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HelenH

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Profile Information

  • First name
    Helen
  • Last name
    Hughes
  • Country
    United Kingdom

About me

  • About me
    I am passionate about sharing learning to improve patient safety - using insights from clinicians, patients, patient safety and human factors experts, researchers, leaders, everyone to help make the change we need for a patient-safe future
  • Organisation
    Patient Safety Learning
  • Role
    Chief Executive

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  1. HelenH started following 'The PSIRF Hollywood collaborative': a blog from Jane Carthey, Tracey Herlihey, Claire Cox, Maureen Bankole-Allibay and Helen Hughes
  2. Content Article Comment
    Hi Tom, thank you, it’s been a great collaboration and we built on a well received presentation at the Health Plus Care show earlier this year. Not sure I’ve seen your roadmap and framework for change. Something we can add to the hub? Do let me know helen@patientsafetylearning.org
  3. HelenH started following PSIRF Training
  4. Community Post
    Hi @Gethin and @Callum Brown A few collegues are actively discussing creating a PS Ed & Training network. There seems to be a lot of interest in this, focusing particularily on PSIRF but more broadly too. Would that be something you'd like to engage with? Copying to @Claire Cox @Chris Elston @Elizabeth Akers Helen
  5. Community Post
    Thanks @NickyG that’s great to hear. Thanks for sharing and it gives hope that this can be delivered safely
  6. HelenH started following Coroner reports
  7. Community Post
    Heartily endorse the great people at CAPH, terrific campaigners and providing compassionate support to so many sufferers
  8. Community Post
    Hi @poolsadie sadly you’re absolutely right. This doesn’t seem restricted to the UK by any means. What a gruesome experience you had, yourself and also the poor woman before you. Thanks for sharing and being part of the awareness raising and campaigning. Women must have information to make informed consent and access to pain relief. Helen Hi @Exonian Thank you for sharing a gruesome and shocking experience. A really chilling indictment: ‘I will never, ever consent to any medical or surgical procedure again without doing extensive research, because HCPs cannot be trusted to tell the truth or act in the patient’s best interests, which is an extremely sad indictment.’
  9. Community Post
    Hi @Carrie So sorry to hear of your experience. Absolutely; the patient safety impact casts a long shadow, much greater harm that the awful pain experienced.
  10. Community Post
    Hi @Exonian Thank you for sharing a gruesome and shocking experience. A really chilling indictment: ‘I will never, ever consent to any medical or surgical procedure again without doing extensive research, because HCPs cannot be trusted to tell the truth or act in the patient’s best interests, which is an extremely sad indictment.’
  11. Community Post
    Hi @Exonian That sounds ghastly, so sorry to hear. And being a nurse, you’ll be even more aghast at how awful it is that women’s pain is ignored or minimised. Something that many women are understandably shocked about. If there was something that you’d want to share your reflections as a patient and a professional, we’d welcome that on the hub. Thank you again, sharing your insights, Helen
  12. Community Post
    Sorry Tricia to hear of your experience and the pain. It's definitely too often the case that women are not given information in advance on the levels of pain likely or the pain relief available; and it's their right to chose. Without this, we consider its not informed consent. @Katharine Tylko and colleagues at CAPH are more up on the reseach that me but it's clear that much more research is needed to better understand the risk factors for women. It does seem that not having a vaginal birth may be a contributory factor. Thank you for sharing your experience. We refer to these testimonies in our camapiagning and awareness raising so they do make a difference. Helen
  13. Community Post
    Hello @Beckyish and very sorry to hear of your experience. It’s ghastly and all the more shocking for you not being given sufficient information to make an informed decision to consent to treatment, something that is your legal right. I shudder at your testimony ‘The pain was unbearable … a struggled to cope, the surgeon had to stop to ask me to try and relax to allow him to continue.’ Sounds absolutely barbaric. Thank you for sharing your insights. We are collating these experiences to press ahead the need for reform, see our call for action blog, details below. It also links to the CAPH, a campaign and support group who you may wish to get in touch with, lovely women and we support them as much as we can. Thank you again for sharing https://www.pslhub.org/learn/patient-safety-in-health-and-care/womens-health/hysteroscopy-6-calls-for-action-to-prevent-avoidable-harm-r8848/
  14. Community Post
    The blog I referred to is here https://www.pslhub.org/learn/patient-safety-in-health-and-care/womens-health/hysteroscopy-6-calls-for-action-to-prevent-avoidable-harm-r8848/
  15. Community Post
    Thanks @Eliza for sharing your distressing and painful experience. We’ve just published an updated blog about why change is urgently needed and hope the continued reporting of personal experiences with the policy influencing will drive the improvements needed.
  16. HelenH started following Patient safety impact of hospital bed shortages – A Patient Safety Learning blog
  17. Content Article Comment
    Thanks for sharing and so sad to hear your reflections. Encouraging retirees back to the workforce might be quite a challenge!
  18. Community Post
    Horrendous experience, so awful for you. And awful that others are likely to be suffering without the change in attitude and approach that are needed.
  19. Content Article Comment
    Yes, interesting recommendation. As you say, guidance isn’t legally binding. It’s something we highlight a lot at Patient Safety Learning, the inconsistency of response to guidance and failure to implement good practice. Something we highlighted in a blog last year https://www.patientsafetylearning.org/blog/mind-the-implementation-gap-the-persistence-of-avoidable-harm-in-the-nhs
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