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Content Article
The Parkinson’s Excellence Network have released a series of resources to support UK healthcare professionals in hospitals to improve the delivery of time critical medication for people with Parkinson’s. Parkinson's UK time critical medication dashboard. The new dashboard estimates the benefits of improving time critical medication management for people with Parkinson's in hospitals in England, Scotland and Wales. The dashboard estimates the direct cost for hospitals and impact on patient outcomes of delayed or missed medication doses. Audit and awareness: how staff at Hexham General Hospital improved the delivery of time critical medication. This case study details how a staff nurse's dissertation led to an increase in Parkinson's medication delivered on time on a ward at Hexham General Hospital. Webinar: Driving improvement on time critical Parkinson's medication. In February our fully subscribed webinar included a session on practical benchmarking against the 10 recommendations. Watch the webinar recording and read the Q&A document now. Time critical medication patients' stories: in their own words. In these new short films, people with Parkinson’s share their experiences of receiving their Parkinson's medication in hospital and how this impacted on their health and well being. These films have been developed to raise awareness and support education and training of health professionals. Read more in the latest time critical medication blog by former nurse Patsy Cotton. Access all of the time critical medication resources. -
News Article
Missed and delayed medication putting A&E patients at risk, new report reveals
Patient Safety Learning posted a news article in News
Patients in A&E are being put in potentially life-threatening situations due to missed doses of prescription medicines, according to a new report. The Royal College of Emergency Medicine (RCEM) found people in A&E were not getting their medications on time and were missing doses needed to manage their illnesses – putting them at risk of getting worse. Insulin for diabetes, Parkinson's drugs, epilepsy medicines and tablets for preventing blood clots are all time critical medicines (TCM). If these drugs are delayed or missed, the patient can deteriorate and is at greater risk of complications or death. While patients are advised to remember to bring their medications to A&E and to take them, there is also a responsibility on NHS staff to make sure this happens. Despite the recognised risk of harm, the delivery of TCM is not consistent across emergency departments with long waiting times often contributing to this. The study, which was part of the College's clinical Quality Improvement Programme (QIP) which aims to improve the care of A&E patients, found more than half of these patients were not identified as being on TCM within 30 minutes of their arrival in an emergency department. In addition, 68% of doses were not administered within 30 minutes of the expected time. "The findings contained in this report should serve as a call to action for both emergency medicine staff, as well as patients reliant on time critical medications, to ensure no dose is ever missed in A&E," said Dr Jonny Acheson, an emergency medicine consultant in Leicester who has Parkinson's, led the study. Read full story Source: The Independent, 7 April 2025 Further reading on the hub: Time-critical Parkinson’s medication: the human cost of delays and mistakes HSSIB investigation report: Medication not given: administration of time critical medication in the emergency department Parkinson's UK: Time critical medication guides for health professionals Improving safety for diabetic inpatients: 4 key steps D1abasics: Equipping staff to care safely for inpatients with diabetes- Posted
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Patient safety is being put at risk in Emergency Departments due to missed doses of vital prescription medicines. This is one of the findings of a study being carried out by the Royal College of Emergency Medicine (RCEM) which revealed that many patients who rely on prescription medication to manage chronic conditions such as diabetes and Parkinson’s, aren’t always getting these vital drugs when in A&E. These types of drugs are known as ‘time critical medication’ (TCM) and, as the name suggests, it is important they are taken at specific times. If a dose is delayed or missed, it can cause a person’s health to worsen. And if this delay is prolonged, the consequences can be severe. The RCEM’s new report – Time Critical Medication QIP 2023-24 is part of the College’s clinical Quality Improvement Programme (QIP), which aims to improve the care of patients attending Emergency Departments. The three-year QIP examines how time critical medications are dealt with in practice when patients come to the Emergency Department and how clinical methods and patient safety can be improved. This report reflects the findings of the first year of the programme. Across the UK, 136 Emergency Departments collated and analysed data for people living with diabetes and Parkinson’s, who take certain medication such as insulin injections and a drug called levodopa, taken as tablets or capsules. Supported by Parkinson’s UK and Diabetes UK, the QIP found more than half of eligible patients (53.4%) taking TCM weren’t identified within 30 minutes of their arrival in ED. Meanwhile, around 68% of eligible patients’ doses weren’t administered within 30 minutes of the expected time. In response to the findings, the QIP team made the following recommendations: Patients on TCM need to be identified early to start the process of getting all doses whilst in the ED. Systems need to be in place that will facilitate the timely administration of TCM, including self-administration. Local EDs must have a clear governance structure in place to determine who is responsible for the prescribing and administering of TCM in the ED from when the patient arrives, to when they are admitted to the ward or discharged from the ED. Further reading on the hub: Time-critical Parkinson’s medication: the human cost of delays and mistakes HSSIB investigation report: Medication not given: administration of time critical medication in the emergency department Parkinson's UK: Time critical medication guides for health professionals Improving safety for diabetic inpatients: 4 key steps D1abasics: Equipping staff to care safely for inpatients with diabetes- Posted
