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Showing results for tags 'Patient engagement'.
Found 1,331 results
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Content ArticleThe paradox of representation in public involvement in research is well recognised, whereby public contributors are seen as either too naïve to meaningfully contribute or too knowledgeable to represent ‘the average patient’. Given the underlying assumption that expertise undermines contributions made, more expert contributors who have significant experience in research can be a primary target of criticism. Knowles SE et al. conducted a secondary analysis of a case of expert involvement and a case of lived experience, to examine how representation was discussed in each.
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Content ArticleThis paper in the journal Social Science & Medicine reports from an ethnographic study of hospital planning in England between 2006 and 2009. The authors explored how a policy to centralise hospital services was promoted in national policy documents, how this shifted over time and how it was translated in practice. They found that policy texts defined hospital planning as a clinical issue and framed decisions to close hospitals or hospital departments as based on the evidence and necessary to ensure safety. They argue that this clinical rationale is sometimes a false reframing of a political motivation, that it constrains public participation in decisions about the delivery and organisation of healthcare, and that it restricts the extent to which alternatives can be considered.
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Content ArticlePatient safety in ambulatory care settings is receiving increased attention. Based on interviews and focus groups with patients, providers, and staff at ten patient-centered medical homes, this qualitative study explored perceived facilitators and barriers to improving safety in ambulatory care. Participants identified several safety issues, including communication failures and challenges with medication reconciliation, and noted the importance of health information systems and dedicated resources to advance patient safety. Patients also emphasised the importance of engagement in developing safety solutions.
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Content ArticleRealistic Medicine is Scotland's approach to a sustainable health and social care system. The Realistic Medicine Podcast shares the stories, experiences and projects of teams and communities across Scotland. In this episode, Dr Graham Kramer, National Clinical Lead for Self Management and Health Literacy, talks about health literacy and the importance of people being able to understand and engage in their own health and healthcare.
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Content ArticleDuring the Covid-19 pandemic there was a large-scale shift to remote consulting in UK general practice. In 2021, we saw a partial return to in-person consultations, which occurred in the context of extreme workload pressures due to backlogs, staff shortages and task shifting. This study in the British Journal of General Practice looked at media depictions of remote consultations in UK general practice at a time when general practice was under stress. The authors did a thematic analysis of national newspaper articles about remote GP consultations during two time periods: 13–26 May 2021, following an NHS England letter, and 14–27 October 2021, following a government-backed directive, both stipulating a return to in-person consulting. They found that newspaper coverage of remote consulting was strikingly negative and conclude that remote consultations have become associated in the media with poor practice. They recommend proactive dialogue between practitioners and the media to help minimise polarisation and improve perceptions around general practice.
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Content ArticleIn this article for The Cut magazine, author Rae Nudson looks at the sometimes severe pain that women face when having gynaecology examinations and procedures, and how this has been accepted and normalised by healthcare professionals. She highlights a lack of understanding about the complex nature of pain, which leads to an expectation that women just need to 'put up' with pain during cervical screening, IUD fitting, hysteroscopy and other procedures. Speaking to women who have had painful and traumatising experiences, she discusses the long-term impact that these negative experiences can have, including putting women off attending potentially life-saving screening appointments. She also outlines the particular problems faced by Black women during gynaecological procedures, caused by incorrect assumptions that they feel pain less and are more able to tolerate it. These assumptions are rooted in historical oppression and racism, but research demonstrates that they still have a bearing on how healthcare professionals treat women from Black and other minority backgrounds.
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Content ArticleSocial movements are behind the most powerful changes around the world. From voting rights, to political upheavals and the fight for racial equality – social movements can change mindsets, enact laws and shift policies. But only if they succeed. So what are the features of a movement that can hold the attention of leaders and involve millions of participants? This episode of 'Experts Explain', with Hahrie Han, Professor of Political Science at Johns Hopkins University, delves into how to make a social movement succeed.
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Content ArticleThe Brain Charity has launched a survey that looks into delayed and misdiagnosis of neurological conditions, with the hope that the findings will help improve the issues people with neurological conditions can face when seeking a diagnosis. The survey is open to anyone who has a neurological condition, or to family members who can complete the survey on a patient’s behalf. Follow the link below to find out more about the survey and to complete it.
