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Content ArticleMental health nurses have a crucial role in preventing medical incidents and in promoting safety culture because they provide and coordinate most of patients' care. Therefore, they are able to enhance patients' outcomes and reduce nurses' injuries. The aims of this study from S H Hamaideh in International Nursing Review were to assess the perception of mental health nurses about patients' safety culture and to detect the factors which may affect patients' safety culture at psychiatric hospitals.
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Content Article
INQUEST Handbook
Claire Cox posted an article in Mental health
The INQUEST handbook is a free and trusted guide for bereaved families and friends affected by a sudden death that involves an inquest, available in print and online. It has been developed and shaped by the many families they work with, and helps prepare bereaved people for the inquest process in England and Wales. -
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The dangerous practice of sending people with a mental illness hundreds of miles away from home for weeks at a time continues in England, according to new analysis published by the Royal College of Psychiatrists. Despite Government pledges to end the shameful practice, known as inappropriate out of area placements, by March 2021, almost 206,000 days have been spent by patients out of area in the 12 months since the deadline passed. Being far away from home, with friends and family not being able to visit, can leave patients feeling extremely isolated and emotionally distressed with devastating, long-lasting consequences for their mental health. Not only that, but it comes at a huge cost to the NHS. The health service spent £102 million on inappropriate out of area placements last year – the equivalent to the cost of the annual salary of over 900 consultant psychiatrists. The Royal College of Psychiatrists is calling on the NHS to adopt a ‘zero tolerance’ approach to inappropriate out of area placements and to take urgent action to ensure all patients get the care they need from properly staffed, specialist services in their local area. -
Content ArticleThe Royal Society of Psychiatry are conducting a scoping and design exercise to identify the key actions that mental health providers can make to improve the use of the Mental Health Act (MHA) in preparation for the proposed MHA reforms, and to design two interventions to help mental health providers implement the identified actions. The broad aims of the exercise are to: Understand the experience of people currently and recently detained under the MHA Identify which aims identified in the Reforming the Mental Health Act White Paper (PDF) should be prioritised for a QI programme and intervention. Identify the key actions that mental health providers can make to improve use of the MHA. Design a QI programme and one other intervention in collaboration with staff and agencies involved in MHA treatment and detention.
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Content ArticleThe Learning Disabilities Mortality Review (LeDeR) Programme is a world-first. It is the first national programme of its kind aimed at making improvements to the lives of people with learning disabilities. The University of Bristol is one of the partners in the programme, which is funded and run by NHS England. Reviews of deaths are being carried out with a view to improve the standard and quality of care for people with learning disabilities. People with learning disabilities, their families and carers have been central to developing and delivering the programme. Further information and useful resources can be found on the University of Bristol's website.
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Content ArticlePositive Behavioural Support is a way of helping people with learning disabilities who are at risk of behaviour that challenges to have the best quality of life they can. If you have a learning disability and behaviour which others may call challenging behaviour, these booklets have been designed to help you think about what having a good life means for you.
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Content ArticleA Virtual Clinic was set up at an acute general hospital in the Mid-Essex area with the specific aim to co-ordinate the care of adults diagnosed with intellectual disabilities (ID) coupled with two or more long term conditions. This is one of the National Institute for Health and Care Excellence (NICE) shared learning case studies. NICE has over 800 examples showing how our guidance and standards can improve local health and social care services.
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Content ArticleIn this Episode of the 'This Is Nursing' podcast series, Gavin Portier speaks to Amanda McKie, Matron -for Learning Disabilities & Complex Needs Coordinator at Calderdale & Huddersfield NHS Foundation Trust. In this episode Amanda talks about health inequalities, mental capacity, advocacy and high profile key documents such as Death by Indifference, the LeDer Mortality programme and the current case of Oliver McGowan. Learning disabilities is a life long condition and they can present in any areas of health care. In this podcast we discover how important it is to have an understanding an appreciation and insight into the care experience of a person with a learning disability and their parents or carers.
