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Found 36 results
  1. News Article
    Misinformation about perimenopause is putting women at risk of unintended pregnancies, unnecessary medication and missed diagnoses, experts have said. Awareness of menopause and treatments such as hormone replacement therapy (HRT) has been raised by efforts including a prominent documentary by Davina McCall. But as a growing number of women encounter misleading information on social media, there are concerns that some could be led to false conclusions that can obscure real underlying health difficulties. “Everyone thinks they’re menopausal,” said Dr Paula Briggs, a consultant in sexual and reproductive health. “So we are seeing younger and younger women asking for HRT when what they need is hormonal contraception, as they’re still fertile. “I work in an abortion service and we’re seeing more women over 35 now who believe themselves to be menopausal and are gobsmacked when they become pregnant.” Briggs said misinformation around perimenopause is concerning. “I look at things like Instagram to see what they are exposed to and I am horrified,” she said, citing examples of women in their 30s being told to demand HRT if they are unable to sleep or are struggling with migraines – and to switch GPs if denied. Or women being told they should seek testosterone treatment. “I’m not anti any of these things in the right person, but females produce their own testosterone lifelong, even women without ovaries, so the idea that everybody has to demand testosterone is bonkers,” Briggs said. Dr Channa Jayasena, an expert in reproductive endocrinology at Imperial College London, also raised concerns. “It’s great that there’s better [public] awareness [about perimenopause]. And I think many doctors are completely unaware about how debilitating the symptoms of perimenopause can be,” he said. “But the flipside of that, I think there’s a risk that some women are being mislabelled as having perimenopause when they have other things that are wrong.” Read full story Source: The Guardian, 25 May 2026
  2. News Article
    Malina Lee, a 31-year-old wedding baker based in San Antonio, Texas, joined TikTok during the Covid pandemic lockdowns in 2020. Like many people at the time, she was bored and began using the platform to pass the time and advertise her business. She didn’t expect a cancer diagnosis. Four years after Lee joined the app, a commenter with the username “PickleFart” told her that her neck looked asymmetrical in a way that could suggest she had a goiter – an enlarged thyroid gland – and that she should get it checked out. The anonymous amateur clinician turned out to be right – Lee had thyroid cancer, received treatment quickly, and, less than a year later, was cancer free. TikTok users are increasingly reporting that the app’s hyper-specific algorithm has steered them towards detecting medical problems before they were aware of them themselves. In many instances, users reported that symptoms described by other TikTokers matched their own inscrutable set of ailments, which led to diagnoses. In instances like Lee’s, human commenters were responsible for diagnoses that doctors had missed or not yet identified. Lee is not the only user that PickleFart, whose real name is Billie Jean Tuomi, has accurately diagnosed in a comment section. By her estimate, Tuomi has commented on dozens of videos alerting content creators of potential thyroid problems – and correctly spotted serious problems in at least four cases that she knows of, including Lee’s. Tuomi’s career as the “thyroid avenger”, as some have started to call her, is personal in its origins: she herself was diagnosed with thyroid cancer in 2012, and after two years of treatment was declared cancer-free. But obtaining a diagnosis and undergoing the subsequent treatment were difficult processes. She now finds herself trying to spare strangers on the internet what she went through. “It’s something that you don’t ever stop struggling with – it’s constantly on my mind,” she said. “The earlier you get diagnosed, the easier it is to treat, so I feel like it’s important to say something if you see something.” Craig Mittleman, director of the department of emergency services at Lawrence + Memorial hospital in Connecticut, said in the last five years of his 36-year career practicing medicine, he has seen a sharp increase in patients coming in with internet-influenced diagnoses – for better and for worse. “In some ways, it’s allowed patients to feel empowered to ask certain questions and be more informed,” he said. “But I also find that we are often, as emergency physicians, spending a lot of time debunking information that patients present, which they’ve procured through social media.” Read full story Source: The Guardian, 12 April 2026
  3. Content Article
    This report presents the findings of a project delivered by the Patients Association and sponsored by Lilly UK to better understand the experience of patients when purchasing medicines from unregulated online sources, including website and social media.  The project aimed to explore why patients turn to unregulated online channels, the role of social media and targeted advertising, the risks patients face, and what public awareness activity could better support people to stay safe. The research involved a desk-based review of existing evidence and two focus groups conducted in August 2025 with patients and carers from across England. Key findings The research identified four key themes shaping patients’ decisions and experiences: 1. Access barriers are the primary driver of unregulated online medicine use. Patients described long waits for GP and pharmacy appointments, difficulty accessing care, and frustration with an overstretched health system. Many felt they had little choice but to seek medicines online to manage their health needs. 2. Social media and targeted advertising strongly influence patient behaviour. Participants reported being exposed to persuasive advertisements and influencer content promoting medicines, as well as relying on online support groups for advice. While these spaces offer emotional support, they can also normalise bypassing clinical oversight. 3. Patients understand the risks but often feel forced to accept them. Unregulated online sources bypass vital safety checks and may supply counterfeit, ineffective or harmful medicines. Although participants were aware of these dangers, many felt compelled to take the risk due to lack of alternatives. 4. Public awareness efforts should inform, not shame. Participants stressed that patients should not be judged for seeking medicines online, particularly when healthcare access is limited. Instead, campaigns should equip people with clear, practical information to help them stay safe and make informed choices. Recommendations Based on these findings, the report makes four key recommendations: Improve patient awareness of the risks of buying medicines from unregulated online sources. Provide clear guidance on how to identify legitimate and safe online pharmacies. Design public awareness campaigns in partnership with patients to ensure relevance, clarity and impact. Address underlying access barriers that push patients towards unsafe alternatives.
