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Showing results for tags 'Disability'.
Found 94 results
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Content ArticleThe Industrial Injuries Advisory Council (IIAC) is an independent scientific advisory body that looks at industrial injuries benefit and how it is administered. Since the start of the Covid-19 pandemic in 2020, the IIAC has been reviewing and assessing the increasing scientific evidence on the occupational risks of Covid-19. This report builds on an IIAC interim Position Paper published in February 2021 and considers more recent data on the occupational impacts of Covid-19, particularly around the longer term health problems and disability caused by the virus. IIAC found the most convincing and consistent evidence was for health and social care workers in certain occupational settings, who present with five serious pathological complications following Covid-19 that have been shown to cause persistent impairment and loss of function in some workers.
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Content ArticleThe bold ambitions of integrated care systems (ICSs) to improve population health and tackle health inequalities, coupled with greater integration of health and care services, should definitely be a golden opportunity to do things differently and better. However, if ICSs want to prove that this is indeed a new era, they will need to act quickly to involve groups experiencing marginalisation and discrimination, including disabled people. Fazilet Hadi, Head of Policy at Disability Rights UK, considers how disabled people’s organisations can harness their power and expertise to improve how health and care services work with disabled people.
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Content ArticleThis article tells the story of Ruth, whose baby son was left with severe cerebral palsy and several other injuries following oxygen starvation during his birth. Ruth's labour was badly mismanaged and she found gaps, omissions and additions to her medical notes when she requested copies. Following a lengthy legal case, Kate received compensation that allowed her family to pay for her son's medical and care needs and adapt their home.
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Content Article
AvMA case study: Stuart's story
Patient-Safety-Learning posted an article in Risk management and legal issues
This article tells the story of Stuart, who died as a result of medication errors while recovering from surgery at a private hospital in January 2013. Stuart had dystonia, an incurable condition that he managed by taking a careful balance of three medications. Following surgery to remove his larynx, the private neurological centre where he was staying ran out of clonazepam, a medication Stuart needed to control his dystonia. Stuart became very unwell, but instead of seeking advice from a doctor, the nurses treated his symptoms as a UTI. on 26 December he was found unresponsive in bed and rushed to ICU at a local hospital. but died a few weeks later from sever kidney and muscle damage. An inquest into Stuart's death found that the lack of clonazepam had caused an increase in Stuart’s muscle spasms, eventually leading to severe muscle and kidney damage. He then developed bronchopneumonia, which was the final factor in his death. -
Content ArticleThis is the story of the avoidable death of Glyn Davies, as told by his sister Anne. Glyn had an obstruction of the small bowel caused by adhesions from previous surgery and died from aspiration pneumonia after two weeks in intensive care at The Royal Lancaster Infirmary. Glyn's family felt that the investigation following his death had not been dealt with well, with evidence being withheld from the Coroner. This included information in Glyn's medical notes that indicated he had caught the hard-to-treat bacterial infection Stenotrophomonas Maltophilia, from either the ventilator or tubes whilst in intensive care. The family then took legal action against The University Hospitals of Morecambe Bay NHS Foundation Trust and the case was settled out of court in March 2020.
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Content Article
NICE and health inequalities (October 2022)
Patient-Safety-Learning posted an article in NICE
Health inequalities are differences in health across the population, and between different groups in society, that are systematic, unfair and avoidable. This webpage from the National Institute for Health and Care Excellence (NICE) outlines a definition of health inequalities. highlights factors that cause them, explores their effects and talks about how NICE can help health services tackle health inequalities. -
Content ArticleIn England, around 10 million adults and 12,000 children have a musculoskeletal (MSK) condition. Ethnic minority groups, people from lower income households and those living in areas of high deprivation are most affected. In this guest blog for the Arthritis and Musculoskeletal Alliance (ARMA), Bola Owolabi, Director of the National Healthcare Inequalities Improvement Programme at NHS England, highlights the role that MSK health inequalities play in people's lives. She looks at the link between socio-economic disadvantage and poor health outcomes, and discusses the wider implications of disability due to MSK conditions. She describes work being done by the NHS, and highlights ARMA's work to narrow MSK health inequalities through listening to the experiences of underserved communities and working in partnership to improve care.
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Content ArticleThe Voluntary Organisations Disability Group (VODG) has launched a commission on Covid-19, Disablism and Systemic Racism to explore how the worst impacts of Covid have fallen on Disabled people, particularly those from Black, Asian and minoritised ethnic groups. The Commission is examining the extent to systemic neglect of social care over many years has caused negative outcomes that have been worsened by confused approaches by the Government during the pandemic. This includes poor implementation of policy and conflicting guidance. The work will gather evidence, scrutinise the Department of Health and Social Care’s policies and responses to the pandemic, including ways in which systemic racism may have further worsened outcomes for disabled people of colour, and build solutions and support for transformative and sustainable change in social care, based on justice and human rights. The Commission is calling on Disabled people and people with long-term health conditions from Black, Asian and minoritised ethnic groups to share their views and experiences of the Covid-19 pandemic as part of its 'Call for Views and Experiences'. They are also keen to hear from families, carers and people who work in social care.