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Building a communication passport
Claire Cox posted an article in Learning disabilities
Kate and Jenny Sanger’s 'Communication Passport' gives a voice to the voiceless and enables those being supported and those providing that support to have the two-way conversation that leads to a happy and positive relationship. The passport is a powerful support tool for staff, giving them confidence and job satisfaction that they are doing their best for the person they support. Kate and Jenny Sanger created the communication passport originally for Kate’s daughter, Laura. The aim of the passport is to enable a range of professionals and specialists access important information so that care can be delivered more holistically. The communication passport has now been shared widely to help other families and individuals with complex needs. Kate and Jenny Sanger speak in this webinar about building a communication passport. -
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Advanced Care Planning (Macintyre)
Claire Cox posted an article in Learning disabilities
Advance Care Planning (ACP) is becoming increasingly important in ensuring that people receive good care and ultimately experience a “good death”. ACP can lead to less aggressive or invasive medical care, better quality of life near death, decreased rates of hospital admission, and people being more likely to receive care that is aligned with their wishes and dignity. It can be a difficult subject to discuss and can be confusing for health and social care professionals, staff and families, due to a lack of knowledge about ACP and a lack of awareness regarding the legal position. -
Content ArticlePeople with a learning disability must be involved in all decisions about their health, and be in control over these choices. Some of the barriers to equal access to healthcare faced by people with a learning disability are: Lack of information that is easy to understand. ‘Diagnostic overshadowing’ - when signs and symptoms are mistakenly attributed to the person’s learning disability. Family carers and others who know the person well are not listened to when they are often able to describe changes in the person in a way that will aid diagnosis. A hospital might assume that the person has 24-hour support, when in fact they only get a few hours’ support a week and will need some extra help to follow the post-discharge treatment plan.
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MacIntyres Families Podcast: Jim, a learning disability nurse
Claire Cox posted an article in Learning disabilities
In this episode of the 'MacIntyre Families Podcast' Jim Blair, a leading Learning Disability Nurse, Health Advisor at the British Institute of Learning Disabilities and Associate Professor at Kingston and St George's Universities answers questions submitted by the people Mcintyre support, their families and staff. Jim has over two decades of experience working as a learning disability nurse and is passionate about ensuring everyone with a learning disability is heard and involved in decisions about their own lives. -
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The SPA experience: NHS Wales Award winner 2016
Claire Cox posted an article in Learning disabilities
Having surgery can be a daunting experience for most people. Staff at the Princess of Wales Hospital in Bridgend, Wales, have recognised this, especially in their patients with complex needs. The reasonable adjustments that they have put in place to ensure their patients receive a bespoke, calming, safe experience won them an NHS Wales Award in 2016 in the Citizens at the Centre of Service Redesign and Delivery category.- Posted
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Content Article
The sepsis song
Claire Cox posted an article in Learning disabilities
Sepsis can be difficult to spot or articulate. This short video by MiXiT days, a theatre company made up of people with and without learning difficulties, describes the symptoms of sepsis in song format. -
Content ArticlePublic Health England have estimated that on an average day in England, between 30,000 and 35,000 adults with a learning disability, autism or both are taking a prescribed antipsychotic, an antidepressant or both without appropriate clinical indications (psychosis or affective/anxiety disorder). A substantial proportion of people with a learning disability, autism or both who are prescribed psychotropic drugs for behavioural purposes can safely have their drugs reduced or withdrawn. This research showed that among adults known to their GP to have a learning disability, (excluding only those in hospital as inpatients) on any average day: 17.0% were taking prescribed antipsychotic drugs, 16.9% antidepressants, 7.1% drugs used in mania and hypomania, 4.2% anxiolytics and 2.7% hypnotics. STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines. It is a national project involving many different organisations which are helping to stop the over use of these medicines. STOMP is about helping people to stay well and have a good quality of life.
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Content ArticleThis guide from Public Health England contains information to help staff in public health, health services and social care to prevent falls in people with learning disabilities. It is also intended to help falls prevention services to provide support that is accessible to people with learning disabilities. The guide aims to be of use to family carers, friends and paid support staff to help them think about what risks may contribute to falls and how to reduce such risks.
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Content ArticleCaring for people with learning disabilities in an acute hospital setting can be challenging, especially if that patient has transitioned from children’s services to adult services. The experience in children’s acute care differs to adult acute care; this difference in processes of care can cause great anxiety for the patient and their family and carers. The reasonable adjustments that were perhaps made and sustained in children’s services may now not exist. The purpose of this blog is to demonstrate the importance for services to be designed around patients’ needs with patients, families and carers. If we get this right, the quality of care given will be improved, patient satisfaction increases and, in turn, a reduction in patient harm. It is important to note that designing services around patients is not exclusive to learning disabilities; designing services with ALL patients at the centre with their involvement is crucial for trusts to provide safe care.