  4. News Article
    Google’s search feature AI Overviews cites YouTube more than any medical website when answering queries about health conditions, according to research that raises fresh questions about a tool seen by 2 billion people each month. The company has said its AI summaries, which appear at the top of search results and use generative AI to answer questions from users, are “reliable” and cite reputable medical sources such as the Centers for Disease Control and Prevention and the Mayo Clinic. However, a study that analysed responses to more than 50,000 health queries, captured using Google searches from Berlin, found the top cited source was YouTube. The video-sharing platform is the world’s second most visited website, after Google itself, and is owned by Google. Researchers at SE Ranking, a search engine optimisation platform, found YouTube made up 4.43% of all AI Overview citations. No hospital network, government health portal, medical association or academic institution came close to that number, they said. “This matters because YouTube is not a medical publisher,” the researchers wrote. “It is a general-purpose video platform. Anyone can upload content there (eg board-certified physicians, hospital channels, but also wellness influencers, life coaches, and creators with no medical training at all).” Google told the Guardian that AI Overviews was designed to surface high-quality content from reputable sources, regardless of format, and a variety of credible health authorities and licensed medical professionals created content on YouTube. The study’s findings could not be extrapolated to other regions as it was conducted using German-language queries in Germany, it said. The research comes after a Guardian investigation found people were being put at risk of harm by false and misleading health information in Google AI Overviews responses. Read full story Source: The Guardian, 24 January 2026
  5. Content Article
    This study aimed to understand NHS healthcare workers’ perceptions of toxic organisational cultures and behaviours, by undertaking an analysis of tweets. The prompt tweet was posted in late 2022 by @DrLindaDykes (a prominent UK physician), inviting healthcare staff to share their experiences of “red flags that indicate you're probably in a toxic organisation”. A qualitative analysis of response tweets was undertaken, using inductive thematic analysis. A total of 462 tweets were examined, revealing five key themes of what constitutes a red flag of a toxic workplace culture. The first theme was emotional depletion, with staff feeling drained and futile about their work. The second theme was incivility and unfair treatment, often rooted in a bullying culture. A third theme was a culture of blame shifting, whereby leaders and managers pressured frontline staff to resolve or take the blame for systemic issues, including understaffing. This also fed into the fourth theme, regarding staff feedback and/or concerns being ignored by leaders/managers. A fifth underlying theme was the fear of speaking out, with some employees facing punishment for doing so. This study highlights the pervasive and complex nature of toxic workplace cultures within the NHS, as experienced by healthcare professionals on Twitter. The findings demonstrate the importance of analysing social media posts to amplify critical voices often absent from more traditional methods of capturing healthcare workers’ opinions, such as staff surveys, offering valuable insights into the complexities of organisational dysfunction. There is an urgent need to tackle a culture of incivility to safeguard staff wellbeing.
