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Showing results for tags 'Disability'.
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Content ArticleThe occupational therapy (OT) workforce is under huge pressure. Increased demand coupled with workforce shortages is challenging OTs’ capacity to provide essential support to people whose lives are impacted by long term health conditions and disability. In November 2022, the Royal College of Occupational Therapists surveyed OT practitioners across the UK about the workplace issues they’re facing now, and how these affect the services they deliver to the public. They also asked how practitioners are impacted personally, including whether they intend to continue working as OTs. The challenges shared by over 2,600 respondents have significant implications for the resilience of the current and future OT workforce, and the people who use OT services.
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News Article
Social care workforce funding halved for England, government confirms
Patient Safety Learning posted a news article in News
Funding promised to develop the social care workforce in England has been halved, the government has confirmed. In 2021 the government pledged "at least" £500 million for reforms, to be spent on training places and technology over three years. But that figure is now £250 million, according to the Department of Health. A coalition of charities said this cut is "just the latest in a long series of disappointments" over social care. The government said its reforms would give care "the status it deserves" but some organisations in the sector say they fall short of what is needed. Caroline Abrahams, co-chair of the Care and Support Alliance - which represents more than 70 charities - and charity director of Age UK, said the measures "aren't remotely enough to transform social care". Millions of older and disabled people and their carers "needed something far bigger, bolder and more genuinely strategic to give them hope for the future", she said. Read full story Source: BBC News, 4 April 2023 -
News Article
Two-thirds of UK workers with Long Covid have faced unfair treatment, says report
Patient Safety Learning posted a news article in News
UK ministers should act to ensure Long Covid sufferers receive the support they need from employers, with as many as two-thirds claiming they have been unfairly treated at work, a report argues. The report, from the TUC and the charity Long Covid Support, warns that failing to accommodate the 2m people who, according to ONS data, may be suffering from long Covid in the UK will create, “new, long-lasting inequalities”. The analysis is based on responses from more than 3,000 long Covid sufferers who agreed to share their experiences. Two-thirds said they had experienced some form of unfair treatment at work, ranging from harassment to being disbelieved about their symptoms or threatened with disciplinary action. One in seven said they had lost their job. The report makes a series of recommendations, including urging the government to designate Long Covid as a disability for the purposes of the 2010 Equality Act, to make clear sufferers are entitled to “reasonable adjustments” at work; and to classify Covid-19 as an occupational disease to allow people who contracted it through their job to seek compensation. Read full story Source: The Guardian, 27 March 2023 -
Content ArticleThe Covid-19 pandemic continues to impact heavily on all our lives and one of the long-lasting, but unanticipated, impacts is the emergence of Long Covid. Whilst many people infected by Covid-19 may fully recover, significant numbers will experience varied, ongoing and debilitating symptoms that last weeks, months or years following the initial infection. This prolonged condition has been given the umbrella term Long Covid. Recognition of Long Covid was accelerated by people-led advocacy groups such Long Covid Support. The Office of National Statistics (ONS) reported that, as of 1 August 2021, 970,000 people in the UK were experiencing self-reported Long Covid. The most recent data from 2 January 2023, shows that this has increased to 2 million people This report summarises the findings of a self-selecting survey of 3,097 people with Long Covid in September and October 2022 on their experiences of work.
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Content ArticleWhen the Paralympian and television presenter Tanni Grey-Thompson found she was pregnant in 2001, she went to see her doctor. “The first thing I was offered was a termination,” she says, “because people like me shouldn’t be allowed to have children.” She changed hospitals and gave birth to Carys, but she says that for disabled people, “the relationship with the NHS can be quite mixed”. Read the full article, published in the Times, via the link below.