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Sara Riggare has had Parkinson's disease for nearly forty years. In this BMJ blog, she highlights the importance of trust and dialogue when making treatment decisions. Sara describes a recent interaction with a doctor to illustrate why listening to patients' concerns and answering their questions is vital to building mutual trust.- Posted
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In this blog published by the Royal College of Nursing, Jean Almond, Programme Manager at Parkinson's UK, discusses improving the delivery of time critical Parkinson’s medication to care home residents.- Posted
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Parkinson’s is the fastest growing neurological condition in the world. Currently there is no cure for Parkinson’s, but medication plays a vital role in managing symptoms and preventing deterioration. In this blog, Joanne explains how delays to her mother’s time-critical medication in hospital led to her condition deteriorating. I want to share my story about my mother’s treatment after she was admitted to hospital with a sore knee. She lived independently and walked with one stick prior to her admission. Her Parkinson’s was well managed with her medication. Right at the beginning of my mother’s inpatient stay she received the wrong amount of her time critical medication and her usual timings were not honoured, despite information given to medical staff on admission. My mother lost all her function which caused her to fall, she couldn’t sit up properly and was lying to the side and hunched over. She managed to feed herself a few times in this lying to the side/hunched over position. This in turn meant she aspirated and then took pneumonia. She also has heart failure, and the amount of antibiotics needed to shift the pneumonia then caused fluid overload which made her heart failure worse. We were not given much hope for her. She lost 4 stone of weight and was hospitalised for a total of 96 days. At times, she could not even coordinate her hand to mouth to eat. I was constantly having to chase the medical staff for her medication to be given at the correct times. I was made to feel like a pest. They even ran out at one stage, and the dosage was over 2 hours late. My mother was never incontinent on admission to hospital but that also soon changed. She deconditioned, was frail and then had trouble with orthostatic hypotension which restricted her rehab. She had several urinary tract infections which in turn caused delirium which was very upsetting. It is of my opinion that the medication delays caused the problems. I complained about the care and got her moved to a local hospital. She came on leaps and bounds, and they were bang on time constantly with her meds. No issues at all. Two physiotherapists had her up and walking. She was finally discharged from hospital on day 96 with a Zimmer frame with wheels and the assistance of two people. The physiotherapy team felt confident she wasn’t at her baseline and could improve to having the Zimmer and assistance of one. Things felt more positive. She then went to a rehab care centre where the physiotherapy input was minimal. The physiotherapist there reassessed her and told me that she would never walk again as it was too unsafe. Medical advice was to find a permanent nursing home for her. I then contacted a private neuro physiotherapist who specialises in Parkinson’s and he has hope for her and has had her up and walking again. I’m so very upset and traumatised by what has happened to my mother. It’s a very sad situation that we are currently faced with and I have no doubt that it all has been caused by an incorrect dosage and delays to the set timings of her Parkinson’s medication during her hospital admission. I do not feel the medical staff understood the importance of her time critical medication. There needs to be more awareness throughout health trusts and training for any staff involved in dispensing these medications. Guidelines or standards should be implemented and in place for time critical medication. It is not acceptable to follow general medication guidelines for time critical Parkinson’s medication. Share your story Have you or someone you care for been affected by any of the issues raised in Joanne's blog? Or perhaps you are a healthcare professional putting measures in in place to reduce errors around time-critical medication? You can comment below (sign up for free first) or email us at [email protected] to share your insights. Related reading Medication delays: A huge risk for inpatients with Parkinson’s Keeping patients with Parkinson’s safe in hospital: 4 key actions for staff Preparing to go into hospital – tips for people with Parkinson's and their carers Lightning Learning: Time Critical Medications ‘Every minute counts’: taking a national approach to time-critical medicines- Posted
