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More than 80 new clinics to assess patients suffering with symptoms of Long Covid are to be opened by the NHS by the end of this month with an extra investment of £24m. NHS England chief executive Sir Simon Stevens said the health service must “continue to expand its offer for Long Covid” adding there will be even more funding earmarked for the problem in the future. Speaking at the Health Service Journal’s leadership congress on Wednesday, Sir Simon said: “We have 69 clinics identified last year and we will have 83 long Covid clinics in place by the end of this month, so a significa- Posted
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Long Covid Kids: Schools Awareness Pack
PatientSafetyLearning Team posted an article in Patient recovery
Who is the pack for? Are you interested in learning more about the aerosol transmission of COVID-19? Do you need to see the science and evidence before making decisions? Are you considering your mask-wearing policy and looking for further information? Would you like to learn more about the benefits of CO2 monitors in classrooms? Would you like to understand how COVID-19 can present in a child to aid early identification and reduce transmission? Would you like to understand more about Long Covid and how it can present in a child? Are you interested in- Posted
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Lyth Hishmeh kept feeling ill months after contracting coronavirus a year ago in March. He had chest pain and couldn't concentrate. At 26 years old, the former regular runner was fatigued and breathless, struggling to function properly. Yet medical professionals kept telling him he simply could not still be ill. "They were telling me it's all in my head," he said. For Hishmeh who lives in London and many sufferers of long Covid, proving they are sick has become a big part of trying to get better. Another Londoner, Monique Jackson, has lost count of the number of times her pain was de -
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'Long Covid has destroyed me but I am fighting back'
Patient Safety Learning posted a news article in News
Health coach Jasmine Hayer had to give up her life in London and move back in with her parents after catching Covid. Now she is focused on a twin goal - battling back to health while helping others get the right treatment for Long Covid. Dr William Man, the head of the Royal Brompton Hospital's chest clinic, started treating her in December, as part of a clinic seeing 100 severe long Covid cases in the UK. Jasmine describes it as a "complete game changer". However, she worries that other so-called "long haulers" are not getting the help they need because they face "such a battle- Posted
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Long Covid patients have voiced growing frustration at a “postcode lottery” in clinical support for debilitating symptoms, with some areas of the UK offering no specialist clinics more than a year after coronavirus took hold. Other sufferers said they were disappointed by long Covid clinics investigating certain symptoms only, with no comprehensive treatment plan. Official figures suggest there are almost 700,000 Britons with Covid symptoms lasting over three months. In October, NHS England announced more than £10m for a network of clinics bringing together doctors, nurses, therapist -
Content Article
Key findings: An estimated 90%+ of Long Covid patients were not hospitalised. 7 months post infection, c.70% reported being too unwell to work at all or to their previous capacity. 82% of respondents to the survey have struggled to secure referrals since publication of the NICE/SIGN/RCGP guideline and list of clinics. There is an urgent need for information and clarity of referral pathways to remove barriers to access as well as inefficiencies. There is an urgent need for information and communications to reach GPs and other health professionals to help patients access i- Posted
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Lasting effects of infection from coronavirus are more common in women and children than expected, with at least 10% of people infected suffering persistent symptoms for months, a new review has found. Experts at the National Institute for Health Research (NIHR) examined more than 300 separate scientific studies for the analysis. It found many patients reported struggling to access testing and help from the NHS to treat their symptoms, which varied between patients, suggesting long Covid is a group of four possible syndromes affecting patients differently. The report said: “Long Covi -
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The report makes the following recommendations for the future research agenda: More research is needed on the incidence of Long Covid and its causes. This will help to predict and prevent Long Covid in the longer term. There is an urgent need to research treatments and management for people with Long Covid. The emergent nature of the understanding of Long Covid emphasises the need to continue to explore a range of hypotheses in any research that is undertaken. A precursor to research in all areas is a better understanding of the disease syndromes and symptom clusters that cur -
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Senedd Committees Committees in the Senedd are cross-party bodies that carry out many functions, including scrutinising the expenditure and policies of the Welsh Government, holding Ministers to account, and examining proposed legislation. This Committee's work focuses on Health, Social Care and Sport. Evidence session This page contains links to a number resources relating to this evidence session, including: Webcast of the evidence session Evidence submission from Long COVID Wales Evidence submission from Dr Elaine Maxwell, Content Lead - National Institute for- Posted
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People with long Covid urgently need help. Why can't we access it?
