Delays at the Great Ormond Street Hospital led to a boy dying an agonising death, a health watchdog has found.
Arvind Jain, 13, who had Duchenne Muscular Dystrophy, died in August 2009 after waiting months for an operation. The ombudsman's report found he had "suffered considerable distress" and criticised referral procedures as "chaotic and substandard".
The Great Ormond Street Hospital said there were "failings in clinical care".
Arvind's sister Shushma said: "To read that he was suffering all the time, that was disgusting. He had been asking us repeatedly if he would get the