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EventuntilThe Health Research Authority is running its first ever research transparency week. They believe that keeping participants updated and informed as a study develops, as well as with the results at the end, should be the norm. When researchers work with patients and the public to plan individual studies, we hear that recruitment is easier, participants are better supported, and findings are more relevant to patient needs. Ongoing communication between researchers and participants throughout a study can offer further improvements. This strengthens relationships, and creates more opportunities for feedback and improvements to be made in the way findings are shared. This will be a two-hour online workshop, chaired by the co-Chairs of the Make it Public campaign group, Matt Westmore, Chief Executive of the HRA, and Derek Stewart, public contributor. The objective for attendees of this workshop will be to work together in facilitated small groups to explore this theme, and produce a set of 'top tips' to support best practice for those active in research. There will also be a short panel discussion, where attendees can hear directly from the study leads and research participants of studies working creatively and progressively in this area: UCL Covid-19 Social Study The INHALE Project Covid Voices Register for the workshop
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Content ArticleA patient participation group (PPG) is a group of people who are patients of a GP surgery and want to help it work as well as it can for patients, doctors and staff. The NHS requires every practice to have a PPG. In this blog, Alan Bellinger reflects on what he has learned during his time as chair of his GP surgery's PPG, highlighting three key lessons: Be collaborative not combative If patients don’t engage with the PPG it’s your fault for not being engaging Never lose sight of the value-add you create for the practice
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Patient Experience Library: Patient surveys tracker
Patient Safety Learning posted an article in Patient engagement
The Patient Experience Library's patient surveys tracker offers one-click access to the key patient experience datasets for every Trust in England. -
Content ArticleThe Healthcare Leadership Model (HLM) was developed to help leaders in the health service become better at their day-to-day role. The model is useful for everyone from board members to managers because it describes the things you can see leaders doing at work and demonstrates how you can develop as a leader. This webpage describes how the HLM works and provides a link to the free self-assessment tool.
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Content ArticleThe General Practice Data Trust (GPDT) Pilot Study: Report on Patient Focus Groups reports on patients’ attitudes about sharing their health data for research and planning purposes. It is the result of research by academics at the Centre for Social Ethics and Policy (CSEP) at the University of Manchester, supported by the Patients Association, and is part of the GP Data Trusts pilot project. Funded by the Data Trusts Initiative, the project wanted to understand why so many people opted out from NHS Digital’s GP Data for Research and Planning (GPDPR) programme when it was launched in 2021. The research found that patients mostly supported the use of patient data in health research, but they often didn’t like the idea that companies might make money from the use of their health data. Many felt they had not been given enough information about the GPDPR programme; some would have been happy to share their data if they had known more about the programme. The researchers also asked focus group participants if holding patient data in a trust would reassure them about how their data are used. This was welcomed and the report goes into more detail about what patients thought of this idea.
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EventuntilIn this research chat, Care Opinion welcomes back Dr Lauren Ramsey of Leeds University to discuss her recent paper: Exploring the sociocultural contexts in which healthcare staff respond to and use online patient feedback in practice: In-depth case studies of three NHS Trusts. Research chats are informal and friendly and last 30 minutes. For the first 15 minutes, Care Opinion CEO James Munro discusses the paper with Lauren and then invite comments and questions via the chat box (or in person if you prefer!). Anyone can come along—you don't need to be academic and you don't even need to read the paper beforehand. So do join us! Register
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Content ArticleThis article in The Times explains why the Times Health Commission was set up, what it aims to achieve and how it will do this. The year-long commission aims to address the most urgent challenges facing health and social care including the growing pressure on budgets, the A&E crisis, rising waiting lists, health inequalities, obesity and the ageing population. Commissioners will draw up recommendations in ten areas to identify problems and find solutions. The Commission will publish its final report in January 2024.
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Content ArticleHealthcare professionals are encouraged to use feedback from their patients to inform service and quality improvement. This study in the journal Sociology of Health and Illness aimed to understand how three NHS Trusts in England were interacting with patient feedback through online channels. The authors found that organisations demonstrated varying levels of ‘preparedness to perform’ online, from invisibility through to engaging in public conversation with patients within a wider mission for transparency. Engagement varied between the Trusts; one organisation employed restrictive ‘cast lists’ of staff able to respond to patients, while another devolved responding responsibility amongst a wide array of multidisciplinary staff.
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Content ArticleThe Royal College of Anaesthetists set up PatientsVoices@RCoA to help the College improve the delivery of safe, more effective, patient-centred care to enhance patients’ experience of anaesthesia and perioperative care. This plan by PatientsVoices@RCoA aims to set out a clear direction for our future work which ensures patients’ voices are clearly heard across all relevant activities, as the College delivers its strategic aims over the next five years.
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Content ArticleThe Patients Association's Patient Partnership Week brought together patients, carers and healthcare professionals to talk about patient partnership.
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Content ArticleIn this episode of the Wild Card - Whose Shoes? podcast, Rachel Power, CEO of the Patients' Association talks about the importance of treating patients as equal partners in the health service. She shares insight on how to measure impact in difficult areas and overcoming barriers to shared decision making.