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Parkinson’s UK Tech Guide
Sam posted an article in Neurological conditions
Parkinson’s UK created the Tech Guide so that people with Parkinson’s, and their families, friends and carers, can make the right decisions for themselves about all the devices and apps that claim to be able to help improve their quality of life. To do this, they provide trusted reviews based on the lived experience of people with Parkinson’s, and maintain a catalogue of the various products that are on the market. This is backed up with information about Parkinson’s and evidence-based articles that will help you decide what’s right for you, in your unique circumstances.- Posted
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Event
untilJoin the Parkinson's Excellence Network for our time critical medication virtual webinar. Our expert panel will share their experience of time critical Parkinson’s medication and benchmarking. Join the discussion, identify appropriate actions for your organisation and learn about the support for health professionals. Learning outcomes for the session: Share experience on time critical Parkinson’s medication and benchmarking. Be familiar with the 10 recommendations for time critical medication. Identify appropriate actions for your organisation. Navigate the further resources and support that are available for health professionals. View the draft agenda and register to attend now on the Parkinson's UK website.- Posted
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News Article
Elderly patient left unable to swallow after 52-hour A&E wait
Patient Safety Learning posted a news article in News
An elderly man was left unable to swallow after waiting over two days in A&E without being given regular medication, and died four weeks later. In a “shocking” case that has raised fresh concerns over the state of urgent NHS care, the 85-year-old was sent to a hospital emergency department after a routine appointment. Amid massive delays, his A&E wait went into a third day, with most of it spent on a bed in the corridor. He had Parkinson’s disease and required medicine at various intervals to control his symptoms. During his time in A&E, the man should have received 18 doses but seven were not given and three were given late, according to a report from the Health Services Safety Investigations Body (HSSIB). The report, which does not name the patient or hospital, highlights how the man was advised to go to A&E after complaining of back pain following a fall at home the day before. After 52 hours in A&E, he was finally admitted to a ward where his Parkinson’s symptoms deteriorated and he lost the ability to swallow, the HSSIB said. He died four weeks later, with the causes of death listed on the death certificate as a severe chest infection, Parkinson’s and frailty of old age. The HSSIB report highlights how the man spent most of his time in A&E on a bed in a corridor because of demand on services. Corridor care can cause problems for emergency staff because there are “limited opportunities to store medication brought from home”, the authors said. Read full story Source: The Guardian, 5 November 2024 Further reading on the hub: Professionals with Parkinson’s tackle time critical patient safety issue: a blog by Sam Freeman Carney Parkinson's UK: Time critical medication guides for health professionals Medication delays: A huge risk for inpatients with Parkinson’s A silent safety scandal: A nurse’s first-hand account of a corridor nursing shift- Posted
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This is the first in a series of Healthcare Services Safety Investigation Body (HSSIB) investigations exploring why medications intended to be provided to patients are not given. Patients who need medications can suffer harm if these are not provided. The investigation explored the systems and processes in place to support staff to recognise, prescribe and administer time critical medications in the emergency department (ED). Time critical medications are medications that must be given at specific times of the day to ensure they are fully effective. The investigation also explored the role played by electronic prescribing and medicines administration (ePMA) systems in supporting care in this area. To explore these issues, the investigation used a patient safety event involving a patient aged 85 with Parkinson’s. The patient usually took his own medication (self-administered) at home – two doses of Parkinson’s medication four times a day, at set times – to help control his symptoms. The patient safety event The patient had attended hospital for an outpatient appointment where he mentioned he had back pain following a fall at home the previous day. He was advised to attend the ED and went there immediately after his outpatient appointment. The patient spent 3 days in the ED. During this time he should have received a total of 18 doses of his Parkinson’s medication, which was a time critical medication. However, seven doses were not given and three doses were given late. This meant that only 8 of 18 doses of Parkinson’s medication were provided to the patient on time. The patient was transferred to a medical ward where his Parkinson’s symptoms deteriorated and he lost the ability to swallow. The patient died 4 weeks after his admission to the ward. The causes of death identified on his death certificate included bronchopneumonia (severe chest infection), Parkinson’s, and frailty of old age. Findings The patient required time critical medication for Parkinson’s but did not receive, or received late, 10 of 18 doses during his time in the ED. The coroner reported Parkinson’s as a factor