Government-funded help are being granted it this year. This is the lowest figure on record, with the exception of the pandemic years when assessments stopped altogether. Every year about 160,000 people apply for NHS funding called 'continuing healthcare', money available to those with significant
  7. Content Article
    Not enough people understand what it’s like to live with Parkinson’s. They don’t know it’s a serious condition. They don’t realise that treatments are limited and that there is no cure. That’s why on World Parkinson's Day (Monday 11 April 2022) we want to get the world talking about Parkinson’s. Key facts about Parkinson’s you might not know Parkinson's is the fastest growing neurological condition in the world. There are over 40 symptoms. From pain and stiffness, to problems with sleep and mental health. Everyone’s experience is different. Around 145,000 people i
  8. Content Article
    In 2015, Kath Sansom was the “ridiculously superfit mother of two adult daughters”. She had started to have a few “embarrassing leaks” while exercising, so Sansom did what many women do in her situation: she went to her GP, who referred her for transvaginal tape surgery, in which a small piece of mesh is fitted around the urethra to prevent incontinence. “I assumed it was a bit like a coil,” says Sansom, 54, a PR manager from Cambridgeshire, “and if I didn’t get on with it, I could have it taken out. I had no idea it was permanent.” When Sansom awoke from her surgery, she was in pain
  9. News Article
    A study conducted by NHS Education for Scotland and Health Improvement Scotland found patients felt safer by having someone listen to their experiences after adverse events. The findings were published in the BMJ and have been positively received by NHS boards across the country. Healthcare Improvement Scotland’s Donna Maclean said: “The compassionate communications training has seen an unprecedented uptake across NHS boards in Scotland, with the first two cohorts currently under way and evaluation taking place also.” Clear communication and a person-centred approach was seen as
  10. News Article
    Donna Ockenden, the midwife who investigated the Shopshire maternity scandal, has been appointed to lead a review into failings in Nottingham following a dogged campaign by families. The current review will be wound up by 10 June after concerns from NHS England and families that it is not fit for purpose. It was commissioned after revelations from The Independent and Channel Four News that dozens of babies had died or been brain-damaged following care at Nottingham University Hospitals Foundation Trust. In a letter to families on Thursday, NHS England chief operating officer Dav
  11. Content Article
    1 Alzheimer's Society: 'This is me' leaflet This simple leaflet was developed by the Alzheimer's Society for anyone living with dementia, or experiencing delirium or other communication difficulties. It provides a central place where those closest to the person can fill in key information about them, such as their preferred name, cultural background, routines and likes and dislikes. The leaflet can then be shown to health and social care professionals in new and unknown settings to help them better understand the person and deliver care that is tailored to their individual needs. 2 K
  12. Content Article
    The letter calls on the Secretary of State to reconsider proposals set out in the Fixed recoverable costs in lower value clinical negligence claims consultation. It suggests that at the minimum, all fatal cases and claims by people lacking capacity should be excluded from a fixed costs regime, poor defendant behaviour must be curtailed and that any cap on legal costs must be at a level to realistically allow for involvement of accredited specialist solicitors. The signatories of this letter are: Peter Walsh, Action against Medical Accidents Joanne Hughes, Harmed Patients All
  13. News Article
    A major reform of the way NHS clinical negligence claims are handled in England is needed, MPs say. The House of Commons' Health and Social Care Committee said the current system was too adversarial, leading to bitter and long legal fights for patients. More than £2bn a year is paid out on claims, but 25% goes to legal fees. An independent body should be set up to adjudicate on cases and the need to prove individual fault should be scrapped, the cross-party group said. Instead, the focus should be whether the system failed, which the MPs believe would create a better cultur
  14. News Article
    Tens of thousands of women in the UK may be experiencing symptoms of post-traumatic stress disorder (PTSD) after miscarriages each year, a leading researcher warns. Prof Tom Bourne estimates the number affected could run to 45,000 annually. But he says most are not given prompt psychological support that could help prevent PTSD developing. The Miscarriage Association says there is an urgent need for better access to talking and other psychological therapies for those affected. At present, most women have to ask for help themselves rather than support being in place. Prof Bo