  6. News Article
    Doctors and medical experts have warned of the growing evidence of "health harms" from tech and devices on children and young people in the UK. The Academy of Medical Royal Colleges (AoMRC) said frontline clinicians have given personal testimony about "horrific cases they have treated in primary, secondary and community settings throughout the NHS and across most medical specialities". The body, which represents 23 medical royal colleges and faculties, plans to gather evidence to establish the issues healthcare professionals and specialists are seeing repeatedly that may be attributed to tech and devices. It intends to highlight the sometimes-hidden risks of unrestricted content and screen time to children and young people and provide guidance to the medical profession about how to identify and manage the harm being done. The academy said it already had "evidence of the impact on children and young people's physical and mental health both from excessive screen time as well as exposure to harmful online content". It says the work is due to be completed within three months. The letter was sent to Health Secretary Wes Streeting and Science and Technology Secretary Liz Kendall. Read full story Source: Sky News, 18 January 2026
  7. News Article
    A hospital trust in south London has issued an alert after fraudulent videos were circulated online claiming its staff endorsed weight loss products. Guy's and St Thomas' NHS Foundation Trust said that the videos, found on social media platforms like Facebook and TikTok, "falsely claim a number of our clinicians are using and endorsing these products". The videos, which show doctors applying weight loss patches to their bodies and losing weight over a period of time, appear to be AI-generated, the Trust said, and do not show doctors who work there. The BBC has approached the company and a doctor claiming to be behind the products, but has had no response. Speaking to the BBC Dr Daghni Rajasingam, deputy chief medical officer at the Trust, said staff were "actively working" to try and get the videos taken down. "They are fraudulent and they're misleading," Rajasingam said. "NHS clinicians would never endorse or promote commercial products such as this." The doctor urged the public to seek health advice on weight loss from "trusted NHS sources". Read full story Source: BBC News, 15 January 2025
  8. News Article
    Social media misinformation is driving men to NHS clinics in search of testosterone therapy they don’t need, adding pressure to already stretched waiting lists, doctors have said. Testosterone replacement therapy (TRT) is a prescription-only treatment recommended under national guidelines for men with a clinically proven deficiency, confirmed by symptoms and repeated blood tests. But a wave of viral videos on TikTok and Instagram have begun marketing blood tests as a means of accessing testosterone as lifestyle supplement, advertising the hormone as a solution to problems such as low energy levels, poor concentration and reduced sex drive. Doctors warn taking testosterone unnecessarily can suppress the body’s natural hormone production, cause infertility, and increase the risk of blood clots, heart problems and mood disorders. The online demand for treatment is so great that medical professionals have now begun to see it mirrored in their clinics. Prof Channa Jayasena, of Imperial College London, who is chair of the Society for Endocrinology Andrology Network, said hospital specialists were seeing growing numbers of men who had had private blood tests, often promoted on social media, and been told incorrectly that they needed testosterone. “At the national meeting, we asked 300 endocrinologists across the UK; everyone is seeing patients from these clinics every week,” he said. “They are filling our clinics. We used to see people with adrenal problems and diabetes, and it’s really affecting NHS care. We are all asking how to deal with this.” Read full story Source: The Guardian, 8 November 2025 Further reading on the hub: 14 top picks: Men's health
  9. News Article
    Millions of women are being exploited by a “menopause gold rush” as companies, celebrities and influencers take advantage of a “dearth” of reliable information on the issue, experts have said. Healthcare companies and content creators saw menopause as a “lucrative market” and were trying to profit from gaps in public knowledge, women’s health academics at UCL said. Researchers called for the rollout of a national education programme after finding a significant number of women do not feel well-informed about menopause. Writing in medical journal Post Reproductive Health, they said: “There has been a rapid expansion in unregulated private companies and individuals providing menopause information and support for profit; this has been termed the ‘menopause gold rush’. “This fragmented landscape of menopause support and education leaves people vulnerable to financial exploitation, may propagate misinformation and is likely to amplify existing menopause-related health inequities.” One woman who took part in the UK study told researchers: “Everything I know about the menopause I learnt on Instagram from other women.” Only one in five – 22% – of 1,500 women surveyed by the UCL team felt well-informed about menopause. Read full story Source: The Guardian, 20 October 2025
  10. News Article