leading to the patient’s death. There were no defined roles or responsibilities in the ED to ensure patients who required time critical medications were identified, and medications prescribed, as soon as possible. The ED had no dedicated pharmacy support to help staff in providing care to patients who required time critical medications. The patient spent 52 hours in the ED; for 44 of these he was cared for in a corridor because of demand on ED services. Corridor care created additional challenges for ED staff and specialty teams and may have limited opportunities to store the patient’s medication which he had brought from home. The Trust did not participate in the Royal College of Emergency Medicine Quality Improvement Programme on time critical medication. The ePMA system did not include a function to alert staff about patients who required time critical medications to be prescribed or administered. An outage in the ePMA system meant the patient required both an electronic and paper prescription chart. This may have caused additional confusion about the patient’s medication. Staff had adapted their practice to ensure they could effectively use the ePMA in the ED setting. This was because of challenges in accessing computers and medication rooms in the ED environment. The patient self-administered some doses of his Parkinson’s medication, but this was not planned and self-administration by patients was not widely supported by clinical staff or local guidance. Staff were not able to check neurology clinic letters because there was a backlog in these letters being uploaded to the electronic patient record system. Staff were not able to check information with the patient’s GP practice or Parkinson’s specialty team at the time the patient’s medication was prescribed in the ED, as this was outside of these services’ working hours. Staff received contradictory information from the patient’s son and the GP summary care record about the dosage of medication the patient required. The GP summary care record was taken as the most accurate record, but the information it contained was incorrect. Once the patient’s medication information was entered onto the ePMA system, no further attempt was made to contact the GP practice or Parkinson’s specialty team to confirm it was correct. Some information about the patient’s medication within the GP patient record was transferred to the GP summary care record, but other information was not. Safety observation NHS trusts can improve patient safety by using the information contained in the information pack for the Royal College of Emergency Medicine’s Quality Improvement Programme on time critical medications to assess their preparedness and make local improvements in identifying, prescribing, and administering time critical medications in emergency departments. Local-level learning prompts for acute hospitals Delays in identifying and prescribing time critical medication in the ED How does your organisation ensure that patients who need time critical medications are identified as soon as possible on arrival to the ED? Who in your patient pathway is responsible for identifying patients who need time critical medications? Who in your patient pathway is responsible for prescribing time critical medications? How does your organisation ensure that once a patient’s need for time critical medications is identified, they are prescribed? What aids or tools are available in your organisation to help staff to identify patients who need time critical medications? What pharmacy support is available to staff in ED to support in the care of patients who need time critical medications? Missed and delayed doses of time critical medication in the ED How does your organisation support staff to access information (including information from primary care and specialty teams) about patients’ time critical medications? How does your organisation support patients to self-administer time critical medications, when appropriate? How does your organisation capture information when patients self-administer time critical medications? How does your organisation receive and consider information from families and carers to help avoid missed or delayed doses of time critical medications? ePMA systems and time critical medication in the ED How does your ePMA system help to alert staff to patients who need time critical medications? How does your organisation train staff to use local ePMA systems and record when patients require time critical medications? How does your organisation prepare and support staff to work safely when ePMA systems may not be functioning to ensure time critical medications are not missed? How does your organisation audit delays or omissions in time critical medications and use this to improve delivery of time critical medication? Is your organisation aware of any adaptations that staff are required to make to ensure they can use the ePMA system effectively in local environments? Further reading on the hub: Professionals with Parkinson’s tackle time critical patient safety issue: a blog by Sam Freeman Carney Parkinson's UK: Time critical medication guides for health professionals Medication delays: A huge risk for inpatients with Parkinson’s- Posted
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In this blog, consultant geriatrician, Dr James Fisher, talks about a project at NHS Northumbria Healthcare to improve the experience of Parkinson’s patients by focusing on medication. Read other blogs and resources about Parkinson's shared on the hub in our Top picks: 11 resources about Parkinson’s -
News Article
New time critical medication resources for health professionals launched
Patient Safety Learning posted a news article in News