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Content ArticleSonia Sparkles is a senior manager in healthcare who is using her artistic skills to improve the way healthcare services communicate with patients. Her goal is to empower patients to feel at ease in healthcare settings and able to fully engage in their care. In this blog, Sonia describes how her own experience of being in hospital helped her see healthcare from a patient's perspective. While an inpatient, she felt disempowered, frightened and unable to ask the questions she wanted to. Having reviewed some NHS patient literature, Sonia realised that there was a need to find a way to communicate clearly with patients and invite them to share their concerns with healthcare staff. She produced a series of 23 posters as a starting point to get people thinking about how to communicate with patients in a simple, visual and empowering way.
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Content ArticleThis poster highlights some key issues associated with by antimicrobial resistance (AMR), which is caused by inappropriate use of antibiotics. It outlines the objectives and results of the AMR Patient Group, a coalition of patient groups across Europe working to address the serious public health threat posed by AMR. It also outlines the AMR Patient Group's policy recommendations to European and national health authorities.
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Content ArticleHospital boards members are charged with developing appropriate organisational strategies and cultures and have an important role to play in safeguarding the care provided by their organisation. However, recent concerns have been raised over boards’ ability to enact their duty to ensure the quality and safety of care. This paper in BMC Health Services Research provides a critical reflection on the relationship between hospital board oversight and patient safety. It highlights new perspectives and suggestions for developing this area of study.
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Content ArticleThis worksheet produced by NHS Education for Scotland is designed to be used by healthcare teams as a prompt to highlight the various system-wide factors that contribute to an issue. It aims to help teams understand how these factors relate and interact to produce different outcomes.
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Event
Deteriorating Patient Summit
Patient Safety Learning posted an event in Community Calendar
The Deteriorating Patient Summit focuses on recognising and responding to the deteriorating patient through improving the reliability of patient observations and ensuring quality of care. The conference will include National Developments including the recent recommendations from the Royal College of Physicians on NEWS2 and COVID-19, and implementing the recommendations from the Healthcare Safety Investigation Branch Report Investigation into recognising and responding to critically unwell patients. The conference will include practical case study based sessions on identifying patients at risk of deterioration, improving practice in patient observations, responding to the deteriorating patient, improving escalation and understanding success factors in escalation, sepsis and COVID-19, involving patients and families in recognising deterioration, and improving the communication and use of NEWS2 in the community, including care homes, and at the interface of care. Follow the conference on Twitter #deterioratingpatient Register -
Event
Writing health information online workshop – December 2020
Sam posted an event in Community Calendar
untilThe Patient Information Forum's sell-out writing training course has been redeveloped for online delivery, maintaining the element of classroom style teaching with direct interaction with tutors and group work with practical exercises. The course features practical exercises, group work and feedback from tutors. The course is ideal for anyone starting out in health information and for those wishing to improve and refresh their skills. It is also ideal for staff planning to return from furlough who may have lost confidence while away from work. The course will be delivered via Zoom and will be held over three consecutive mornings with a maximum of 30 delegates. Register -
EventuntilA webinar to mark the launch of the Patient Information Forum's updated 'Producing Health Information for Children and Young People' guide. The guide has been reviewed and updated for 2020 by an expert panel and will be published in November. The guide retains much of its core content but reflects new priorities including using digital tools, mental health, violence reduction and working with CYP from seldom heard groups, including looked after children and young carers. Registration
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Event
UCL: Launch of the Centre for Co-production
Patient Safety Learning posted an event in Community Calendar
untilUCL has been working on developing their Centre for co-production as a mixed group of members of the public, researchers, patients, carers, healthcare practitioners, charities, local authorities and students (really anyone who wants to get involved or is interested in co-production!), since back in October 2017. After almost exactly 3 years they are officially launching it This event will be a celebration of all things co-production, highlighting the importance of this approach to research, policy-making and service development/improvement. It will include short snippets from UCL's ’Share your Co-pro Story’ campaign, the unveiling of their new strategy and new name, logo, and identity, and a chance to meet other likeminded people and have a chat... Find out more and register -
EventThis virtual conference will focus on measuring, understanding and acting on patient experience insight, and demonstrating responsiveness to ensure Patient Feedback is translated into quality improvement and assurance. Through national updates and case study presentations the conference will support you to measure, monitor and improve patient experience in your service, and ensure that insight leads to quality improvement. Book your place or email kerry@hc-uk.org.uk hub members can receive a 20% discount by quoting HCUK20psl when booking Follow the conference on Twitter ##PatientExp
