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Content ArticleChristine Reddall talks about the diagnosis and subsequent care of her daughter who had young onset dementia.
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Content ArticleReporters in the US from the Houston Chronicle and NBC News spent nine months examining more than 40 cases and spoke with more than 100 attorneys, doctors and current and former state employees. Their reporting reveals that some doctors have diagnosed child abuse with a degree of certainty that critics say is not supported by science. This article, the first in a series, was published in partnership with NBC News.
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Safer outcomes for people with psychosis
Dorit posted an article in By patients and public
Dorit describes the assessment and subsequent death of her much loved daughter-in-law who died during a psychotic episode having been discharged the previous evening. Her story raises a number of questions: How should families be included in making judgements and assessments about the patient and their well-being? What support do they need to care for a very distressed loved one? Why aren't written care and contingency plans provided to the patient and their family? What more needs to be done to ensure standard practices are in place to protect patients with psychosis?- Posted
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What it feels like working with unsafe staffing
Anonymous posted an article in Florence in the Machine
This blog has been written by a healthcare worker and demonstrates the reality of what it is like caring for patients and families while being chronically low on staff. They describe the impact this has on staff morale and the impact it has on patients, patients family members and the relationship between staff and patients.- Posted
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Why investigate? The patient's perspective
Joanne Hughes posted an article in Investigations and complaints
A brief, heartfelt piece presented purely from the harmed patient's perspective and urging those involved in making decisions about whether or not to investigate to consider the impact of a good investigation on the ability of the harmed patient and their family to heal... Well received on twitter and described by a number of patients as 'you've said what I feel'. A reminder that a crucial purpose of the investigation is to give a harmed patient and their family a full explanation to help them understand, process and share for learning their experience. All necessary to their recovery. All necessary to their own 'safety' following an incident (we know poor responses cause additional suffering to those already harmed). The author also highlighted (via twitter) how much of this blog relates to the needs of staff involved in incidents too...- Posted
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Why we need courage to keep our patients safe
Patient Safety Learning posted an article in Florence in the Machine
An insightful blog from a nurse on the frontline. The author of this blog has requested to stay anonymous.- Posted
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Content ArticleThinkSAFE is developed by Newcastle University, in partnership with NHS staff and patients. Research has shown that by encouraging patients and their families to work together with hospital staff, safety can be improved during the patient’s stay in hospital.
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Content ArticlePatient Safety Learning speaks to sepsis survivor, Dave Carson, and his wife, Margaret Carson, who tell us how things have improved and what more still needs to be done for sepsis.
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NHS at 70: The Story Of Our Lives
Claire Cox posted an article in Stories from the front line
NHS at 70: The Story Of Our Lives is a national programme of work supported by The National Lottery Heritage Fund and led by The University of Manchester recording stories from people who worked and were cared for by the NHS since its creation in 1948. These stories will be available on the public Digital Archive and will provide a lasting resource for audiences to discover NHS history through the voices of the people who have worked and were cared for by the NHS since 1948. -
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Patient Stories: Paul's Story (10 March 2013)
Claire Cox posted an article in Patient stories
In 2007, when Paul Richards was diagnosed with non-Hodgkin lymphoma, his family were stunned by the news. This powerful film from Patient Stories is based on the testimony of Lisa, Paul’s wife, who gives a moving account of the events that led to Paul’s death and explores the effects on their family. -
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Patient Stories: Beth's story (27 December 2013)
Claire Cox posted an article in Patient stories
A moving and challenging short film about the Bowen family following the tragic death of five year old Bethany during ‘routine’ surgery and subsequent sudden death of father Richard aged 31, following the trauma of his daughter’s death and the ‘torture’ of the inquest.- Posted
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Content ArticlePatient-centeredness is central to healthcare. Hospitals should address patients’ unique needs to improve safety and quality. Patient engagement in healthcare, which may help prevent adverse events, can be approached as an independent patient safety practice (PSP) or as part of a multifactorial PSP. This systematic review by Berger et al., published in BMJ Quality & Safety, examines how interventions encouraging this engagement have been implemented in controlled trials. It found that while patient engagement in safety is appealing, there is insufficient high-quality evidence informing real-world implementation. Further work is needed to evaluate the effectiveness of interventions on patient and family engagement and clarify the added benefit of incorporating engagement in multifaceted approaches to improve patient safety endpoints. In addition, strategies to assess and overcome barriers to patients’ willingness to actively engage in their care should be investigated.