Three new resources have been launched by the Parkinson’s Excellence Network to support UK healthcare professionals in hospitals to improve the delivery of time critical medication for people with Parkinson’s: An interactive resource showing which NHS organisations have pledged action on time critical medication. Access the map now. Benchmarking to improve the delivery of time critical medication at South Tyneside and Sunderland NHS Foundation Trust: best practice case study. Read the case study. Self administration: a patient-centred approach to administering time critical Parkinson’s medication at University Hospitals of Leicester NHS Trust: best practice case study. Find out more about self administration. You can read more about all of this and more in the latest time critical medication blog. Access all of the time critical medication resources. Source: Parkinson's UK, 4 November 2024- Posted
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Parkinson's UK spoke to Hannah Flint, Senior Nurse Medicines Management, and Joanne Mee, Medicines Management Nurse, to find out how the University Hospitals of Leicester (UHL) NHS Trust has empowered patients by developing a robust self administration policy supported by staff training.- Posted
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South Tyneside and Sunderland NHS Foundation Trust is benchmarking against the Parkinson's UK10 recommendations for time critical medication to make sure that people with Parkinson’s get their medication on time, every time. Read on to find out how the team has listened to patients and focused their work. -
Community Post
Better use of data for medication safety in hospitals
Kenny Fraser posted a topic in Medicine management
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NHS hospital staff spend countless hours capturing data in electronic prescribing and medicines administration systems. Yet that data remains difficult to access and use to support patient care. This is a tremendous opportunity to improve patient safety, drive efficiencies and save time for frontline staff. I have just published a post about this challenge and Triscribe's solution. I would love to hear any comments or feedback on the topic... How could we use this information better? What are hospitals already doing? Where are the gaps? Thanks- Posted
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Content Article
People with Parkinson’s need their medication on time every time. Yet over half of people with the condition don’t get their medications on time in hospital. This can cause stress, anxiety, immobility, severe tremors, and in some extreme cases death. Parkinson's UK are campaigning to make sure that no one with Parkinson’s is worried that they will leave hospital more unwell than when they went in. Whether you have Parkinson’s, support someone who does, work in the health and care system or campaign to improve it, you can take action to make hospitals and care homes safer. Together we can get more people to understand how big this problem is. And we can put pressure on the right people, across the UK, to change hospital policies, improve prescribing in hospitals and make sure staff are trained to give time critical medication. Download the report Parkinson's UK have also issued a joint statement with other charities whose patients are impacted by needing time-critical medication with the support from professional bodies. Further reading on the hub: Medication delays: A huge risk for inpatients with Parkinson’s Keeping patients with Parkinson’s safe in hospital: 4 key actions for staff- Posted
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News Article
Former BBC Technology correspondent Rory Cellan-Jones, now a writer and podcaster, has Parkinson's disease. Two weeks ago, after fracturing his elbow in a nasty fall, he found out just how difficult it can be to get answers from the NHS. "Getting information about one's treatment seems like an obstacle race where the system is always one step ahead. But communication between medical staff within and between hospitals also appears hopelessly inadequate, with the gulf between doctors and nurses particularly acute. "I also sense that, in some cases, new computer systems are slowing not speeding information through the system. On Saturday morning, as we waited in the surgical assessment unit, four nurses gathered around a computer screen while a fifth explained to them all the steps needed to check-in a patient and get them into a bed. It took about 20 minutes and appeared to be akin to mastering some complex video game beset with bear traps." Rory's latest experience as a customer of the health service has left him convinced that more money and more staff won't solve its problems without some fundamental changes in the way it communicates. Read full story Source: BBC News, 29 October 2023- Posted
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Hospital drug policies could ‘put Parkinson’s patients at risk’
Patient Safety Learning posted a news article in News
