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Joanne Hughes

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About Joanne Hughes

  • Rank
    Starter

Profile Information

  • First name
    Joanne
  • Last name
    Hughes
  • Country
    United Kingdom

About me

  • About me
    I have been an active campaigner for patient safety improvement, patient engagement in patient safety, and better care of those affected by patient safety incidents since the tragic and avoidable death of my daughter Jasmine, aged 20 months, in 2011
  • Organisation
    Mothers Instinct
  • Role
    Patient Safety Campaigner

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  1. Content Article Comment
    Blodwen, I am so sorry to hear of your suffering and some of the appalling things that have been said to you. To be harmed by healthcare is a 'trauma' that is not properly understood (except for those of us that are suffering from it) , and in particular differentiating this trauma from the physical injury or loss suffered. It's obvious to us the help we should receive and that the worst thing is abandonment, and dismissal. What happened to anyone harmed by healthcare one would hope would be 'rare' so that's certainly no excuse is it?? Your comments are not irrelevant and are welcomed. Have yo
  2. Content Article Comment
    MaryAdams thank you for your feedback. I'm glad that you found the content useful. I will be expanding further on the needs of harmed patients and families and how we meet them in this blog series over time. With 3 small children at home and no childcare opportunity since the end of March progress has been stalled, but it is in the pipeline! I'd be very delighted to have a chat with you about your work and my views on how we treat harmed patients better, ...and as discussion/development for pathways unfolds do make sure you are a part! Jo
  3. Danielle Haupt started following Joanne Hughes
  4. Content Article
    “After he died, the little plastic ID band that was around his tiny wrist should have been slipped onto mine. There was nothing more that could have been done for him, but there was plenty that needed to be done for me. I needed an infusion of truth and compassion. And the nurses and doctors who took care of him, they needed it too." Leilani Schweitzer[1] When someone is hurt, it is reasonable to expect the healthcare system to provide care to alleviate symptoms or to cure. It is also reasonable to expect those providing the care to be adequately
  5. Content Article
    Emotional and other long-term impacts of harmful events can have profound consequences for patients and families. Stakeholders designed a path forward to inform approaches that better support harmed patients and families, with both immediately actionable and longer-term research strategies. '[There's the] long-term responsibility of the institution, that we don't talk about....If we [had] some sort of [understanding of the] trajectory of the harm, [we could ask] What roles do institutions play at different parts? [What roles] should they play?'
  6. Joanne Hughes Joanne Hughes changed their profile photo
  7. Pete Smith started following Joanne Hughes
  8. Content Article
  9. Community Post
    When my daughter Jasmine was given Methylprednisolone unsafely in 2011, when she was already Hypertensive before being given the drug, unbeknownst to me, safety guidelines for giving the drug (to monitor BP) were not followed. She developed symptoms that were very alarming to me. I was certain she was in distress and as time went on she developed a facial palsy (as I described as 'a strange shaped mouth' ) strange movement of her limbs and slurred speech. She was in the care of a nursing team and a very junior doctor who mistook her initial distress as 'hyperactivity' in response to
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