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Content ArticleThis paper asked healthcare workers who are considered to be theatre safety experts—theatre managers, matrons and clinical educators—to take part in the second round of a Delphi study. These individuals work at the coalface in operating theatres and deliver the surgical safety checklist daily. It addresses information raised as part of a Delphi study of NHS hospital operating theatres in England. The aim of the second Delphi study round was to establish the views of theatre users on the theatre checklist and local safety standards for invasive procedures. Likert scale responses and a combination of closed and open-ended questions solicited specific information about current practice and researched literature that generated ideas and allowed participants freedom in their responses of how the World Health Organisation’s (WHO's) Surgical Safety Checklist (SSC) is currently being used in the peri-operative setting as part of a strategy to reduce surgical ‘never events’. The paper is part of a literature review undertaken by the author towards a Doctor of Philosophy (PhD). Read the findings of round one of the Delphi study
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Content ArticleIn this blog, Louise Pye, Head of Family Engagement at the Healthcare Safety Investigation Branch (HSIB) highlights how the Patient Safety Incident Response Framework (PSIRF) can help NHS trusts involve patients and families in the face of extreme winter pressures. She highlights how the seven themes set out in the PSIRF guidance will help patient safety leaders ensure the involvement of patients and families is maintained even when services are dealing with extreme pressures.
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Content ArticleThis report by the Beryl Institute and Ipsos explores the core trends impacting healthcare and patient experience overall in the United States. It highlights key issues expressed by consumers in an online survey relating to quality of care and experience of care, taking into account the impact of the Covid-19 pandemic and how it has altered the delivery of healthcare.
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Content ArticleIn this blog for The Patients Association, Patient Safety Commissioner Henrietta Hughes looks at the importance of patient involvement in improving patient safety. She argues that patient voices should be embedded in the design and delivery of healthcare, and highlights that services and organisations need to seek feedback from patients from a wide variety of backgrounds. She also outlines why shared decision making and consent are vital to ensure patients are safe and have more control over their care and treatment.
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Content ArticleIn this interview for Healthcare IT News, Lisa Hedges, associate principal analyst at Software Advice, discusses the findings of a survey of 1,000 patients on telemedicine usage after the worst of the pandemic. She also talks about the future of telemedicine. The survey found that: more than half of patients are concerned about the quality of care they're receiving through telemedicine. the majority of people prefer virtual appointments for common illnesses. 86% of patients rate their telemedicine experience as positive. 91% are more likely to choose a provider that offers telemedicine. 49% prefer telemedicine visits for mental health treatment, despite it being one of the more remote-ready specialties.
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Content ArticleThe Health Survey (Northern Ireland) has run annually, on a continuous basis, since 2010/11. The 2021/22 survey included questions relating to general health, mental health and wellbeing, smoking and drinking alcohol. The sample size for the survey was 3,154 individuals aged 16 and over. This article presents the key findings of the Health Survey (Northern Ireland): First Results 2021/22 report. One important finding was that of respondents who had been in contact with the health and social care system in the last year, 73% were either very satisfied or satisfied with their experience (down from 85% in 2020/21), while almost a fifth (18%) were either dissatisfied or very dissatisfied (double that in 2020/21 – 9%).
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Survey - Keeping up to date with NICE guidance (November 2022)
Patient-Safety-Learning posted an article in NICE
The National Institute for Health and Care Excellence (NICE) is looking for feedback on how people currently keep up to date with NICE guidance and what they do when an update has been made to NICE guidance. NICE will use your feedback to help shape the future of its guidelines. The survey takes around 10 minutes to complete. The closing date of the survey is 28th November 2022. -
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This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Tracey talks to us about the role of NHS Supply Chain in ensuring the products procured through the NHS Supply are of high quality and are safe for healthcare organisations to use. She also highlights the vital importance of complaints and the need for staff who don’t work in direct care delivery to recognise their role in patient safety. -
EventFrontline staff often perceive event reporting as a black hole where no information exits once it enters. Join Andy Moyer, BSN, RN-BC, patient safety informatics specialist at Penn State Health Milton S. Hershey Medical Center, where he will help you tackle this perception by providing reporters better feedback. Moyer will also demonstrate ways to increase the quantity and quality of reported events. Register
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Content ArticleThe NHS Friends and Family Test (FFT) is designed to be a quick and simple mechanism for patients and other people who use NHS services to give feedback. This feedback can then be used to identify what is working well and to improve the quality of any aspect of patient experience. This guidance sets out the requirements of the FFT and is intended to support all provider organisations that are required to deliver the FFT.
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BD - Voices of safety videos
Patient-Safety-Learning posted an article in Patient stories
This series of videos produced by pharmaceutical company BD features patients, caregivers and healthcare professionals telling their stories about patient safety. Each video highlights an experience of avoidable harm, with topics including sepsis, antimicrobial resistance, medication errors and healthcare associated infections. -
Content ArticleThis series of short guides aims to help providers and commissioners better understand the use of patient insight and to use it effectively in delivering local services. These topics are covered in the guides: Seeking feedback in distressing or highly emotional situations Writing an effective questionnaire Building greater insight through qualitative research Helping people with a learning disability to give feedback How and when to commission new insight and feedback Insight – what is already available? The National Patient Reported Outcome Measures (PROMS) programme
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EventThis conference will focus on measuring, understanding and acting on patient experience insight, and demonstrating responsiveness to that insight to ensure patient feedback is translated into quality improvement and assurance. Through national updates and case study presentations the conference will support you to measure, monitor and improve patient experience in your service, and ensure that insight leads to quality improvement. For further information and to book your place visit https://www.healthcareconferencesuk.co.uk/conferences-masterclasses/patient-experience-insight or email nicki@hc-uk.org.uk hub members receive 20% discount. Email info@pslhub.org for discount code. Follow on Twitter @HCUK_Clare #PatientExp
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Content ArticleThe aim of integrated care is to improve people’s outcomes and experiences of care by bringing services together around people and communities. This means addressing the fragmentation of services and lack of co-ordination that people often experience by providing person-centred, joined-up care. This practical guide aims to provide partners working in integrated care systems (ICSs) with ideas on how they can ensure they identify and meet the needs of the people they serve.