Patients with Parkinson’s disease are being put at risk when they have spells in hospital due to a lack of timely medication, according to a new report. Some 58% of people with Parkinson’s disease who were admitted to hospital in England last year said that they did not receive their medication on time during their stay. Parkinson’s UK said that medication for people with the condition is “time critical” and a delay of 30 minutes can mean the difference between functioning well and being unable to move, walk, talk or swallow. The charity also conducted freedom of information requests on English hospitals and found that one in four (26%) NHS trusts do not have policies that allow people with Parkinson’s to take their own medication in hospitals. Only half (52%) require staff responsible for prescribing and administering medication to have training on time critical medication, the charity found. Parkinson’s UK has called for a number of measures to be put in place to make sure patients in hospital can get access to medications when needed including: ensuring there are medication self-administration policies for patients where it is safe to do so; more training for staff and better use of e-prescribing to keep on track of medication timings. Read full story Source: The Independent, 19 September 2023- Posted
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Top picks: 15 resources about Parkinson’s
Patient-Safety-Learning posted an article in Neurological conditions
Parkinson’s is the fastest growing neurological condition in the world. It can affect young or old, and in the UK, around 153,000 people are living with the condition. With population growth and ageing, this figure is estimated to increase by 20%, within the next ten years. At the moment, there is no cure for Parkinson’s, but medication plays a vital role in managing symptoms and preventing deterioration. People with Parkinson’s face a number of specific patient safety issues when accessing healthcare including communication difficulties and risks associated with medication delays. In this blog, Patient Safety Learning has pulled together 15 useful resources about Parkinson’s shared on the hub. They include guidance for patients and their families about hospital stays and medication, and awareness-raising resources for healthcare professionals about the patient safety issues people with Parkinson’s face. 1. Keeping patients with Parkinson’s safe in hospital: 4 key actions for staff Dr Rowan Wathes, Associate Director of the Parkinson's Excellence Network at Parkinson's UK, recommends four key actions that healthcare workers can take to improve safety for people with Parkinson’s while they are in hospital. 2, Nurses leading the way: enhancing Parkinson's care in nursing homes In this blog published by the Royal College of Nursing, Jean Almond, Programme Manager at Parkinson's UK, discusses improving the delivery of time critical Parkinson’s medication to care home residents. 3. Preparing to go into hospital – tips for people with Parkinson's and their carers In this blog, Laura Cockram, Head of Policy and Campaigning at Parkinson's UK, talks about how people with Parkinson’s can prepare their medication to go into hospital. 4. Professionals with Parkinson’s tackle time critical patient safety issue Sam Freeman Carney, Health Policy and Improvement Lead at Parkinson's UK, explains how critical it is that people with Parkinson’s get their medication on time and how, on World Parkinson’s Day in 2022, a group of healthcare professionals who live with Parkinson’s themselves decided to take action. 5. Time-critical Parkinson’s medication: the human cost of delays and mistakes In this blog, Joanne explains how delays to her mother’s time-critical medication in hospital led to her condition deteriorating. 6. Time critical medication guides for health professionals The Parkinson’s Excellence Network has produced three practical guides to support UK health professionals to deliver time critical Parkinson’s medication on time in hospital: a guide for NHS ward staff, a guide for hospital pharmacists and a swallowing guide for the nurse in charge and ward staff. 7. Electronic prescribing: how it can improve the delivery of time critical medications This resource describes how NHS Ayrshire & Arran hospitals improved their rates for administering patients' Parkinson's medications on time, sharing case studies and tips on how other hospitals might be able to replicate their successful e-prescribing system. 8. Improving the delivery of time critical medications at Bradford Teaching Hospitals NHS Foundation Trust A best practice case study showcasing a quality improvement project at Bradford Teaching Hospitals NHS Foundation Trust. 9. Ask the expert: How to spot fake Parkinson’s medicines online Falsified, fake or counterfeit medicines are medicines disguising themselves as authentic, and they can pose significant health risks. This blog highlights the issue of counterfeit Parkinson's medications being sold illegally online. Mike Isles, Executive Director of the Alliance for Safe Online Pharmacy in the EU describes their high prevalence and gives tips for people with Parkinson's on how to stay safe when buying medicines online. 10. My Parkinson's passport This tool from the Parkinson's Association of Ireland allows people with Parkinson's to record their essential medical information in an easy to access format, should they need assistance or medical treatment. 11. Parkinson's awareness: a 15-minute online presentation for ward staff This 15-minute training video by the Parkinson's Excellence Network pulls together the key symptoms and issues that can affect a person with Parkinson's and their care when admitted to a hospital ward. It aims to help ward staff understand the most important considerations when caring for people with Parkinson's. 12. Medication delays: A huge risk for inpatients with Parkinson’s This blog examines the serious health implications of delayed medication in people with Parkinson’s. It highlights evidence that this is a widespread safety issue and outlines the challenges, barriers and solutions to ensuring patients receive their medication on time. 13. Parkinson's UK: Involving everyone in improving management of inpatients in Leeds Inspired by a letter from the wife of a patient with Parkinson’s, Consultant Neurologist Jane Alty and colleagues started the 'Improving care of patients with Parkinson’s quality improvement project' at Leeds Teaching Hospitals NHS Trust. In this article, Jane talks about the successes and challenges of the project and the value of involving staff from across the organisation and carers to make services better. 