    The Advertising Standards Authority has reprimanded six cosmetic treatment providers for pressuring customers, exploiting women’s insecurities or trivialising medical risks after an investigation into adverts for liquid Brazilian butt lifts (BBLs). The cosmetic procedure, which involves injecting fillers into the buttocks to enhance their shape and size, is unregulated in the UK and can carry significant health risks, not least from potentially life-threatening infections. Hundreds of women have contracted infections after paying for liquid BBLs in the UK, with many requiring hospital treatment for sepsis or corrective surgery to repair tissue damage. The ASA took action against the UK companies after its artificial intelligence-driven monitoring system flagged numerous Facebook and Instagram adverts for liquid BBLs and similar procedures. Adverts from Beautyjenics, Bomb Doll Aesthetics, CCSkinLondonDubai, EME Aesthetics & Beauty Academy, Rejuvenate Academy, trading as Rejuvenate Clinics, and NKD Medical, trading as Dr Ducu, were found to have breached the code and the companies were told the ads must not appear again. “Choosing to undergo a cosmetic procedure is a serious decision, so ads that trivialise this, exploit insecurities, or pressure consumers can cause real harm. We’re particularly concerned about these types of ads for liquid BBLs, given the procedure is currently unregulated and is known to be high risk,” an ASA spokesperson said. Read full story Source: The Guardian, 16 April 2025
  11. News Article
    Illegal weight loss injections with dirty needles are being sold over social media and sent to people in Northern Ireland, a BBC investigation has found. BBC News NI made test purchases of syringes which claimed to contain semaglutide, a prescription-only drug, via Facebook from sellers based in England. When tested, the liquid was not semaglutide but did contain carnitine – a supplement that can be bought on the high street. The Police Service of Northern Ireland (PSNI) said it was working at an international level to root out criminal gangs selling illicit jabs manufactured in unhygienic labs. So-called skinny jabs are prescribed weight loss injections that work by making you feel fuller and less hungry. In Great Britain, semaglutide is available on the NHS as part of a weight management programme. However, in Northern Ireland it is not as there is no specialist weight management service, but it is available on private prescription. The Department of Health in Northern Ireland said people were putting themselves at serious risk buying from sellers on social media sites. Read full story Source: BBC News, 14 April 2025
  12. News Article
    Less than half of the claims made about symptoms of attention deficit hyperactivity disorder (ADHD) in the most popular videos on TikTok align with clinical guidelines, a new study has found. Two clinical psychologists with expertise in ADHD also found that the more ADHD-related TikTok content a young adult consumes, the more likely they are to overestimate both the prevalence and severity of symptoms in the general population. People with ADHD are known to suffer inattention, hyperactivity and impulsivity – and may struggle to concentrate on a given task, or suffer extreme fidgeting. Prescriptions for drugs for ADHD have jumped 18% year-on-year in England since the pandemic, which underscores the need for accurate and reliable information, particularly on platforms popular with young people. In this latest study, published in the journal Plos One, the two psychologists evaluated the accuracy, nuance, and overall quality in the top 100 #ADHD videos on TikTok. They found the videos have immense popularity (collectively amassing nearly half a billion views), but fewer than 50 per cent of the claims made were robust. Read full story Source: The Independent, 31 March 2025
  13. News Article
    Prescriptions for drugs to treat attention deficit hyperactivity disorder (ADHD) have jumped 18% year-on-year since the pandemic, research suggests. Experts said increasing awareness of ADHD, including via social media platforms like TikTok and Instagram, is likely to have encouraged more people to seek diagnosis and treatment for the condition. However, they warned that “misinformation on these platforms may lead to misconceptions about symptoms, diagnosis and treatment”. Another reason behind the rise could be the “strong association between the impact of the (Covid) pandemic and the worsening of ADHD symptoms”, they said. Dr Ulrich Muller-Sedgwick, ADHD champion at the Royal College of Psychiatrists, said people with ADHD need access to timely and effective assessment, “followed by the appropriate treatment”. He added: “We’ve seen a significant increase in the number of people coming forward for ADHD support in recent years. “There are many reasons for this, including improved recognition of ADHD in women, greater public awareness and the impacts of the pandemic which exacerbated many people’s symptoms. “The right diagnosis and care, including medication and reasonable adjustments, can greatly benefit people’s health and support them to reach their full potential at school, university or work. “We know that expanding ADHD services through targeted investment would help ensure people receive the vital care they need.” Read full story Source: The Independent, 11 March 2025
  14. News Article
    Influencers are appealing to emotional narratives around health and often “fearmongering” to promote controversial medical tests on social media, a new study has found, in ways that are overwhelmingly misleading and fail to mention potential harms. The research, led by the University of Sydney, published in the journal JAMA Network Open, investigated five tests being discussed on social media despite limited evidence of their benefits for generally healthy people and concerns about overdiagnosis. These were full-body magnetic resonance imaging (MRI) scans; genetic testing claiming to identify early signs of 50 cancers; blood tests for testosterone levels; the anti-Mullerian hormone (AMH) or “egg-timer” test, which surveys a woman’s egg count; and the gut microbiome test. The study’s lead author, Dr Brooke Nickel, said posts about these tests came from a “wide range” of account holders, from major influencers to “everyday girl-next-door” accounts, as well as news outlets, doctors and the companies making the tests. “Across the board, they were being promoted misleadingly,” she said. Nickel said the tests were being promoted under the guise of empowerment: early screening as a way for people to take control of their own health. However, as Nickel noted: “These tests carry the potential for healthy people to receive unnecessary diagnoses, which could lead to unnecessary medical treatments or impact mental health.” Read full story Source: The Guardian, 26 February 2025
