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Found 42 results
  1. Content Article
    Recommendations Keep the focus on patients: Co-design digital solutions with patients. Run electronic medicines product information (ePI) pilots to validate solutions within a variety of real-life settings and platforms, for example, hospital, community, NHS website and app. Work with patients, pharmacists and HCPs to identify digital ePI use cases, including use cases for HCP-facing medicines information and prompts for interacting with patients. Specifically focus on co-designing solutions for patients who have difficulty accessing information or who have particular needs, such as patients with cognitive or sensory differences, health literacy or digital literacy needs. Co-develop a digital-first approach to provide ePI, ensuring that no patient is left behind. Provide appropriate training for HCPs to help them identify health and digital literacy needs and proactively ensure alternative access where ‘digital exclusion’ is identified. Optimising the impact of technology by: Demonstrating trustworthiness through development of good governance, transparency, privacy and security. Focusing on defining the problem, gathering evidence, and conducting small tests of change. Explore working with NHS England to implement structured ePI and develop standards and funding for a sustainable digital model. Over time, making ePI an integral part of the digital health landscape so that technology providers can build innovative solutions which address the needs identified in this report – establishing the UK as a global leader in this arena. Supporting patients to make best use of ePI as it becomes available. With a multi stakeholder roadmap approach, evolving towards personalised medicines product information, connecting with the electronic health record. Ensure strong connections with regulation & policy setters: Review legislation and regulation to identify potential adaptation in support of patient and carbon-friendly digital first approaches. Strengthen the real-world evidence base to understand how medicines information impacts on patient activation, adherence and outcomes. Obtain government support at the highest level to implement these recommendations.
  2. Content Article
    Click on each heading to access the relevant content. 1. Presenting complaint: use of language that disempowers patients In this BMJ article, Caitríona Cox and Zoë Fritz argue that outdated medical language that casts doubt, belittles, or blames patients jeopardises the therapeutic relationship and is overdue for change. 2. NIHR - Health information: are you getting your message across? This resource collection from the National Institute for Health and Care Research includes research on the impact of unclear health messages, how we can help people understand health information and which groups of the population may need extra support. 3. The Obs Pod, by obstetrician Florence Wilcock (Episodes 22 and 23: Language) In episodes 22 and 23 of the Obs Pod podcast, obstetrician Florence Wilcock discusses how the language used in her field can have a detrimental impact on the women and families being cared for. 4. NHS England - Language Matters: language and diabetes This guidance by NHS England sets out practical examples of language that will encourage positive interactions with people living with diabetes and subsequently positive outcomes. 5. Why language matters in social care “Words can invite people in, or keep them out”. Listen to this five minute podcast about why language matters and the impact this has on people who access services, hosted by Linda Doherty from Think Local, Act Personal. 6. "We couldn’t talk to her”: a qualitative exploration of the experiences of UK midwives when navigating women’s care without language Women with little-to-no English continue to have poor birth outcomes and low service user satisfaction. When language support services are used it enhances the relationship between the midwife and the woman, improves outcomes and ensures safer practice. This study aims to understand the experiences of midwives using language support services. 7. Lost for words: Healthwatch evidence on how language barriers contribute to health inequalities Based on research conducted by Healthwatch, this report examines the difficulties that patients with little or no English encounter at every stage of their healthcare journey. Have your say Have you ever been affected by the language used in healthcare? Perhaps you've felt excluded or offended by the words used. Or maybe you have an example of how clear and inclusive language made you feel safer as a patient? You might be a member of staff who has made changes to the way they communicate face-to-face or in writing to help improve outcomes and strengthen patient-provider relationships. Please let us know your thoughts by commenting below (register for free here first). Or you can get in touch with us directly to share your insights at content@PSLhub.org
  3. Event
    To address health disparities, we need to focus on improving health literacy, digital literacy and digital access. In this 30-minute live webinar and Q&A from Health Education England, you will find out about our newly available maps and online tool using, place-based geodata to identify levels of health literacy and digital access in your area. The session will also introduce easy read resources for shared decision making, co-produced with experts by experience, and how to use these are part of a series of steps to address local health disparities. Register for the webinar
  4. Content Article