14. Parkinson’s UK Tech Guide Parkinson’s UK created the Tech Guide so that people with Parkinson’s, and their families, friends and carers, can make the right decisions for themselves about all the devices and apps that claim to be able to help improve their quality of life. To do this, they provide trusted reviews based on the lived experience of people with Parkinson’s, and maintain a catalogue of the various products that are on the market. This is backed up with information about Parkinson’s and evidence-based articles that will help you decide what’s right for you, in your unique circumstances. 15. NHS Northumbria Healthcare: Improving the care in hospital for people with Parkinson’s In this blog, consultant geriatrician, Dr James Fisher, talks about a project at NHS Northumbria Healthcare to improve the experience of Parkinson’s patients by focusing on medication. Have your say Are you a healthcare professional who works with people with Parkinson’s? We would love to hear your insights and share resources you have developed. Do you have, or do you care for someone with Parkinson’s? Please share your experience of health and care services with us. We would love to hear from you! Comment below (register for free here first). Get in touch with us directly to share your insights.- Posted
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This tool from the Parkinson's Association of Ireland allows people with Parkinson's to record their essential medical information in an easy to access format, should they need assistance or medical treatment. It includes: information about the physical symptoms of Parkinson's, including how it affects speech and movement. instructions on how to interact with the person if they are having difficulty communicating. personal details and emergency contacts details of medications and treatments the person is taking.- Posted
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Content Article
Falsified, fake or counterfeit medicines are medicines disguising themselves as authentic, and they can pose significant health risks. 96% of websites selling medicines operate illegally–but research suggests that over 50% of people are not aware of this. This blog highlights the issue of counterfeit Parkinson's medications being sold illegally online. Mike Isles, Executive Director of the Alliance for Safe Online Pharmacy in the EU describes their high prevalence and gives tips for people with Parkinson's on how to stay safe when buying medicines online.- Posted
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Event
NHS England: Time-critical medication webinar
Sam posted an event in Community Calendar
untilThe webinar will be aimed at all Nursing and Midwifery professionals in all healthcare settings. It will look at time-critical medication and improving practice in this area, with a particular focus on medication for Parkinson’s Disease and Diabetes. The webinar will draw on expertise in Pharmacy, Nursing, Midwifery and other specialists such as Parkinson’s UK (charity) and their patient led campaign, which links to the focus on Personalised Care in the NHS Long Term Plan. There will be presentations from patient representatives who will share their experience of receiving time critical medication in healthcare settings and experts in this area. The design of the webinar has taken a collaborative approach - with the co-design taking place between NHS England, subject matter experts, clinicians and patient representatives. The codesign process will involve nursing, medical and pharmacy staff in discussion and feedback on processes for safely delivering time critical medication. This will educate staff and help to improve processes through the involvement of both staff and patients. Reserve your place- Posted
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Content Article
In this blog, Consultant Neurologist Jane Alty, talks about a patient with Parkinson's who was cared for in their trust for a period of time, during which there were frequent occasions on which his Parkinson's medications were delayed or not given. This sadly contributed to a deterioration in his swallowing and overall condition, and lengthened his time in hospital. Inspired by a letter from his wife, Jane and colleagues started the 'Improving care of patients with Parkinson’s quality improvement project' at Leeds Teaching Hospitals NHS Trust. Here she talks about the journey, the successes and challenges, and the value of involving staff from across the organisation and carers to make services better.- Posted
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Content Article
Parkinson's UK have developed a number of training resources to help health and care staff provide safe care for patients with Parkinson's. Domiciliary care for someone with Parkinson's - 20 minute presentation for home care workers Introduction to Parkinson's for care staff course Omitted and delayed medicines on hospitals course Parkinson's awareness for ward staff - 15 minute presentation Parkinson's train the trainer course Parkinson's: Foundation modules for health and care staff -
Content Article
This guide, developed by Parkinson's UK, tells you how to manage someone with Parkinson's in an emergency situation. It will be particularly useful for professionals who don’t see people with Parkinson's day-to-day.