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Showing results for tags 'Patient engagement'.
Found 1,340 results
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Content Article
DIY face masks with clear panels
PatientSafetyLearning Team posted an article in Blogs
The National Deaf Children's Society have produced resources to help others understand the impact that mask-wearing can have on the deaf community. Face masks with clear panels in them could help some deaf children who rely on lip-reading or sign language to get a better view of the face. This is not a solution that will suit all deaf people or be suitable in all situations but it will help prevent some people from feeling more isolated during the pandemic and enable them to understand what is happening with their their care if they are accessing healthcare services. Resources include:Infographic video with tips for communicating with deaf children when wearing a maskDIY tutorials for making masks with clear panelsBlog: The impact of face masks on deaf children. -
Content ArticlePatient experience measures are widely used as a means of assessing the quality of care from the perspective of users. Despite the recent proliferation of these measures, they are all too often poorly understood and fail to lead to service improvements. This session, from the European patient experience and innovation congress (EPIC), will look at the role that measuring and understanding experiences can play in ensuring that care services are person-centred, including the barriers to effective use of experience information and how these can be overcome.
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Content ArticleThis survey looks at the experiences of adults that have been an inpatient at an NHS hospital. The survey has been running since 2002 and is published annually.
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Content Article
Informed consent: A short film
PatientSafetyLearning Team posted an article in Consent and privacy
This short creative film, produced by A.O Consultancy, explains what it means to give informed consent to medical treatment. -
Content ArticleChaired by Baroness Julia Cumberlege, the Independent Medicines and Medical Devices Safety Review, First Do No Harm, examines how the healthcare system in England responds to reports about the harmful side effects from medicines and medical devices. In this blog, Patient Safety Learning reflects on one of the key patient safety themes featured in the Review – patient complaints.
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Content ArticleThe COVID-19 pandemic has suddenly challenged many healthcare systems. To respond to the crisis, these systems have had to reorganise instantly, with little time to reflect on the roles to assign to their patient safety (PS) and quality improvement (QI) experts. In many cases, staff who had a background in clinical care was called to support wards and critical care. Others were deemed “non-essential” and sent back to work from home, while their programmes were placed in hibernation mode. This has meant that many QI and PS experts with skills to offer in their field have ended up carrying out tasks unrelated to the current crisis.
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Content ArticleThis is the first report from the patient experience programme, Being A Patient, which explores what it means to be a patient and how understanding of the patient experience is used by the health service.
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Content ArticleIn this issue of Patient Experience you can find topics discussed by the people who are living inside the health and care systems and are sharing their stories.
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Content ArticlePatients have a legal right to know when something goes wrong with their care. But previous research has shown that they do not always get a satisfactory explanation. This article looks at research conducted by University of Leeds and Bradford Institute for Health Research, discusses the difference to what patients want and expect when things goes wrong and the barriers to why healthcare staff do not satisfy their expectations.
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Content ArticleAsking a simple yet powerful question: ‘what matters to you?’ can give us, as healthcare professionals, vital insights into the lives of our patients, not always captured in routine assessments. If what matters to a patient is then shared with the whole multidisciplinary team (MDT) it can ensure that ongoing support and treatment is focused around the patients’ priorities, rather than what we think is important as healthcare professionals. It becomes truly patient focused. This blog was written by Ann Bryan, a physiotherapist, and Ines Brito, an occupational therapist, both part of the therapy team working at the Marie Curie hospice in Hampstead.
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Content ArticleAs a cancer professional, there can sometimes be barriers to engaging patients and carers in your work. This film, made by a group of people affected by cancer working with professionals, highlights some top tips to help you get started.
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Content ArticleEveryday across the NHS, patients, their supporters and the professionals caring for them deal with the aftermath of healthcare harm and, on rare occasions, wrongdoing. Every healthcare system in the world confronts exactly the same problem, but none deal well with the aftermath of harm. In this article published in the Journal of Patient Safety and Risk Management, Anderson-Wallace and Shale introduce a set of standards that aims to make the consequences less devastating for everyone.
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Content ArticleThis study, published in the BMJ Open, aims to examine individual, situational and organisational aspects that influence psychological impact and recovery of a patient safety incident on physicians, nurses and midwives.