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Content ArticleThese reports by the Pharmaceutical Society of Australia look at different aspects of medication safety. Medicine safety: Take care This report details the extent of harms in Australia as a result of medicine use. It highlights that 250,000 Australians are hospitalised each year, with another 400,000 presenting to emergency departments, as a result of medication errors, inappropriate use, misadventure and interactions. At least half of these incidents could have been prevented. Medicine safety: Aged care This report provides data about the real and current medication safety problems affecting older care residents across Australia. Medicine safety: Rural and remote care This report highlights the extreme challenges patients in rural and remote Australia have in accessing health care and the impact that this has on the safe and appropriate use of medicines. Medicine safety: Disability care This report focuses on the challenges that people with disability face in using medicines safely and effectively. The report found that people with disability face challenges at all stages of medicine use–prescribing, dispensing, administration and adherence and monitoring. Medicine safety forum: Informing Australia’s 10th National Health priority area This report presents a summary of views and experiences shared at a stakeholder workshop in December 2019.
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Content Article
Independent Living: Keeping in touch (14 October 2020)
Patient Safety Learning posted an article in Blogs
In this article for Independent Living, Philip Anderson reflects on the significance of touch, and possible impact of COVID-19 for those who are deprived of touch. Philip is an advocate for barrier-free accessibility, equality, and inclusiveness for persons with disabilities. He is involved in several initiatives in the NHS, and with various disability, and accessibility advisory groups. -
Content ArticleIn this guest blog for mumsnet, Nadine Montgomery talks about her journey to the Supreme Court to cement patients’ right to make an informed decision. Nadine highlights the lack of information she was given around potential birth risks as a diabetic pregnant women and how, if better informed, she would have made different choices which could have prevented her baby from suffering harm.
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Content ArticleThe Accessible Information Standard directs and defines a specific, consistent approach to identifying, recording, flagging, sharing and meeting individuals’ information and communication support needs by NHS and adult social care service providers.
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Content ArticleAn estimated 1.3 billion people—16% of the global population—experience a significant disability today. People with disabilities have the right to the highest standard of health, however, this report by the World Health Organization (WHO) demonstrates that while some progress has been made in recent years, many people with disabilities continue to die earlier and have poorer health than others. The report demonstrates how these poor health outcomes are due to unfair conditions faced by people with disabilities in all areas of life, including in the health system itself.
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Content ArticleThis national data collection project has been commissioned by NHS England (NHSE) and is run by the NHS Benchmarking Network (NHSBN). The aim of the project is to understand the extent to which organisations are complying with the NHSE Learning Disability Improvement Standards, and to identify improvement opportunities. Compliance with these standards requires organisations to assure themselves that they have the necessary structures, processes, workforce and skills to deliver the outcomes that people with learning disabilities and their families and carers, expect and deserve. This project aims to collect data from a number of perspectives to understand the overall quality of care across Learning Disability services. Read summary reports from previous years of the NHS England Learning Disability Improvement Standards project.
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Content ArticlePeople with a learning disability are more than twice as likely to die from avoidable causes than the rest of the population. Actor Tommy Jessop and BBC Panorama investigated some of the stories of families who say they were let down by their medical care.
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Content ArticlePeople with developmental disability have higher healthcare needs and lower life expectancy compared with the general population. Poor quality of care resulting from interpersonal and systemic discrimination may further entrench existing inequalities.
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Content ArticleMaking Families Count (MFC) aims to improve outcomes for families affected by serious harm and traumatic bereavements in health and social care services. In this webinar, which was part of The Patients Association's Patient Partnership Week programme, members of MFC talk through their guide for patients and families on working with the system after a serious incident.
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Content ArticleThis report by the user-led non-profit organisation Shaping Our Lives examines the results of a 2021 survey that explored people’s experiences of service user involvement. This research shows the current picture of involvement and explores the barriers that deaf and disabled people face when wanting to share their lived experience. The report contains recommendations for organisations that want to run truly inclusive, meaningful involvement to shape and improve their services.
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Content Article
University of Plymouth: Telerehab Toolkit
Patient Safety Learning posted an article in Telemedicine
The Telerehab Toolkit is a patient and practitioner guide to remote appointments for people with movement impairment and disability.