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AHRQ: Warm handoffs improve patient safety
Claire Cox posted an article in How to engage for patient safety
In 2015, the Agency for Healthcare Research and Quality (AHRQ) sponsored the development of a 'Guide to Improving Patient Safety in Primary Care Settings by Engaging Patients and Families'. One of the strategies introduced was a 'warm handoff' A warm handoff is a handoff conducted in person between two members of the health care team in front of the patient and family or caregiver. This video demonstrates warm handoffs in medical offices. -
Content ArticlePatients with delirium have changes in their thinking and are often confused and cannot pay attention. About half of patients in an intensive care unit (ICU) have delirium during their stay. Research has shown that patients with delirium are more likely to die or to have long-term brain problems, including posttraumatic stress disorder, depression and other mental health issues, than those without delirium. Although nurses and doctors have tools to measure delirium in the ICU, it can be hard to identify and, in some cases, may be missed. Family members may be the first to notice that their loved ones have changes in their thinking or cannot pay attention. There are tools called the Family Confusion Assessment Method (FAM-CAM) and Sour Seven questionnaire that can be used by family members to detect delirium. However, neither of these tools has been used in an ICU. This study from Krewulak et al., published in CmajOPEN, shows that these tools can be used by family members to measure delirium in the ICU. The results from this study could lead to a change in policy that would involve partnering with family members to improve the diagnosis of delirium in the ICU. In turn, this would improve patient and family care and outcomes in the ICU.
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Content ArticleThis leaflet was designed by the Critical Care Outreach team in Brighton and Sussex University Hospitals Trust. Call 4 concern was initiated by Mandy O'Dell, Nurse Consultant from the Royal Berkshire NHS Foundation Trust. Call 4 concern was set up to enable patients, carers and families to escalate deterioration to the outreach team - to get their voices heard.
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Dementia Safety Guidelines - Care Giver Homes (January 2018)
Claire Cox posted an article in Dementia
This guide, written by Angela Stringfellow from Care Giver Homes, sets out how people with dementia, and people caring for people with dementia, can keep safe. -
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The 10 Dignity Do's
Claire Cox posted an article in Dignity
The Dignity in Care campaign was launched in November 2006, and aimed to put dignity and respect at the heart of UK care services. The Dignity in Care campaign is led by the National Dignity Council, it operates as a charity, inspiring people to be part of a nationwide movement of champions, working individually and collectively to promote access to dignity as a human right for all. Before the Dignity in Care campaign launched, numerous focus groups took place around he country to find out what Dignity in Care meant to people. The issues raised at these events resulted in the development of the 10 Point Dignity Challenge (now the 10 Dignity Do's). The challenge describes values and actions that high quality services that respect people's dignity. -
Content ArticleThis review by the Care Quality Commission included a sample of 74 investigation reports from 24 NHS acute hospital trusts, representing 15% of the 159 acute trusts in England.
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Content ArticlePatient-controlled personal health records facilitate coordinated management of chronic disease through improved communications among, and about, patients across professional and organisational boundaries. An NHS foundation trust hospital has used 'Patients Know Best' (PKB) to support self-management in patients with inflammatory bowel disease; this paper published in Digital Health presents a case study of usage.
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Content ArticleIn this blog, Dr Amir Hannan, GP, describes how it’s normal for patients to access their electronic health records and easy for them to understand them at Haughton Thornley Medical Centres.
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This is Me - My care passport
Claire Cox posted an article in Care plans
Based on a previous ‘Hospital Passport’ this version is designed to be used by everyone within a variety of care settings. The content was developed together by Surrey and Borders Partnership NHS Foundation Trust Acute Liaison, Specialist Therapies and Older Adults services, Royal Surrey County Hospital and the Surrey Alzheimer’s Association. -
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Telecare and telehealth - Age UK
Claire Cox posted an article in Telecare
Age UK explain what Telecare is and how it could help you live independently and stay in control of your health and wellbeing.- Posted
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Content ArticleCall for Concern is an initiative from the Royal Berkshire NHS Foundation Trust enabling patients and their families to directly refer patients to the critical care outreach team.
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