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Showing results for tags 'Patient engagement'.
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Content ArticleThe Extensive Care Service is part of the Fylde coast Vanguard and is designed for frail elderly patients with two or more long-term conditions who are at high-risk of an emergency admission. Working closely with patients, the service aims to assist them to improve their health and wellbeing; support them to manage their own conditions and provide effective interventions when needed in order to better manage exacerbations of their conditions. One of the key components of the care model is patient activation. The service teams’ understanding of an individual’s ability to contribute to the management of their own health and wellbeing is key to ensuring the success of this approach. The model is new, different and includes the development of a unique role - a ‘wellbeing support worker’. These individuals are a consistent feature in a model which enables a fuller understanding of a patient’s ‘activation’ ability so that engagement and support can be tailored appropriately.
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Content ArticleThis guide developed by Learn Together and Bradford Teaching Hospitals NHS Foundation Trust has been designed to help patients and families understand what to expect from patient safety investigations and how they can be involved in the process. It includes quotes and advice from patients who have been through patient safety investigations and spaces to record experiences, questions and reflections. The guide provides an outline of the investigation process, broken down into five stages: Understanding you and your needs Agreeing how you work together Giving and getting information Checking and finalising the report Next steps
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Content ArticleThe Patient Safety Partner (PSP) is a new and evolving role developed by NHS England to help improve patient safety across health care in the UK. This web page outlines Mersey Care NHS Foundation Trust plans to develop a team of PSPs to work alongside staff, patients, service users and families to influence and improve safety within its services. PSPs can be patients, service users, carers, family members or other lay people (including NHS staff from another organisation). The page contains answers to frequently asked questions (FAQs) about the PSP role, including: What is the role of a Patient Safety Partner? What kinds of projects will I get involved with? Will I have any support? How much will I get paid for this role? What training will I receive? What is the time commitment? How long will I hold this role for? Do I need any experience? How will my work help the NHS? Do I have to live locally? Who should apply for this role?
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Content ArticleThis framework provides guidance on how the NHS can involve people in their own safety as well as improving patient safety in partnership with staff. It is relevant to all NHS trusts and commissioners and should also be useful to other NHS settings, including primary care and community services, that are considering how they can involve patients in safety.
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Content ArticleA Patient Safety Partner is someone who works with the NHS to make care safer for patients. This easy to read guide explains how important it is for the NHS that patients and carers are involved in making patient care safe.
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Content ArticleA patient safety partner (PSP) is actively involved in the design of safer healthcare at all levels in the organisation. This includes roles in safety governance – e.g. sitting on relevant committees to support compliance monitoring and how safety issues should be addressed and providing appropriate challenge to ensure learning and change – and in the development and implementation of relevant strategy and policy. NHS England has provided a description of the Patient Safety Partner role.
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Melanie Whitfield, Associate Director of Patient Safety at Kingston NHS Foundation Trust, and Helen Hughes, Chief Executive of Patient Safety Learning, recently ran a workshop for Patient Safety Partners (PSPs) at the Kingston Trust. Here is a summary of the workshop. -
Content ArticleThis video made by Health Education England and the Restraint Reduction Network looks at the impact of inappropriately used restraint practices in mental health and learning disability services. Three people with lived experience of restraint discuss the impact it has had on their lives and why they are campaigning for change.
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Content ArticleThe Northern Ireland Department of Health's Mental Health Strategy Delivery Plan for 2022/23 sets out the prioritised workstreams under the 2021-31 Mental Health Strategy, which was published in June 2021, alongside a ten-year Funding Plan. It outlines governance and monitoring arrangements, actions currently in progress and actions that will be delivered at a later date. The Delivery Plan is published alongside Mental Health Strategy Co-Production/Design Principles, designed to give structure and meaning to the Department’s desire to ensure continued co-production throughout the implementation of the ten-year Strategy.
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Content ArticleThis resource from the Mental Health Foundation provides tips to help you protect your mental health, each one backed up by evidence from research. The leaflet gives further information on the following tips: Get closer to nature Learn to understand and manage your feelings To to someone you trust for support Be aware of using drugs and/or alcohol to cope with difficult feelings Try to make the most of your money and get help with problem debts Get more from your sleep Be kind and help create a better world Keep moving Eat healthy food Be curious and open-minded to new experiences Plan things to look forward to
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Content ArticlePeople with mental health difficulties bring a unique and vital perspective to shaping services. While steps have been taken to embed ‘lived experience’ within mental health services, these opportunities can often feel tokenistic, and maintain the unequal power dynamics between clinicians and ‘patients’. In this paper, David Gilbert uses his insights as a mental health service user and his experience in Patient Leadership to consider the limitations of current practice, and the possibilities of a new approach which could transform mental health services.
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Content ArticleSelf-binding directives instruct clinicians to overrule treatment refusal during future severe episodes of illness. These directives are promoted as having the potential to increase autonomy for individuals with severe episodic mental illness. Although lived experience is central to their creation, the views of service users on self-binding directives have not been seriously investigated. This study in The Lancet Psychiatry aimed to explore whether reasons for endorsement, ambivalence or rejection given by service users with bipolar disorder can address concerns regarding self-binding directives, decision-making capacity and human rights.
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Content ArticleElectroconvulsive therapy, or ECT, is still given to about 2,100 -2,700 people a year in England, about half of whom have not consented to it. This blog reports on a campaign for an independent review of this highly controversial procedure, and provides links to relevant articles.
