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Showing results for tags 'Patient engagement'.
Found 1,331 results
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Content ArticleThe National Quality Board (NQB) has refreshed its Shared Commitment to Quality to support those working in health and care systems. The publication provides a nationally-agreed definition of quality and a vision for how quality can be effectively delivered through ICSs. The refresh has been developed in collaboration with systems and people with lived experience and has a stronger focus on population health and health inequalities. The NQB was set up in 2009 to promote the importance of quality across health and care on behalf of NHS England and Improvement, NHS Digital, the Care Quality Commission, the Office of Health Promotion and Disparities, the National Institute for Health and Care Excellence, Health Education England, the Department of Health and Social Care and Healthwatch England.
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Content Article
Blog - Positivity in adversity (24 October 2022)
Patient-Safety-Learning posted an article in Patient stories
Matt Eagles was only seven when he was diagnosed with Parkinson's disease. Now an adult, Matt uses his experiences of healthcare, to help other patients learn how to better communicate with healthcare professionals. In this blog, he talks about his experiences of living with Parkinson's and the work he does to raise awareness of the condition. -
Content ArticleIn 2021. the National Quality Board (NQB) refreshed its Shared commitment to quality, which describes what quality is and how it can be delivered in integrated care systems (ICSs). It reflects the ambition set out by the NQB in 2015: "We want improving people’s experiences to be as important as improving clinical outcomes and safety." This document provides an overarching context for work on improving experience of care as a principal and integral part of delivering safe and effective care. It sets out a shared understanding of experience and what the best possible experience of care looks like, and outlines key components for delivering the best possible experience of care: Co-production as default for improvement Using insight and feedback Improving experience of care at the core priority work programmes The NQB was set up in 2009 to promote the importance of quality across health and care on behalf of NHS England and Improvement, NHS Digital, the Care Quality Commission, the Office of Health Promotion and Disparities, the National Institute for Health and Care Excellence, Health Education England, the Department of Health and Social Care and Healthwatch England.
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Content ArticleCharlotte Augst, chief executive of National Voices, challenges system leaders to think differently about what is needed to repair the NHS. As next year is likely to be the most difficult people ever had to live through, since NHS’s inception, she urges leaders to stand together
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThe failure to consider the needs of diverse groups of people badly impacts experience of care. Sarah Sweeney, Head of Policy at National Voices points out how the NHS needs to change the way it communicates with people regarding care.
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Content ArticleIn this blog, Eve Namisango, Programs and Research Manager at the African Palliative Care Association, looks at the importance of patient and public involvement and engagement (PPIE) in palliative care research. She highlights recent work with the Uganda Cancer Society to explore best practices for engaging patients and caregivers and looks at key issues to consider when structuring PPIE in research.
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Content ArticleThis article in The BMJ by Tessa Richards, Senior Editor for patient partnership and Henry Scowcroft, Patient Editor, looks at the way in which people with expertise rooted in lived experience were excluded from policy decisions during the early stages of the Covid-19 pandemic. They argue that engaging patients, families, and frontline health and social care professionals would have prevented some of the excess morbidity and mortality that came from policy responses to the pandemic, particularly among elderly people, those with long term conditions and those in lower socioeconomic groups.
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Content ArticlePatient lead users can be defined as patients or relatives who use their knowledge and experience to improve their own or a relative’s care situation and/or the healthcare system, and who are active beyond what is usually expected. This study in the BMJ Open aimed to explore patient lead users’ experiences and engagement during the early Covid-19 pandemic in Sweden, from 1 June to 14 September 2020. The authors recruited 10 patient lead users living with different long-term conditions and undertook qualitative in-depth interviews with each of them. They found that health systems were not able to fully acknowledge and engage with the resource of patient lead users during the pandemic, event though they could be a valuable resource as a complementary communication channel.
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Content ArticleThis webpage has been put together by The Patients Association to provide resources for patients and members of the public who want to start a local campaign about a specific issue related to health and social care. It includes: advice on how to campaign. information on who you should contact. template letters to MPs and other officials.