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Content ArticleA learning disabilities service in Leicester found that experience based co-design (EBCD) was the ideal way to bring together users, families and staff to share experiences of care and design and implement change. Leicestershire Partnership NHS Trust used co-design to improve the way they cared for patients with learning disabilities. In a series of videos, Jane Parr, from the My Care, My Voice project at Leicestershire Partnership NHS Trust, shares her reflections about how the project used Patient Experience programme methodologies to improve communication with patients with learning disabilities. Find out more about EBCD
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Content Article
Oliver's Campaign
Patient Safety Learning posted an article in Learning disabilities
Paula McGowan is a Multi Award-winning Activist who following the preventable death of her teenage son Oliver, has dedicated her life to campaigning for equality of Health and Social Care for Learning Disabled people and Autistic people. She is an Ambassador for several charities and organisations. Paula launched a parliamentary petition asking for all doctors and nurses to receive mandatory training in Learning disability and Autism awareness. She ferociously argued that autism must be included. On 22 October 2018, her petition was debated and gained cross party support. As a direct consequence Government announced that all NHS and Social Care Staff would receive The Oliver McGowan Mandatory Training in Learning Disability and Autism. On the Oliver's Campaign website you can find support, resources and blogs. -
Content ArticlePharmacies in Cheshire and Merseyside are being notified by their local hospital when a patient is discharged who might need help with their medication. The initiative, called Transfer of Care Around Medicines, is improving patient safety and quality of care – and saved the NHS in Cheshire and Merseyside an estimated £9.5 million over the three years to Spring 2019.
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Content ArticleLiverpool is leading the way in the use of smartphone technology to deliver and monitor care in people’s homes. The city is the first to introduce a digital system with almost all domiciliary care providers – giving instant information about 9,000 vulnerable residents to their families and professionals. The use of an app allows care providers and families to see when a visit is carried out by a carer, for how long and how the person responded.The effect is better informed families and care managers and improved care. Liverpool is the only authority in Europe to be using the technology across its city, with all but one of its 18 domiciliary care providers using everyLIFE PASSsystem. It was made possible through a grant of one million Euros of European Union funding secured through the EU STOPandGO programme of which the Innovation Agency, the Academic Health Science Network for the North West Coast was a key partner.
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Content ArticleThe Tookie Vest is a patient and clinician driven innovation, designed to support patients fitted with a Central Venous Catheter (CVC) undergoing haemodialysis (HD) to provide enhanced line security. The Tookie Vest is designed to help prevent catheter displacement but also to aid the patients to continue to live ‘#ALifeMoreNormal’ as the vest helps to discretely secure the lines, offering modesty and dignity, freedom, independence and reassurance. The Tookie Vest was originally designed to prevent inadvertent catheter fallout in paediatric oncology patients, a product that was supported by the Yorkshire & Humber AHSN through funding and access to specialist clinical and design advice. The AHSN for the North East and North Cumbria (AHSN NENC) have since provided support and advice via ‘The Innovation Pathway’ for the development of the adult HD vest.
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Content ArticleThe Healthcare Safety Investigation Branch (HSIB) investigated the case study of Martin, a 43-year old inmate, who suffered multiple seizures after his epilepsy medication wasn’t transferred with him to a new prison. Each day around 120 prisoners with ongoing medication needs are moved between jails. Martin’s case is just one example of a serious outcome when medication was missed. Prisoners may also need to be treated in the community at local hospitals, with prison security staff being taken away from planned duties to accompany them.
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Content ArticleLack of timely follow-up for glaucoma patients is a recognised national issue across the NHS. Research suggests that around 22 patients a month will suffer severe or permanent sight loss as a result of the delays. In this Healthcare Safety Investigation Branch (HSIB) report, the reference case patient saw seven different ophthalmologists and the time between her initial referral to hospital eye services (HES) and laser eye surgery was 11 months. By this time her sight had deteriorated so badly, she was registered as severely sight impaired. The HSIB investigation identified that there is inadequate HES capacity to meet demand for glaucoma services, and that better, smarter ways of working should be implemented to maximise the current capacity. The report highlights that there are innovative measures implemented by some trusts that have reduced the risk, but this good practice is yet to be implemented more widely.
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Content Article
Martin Hogan, Lead Professional Nurse Advocate (PNA) at Central London Community Healthcare NHS Trust, tells us about the PNA training programme and the impact and improvements it can have on both staff and patient safety. He shares his own personal development from taking the programme, how he has used the skills learnt to educate and support his colleagues, and explains why he is championing the PNA to others and has set up a network of PNAs.