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EventuntilIt has been a challenging year for the health and care sector, but the response to the COVID-19 pandemic has shown how technological innovation can bring about substantial improvement in efficiency of care. Join The King's Fund for this online event to learn about the proven benefits that technological solutions offer to complex problems, transforming the quality of care and patient experience for greater numbers of people. Using the orthopaedic pathway in Calderdale and Huddersfield NHS Foundation Trust as a case study, it will explore in depth how the adoption and integration of technology can help NHS trusts deliver on elective surgeries that were postponed due to the COVID-19 outbreak. Register
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EventAs patients and families impacted by harm, we imagine progressive approaches in responding to patient safety incidents – focused on restoring health and repairing trust. We can change how we respond to healthcare harm by shifting the focus away from what happened, towards who has been affected and in what way. This is your opportunity to hear about innovative approaches in Canada, New Zealand, and the United States that appreciate these human impacts. This interactive webinar is hosted by Patients for Patient Safety Canada, the patient-led program of the Canadian Patient Safety Institute (CPSI) and the Canadian arm of the World Health Organization Patients for Patient Safety Global Network. Further information and registration
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Content Article
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Many people are experiencing health difficulties for several months after they have been infected with COVID-19. There is work underway to make sure healthcare staff have more information about the longer-term effects of COVID-19 and how to look after these patients safely. This is due to be published by the National Institute for Health and Care Excellence (NICE) at the end of this year. -
Content ArticleThe Patient Safety Authority has put together information and tips for patients on a range of topics.
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Content ArticleRobbie Powell, 10, from Ystradgynlais, Powys, died at Swansea's Morriston Hospital, of Addison's disease in 1990. Four months earlier Addison's disease had been suspected by paediatricians at this hospital, when an ACTH test was ordered but was not carried out. Although Robbie's GPs were informed of the suspicion of Addison's disease, the need for the ACTH test and that Robbie should be immediately admitted back to hospital, if he became unwell, this crucial and lifesaving information was not communicated to Robbie's parents. At the time of Robbie's death, the Swansea Coroner refused the Powells' request for an inquest claiming that the child had died of natural causes. However, the Powells secured a 'Fiat' [Court Order] from the Attorney General in 2000 and an inquest took place in 2004, fourteen years after Robbie died. The verdict was 'natural causes contributed by neglect' confirming that an inquest should have taken place in 1990. Since Robbie's death, his father Will Powell, has mounted a long campaign to get a public inquiry into Robbie's case.
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Content ArticleUsing the data obtained from Fifth Sense’s ‘Quality of Life Impact of Olfactory Disorders’ survey amongst its members, a research paper was produced by Mr Carl Philpott and Duncan Boak to demonstrate the impact that olfactory disorders have on people’s lives. A summary of the findings can be read here. The study found it impacted on people's emotional wellbeing and their mental health, with many patients feeling their voice was unheard. There is a need for medical practitioners to take olfactory disorders more seriously.
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Content ArticleSocial prescribing, also sometimes known as community referral, is a means of enabling health professionals to refer people to a range of local, non-clinical services. The referrals generally, but not exclusively, come from professionals working in primary care settings, for example, GPs or practice nurses. Recognising that people’s health and wellbeing are determined mostly by a range of social, economic and environmental factors, social prescribing seeks to address people’s needs in a holistic way. It also aims to support individuals to take greater control of their own health. Social prescribing enables GPs, nurses and other primary care professionals to refer people to a range of local, non-clinical services to support their health and wellbeing. But does it work? And how does it fit in with wider health and care policy?
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Content ArticleIn the UK and Ireland men are three to four times more likely to die by suicide than women. Research also tells us that men who are less well-off and living in the most deprived areas are up to 10 times more likely to die by suicide than more well-off men from affluent areas .Middle-aged men in the UK and Ireland also experience higher suicide rates than other groups, a fact that has persisted for decades. The Samaritans carried out in-depth ethnographic interviews with 16 less well-off middle aged men across the UK and Ireland to find out the challenges they faced and the events which lead them to crisis point. The study explored what these men said worked for them when they came into contact with with support services. This is the first of two connected reports. The second report, due to be released later in 2020, will set out recommendations of how services can effectively engage and support men earlier in their lives, before they reach crisis
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