Patient Safety Learning posted a news article in News
Joanna Herman, a consultant in infectious diseases, had high hopes when Boris Johnson announced £10m for long Covid clinics. Five months on, she is yet to be referred to one. "Despite the government recently giving £18.5m research funding for the disease, it feels as though all focus is now on the vaccine and the lifting of lockdown, while those living with long Covid have been largely forgotten," says Joanna. Her initial illness was, by definition, a mild case of Covid: no hospital admission and no risk factors for severe disease. Months later she found herself experiencing crashing- Posted
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'There’s a lot of nasty stuff': the people living with long Covid
Patient Safety Learning posted a news article in News
Sufferers say they have had little specialist help despite NHS England setting up dedicated clinics. “It’s not that I feel I have been abandoned, I think that is perfectly obvious,” says Rachel Pope. “If you speak to any long Covid patient, they have been abandoned.” Until exactly a year ago – 5 March 2020 – Pope was “an incredibly fit woman”. A senior lecturer in European prehistory at the University of Liverpool, her work and lifestyle were very active. But after falling ill to Covid, she spent four months unable to walk, then three more when she could manage little more than “a so- Posted
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Some 1 in 10 people still experience persistent ill health 12 weeks after having COVID-19, termed “long COVID” or post-COVID conditions. A new policy brief from the European Observatory on Health Systems and Policies documents responses to post-COVID conditions in different countries of the WHO European Region and looks at how sufferers, including medical professionals, are driving some of those responses. Written for decision-makers, this brief summarises what is known about the conditions, who and how many people suffer from them, diagnosis and treatment, and how countries are addressin- Posted
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Amongst the 3.9 million confirmed COVID-19 cases in the UK to date, it is estimated that around one in five people experience symptoms that last for five weeks or longer, and one in ten have symptoms that last for twelve weeks or longer. Termed Long COVID, people report a myriad of symptoms including chronic fatigue, breathlessness, loss of sense of smell, depression and concentration difficulties. Already totalling an estimated 186,000 people, long COVID will bring mounting pressure on primary care services. Within its COVID-19 rapid guideline for managing the long-term effects of C- Posted
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Long Covid: ‘It’s a year since I’ve felt like myself’
Patient Safety Learning posted a news article in News
Today is an anniversary that George Hencken never imagined. It is exactly one year since she caught COVID-19. But unlike most people who have suffered from the disease, she remains ill. “It’s a year since I’ve felt like myself,” she said. “It’s a year since my life as I knew it came to an end. And I don’t know if I’m going to get it back again.” Long Covid doesn’t quite describe the depths of her fatigue. “It’s not tiredness. It’s like having jet lag and a hangover. It feels like I’ve been poisoned,” she said. The problem for Hencken and the thousands still suffering from the vi- Posted
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Calls for compensation scheme for UK frontline workers with long Covid
Patient Safety Learning posted a news article in News
Boris Johnson is being urged to launch a compensation scheme for frontline workers who are suffering from the long-term effects of coronavirus. The all-party parliamentary group on coronavirus said the prime minister should recognise long Covid as an occupational disease, saying some sufferers have found it hard to return to work. A letter, signed by more than 60 MPs and peers, has been sent to Johnson. Layla Moran, the APPG’s chair, said: “Long Covid is the hidden health crisis of the pandemic, and it is likely to have an enormous impact on society for many years to come. -
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The World Health Organization (WHO) has urged countries to prioritise rehabilitation for the medium and long term consequences of covid-19 and to gather information on “long covid” more systematically. WHO has produced a standardised form to report clinical data from individual patients after hospital discharge or after their acute illness to examine the medium and long term consequences of COVID-19.1 It has also set up technical working groups to build a consensus on the clinical description of what WHO now calls “the post-covid-19 condition” and to define research priorities. Speak- Posted
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Tens of thousands of coronavirus survivors needing long-term care are heaping pressure on Britain’s stretched community services, threatening a crisis that experts warn could dwarf that seen in hospitals over the past 12 months. As many as 100,000 intensive care patients, including up to 15,000 Covid-19 survivors, will need long-term community nursing care after being discharged from hospitals during the past 12 months, The Independent has been told. This will be on top of an as yet unknown number of Covid patients from the 350,000 treated on general wards since the pandemic began, a