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Content ArticleThe Serenity Integrated Mentoring (SIM) model is described as "an innovative mental health workforce transformation model that brings together the police and community mental health services, in order to better support 'high intensity users' of Section 136 of the Mental Health Act (MHA) and public services." The SIM model is part of a 'High Intensity Network' (HIN) approach, which is now live in all south London boroughs. In this hub post, Steve Turner highlights the benefits and risks of this approach and seek your views on it.
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Content ArticleFor some time now I've been looking to find out more about mental health services in Trieste, Italy. Then I met Vincenzo Passante Spaccapietra, co-host of the Place of Safety? podcast series. This has enabled me to learn more about the closure of the mental institutions in Trieste, Italy, and the work of Franco Basaglia. I was keen to find out what really took place, what this really means in practice and how we can adopt this model in the UK. We were delighted to have become involved and to have recorded a couple of podcasts. I recommend this resource to everyone interested in safe, compassionate, patient led mental health care.
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The objective of this piece of work was to try and create a different way of navigating through the various themes in mental health. There are a huge range of posts on mental health and related areas on the hub. Seemingly endless information, and so little time to absorb it. I know from experience, and from the learning I have undertaken and delivered on information mastery, that there is so much material available it is difficult to find the time to discover, and then read fully, what is most relevant to the work in hand. As a result I have created a diagram (below - click on it to enlarge it) and an interactive pdf (attached), which has a number of topics and subtopics links to existing hub content to help people to do exactly that. In doing this, the focus has been on including patients/users of services, avoiding medical jargon, taking a holistic view. I am really interested in everyone’s views on this. Is this a useful approach and a helpful model? Will it help you post and find what matters to you? I would love to gather people's ideas and potentially improve the model further.- Posted
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Content ArticleThis survey from the Care Quality Commission (CQC) looks at the experiences of people receiving community mental health services. The 2020 community mental health survey received feedback from 17,601 people who received treatment for a mental health condition between 1 September 2019 and 30 November 2019. This report shows that people are consistently reporting poor experiences of NHS community mental health services, with few positive results. For example, poor experiences were reported for crisis care, accessing care, and involvement. It also found disparity in the experiences of different groups of people, especially among respondents with different diagnoses.
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In this blog, Soojin Jun, Cofounder of Patients for Patient Safety US, argues that it makes sense for healthcare organisations to be at the forefront of conservation efforts, as they exist to promote people's wellbeing. She points to a 2020 study that demonstrated how the global healthcare supply chain contributes to environmental damage, counteracting what healthcare exists to promote. Going forward, people will want to know how much waste healthcare systems generate, and how efficiently they use resources, and the article looks at how organisations and patients can be proactive in promoting sustainability. -
Content ArticleIn this issue of HSJ's fortnightly briefing, Emily Townsend looks at why we are still not listening to patients and their families after harrowing reports of abuse and poor care at NHS mental health facilities surfaced last year.
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Constipation can be a life–threatening issue for people with a learning disability who are at heightened risk from complications if it is left untreated. This campaign has been developed by NHS England to support people with a learning disability, their carers and people who work in primary care to recognise the signs of constipation. Resources have been co–created with input from the Down’s Syndrome Association, Mencap and Pathways Associates to ensure that they are fit for purpose. The resources aim to: Drive awareness of the seriousness of constipation Help people recognise the signs of constipation at an early stage Empower people to take action and ensure that people with a learning disability experiencing constipation get the right health support straight away Raise awareness of the steps which can be taken to prevent constipation. -
Content ArticleIn her first blog as Interim Director of People with a Learning Disability and Autistic People, Rebecca Bauers talks about the importance of listening to the voices of people with lived experience; about how we have been gathering insight to shape our priorities, and how we intend to use our new powers to assess integrated care systems and local authorities.
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Content ArticleThis easy-read guidance outlines what the Care Quality Commission (CQC) expects good care to look like for autistic people and people with a learning disability. It explains how the CQC aims to help health and adult social care services develop and run services that are right for the people they serve.
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Content ArticleThese NHS leaflets have been produced to help families and carers of people with a learning disability know the signs of constipation and what to do if you think someone is constipated.
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Content ArticleIn 2016, 18 year-old Oliver McGowan died after being inappropriately prescribed antipsychotic medications. Oliver had high functioning autism, mild hemiplegia and epilepsy, and had experienced previous well-documented adverse reactions to these medications. On admission to hospital, both Oliver and his parents had been clear about the fact that he should not be given any form of antipsychotic. In this interview for Woman's Hour, Oliver's mum Paula talks about Oliver and the events that led to his death, as well as discussing new mandatory training for all health and social care staff that was passed into law as part of the Health and Care Act 2022 - The Oliver McGowan Mandatory Training in Learning Disability and Autism. This will ensure that all staff working health and social care receive learning disability and autism training appropriate for their role, which will in turn improve outcomes for people with learning disabilities. The interview can be found at 34 minutes 10 seconds into the programme.
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Content ArticlePeople with a learning disability and autistic people should have the right support in place to live an ordinary life and fulfil their aspirations, in their own home. This action plan from the Department of Health and Social Care (DHSC) aims to strengthen community support for people with a learning disability and autistic people, and reduce reliance on mental health inpatient care. This action plan outlines the government's policy to achieve this by: strengthening community support. reducing the overall reliance on specialist inpatient care in mental health hospitals. improving the experiences of people with a learning disability and autistic people across public services such as health, social care, education, employment, housing and justice. It brings together the commitments that have been made by different organisations to realise these aims, and aims to drive long-term change for people with a learning disability and autistic people.