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThis article* is an update from Dr Henrietta Hughes, Patient Safety Commissioner for England.
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Content ArticleThe journalist Merope Mills voices her anger at her daughter Martha's preventable death in this Woman's Hour programme.
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Content Article
Pancreatic Cancer UK: Real life stories section
Patient Safety Learning posted an article in Patient stories
These stories provide examples of how people with pancreatic cancer are diagnosed, the treatment they have, their experiences and how they take care of themselves. Everyone diagnosed with pancreatic cancer will be different in terms of how they received their diagnosis and how they respond to and cope with treatment. -
Content ArticleThe impact of Long Covid needs urgent action – and there are five key elements to drive the effort forward, writes the WHO director general Tedros Adhanom Ghebreyesus in this article for the Guardian.
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Content ArticleThe Health and Care Act 2022 will establish the Healthcare Safety Investigations Branch (HSIB) as the Health Services Safety Investigations Body (HSSIB) in April 2023, a fully independent arm’s-length body. This blog by Dr Sean Weaver, Deputy Medical Director at HSIB, outlines what HSSIB's new powers will be.
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Content ArticleThe burden of multiple conditions is unevenly distributed across the population, and evidence shows that people living in the most deprived areas are developing conditions on average 10-15 years earlier than those living in the least. This report from The Taskforce on Multiple Conditions established by The Richmond Group of Charities, outlines a series of key questions and opportunities for change, designed to support and shape the plans and actions of everyone responsible for the delivery of health and care services. The research for the report focused on four areas of England containing communities on low incomes, people from minority ethnic groups and people living in both urban and rural environments. A rapid evidence review into the literature on health inequalities and multiple long-term conditions was also carried out to inform the report.
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Patient Safety Commissioner for Scotland Bill (6 October 2022)
Mark Hughes posted an article in Scotland
The Scottish Government has published a new Bill to establish a Patient Safety Commissioner for Scotland. This article provides an overview of the remit, accountability, powers, and responsibilities of the new Commissioner that are proposed in this Bill. -
Content ArticleThe CVDPREVENT audit contributes to a strategic objective outlined in the NHS Long Term Plan to prevent 150,000 strokes, heart attacks and cases of dementia over the next ten years. The audit works with system partners to drive cardiovascular disease (CVD) quality improvement. Mary Wills is a patient representative for the CVDPREVENT audit, and in this blog she describes her family's experience of CVD and why she was keen to get involve in CVDPREVENT. She talks about the value of hearing from other patients and carers in the first Patient Panel meeting and being invited to contribute to CVDPREVENT Steering Group meetings.
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Content Article
Mother knows best – a blog by Dr Abha Agrawal
Patient Safety Learning posted an article in Patient stories
Dr Abha Agrawal shares with the hub her family's experience of going into hospital and demonstrates how patients and families can be true partners in patient safety.- Posted
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Content ArticleWeb-based personal health records (PHRs) have the potential to improve the quality, accuracy and timeliness of health care. However, the international uptake of web-based PHRs has been slow. Populations experiencing disadvantages are less likely to use web-based PHRs, potentially widening health inequities within and among countries. This study in the Journal of Medical Internet Research aimed to identify the predictors of awareness, engagement and use of the Australian national web-based PHR, My Health Record (MyHR). The study found a strong and consistent association between digital health literacy and the use of a web-based PHR. The authors suggest that improving digital technology and skill experiences may improve digital health literacy and willingness to engage in web-based PHR. They also suggest that uptake could be improved through more responsive digital services, strengthened healthcare and better social support.
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Content ArticleEverybody has a right to good care. Much attention is rightly focused on the occasions when people experience poor quality care, but it is also important to recognise where care is good and to celebrate the services that are getting it right. Some care providers do things well through innovative new ways of working, or by doing the basics well. Others can learn from them and solutions should be shared across the system. This publication from the Care Quality Commission (CQC) is purposely focused on celebrating good and outstanding care that CQC's inspectors have seen.