  15. News Article
    YouTube has launched a verification system for healthcare workers in the UK as it battles disinformation online. In 2022, health videos were viewed more than three billion times in the UK alone on the video-sharing platform. Doctors, nurses and psychologists have been applying for the scheme since June and must meet rigorous criteria set by the tech giant to be eligible. Successful applicants will have a badge under their name identifying them as a genuine, licensed healthcare worker. But YouTubers have warned the system is only meant for education purposes, not to replace medical advice from your GP. Vishaal Virani, who leads health content for YouTube, said it was important simply due to the sheer number of people accessing healthcare information on the video-sharing platform. "Whether we like it or not, whether we want it or not, whether the health industry is pushing for it or not, people are accessing health information online," he told the BBC. "We need to do as good a job as possible to bring rigour to the content that they are subsequently consuming when they do start their care journey online." Read full story Source: BBC News, 8 September 2023
  16. Event
    until
    Uncover the impact and value of media stories exposing patient safety incidents. Shaun Lintern, Health Correspondent at The Independent, will join Jonathan Hazan, Chair of Patient Safety Learning and Moira Durbridge, President of the Patient Safety Section of the Royal Society of Medicine, for this interactive webinar which will explain how the media work to promote patient safety stories, illustrate how media stories can be a spur to local patient safety improvements and show how the media can be a powerful medium for communicating patient safety. Register
  17. News Article
    Talking Medicines, a social intelligence company for the pharmaceutical industry, has secured £1.1 million funding deal to scale up its AI-based platform for measuring patient sentiment. Tern, an investment company specialising in the Internet of Things (“IoT”), is the lead investor in a syndicated funding round alongside The Scottish Investment Bank, Scottish Enterprise’s investment arm. Led by CEO Jo Halliday alongside co-founders Dr Elizabeth Fairley and Dr Scott Crae, Talking Medicines will use the funds to support the launch and roll-out of a new AI data platform, which will translate what patients are saying into intelligence by providing a global patient confidence score by medicine. As part of these plans, the business intends to immediately recruit 9 new employees to the NLP data tech team. Formed in 2013 to create new ways of capturing the voice of the patient, the Glasgow-based firm uses a combination of AI, machine learning and Natural Language Processing (NLP) tech tools to capture and analyse the conversations and behaviours of patients at home, with the aim of transforming big pharma’s understanding of patient sentiment. Through mapping the patient voice from social media and connected devices to regulated medicine information, it is able to build data points to determine trends and patterns of patient sentiment across medicines. The round brings the total raised by the firm to £2.5m, including three previous seed funding rounds with previous investors including impact investor SIS Ventures and the Scottish Investment Bank. Talking Medicines CEO Halliday, said: “This investment will scale our team and the development of our AI, ML, NLP tech tools to translate what patients are saying into actionable pharma grade intelligence through our global patient confidence score by medicine.”
  18. News Article
    A qualitative study of Twitter hashtags revealed power hierarchies can damage the patient experience and clinician relationship. In an analysis of a popular Twitter hashtag, researchers found that patients largely take umbrage when they feel their doctor does not believe their ailment or knowledge about their healthcare, and when they perceive a power hierarchy between themselves and their clinician. Although not as many patients are using Twitter to get peer feedback on certain providers (the Binary Fountain poll showed only 21% of patients do this), the social media website still holds a lot of power, researchers from the University of California system explained. Twitter is a large platform that hosts social discourse. Healthcare professionals use Twitter to disseminate public health and patient education messages and to network, while 61% of patients use Twitter to learn more about their health, as well. Read full article Source: Patient Engagement HIT, 29 October 2020
  19. Content Article
    Time to Talk Mental Health UK is a fully private and confidential Facebook Community. The community is highly interactive and fully moderated. They provide a safe place for people to talk about their mental health in confidence with others who understand. In addition, they provide events, regular clubs and a library of resources.  The community enables consistent support, which may otherwise be lacking in the mental health care package.
