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Found 103 results
  1. Content Article
    Two years before Susan’s relative died, he was scanned for an unrelated condition that needed no treatment. This scan showed a small tumour which was recorded and identified as a red alert. The locum doctor reviewing the scan was 16 hours into his shift. No action was taken by the Trust and neither the patient nor his GP were alerted to the tumour and the need for immediate treatment. Eighteen months later, Susan’s relative presented with symptoms at his GP’s surgery and was referred for urgent assessment. He was diagnosed with cancer and a course of chemotherapy and radiotherapy was undertake
  2. Content Article
    In 2009, Steve Burrows’ mother, Judie, an active and independent retired teacher, fell while riding her bike and was rushed to the hospital for hip surgery. After months of painful recovery, she fell again. Then, after eight days in the hospital and a second hip surgery, in which she lost approximately half her blood, the 69-year-old fell into a coma and suffered permanent brain damage. Questioning whether his mother received adequate care in surgery and in the hospital’s “e-ICU” unit, in which doctors sometimes monitor patients remotely by camera, Burrows consulted friends and lawyers, e
  3. Content Article
    My Dad was diagnosed with young-onset Alzheimer's when he was 57 years old. He's now 62. For the past 3 years he has been experiencing hallucinations of some kind. He’d often talk to ‘people’ who weren’t there, or go off and ‘play’ with them. We’d join in, to make Dad feel more comfortable. When he was living at home with us, we never flagged these symptoms to his GP. They didn't seem to cause Dad distress, and we knew it was a symptom of his Alzheimer's. But now he's in a care home and the staff are concerned that these hallucinations are causing him, and other residents, some distress.
  4. Content Article