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Content ArticleConsider these actual patient experiences: A patient is admitted to the hospital for a bowel obstruction from a known malignancy. She calls her cancer specialist about this complication, but he is unavailable. A covering provider reading from her file says ‘your cancer is untreatable’. This is the first time she has heard this. A patient dies in the hospital and the next day the funeral home collects a body from the hospital morgue. After embalming the body, the funeral home is notified by the hospital that they were given the wrong body. Because of this error, it may not be possible to process the correct body in time for the wake the following day. Despite being simultaneously dreadful and familiar to healthcare professionals, cases like these are not systematically identified or addressed in hospital quality improvement programmes. As a result, we have no good way of preventing them and patients inevitably continue to suffer from these unnecessary emotional harms. The authors of this paper, published in BMJ Quality & Safety, argue these cases are examples of preventable harm that are deserving of formal capture, classification and action by the healthcare system.
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Content ArticleThe human element can give us kindness and compassion; it can also give us what we don't want — mistakes and failure. Leilani Schweitzer's son died after a series of medical mistakes. In her talk she discusses the importance and possibilities of transparency in medicine, especially after preventable errors. And how truth and compassion are essential for healing.
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Content ArticleThis presentation, delivered by Margaret Murphy, Lead Advisor for the World Health Organization, took place at the Patient Safety Learning conference. In this short video, Margaret argues that the hear of the matter is in the patient'd and families experiences of care and how this, alongside true engagement, can be used to drive improvement.
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Content ArticleThe Patients Association welcomed our publication of ‘A Patient-Safe Future’, which provides a well-founded critique of the shortcomings in safety in our NHS. This is their full response.
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Content ArticleSidney Dekker says when there has been an incident of harm, we need to know "who is hurt, what do they need, and whose obligation is it to meet that need?" In this blog, commissioned by Patient Safety Learning, Joanne Hughes, hub topic lead, develops our understanding of the needs of patients, families and staff when things go wrong. Using Joanne's expertise and informed by her personal experience and engagement with many others who have suffered second harm, this blog discusses the care needs for harmed patients, their families and for staff when things go wrong. It aims to highlight the chasm between what is needed and what is currently delivered.
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Content ArticleThe report, Improving care by using patient feedback, published by the National Institute for Health Research, features nine new research studies about using patient experience data in the NHS. These show what organisations are doing now and what could be done better. Here, we highlight one of the examples from the report, showing some correspondence between a patient and a nursing team.
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Content ArticlePatients are increasingly being asked for feedback about their healthcare experiences. However, healthcare staff often find it difficult to act on this feedback in order to make improvements to services. This paper, published by Social Science & Medicine, draws upon notions of legitimacy and readiness to develop a conceptual framework (Patient Feedback Response Framework – PFRF) which outlines why staff may find it problematic to respond to patient feedback.
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Content ArticleThere is little research focusing on how bereaved families experience NHS inquiries and investigations. Despite this gap, there is a consistent assumption that these processes provide families with catharsis. Drawing on her personal experiences of NHS investigations over a five‐year period after the death of her son, Connor Sparrowhawk, the author suggests the assumption of catharsis is misplaced and works to erase the considerable emotional ‘accountability’ labour that families undertake during these processes. She further question whether inquiries or investigations are an effective way of holding stakeholders to account. She concludes with two points: first, qualitative research is needed to better understand bereaved family experiences of inquiries and investigations and second, the ‘lessons learned’ objective underpinning inquiries should be replaced with ‘leading to demonstrable change’, which is what families typically want.
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Content ArticleWith the aim of examining current and potential practice in relation to soft intelligence, the authors conducted and analysed 107 in-depth qualitative interviews with senior leaders, including managers and clinicians, involved in healthcare quality and safety in the English National Health Service. This study, published by Science Direct, found that participants were in little doubt about the value of softer forms of data, especially for their role in revealing troubling issues that might be obscured by conventional metrics.
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Content ArticleRecent years have seen increasing calls for more proactive use of patient complaints to develop effective system-wide changes, analogous to the intended functions of incident reporting and root cause analysis (RCA) to improve patient safety. Given recent questions regarding the impact of RCAs on patient safety, the authors sought to explore the degree to which current patient complaints processes generate solutions to recurring quality problems.
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Content ArticleThis paper explores how patient-reported experience measures (PREMs) are collected, communicated and used to inform quality improvement (QI) across healthcare settings.
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Content ArticleThis study, summarising evidence from 55 studies, indicates consistent positive associations between patient experience, patient safety and clinical effectiveness for a wide range of disease areas, settings, outcome measures and study designs. It demonstrates positive associations between patient experience and self-rated and objectively measured health outcomes; adherence to recommended clinical practice and medication; preventive care (such as health-promoting behaviour, use of screening services and immunisation); and resource use (such as hospitalisation, length of stay and primary-care visits). There is some evidence of positive associations between patient experience and measures of the technical quality of care and adverse events. Overall, it was more common to find positive associations between patient experience and patient safety and clinical effectiveness than no associations.
