Call for action
The report calls on the UK Government, Scottish Government, Welsh Government and Northern Ireland Executive to prioritise services for people with neurological conditions and establish a Neuro Taskforce. The Taskforce would bring together relevant departments, health and social care bodies, professional bodies, people affected by neurological conditions and the voluntary sector to:
Assess the current neuroscience workforce and set out plans to ensure it is fit for the future.
Share approaches to common problems, such as addressing longstanding barriers to acce
Not enough people understand what it’s like to live with Parkinson’s. They don’t know it’s a serious condition. They don’t realise that treatments are limited and that there is no cure.
That’s why on World Parkinson's Day (Monday 11 April 2022) we want to get the world talking about Parkinson’s.
Key facts about Parkinson’s you might not know
Parkinson's is the fastest growing neurological condition in the world.
There are over 40 symptoms. From pain and stiffness, to problems with sleep and mental health. Everyone’s experience is different.
Around 145,000 people i
Medication delays can risk life-threatening complications for patients with Parkinson's disease, including choking, aspiration pneumonia and neuroleptic malignant syndrome. In 2016, the spouse of a patient with Parkinson's disease wrote to LTHT to highlight that multiple medication delays and omissions had occurred during his recent admission. In response, LTHT formed a multidisciplinary quality improvement Collaborative to ensure patients with Parkinson's disease received their medication on time.
Thanks to the project, between January 2016 and June 2020:
mean delays in the time
The toolkit covers the following neurological conditions:
multiple sclerosis (MS)
motor neurone disease (MND)
Parkinson’s and the atypical Parkinsonism’s of multiple system atrophy (MSA)
progressive supranuclear palsy (PSP)
corticobasal degeneration (CBD).
Domiciliary care for someone with Parkinson's - 20 minute presentation for home care workers
Introduction to Parkinson's for care staff course
Omitted and delayed medicines on hospitals course
Parkinson's awareness for ward staff - 15 minute presentation
Parkinson's train the trainer course
Parkinson's: Foundation modules for health and care staff
In this report, the Coroner states his concerns as follows:
Hospital staff told the inquest that due to the reduction in staff numbers, they did not have enough time to carry out their expected tasks. As one healthcare assistant told the court, it was “impossible” to provide one to one nursing care to Mr Housby with the number of staff working on that shift.
The court was told that since Mr Housby’s death, the problem of staffing shortages persists.
Clifton hospital is a place to where patients – often elderly and vulnerable – are transferred for a period of rehabilitation,
Going into hospital as an emergency admission can be an anxious time for many people and we know that you may be worried about what to tell staff if you're admitted to hospital in an emergency. You should:
Tell staff you have Parkinson's and how important it is to get your medication on time.
Explain to staff what medication you take. Show them your medication record and ask them to keep a copy of it in your notes. Check they have recorded this accurately.
Ask a member of staff to let your GP, specialist or Parkinson’s nurse know you are in hospit
“Often you go into hospital with something unrelated to your Parkinson’s but then your Parkinson’s gets worse due to it not being managed properly.” Carole (person living with Parkinson’s)
Sadly, research shows that 63% of people living with Parkinson’s don’t always receive their medication on time when staying in hospital. This can seriously impact their recovery. They may not be able to move, get out of bed, swallow, walk or talk. Some people may never recover and may permanently lose their ability to walk, talk or worse. In worst case scenarios, the withdrawal of Parkinson’s medication
The impact of delayed medication
“ I had to go into hospital after my knee gave way and I fell at home. Often you go into hospital with something unrelated to your Parkinson’s but then your Parkinson’s gets worse due to it not being managed properly.
“While in the hospital I missed repeated doses of my medication due to a lack of knowledge and understanding of my condition-specific needs. This threw me out of sync completely – it brought on more severe depression, unsteadiness on my feet, more severe tremors. It affected me in so many ways. It’s impossible for me to control these sy
1 Medication delays: A huge risk for inpatients with Parkinson’s
In this blog, Laura Cockram, Head of Policy and Campaigning at Parkinson's UK talks about the serious health implications of medication delays for people living with Parkinson's disease. She also offers recommendations for how hospitals can reduce the risk of harm.
2 Improving safety for diabetic inpatients: 4 key steps
In this short film, National Specialty Advisor for Diabetes, Partha Kar shares 4 steps for improving the safety of diabetic inpatients.
3 Neonatal herpes: Why healthcare staff with cold sores s
Going into hospital when you have Parkinson's booklet
Free 'Get It On Time' reminder stickers (p&p costs apply)
Free 'Get It On Time' washbag - with items that promote the importance of getting medication on time (p&p costs apply)