  20. Content Article
    PEP Health is a social media listening tool which offers a radical new approach to collecting and analysing the views of patients on the health services they encounter. The platform delivers comprehensive real-time reporting of what patients really think about their care and provide actionable insights that can function as a board assurance tool and provide feedback to inform operational decisions. This report explores some of the key findings from PEP Health data on trends and variation in patient experiences across hospitals in England and derives insights and recommendations that can lead to improvement in care. The report found large variations between organisations. National trends show: Overall there is a considerably greater volume of positive feedback compared with negative feedback from patients on the care they received from providers. A decrease in patient satisfaction across most quality domains throughout the autumn of 2019 into early 2020. Distinct improvements in reported experiences of acute care as the Covid crisis took hold. Signs of plateauing and possible declines emerging in late summer / early autumn 2020.
  21. Content Article
    This qualitative study in the Journal of Patient Safety aimed to understand the perception of dental patients who have experienced a dental diagnostic error and to identify patient-centred strategies to help reduce future occurrences. Recruiting patients via social media, the researchers conducted a screening survey, initial assessment and 67 individual patient interviews to capture the effects of misdiagnosis, missed diagnosis or delayed diagnosis on patient lives. They found that dental patients endured prolonged suffering, disease progression, unnecessary treatments and the development of new symptoms as a result of diagnostic errors. Patients believed that the following factors contributed to diagnostic errors: Poor provider communication Inadequate time with provider Lack of patient self-advocacy and health literacy. Patients suggested that future diagnostic errors could be mitigated through: improvements in provider chairside manners more detailed patient diagnostic workups improving personal self-advocacy enhanced reporting systems.
  22. Content Article
    Type 1 diabetes is a life-long condition that causes the level of glucose in a person’s blood to be too high. It is caused by the body’s immune system attacking the cells in the pancreas that produce insulin, the hormone that allows the body to use glucose as energy. It cannot be cured, and people with diabetes need to inject or infuse insulin multiple times a day to control their blood sugar levels. Peer support communities can help people with type 1 diabetes to manage their condition safely and feel less isolated. In this blog, Paul Sandells, a diabetes peer supporter and advocate, talks about the important role of peer support in helping people with type 1 diabetes improve their blood glucose control and deal with the burden that diabetes can place on daily life. A diagnosis of any type of diabetes can be a frightening and lonely experience at any age. You may have read stories about others living with diabetes or heard of “a friend of a friend” who had the condition. Those tales may not have been lavished in positives and, if you’ve been recently diagnosed, may even have had a negative impact upon you. At the time of my own diagnosis with type 1 diabetes, there was little in the way of peer support. That was a long time ago, in 1984. I remember talk of diabetes “camps” but, quite frankly, at the tender age of eight the prospect terrified me and I just wanted to feel like every child—every other child who didn’t have diabetes, at least. Without peers to talk to, I spent the rest of my childhood getting support from healthcare professionals. In the 1980s and 1990s, that support was primarily based around monitoring my HbA1c and keeping my blood glucose as low as possible. It was a lonely and confusing time and eventually, as I hit my teens and as many teens do, I rebelled. Adulthood, employment, marriage and children followed, but it wasn’t until my 40th birthday that I really began to accept that I have diabetes. I did some internet searching around the subject of complications and stumbled upon several communities of people living with type 1 diabetes. That was a turning point in my life with diabetes. If all of those strangers were talking about their day-to-day worries—their data, their good days, their highs and lows, how to bolus for pizza?—then I should too. What’s the worst that could happen? The internet is still pretty anonymous and I could always hide behind a moniker. The moniker which I settled on was DiabeticDad; I figured that described me very well. Within a few days of exchanging messages on a forum, I’d launched my own YouTube channel and began creating videos about my diabetes. I don’t mind admitting that I was terrified and that my videos were amateur but, remarkably, people began to subscribe to my channel and engage with me. One subscriber mentioned social media, specifically Twitter, a platform which I was already familiar with. I created @DiabeticDadUK and began tweeting. Within 24 hours, I had 100 people living with or with an interest in diabetes following me. The friendliness and immediate support was obvious. That was five years ago, and since that time, I have been given immeasurable levels of help and support from my peers within the Twitter community of #GBDoc (Great Britain Diabetes Online Community) and beyond. My peers helped me to realise that I’m not