    John's Campaign

    Sam

    Sam posted an article in Dementia

  5. News Article
    Patients are dying in hospital without their families because of pressure on NHS services, hospices have told The Independent. A major care provider has warned that it has seen a “huge shift” in the number of patients referred too late to its services. The warning comes as NHS England begins a new £32m contract with hospices to help hospitals discharge as many patients as possible this winter. NHS chief executive Amanda Pritchard said the health service was preparing for an Omicron-driven Covid wave that could be as disruptive as, or even worse than, last winter’s crisis. H
  6. Content Article
    Emergency admissions Going into hospital as an emergency admission can be an anxious time for many people and we know that you may be worried about what to tell staff if you're admitted to hospital in an emergency. You should: Tell staff you have Parkinson's and how important it is to get your medication on time. Explain to staff what medication you take. Show them your medication record and ask them to keep a copy of it in your notes. Check they have recorded this accurately. Ask a member of staff to let your GP, specialist or Parkinson’s nurse know you are in hospit
  7. Content Article
  8. Content Article
    When it comes to the discharging of a patient from hospital, it should be a time of relief – perhaps a long-term condition or illness is under control or an operation completed successfully. However for many thousands of carers this is not often the case. In more normal times, a period in hospital would have provided an opportunity for the close family friends and carers of a patient to become familiar with treatment plans, clinical staff and plans for discharge, as well as whatever rehabilitation and after care is needed. Being able to visit the patient in hospital would have also p
  9. News Article
    The widow of a top Scottish government official, who died after contracting Covid, believes the full details of his illness were concealed to protect the reputation of a troubled hospital. Andrew Slorance, Scottish government's head of response and communication unit, in charge of its handling of the Covid pandemic, went into Glasgow's Queen Elizabeth University Hospital for cancer treatment a year ago. His wife Louise believes he caught Covid there as well as another life-threatening infection. Andrew went in to the £850m flagship Queen Elizabeth University Hospital (QUEH) at
  10. News Article
    The mother of a man who took his own life said bereaved families would be left "in limbo" by a mental health trust's serious incident report delays. Local health officials have raised concerns over the "timeliness" of Cambridgeshire and Peterborough NHS Foundation Trust's (CPFT) reports. Maria Nowshadi, whose son James died in 2020, said they should be done quickly "so there's answers for families". Ms Nowshadi said: "These investigations should happen in a timely, quick manner so there's answers for families, but also in case there's any learning to be had... to make sure there
  11. Event
    Panelists will provide a robust overview of the challenges that accompany medical care and propose actionable recommendations for patients, family members, and carers to balance life demands for patients with complex medical needs. Register
  12. News Article
    The co-founder of a coronavirus bereaved families group has said he hopes Boris Johnson will "at long last... take us seriously" when he meets them at Number 10 today. Matt Fowler said it is vital the prime minister understand the need to start a public inquiry as soon as possible. Mr Johnson will meet members of the Covid-19 Bereaved Families for Justice group today - more than a year after promising to meet people whose loved ones had died. They will share how their family members caught the disease and died, and repeat calls for a public inquiry to get priority. The grou
  13. News Article
    A coroner has raised concerns about how a family was allowed to bring a restricted item that contributed to a man's death into a mental health unit. Joshua Sahota, 25, died as a result of asphyxia and psychosis in Bury St Edmunds, Suffolk, on 9 September 2019. Suffolk coroner Nigel Parsley said Mr Sahota's relatives were not told the item they brought in when visiting was on a restricted list. The NHS trust which runs the unit said it had improved its internal processes. Mr Sahota, from Kennett in Cambridgeshire, was taken to the Wedgewood Unit on the West Suffolk Hospital
  14. Content Article
    Joshua Sahota had been admitted to Southgate Ward at Wedgewood House on 9 August 2019 following a stay as an inpatient at Addenbrookes Hospital, where he had been seen by a psychiatrist and deemed to be at a continuing high risk of self-harm. His family were asked to take fresh clothes to the Southgate Ward, which they did so in a plastic carrier bag. It had not been communicated to them that this was a ‘restricted item’ on the ward. Joshua was subsequently transferred to Northgate Ward, also within Wedgewood House, on the 15 August 2019. On the 9 September 2019, Josh was found in his roo
  15. Content Article
    In this podcast the presenters discuss how vulnerable patients have been adversely affected by hospital visiting restrictions put in place during the Covid-19 pandemic. They consider how trusts are still having to balance patient visiting with reducing the spread of Covid. One of the cases they refer to in this discussion is that of Azra Hussain, who died by suicide while a patient at Mary Seacole House, operated and staffed by Birmingham and Solihull Mental Health Foundation Trust. In the Prevention of Future Deaths report, the Coroner raised patient safety concerns relating to her famil
  16. Content Article
  17. Community Post
    Call 4 Concern is an initiative started by Critical Care Outreach Nurse Consultant, Mandy Odell. Relatives/carers know our patients best - they notice the subtle signs of deterioration in their loved one. Families and carers are now able to refer straight to the Critical care outreach team directly if they feel that care has not been escalated. Want to set up a call for concern initiative in your Trust? Need some support? Are you a relative that would like it in your Trust? Leave comments below -
  18. Event
    Join the Patient Safety Movement for a unique opportunity to view the award-winning HBO hit film Bleed Out and talk with the filmmaker, Steve Burrows afterwards. Bleed Out is the harrowing HBO feature documentary film that explores how an American family deals with the effects of medical malpractice. After Judie Burrows goes in for a routine partial hip replacement and comes out in a coma with permanent brain damage, her son, Steve Burrows, sets out to investigate the truth about what really happened. The documentary film takes place in real time over a span of ten years. Tickets
  19. News Article
    An NHS trust has become the first in the country to individually contact every family of patients who caught coronavirus while they were in hospital in a large-scale bid to be transparent over the scale of infections. Bosses at the Queen Elizabeth Hospital Kings Lynn NHS Trust have set up a team to work through hundreds of cases where patients caught coronavirus in hospital. At least 99 patients are known to have died after becoming infected with more cases still to review. In a unique approach to transparency the trust is sending a letter by recorded delivery to every affected
  20. News Article
    A dementia charity is seeking a judicial review of the government guidance on care home visits. John's Campaign says many care homes in England are still refusing regular face-to-face visits, often essential for people with severe dementia. Dr Angela McIntyre, a retired doctor backing the campaign, has not seen her 92-year-old mother since March. A Department of Health spokesman said: "We know limiting visits in care homes has been difficult for many families." He added: "Our first priority is to prevent infections in care homes, and this means that visiting policy should still
  21. Content Article
  22. News Article
    Relatives of care home residents with dementia should be treated as key workers, leading charities say. In a letter to the health secretary, they write that the care given by family members is "essential" to residents' mental and physical health. They argue the current limits on visitors have had "damaging consequences" and they want visits to resume safely, with relatives given the same access to care homes and coronavirus testing as staff. Signed by the bosses of leading charities including Dementia UK and the Alzheimer's Society, the letter calls on the government to "urgentl
  23. News Article
    Extremely unwell eating disorder patients are having to be tube fed at home by their families owing to a lack of hospital beds, as the Royal College of Psychiatrists reports a rise in people being treated in units without specialist support. Leading psychiatrists are urging the government for an emergency cash investment as the pandemic has prompted a rise in demand for treatment for conditions such as anorexia, amid “desperate pressure in the system”. In interviews with the Guardian, a number of parents told of the struggles of helping a severely unwell person from home. A number of
  24. Content Article
  25. News Article
    England’s most senior nurse has called on the NHS’ million-plus frontline workers to protect themselves and their patients this year by taking up their free flu jab. Ruth May, the Chief Nursing Officer for England, is spearheading this year’s drive to ensure that as many NHS staff as possible get vaccinated against seasonal flu – meaning they are both less likely to need time off over the busy winter period, and less likely to pass on the virus to vulnerable patients. Since September, hospitals and other healthcare settings across the country have been laying on special activities de
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