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Content ArticlePeter Seaby had Down's Syndrome and autism and was cared for at home by members of his family for 62 years. However, in 2017, Peter was removed from the home he shared with his sister Karen, who was his full time carer, and placed in a care home. Karen and Peter's brother Mick were not told by social services why Peter was moved. Within six months of being in the home, Peter choked on a carrot and died. Karen and Mick found the subsequent inquest into Peter's death in July 2021 to be inadequate and launched a Judicial Review challenge which was successful in quashing the findings of the initial inquest. A new inquest was held in February 2023 Journalist George Julian has been following and reporting on Peter's second inquest and has written several blog posts about the case, highlighting serious failings in his care that led to his death: Peter Seaby’s 2nd inquest – how he came to be in the care of the Priory Group Peter Seaby’s 2nd inquest “I have stood on my own in this” Peter Seaby’s 2nd inquest – the SALT plan Peter Seaby’s 2nd inquest – record keeping and decision making Peter Seaby’s 2nd inquest – April 2018 Peter Seaby’s 2nd inquest – May 2018 Peter Seaby’s 2nd Inquest – Conclusion
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News Article
Ambulance waits putting disabled children's lives at risk, doctors warn
Patient Safety Learning posted a news article in News
Thousands of severely disabled children's lives are at risk because of long waits for ambulances, doctors and other experts have warned. Emergency care is a vital part of their everyday lives, the British Academy of Childhood Disability says. Almost 100,000 children have life-limiting conditions or need regular ventilator support in the UK. They often rely on ambulances as part of their healthcare plan, because their condition can become life-threatening in an instant. Dr Toni Wolff, who chairs the British Academy of Childhood Disability, told BBC News some families with severely disabled children had "what are essentially high-dependency units" of medical equipment at home. "As part of their healthcare plan, we would normally say, 'If the child starts to deteriorate, call for an ambulance and it will be there within 10 or 20 minutes,'" she said. "Now, we can't give that reassurance." Despite their child being classed as a priority, parents have told BBC News they face the difficult decision to wait for an ambulance or take them, often in a life-threatening condition, to hospital themselves - a risk because of the huge amounts of equipment needed to keep them alive, Read full story Source: BBC News, 16 February 2023 -
Event
HoPE Storytelling Festival - Made by Mortals
Sam posted an event in Community Calendar
To share the learning and resources from the award-winning (The Royal Society of Public Health - Arts in Health 2022) community partnership programme between Tameside and Glossop Integrated Care NHS FT, Made By Mortals CIC (arts organisation) and over 50 patients with a broad range of lived experience- including mental ill health, learning disability, autism, English not as their first language, and people that identify as non-binary. The project used immersive audio case studies coproduced by patients, including the use of music, sound effects, and drama, together with an interactive workshop that challenged volunteers and staff at the hospital to take a walk in the patient’s shoes. The experiential community-led training raised awareness of the challenges that people with protected characteristics and additional needs face. This work supported Tameside and Glossop Integrated Care NHS FT ongoing approach to quality and diversity and supported attendees to adapt their behaviours to create an empathetic and person-centred environment. Register -
Event
HoPE Storytelling Festival - Bounce Back Boy
Sam posted an event in Community Calendar
untilJosh Cawley was 22 when he finally died from catastrophic injuries inflicted on him by his birth parents. These resulted in his inability to speak or to move from his wheelchair, but it didn’t dampen his positive and cheeky spirit. This is his story. Josh was adopted by Lynn Cawley, a campaigning Methodist Minister whose devotion to Josh ensured that he lived his short life as positively and ‘normally’ as possible. Lynn couldn’t just be his loving mum though. She was expected to be his palliative care consultant, his nurse, his campaigner for compensation and she had to fight the ongoing battles with the system .The play explores their real story: having to accept that Josh’s needs were too ‘complex’ for the hospice; and dealing with Josh’s transition from boy, to teenager to adult - and being his full-time interpreter. .Professional actor Joseph Daniel-Taylor performs the play and gives the voice to Josh - the voice that he never had. Register -
Content ArticleCardiovascular disease (CVD) causes 1 in 4 deaths in England, and is a leading cause of morbidity, disability and health inequalities. The Covid-19 pandemic has added to the urgency of tackling CVD because CVD significantly increases the risk of severe disease and death from Covid-19. This report by The King's Fund looks at published data, literature, policy and evidence on CVD. The writers also carried out interviews and a workshop with key stakeholders working in health and care to inform their research.
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Content ArticleWhether it is the waiting lists for mental health support or the inadequacies of long-Covid clinics, millions of patients with long-term health conditions have been struggling for years to get basic healthcare. The chaotic decline that has befallen acute care in A&E has hit day-to-day services, with effects from delayed consultant appointments and year-long clinic waiting lists to slashed community care. Mental health bed shortages mean young people need now to have “attempted suicide several times” before they get a place in an inpatient unit in England. Record delays for cancer treatment are leaving patients facing lethal waits. Thousands of people with neurological conditions are waiting up to two years to even see a consultant. For them, the ground has long been shaking. It is just that no one else noticed. The Guardian has spoken to disabled people the length and breadth of England and Wales about their wait for care. For them, the NHS is not an “in case of emergency” service but the engine they rely on to keep their day-to-day life running.
