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Showing results for tags 'Patient engagement'.
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Content Article
For Every Pregnancy campaign (NMC)
Patient-Safety-Learning posted an article in Maternity
For Every Pregnancy is a campaign by the Nursing & Midwifery Council. It aims to show that each pregnancy is unique, and whatever stage you're at, your midwife team should be right alongside you. The campaign includes posters and videos aimed at outlining the standards of care pregnant women and birthing people can expect and the importance of shared decision making. -
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This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Kath talks to us about why she set up Sling the Mesh and the significant impact that campaigning has on her life. She also highlights the need to establish systems that will identify and prevent avoidable harm, including long term tracking to investigate trends of harm, reporting of industry payments to clinicians and making logging side effects mandatory for healthcare professionals. -
Content ArticleIn this blog for the Royal College of Physicians, patient Hayley Hall argues that engaging members of the public in digital transformation will help ensure that changes made bring real benefits not just to the health service also but to patients, carers, family members and communities.
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Content ArticleAll aspects of the diagnostic process are potentially vulnerable to error and this can occur in all healthcare settings and services. The Agency for Healthcare Research and Quality (AHRQ) is the lead Federal agency investing in research to improve diagnostic safety and reduce diagnostic error in the United States. On this webpage they collate a range of different research, tools and resources related to improving diagnostic safety.
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Content ArticleDifferent communities have different needs when it comes to vaccination. Research can show us how to engage with different groups effectively. The latest Collection from the National Institute for Health and Care Research (NIHR) brings together examples of NIHR research on how to increase vaccine uptake.
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Content ArticleThis YouTube playlist containing 12 short vlogs (each lasting 10 minutes or less) is a cut-down version of Continuing Professional Development work commissioned by the NHS in England. These are part of our patient led clinical education work and involved working with patients, carers, and relatives as equals to produce the videos. These vlogs are based on the (UK) Royal Pharmaceutical Society Competency Framework for all Prescribers, and related guidelines from professional bodies in the UK. They are designed for clinicians (across all disciplines and specialities), patients, carers, parents, relatives and the public. The short videos focus on providing refresher information, updates on hot topics and materials that can be used for reflection both individually and within clinical teams. They cover: Shared decision making Information mastery Interpretation of numerical data Root causes on medicines and prescribing errors Taking a history Basic pharmacology Risk areas and red flags Ethics, the law and prescribing Deprescribing Remote prescribing Prescribing for frailty and multimorbidity Prescription writing and safe prescribing The original materials were accompanied by live sessions, questions for reflection (some of which are included here), separate refresher questions, detailed prescribing scenarios, and competency assessments.
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Content ArticleThe Patients Association have worked with the Getting It Right First Time (GIRFT) programme to create a short three-minute animated video for patients about the benefits of elective surgical hubs. This animation was created by drawing on the experiences of patients who chose the option to have their planned surgery at a surgical hub.
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Content ArticleHaving patients actively engaged in their care helps healthcare professionals develop more accurate, timely diagnoses. To help encourage this engagement, the Society to Improve Diagnosis in Medicine (SIDM) has developed the Patient's Toolkit, a resource for patients, by patients. Preparing ahead of time for medical appointments allows patients to think about concerns, symptoms, and other important information that healthcare professionals will need from you, and what you want to get out of the conversation during your visit. SIDM's toolkit was designed for patients visiting their healthcare provider to help tell their story clearly. Patients can follow a set of prompts and questions posed in the toolkit to help encourage participation and partnership with medical professionals. Prepare for you next appointment, map your symptoms, account for medications, and plan your next steps with the Patient's Toolkit.
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Content ArticleHampshire and Isle of Wight Integrated Care System (ICS) has achieved great results in supporting access to the NHS Diabetes Prevention Programme. This case study outlines the approach taken by the ICS to improve access, what the outcomes were and key lessons learned.
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Content Article
In this blog, Patient Safety Learning's Content and Engagement Manager, Stephanie O'Donohue highlights some of the common barriers to collaborating for safety. She argues that we need time and space to listen and build trust between different groups if we are to really harness the power of collective insight and make safety improvements.- Posted
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Content ArticleWales' national policy on patient safety incident reporting and management.
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Content ArticlePatient satisfaction surveys rely largely on numerical ratings, but applying artificial intelligence (AI) to analyse respondents’ free-text comments can yield deeper insights. AI presents the ability to reveal insights from large sets of this type of unstructured data. The authors’ analysis here presents AI-enabled insights into what different racial and ethnic groups of patients say about physicians’ courtesy and respect. This analysis illustrates one method of leveraging AI to improve the quality and value of care.
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Content ArticleThe National Wound Care Strategy Programme, the AHSN Network’s Transforming Wound Care programme, and the Patient Experience Network have created a new resource to teach patients how to take a photograph of their wound to empower them to take an active role in their healthcare. Developed for patients by patients, based on experience and medical information, the resource provides hints and tips on best practice with taking wound photographs, including the mechanics of getting the best possible photograph and what photographs should and should not include to assist healthcare providers in providing the best possible care.
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Community PostHello everyone, We know there is much learning to be gained from listening to patient and families. This is particularly true when it comes to patient safety. Have you had an experience that you'd like to share with us? Maybe you identified a risk or shared a concern and were listened to and unsafe care was avoided? Maybe you weren't listenied to or you didn't realise what was going on and you or your family member were harmed? How did you find out about the patient safety incident? Was information shared with you that you needed to know? Were you supported? Was there an invetsigation into the incident and were you invited to contributed to it? Were lessona learned and acted upon? Have others learned from this experience, do you know?