alone, that they’d been through the same struggles as me, that life can be absolutely fine with diabetes. I’ve attended many “meet up” events with my peers, many of whom I am very proud to call my friends. Those events helped me to open up and talk about my diabetes, to share my stories and my lived experience. I’ve since attended many conferences in person and virtually, and even spoken at some. Along the way, my peer support network has grown to such an extent that I feel I can reach out to any number of my friends for help or an answer to a question and they’ll be there. The support and information I’ve gained over the years has helped others, too. I am now a GBDoc community volunteer. That means I help to organise events, “signpost” the community to good things happening within the world of diabetes, help to support the fun things which our community runs such as monthly Zoom quizzes and Fantasy Football competitions and, more recently, offer one to one support as a mentor. My social media accounts and blog document all the important things that happen to me and my diabetes because I’m a great believer in sharing “warts an’ all” to help to normalise the condition for those living with it. I think it’s also helpful for the general public who may be confused by what diabetes is, not understand what the different types are, and might believe the myths and misinformation that are out there. I want to provide a voice to de-stigmatise diabetes in all its types. Peer support has dramatically changed my long-term outlook with diabetes. I have embraced technology and moved from finger pricking and injections to the use of a continuous glucose monitor and an insulin pump. Both of those transitions came about through engagement with my peers. The result was a much lower HbA1c but, more importantly for me, a greater quality of life with far less burden. It has been an absolute pleasure to share that journey with the community and hear of others experiencing similar improvements. Tales of peer support helping the lives of people living with Diabetes are cropping up all the time, rarely does a day go by without me witnessing a person thanking another for their help - help which might take some time to obtain through NHS professionals. Peer support comes in many forms, from the very light-hearted chats to the most serious discussion, it only needs somebody to start the conversation. So, drop by and say hello and use the hashtag of #GBDoc. You’re almost certain to find help and friendship from people who live with Diabetes. You are not alone. Read more from Paul on his blog about living with diabetes. He also tweets as @DiabeticDadUK
  23. News Article
    NHS trusts are sharing intimate details about patients’ medical conditions, appointments and treatments with Facebook without consent and despite promising never to do so. An Observer investigation has uncovered a covert tracking tool in the websites of 20 NHS trusts which has for years collected browsing information and shared it with the tech giant in a major breach of privacy. The data includes granular details of pages viewed, buttons clicked and keywords searched. It is matched to the user’s IP address – an identifier linked to an individual or household – and in many cases details of their Facebook account. Information extracted by Meta Pixel can be used by Facebook’s parent company, Meta, for its own business purposes – including improving its targeted advertising services. Records of information sent to the firm by NHS websites reveal it includes data which – when linked to an individual – could reveal personal medical details. It was collected from patients who visited hundreds of NHS webpages about HIV, self-harm, gender identity services, sexual health, cancer, children’s treatment and more. It also includes details of when web users clicked buttons to book an appointment, order a repeat prescription, request a referral or to complete an online counselling course. Millions of patients are potentially affected. Read full story Source: The Guardian, 27 May 2023
  24. Content Article
    Social media can be a fascinating part of the medical world—an intriguing cocktail of joyousness and apathy, good and dark intentions, facts and counter facts. To some, this is something to be dismissed easily. Yet, over time and with easier access to the internet, social media platforms have also become places of dynamism and activism, where things can happen a lot more quickly than in traditional systems, writes Partha Kar, consultant in diabetes and endocrinology, in this BMJ opinion piece.
  25. Content Article
    The Patient Experience Platform (PEP) is a listening tool which offers a new approach to collecting and analysing the views of patients on health services. The platform delivers comprehensive real-time reporting of what patients think about their care and provides actionable insights to inform operational decisions. This second annual report explains how PEP data is collected and analysed and explores some key findings on trends and variations in patient experiences across hospitals in England. The report highlights a dip in patient satisfaction with NHS services, probably due to the impact of the Covid-19 pandemic. The data also demonstrates increased variation in patient satisfaction between different providers. Trends identified in the report include: Sharp falls in ratings for maternity provision across England Significant variation in ratings for different A&E departments Falls in rapid access to care across whole trusts
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