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Content ArticleMaking Families Count (MFC) aims to improve outcomes for families affected by serious harm and traumatic bereavements in health and social care services. In this webinar, which was part of The Patients Association's Patient Partnership Week programme, members of MFC talk through their guide for patients and families on working with the system after a serious incident.
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News Article
Health inequities lead to early death in many persons with disabilities
Patient-Safety-Learning posted a news article in News
A new report by the World Health Organization shows evidence of a higher risk of premature death and illness among many persons with disabilities compared to others in the society. The Global report on health equity for persons with disabilities published today shows that because of the systemic and persistent health inequities, many persons with disabilities face the risk of dying much earlier—even up to 20 years earlier—than persons without disabilities. They have an increased risk of developing chronic conditions, with up to double the risk of asthma, depression, diabetes, obesity, oral diseases, and stroke. Many of the differences in health outcomes cannot be explained by the underlying health condition or impairment, but by avoidable, unfair and unjust factors. Read more Source: WHO, 2 December 2022 -
Content ArticleAn estimated 1.3 billion people—16% of the global population—experience a significant disability today. People with disabilities have the right to the highest standard of health, however, this report by the World Health Organization (WHO) demonstrates that while some progress has been made in recent years, many people with disabilities continue to die earlier and have poorer health than others. The report demonstrates how these poor health outcomes are due to unfair conditions faced by people with disabilities in all areas of life, including in the health system itself.
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Content ArticleThe Industrial Injuries Advisory Council (IIAC) is an independent scientific advisory body that looks at industrial injuries benefit and how it is administered. Since the start of the Covid-19 pandemic in 2020, the IIAC has been reviewing and assessing the increasing scientific evidence on the occupational risks of Covid-19. This report builds on an IIAC interim Position Paper published in February 2021 and considers more recent data on the occupational impacts of Covid-19, particularly around the longer term health problems and disability caused by the virus. IIAC found the most convincing and consistent evidence was for health and social care workers in certain occupational settings, who present with five serious pathological complications following Covid-19 that have been shown to cause persistent impairment and loss of function in some workers.
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Content ArticleThe bold ambitions of integrated care systems (ICSs) to improve population health and tackle health inequalities, coupled with greater integration of health and care services, should definitely be a golden opportunity to do things differently and better. However, if ICSs want to prove that this is indeed a new era, they will need to act quickly to involve groups experiencing marginalisation and discrimination, including disabled people. Fazilet Hadi, Head of Policy at Disability Rights UK, considers how disabled people’s organisations can harness their power and expertise to improve how health and care services work with disabled people.
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News Article
C-section delay left baby severely disabled
Patient Safety Learning posted a news article in News
A baby was left "severely disabled" after a delay during his delivery by Caesarean section, a High Court judge has been told. Betsi Cadwaladr health board will pay £4m in compensation after a negligence claim was brought by one of the boy's relatives. He has required 24-hour care since his birth in 2018 at Glan Clwyd Hospital in Denbighshire. The hospital apologised, saying doctors are "working hard" to learn lessons. "We are extremely sorry," barrister Alexander Hutton KC, representing the health board, told Mr Justice Soole. "[Betsi Cadwaladr] is working hard to learn lessons from this case," he added. Read full story Source: BBC News, 2 November 2022 -
Content ArticlePeople with a learning disability are more than twice as likely to die from avoidable causes than the rest of the population. Actor Tommy Jessop and BBC Panorama investigated some of the stories of families who say they were let down by their medical care.
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Content Article
NICE and health inequalities (October 2022)
Patient-Safety-Learning posted an article in NICE
Health inequalities are differences in health across the population, and between different groups in society, that are systematic, unfair and avoidable. This webpage from the National Institute for Health and Care Excellence (NICE) outlines a definition of health inequalities. highlights factors that cause them, explores their effects and talks about how NICE can help health services tackle health inequalities. -
Content ArticlePeople with developmental disability have higher healthcare needs and lower life expectancy compared with the general population. Poor quality of care resulting from interpersonal and systemic discrimination may further entrench existing inequalities.