    1 Blog - Inappropriate prescribing during a pandemic: dementia and antipsychotics A growing number of people with dementia who live in care homes are being prescribed antipsychotic medication, but there are serious questions about whether these drugs are being prescribed appropriately. In this blog, a family describes how their father with Alzheimer’s disease came to be prescribed antipsychotic medication at his care home. They raise concerns about the decision to prescribe antipsychotics when there were obvious non-drug based alternatives to pursue, the lack of involvement the family had in the decision-making process and the negative ways in which the medication has affected their father’s personality. 2 Belfast Healthy Cities: Pharmacy Schools Programme (2021) The Pharmacy Schools Programme is an innovative teaching resource developed by Belfast Healthy Cities. Using a health literacy approach, it is designed to be used in primary schools in Northern Ireland to help educate children about self-care, medication safety and community pharmacy services. 3 WHO - Medication safety webinar series: engaging patients and families for medication safety (8 March 2022) As part of its Third Global Patient Safety Challenge: Medication Without Harm, WHO launched a series of webinars to introduce the strategic framework, technical strategies, tools for reducing medication-related harm. You can access the presentations from this webinar focused on engaging patients and their families to improve medication safety: Patient engagement tool: “5 Moments for Medication Safety”, Nagwa Metwally and Helen Haskell Patients, families and health workers partnering for medication safety, Dr Irina Papieva Developing programmes for patient and family engagement - Canadian experience, Ioana Popescu and Maryann Murray 4 Patient Safety Spotlight interview with Marie Lyon, chair of the Association for Children Damaged by Hormone Pregnancy Tests In this interview, Marie Lyon talks about her campaign for justice for families affected by hormone pregnancy tests, why she is passionate about reforming medicines regulation and the important role patient campaigners play in improving patient safety. 5 Blog - Please don’t undermine my pain relief! A call for learning and respect for patients with long term needs This blog calls for action on the careful review of established pain medication when a patient is admitted to hospital. The author, Richard von Abendorff, describes the experience of two elderly patients who suffered pain due to their long term medication being stopped when they were admitted to hospital. He highlights the importance of ensuring that pain management needs are not ignored or undermined and argues that there needs to be carer and patient involvement and their consent when making a decision to stop established pain medication. 6 HSE Ireland - My Medicines List leaflet (January 2020) This leaflet produced by the Irish Health Services Executive (HSE) provides a central place for patients to record information about their medications. It acts as a reference point for patients to use when discussing their medications with a healthcare professional and includes a reminder of the Know, Check, Ask campaign, aimed at reducing medication errors in the community. 7 Blog - Digitising pharmacy: Bilingual medication information on pharmacy dispensing labels (July 2022) This blog by NHS England looks at how a service which provides bilingual medication information is helping to reduce healthcare inequalities and medication errors in London. Written Medicine’s software allows pharmacies and hospitals to translate and print medication information, instructions and warnings. Drawn from a dataset of 3,500 phrases, printed labels are available in fifteen different languages. The bilingual labels help patients take ownership of their treatment, giving them a better understanding of how to take their prescribed medication. The solution is helping to reduce errors, improve medication adherence and enhance patient safety and experience. Take a look at our Top picks for World Patient Safety Day 2022: Medication safety in hospitals
  5. Event
    This conference from the Westminster forum will examine the next steps for the use of patient records and data within the NHS and clinical research. The agenda also looks at the opportunities for improved patient engagement in their care, including through the NHS app which enables easily to access their own records. Speakers and other delegates will share experience, latest thinking on best practice, and views on the way forward for addressing key issues. Areas for discussion include: patient data use in healthcare delivery - the current landscape, and priorities for the future electronic health records - including their role in supporting integrated care systems clinical research - the next steps for utilising patient data, and developing best practice digital health - patient data collection, use and quality, and innovation priorities population health - achieving the potential of data collection to improve outcomes security - including transparency on patient data use public trust - digital health literacy and patient control of their own care plans the NHS app - its role in the future of patient-centred healthcare. Register
  6. Content Article
    This collection contains information on the following subjects: Health literacy widens inequalities What happens when health information is not clear? How can we help people understand health information? (Simple, balanced language; Finding the focus; Online information needs to be relevant; Visuals, videos and going viral) Who may face extra barriers understanding health information? (People facing language barriers; People with language difficulties and learning disabilities; People living with dementia; Communities with low literacy)
  7. Content Article
    This e-learning session takes about 30 minutes to complete and covers: why health literacy is important how to use some simple techniques to improve communication, including TeachBack, chunk and check and using pictures and simple language. Learning objectives List the benefits of health literacy to individuals and services List health literacy tools and techniques Explain how to use health literacy tools and techniques Describe the impact of health literacy on people’s health choices Create a personal action plan to be health literacy friendly
  8. Content Article
    The aim of the Standard is to establish a framework and set a clear direction such that patients and service users (and where appropriate carers and parents) who have information or communication needs relating to a disability, impairment or sensory loss receive: ‘Accessible information’ (‘information which is able to be read or received and understood by the individual or group for which it is intended’). ‘Communication support’ (‘support which is needed to enable effective, accurate dialogue between a professional and a service user to take place’). Such that they are not put “at a substantial disadvantage…in comparison with persons who are not disabled” when accessing NHS or adult social services. This includes accessible information and communication support to enable individuals to: Make decisions about their health and wellbeing, and about their care and treatment. Self-manage conditions. Access services appropriately and independently. Make choices about treatments and procedures including the provision or withholding of consent.