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Community Post
Models of good practice for patient engagement in patient safety
HelenH posted a topic in How to engage for patient safety
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We know from academic research that patient engagement reduces the risk of unsafe care and harm, in patients own care and improving safety for all. Some organisations are investing time (if not money!) in recruiting, training and supporting patient leaders to work with Executives and senior staff, sharing their experience and as they engage with staff and patients, report back what they see. The model in Berkshire, as shared with me by Douglas Findlay, patient leader, is that they don’t make decisions on what needs to change and how, but report back what they see for others to learn and act. Do we know of other models of good practice? What can we learn and share from them?- Posted
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Content ArticleThe NHS Long Term Workforce Plan 2023 is crucial to the long term sustainability of the health service. The National Centre for Rural Health and Care is concerned that the plan has not been 'rural proofed' and makes very few references to rural issues. They are preparing a response and are looking for views about the plan through this survey. The closing date for responses is 4 August 2023.
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AHRQ: Team STEPPS
Patient Safety Learning posted an article in How to engage for patient safety
AHRQ's TeamSTEPPS - Team Strategies and Tools to Enhance Performance and Patient Safety - is an evidence-based set of teamwork tools, aimed at optimising patient outcomes by improving communication and teamwork skills among healthcare teams, including patients and family caregivers. -
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Patient Safety Commissioner redress project (July 2023)
Patient-Safety-Learning posted an article in Women's health
In 2020, the Independent Medicines and Medical Devices Safety Review (IMMDS), chaired by Baroness Cumberlege, highlighted the avoidable harm caused by both pelvic and sodium valproate. It also set out the devastating impact on people’s lives when patients’ voices go unheard. The Minister for Mental Health and Women’s Health Strategy, Maria Caulfield MP, asked the Patient Safety Commissioner (PSC) to explore redress options for those who have been harmed by pelvic mesh and sodium valproate. The work will focus on what a suitable redress scheme for those affected should look like, to meet the needs of those affected. The PSC will publish a public report of this work. Once the project is complete, the Government will consider the report and set out next steps. The project will engage with patients through: meeting patients and their representative organisations. an online survey to gather views, which will be launched in due course. -
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The UK Covid-19 Inquiry is the independent public inquiry set up to examine the UK’s response to and impact of the Covid-19 pandemic, and learn lessons for the future. In order to fully understand the impact of the pandemic on the UK population, the Inquiry is inviting the public to share their experiences of the pandemic by launching Every Story Matters. It will inform the Inquiry’s work by gathering pandemic experiences which can be brought together and represent the whole of the UK, including those seldom heard. The output of Every Story Matters will be a unique, comprehensive account of the UK population’s experiences of the pandemic, to be submitted to the Inquiry’s legal process as evidence. This toolkit contains information and creative assets that can be used to encourage participation in Every Story Matters. Every Story Matters aims to provide inclusive methods for people to talk about their experience of the pandemic, so anyone that wants to share their story feels heard, valued, and can contribute to the Inquiry. -
Content ArticlePatient engagement refers to “meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation,” where patient partners are members of the teams, rather than participants in research or those seeking clinical care. It appears more has been written on the benefits rather than the risks of patient engagement and the authors in this study feel it is important to document and share what they call ‘patient engagement gone wrong.’ The authors anonymised these examples and sorted them into four statements: patient partners as a check mark, unconscious bias towards patient partners, lack of support to fully include patient partners, and lack of recognizing the vulnerability of patient partners. These statements and their examples are meant to show that patient engagement gone wrong is more common than discussed openly, and to simply bring this to light.
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Content ArticleMental health is an important component of individual well-being and social participation. According to the Organisation for Economic Co-operation and Development (OECD) between one in six and one in five people experience a mental health problem in any given year and an estimated one in two people experience a mental health problem in their lifetime. There is a need to measure patients’ experience of mental health care delivery and effects of mental health treatment approaches. Patients are in a unique position to contribute to the quality of health care since they are the only ones who experience the whole episode of care from primary care in communities through hospital care to rehabilitation and follow up in general practice. Health professionals in contrast experience only a snap shot of the entire patient’s journey in the health care system. PREMs ((patient-reported experience measures) and PROMs (patient-reported outcomes measures) are means to assure that the patient voice in health care will be heard and institutionalised. This supplement focuses on how to include the patient voice in mental health, in terms of PREMs and PROMs.
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Content Article
Patient Safety Commissioner Annual Report 2022-23 (July 2023)
Patient Safety Learning posted an article in England
The Independent Medicines and Medical Devices Safety review set out the devastating impact on people’s lives when patients’ voices go unheard. Recommendation 2 from the review was the appointment of an independent Patient Safety Commissioner to promote the safety of medicines and medical devices and to amplify the voices and views of patients and the public so that future harm is avoided. The Patient Safety Commissioner (PSC) was appointed on 13 July 2022 and took up her post officially on 12 September 2022. Here is the first Patient Safety Commissioner's first annual report.- Posted
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Content Article
Mental Capacity and Mental Health Legislation
Patient_Safety_Learning posted an article in Consent and privacy
This guide, published by Patient, outlines some of the key elements of mental capacity and mental health legislation including: General principles of consent Emergency treatment Best interests Adults who are not competent to give consent Advance care planning Mental Health Act relevant to consent Section 57: Treatment requiring consent and a second opinion. -
Content ArticleThis factsheet from the General Medical Council sets out some of the key legislation and case law relating to medical decision making and consent in the UK. It is not intended to be a comprehensive list, nor is it a substitute for independent, up-to-date legal advice.
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Content ArticleThe International Alliance of Patients’ Organizations (IAPO) is an alliance of patient groups in official relationship with the WHO and is representing the interests of patients worldwide IAPO P4PS Observatory is a single-point global platform for gathering and analysing patients’ expertise and experience to feed evidence to the national, regional and global policies aimed at improving patient and quality of care for patients by the patients.