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Content ArticleIn England, around 10 million adults and 12,000 children have a musculoskeletal (MSK) condition. Ethnic minority groups, people from lower income households and those living in areas of high deprivation are most affected. In this guest blog for the Arthritis and Musculoskeletal Alliance (ARMA), Bola Owolabi, Director of the National Healthcare Inequalities Improvement Programme at NHS England, highlights the role that MSK health inequalities play in people's lives. She looks at the link between socio-economic disadvantage and poor health outcomes, and discusses the wider implications of disability due to MSK conditions. She describes work being done by the NHS, and highlights ARMA's work to narrow MSK health inequalities through listening to the experiences of underserved communities and working in partnership to improve care.
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News ArticleHospital authorities in Wales have been accused of attempting to cover up failings in the delivery of a baby born with significant brain damage. Gethin Channon, who was born on 25 March 2019 at Singleton Hospital, in Swansea, suffers from quadriplegic cerebral palsy, a severe disability that requires 24/7 care. There were complications during his birth, due to him being in an abnormal position that prevented normal delivery, and he was eventually born via caesarean section. An independent review commissioned by Swansea Bay University Health Board (SBUHB), which manages Singleton Hospital, found “several adverse features” surrounding Gethin’s delivery that were omitted from or “inaccurately specified” in the hospital’s internal report. The investigation, carried out by obstetrician Dr Bill Kirkup, said SBUHB had “significantly” downplayed the “suboptimal” care received by Gethin and his mother, Sian, and had erroneously attributed his condition to a blocked windpipe. It also suggests that amendments were retrospectively made to examination notes taken by staff during the course of Ms Channon’s labour. The family said that SBUHB, which was flagged by national inspectors in the months after Gethin’s birth due to “concerns” over its ability to deliver “safe and effective” maternity care, had “covered up” the failings in their case. SBUHB said it had been “working tirelessly” with the family to investigate and address their concerns, and that it would be inappropriate to comment on specific allegations as the process was ongoing. Read full story Source: The Independent, 2 September 2022
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Content ArticleThe Voluntary Organisations Disability Group (VODG) has launched a commission on Covid-19, Disablism and Systemic Racism to explore how the worst impacts of Covid have fallen on Disabled people, particularly those from Black, Asian and minoritised ethnic groups. The Commission is examining the extent to systemic neglect of social care over many years has caused negative outcomes that have been worsened by confused approaches by the Government during the pandemic. This includes poor implementation of policy and conflicting guidance. The work will gather evidence, scrutinise the Department of Health and Social Care’s policies and responses to the pandemic, including ways in which systemic racism may have further worsened outcomes for disabled people of colour, and build solutions and support for transformative and sustainable change in social care, based on justice and human rights. The Commission is calling on Disabled people and people with long-term health conditions from Black, Asian and minoritised ethnic groups to share their views and experiences of the Covid-19 pandemic as part of its 'Call for Views and Experiences'. They are also keen to hear from families, carers and people who work in social care.
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Content Article
AvMA case study: Stuart's story
Patient-Safety-Learning posted an article in Risk management and legal issues
This article tells the story of Stuart, who died as a result of medication errors while recovering from surgery at a private hospital in January 2013. Stuart had dystonia, an incurable condition that he managed by taking a careful balance of three medications. Following surgery to remove his larynx, the private neurological centre where he was staying ran out of clonazepam, a medication Stuart needed to control his dystonia. Stuart became very unwell, but instead of seeking advice from a doctor, the nurses treated his symptoms as a UTI. on 26 December he was found unresponsive in bed and rushed to ICU at a local hospital. but died a few weeks later from sever kidney and muscle damage. An inquest into Stuart's death found that the lack of clonazepam had caused an increase in Stuart’s muscle spasms, eventually leading to severe muscle and kidney damage. He then developed bronchopneumonia, which was the final factor in his death. -
Content ArticleThis is the story of the avoidable death of Glyn Davies, as told by his sister Anne. Glyn had an obstruction of the small bowel caused by adhesions from previous surgery and died from aspiration pneumonia after two weeks in intensive care at The Royal Lancaster Infirmary. Glyn's family felt that the investigation following his death had not been dealt with well, with evidence being withheld from the Coroner. This included information in Glyn's medical notes that indicated he had caught the hard-to-treat bacterial infection Stenotrophomonas Maltophilia, from either the ventilator or tubes whilst in intensive care. The family then took legal action against The University Hospitals of Morecambe Bay NHS Foundation Trust and the case was settled out of court in March 2020.
