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Showing results for tags 'Information sharing'.
Found 323 results
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Content Article
Intensive Care: a guide for patients and relatives
Claire Cox posted an article in Resources for patients
This guide contains advice and information about intensive care. It tells you how critical illness may be treated and what recovery may be like. Not every patient will experience all of these things, but they are more likely to if they have been in intensive care for more than a few days. Most of this guide is written for patients but there is a section specifically for relatives and visitors. By reading the guide, relatives will learn what a patient's recovery may involve and it will give them the answers to some of the questions they may have. -
Content Article
Visiting the Intensive Care Unit: activity book for children
Claire Cox posted an article in Patient-centred care
'Visiting the Intensive Care Unit' is an activity book for children who are visiting a relative in an intensive care unit (ICU). This resource is free to NHS hospitals. -
Content ArticleI had been away from the hospital for a week and I was reluctant to go back in, fearful of what I would face, but I am amazed at how much has been achieved in 7 days.
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Content ArticleThere has been little applied learning from organisations engaged in making evidence useful for decision makers. More focus has been given either to the work of individuals as knowledge brokers or to theoretical frameworks on embedding evidence. More intelligence is needed on the practice of knowledge intermediation. This paper from Tara Lamont and Elaine Maxwell describes the evolution of approaches by one UK Centre to promote and embed evidence in health and care services.
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Content Article
In this blog, Jayne Flood, Falls Prevention Practitioner at East Kent Hospitals NHS Foundation Trust, describes how her team introduced ‘yellow kits’* to assist patients at high risk of falls in A&E, and evaluated their impact. *Developed in partnership with Medline Industries Ltd.- Posted
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Content Article
The objective of this piece of work was to try and create a different way of navigating through the various themes in mental health. There are a huge range of posts on mental health and related areas on the hub. Seemingly endless information, and so little time to absorb it. I know from experience, and from the learning I have undertaken and delivered on information mastery, that there is so much material available it is difficult to find the time to discover, and then read fully, what is most relevant to the work in hand. As a result I have created a diagram (below - click on it to enlarge it) and an interactive pdf (attached), which has a number of topics and subtopics links to existing hub content to help people to do exactly that. In doing this, the focus has been on including patients/users of services, avoiding medical jargon, taking a holistic view. I am really interested in everyone’s views on this. Is this a useful approach and a helpful model? Will it help you post and find what matters to you? I would love to gather people's ideas and potentially improve the model further.- Posted
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Content ArticlePublic and patient expectations of treatment influence health behaviours and decision-making. This study aimed to understand how the media has portrayed the therapeutic use of ketamine in psychiatry. It found that ketamine treatment was portrayed in an extremely positive light, with significant contributions of positive testimony from key opinion leaders (e.g. clinicians). Positive research results and ketamine's rapid antidepressant effec were frequently emphasised, with little reference to longer-term safety and efficacy. The study concluded that information pertinent to patient help-seeking and treatment expectations is being communicated through the media and supported by key opinion leaders, although some quotes go well beyond the evidence base. Clinicians should be aware of this and may need to address their patients’ beliefs directly.
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Content ArticleThe Accessible Information Standard gives disabled people and people with sensory loss the right to get healthcare information they can understand and communications support if needed. A survey conducted by HealthWatch between February and May 2022 aimed to investigate whether the standard is being delivered by health services, and whether it offers enough support to patients. While the survey participants were self-selected, their views are likely to reflect those of a significant group of people who need communications support. HealthWatch hopes that the survey's findings will help NHS and social care decision-makers hear what is working and what could be better from the public's perspective.
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Content Article
Building a communication passport
Claire Cox posted an article in Learning disabilities
Kate and Jenny Sanger’s 'Communication Passport' gives a voice to the voiceless and enables those being supported and those providing that support to have the two-way conversation that leads to a happy and positive relationship. The passport is a powerful support tool for staff, giving them confidence and job satisfaction that they are doing their best for the person they support. Kate and Jenny Sanger created the communication passport originally for Kate’s daughter, Laura. The aim of the passport is to enable a range of professionals and specialists access important information so that care can be delivered more holistically. The communication passport has now been shared widely to help other families and individuals with complex needs. Kate and Jenny Sanger speak in this webinar about building a communication passport. -
Content Article
Health appointment information sheet: Easy read
Claire Cox posted an article in Learning disabilities
This easy read document, from Macintyre, should be used as an aid in helping people to: prepare for their appointment participate in the appointment understand the advice given at the appointment. It can also be presented to the health professional - by using information from One Page Profile, the document serves as an aid for the health professional on how to engage with the person during the appointment. -
Content ArticlePeople with a learning disability must be involved in all decisions about their health, and be in control over these choices. Some of the barriers to equal access to healthcare faced by people with a learning disability are: Lack of information that is easy to understand. ‘Diagnostic overshadowing’ - when signs and symptoms are mistakenly attributed to the person’s learning disability. Family carers and others who know the person well are not listened to when they are often able to describe changes in the person in a way that will aid diagnosis. A hospital might assume that the person has 24-hour support, when in fact they only get a few hours’ support a week and will need some extra help to follow the post-discharge treatment plan.
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Content ArticleA learning disabilities service in Leicester found that experience based co-design (EBCD) was the ideal way to bring together users, families and staff to share experiences of care and design and implement change. Leicestershire Partnership NHS Trust used co-design to improve the way they cared for patients with learning disabilities. In a series of videos, Jane Parr, from the My Care, My Voice project at Leicestershire Partnership NHS Trust, shares her reflections about how the project used Patient Experience programme methodologies to improve communication with patients with learning disabilities. Find out more about EBCD
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Content ArticleAcademic Health Science Networks (AHSNs) host England’s fifteen Patient Safety Collaboratives. They are experts in supporting quality improvement projects using methodology from the Institute of Healthcare Improvement model for improvement. This resource pack by The AHSN Network provides an overview of the different ways Patient Safety Collaboratives can support safety improvement projects and includes case studies and resources.
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Content ArticleIt is important that patients and their medical team work in partnership when making decisions about using antibiotics, whether that’s when a GP prescribes an antibiotic or if you’re in hospital and need antibiotics. The Patients Association has developed these resources to help patients make informed decisions about taking antibiotics. They were developed in partnership with patients, carers, healthcare professionals and Pfizer Ltd., who funded and supported the project. The information will help patients partner with their medical team when deciding about using antibiotics. These resources focus on when a patient is in the hospital, but they may also be used as a helpful reminder whenever you are considering taking antibiotics. The resources include a patient leaflet and animated video.
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Content ArticleThe Perfect Patient Information Journey is Patient Information Forum's long-running project investigating how high-quality information can be provided throughout a person’s journey with a long-term condition.
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Content ArticleThe Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
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Content Article
Patient leaflets (BMJ Best Practice)
PatientSafetyLearning Team posted an article in Patient engagement
These patient leaflets, shared on the BMJ Bets Practice website, aim to provide concise easy to read summaries to reassure patients and carers and help them make informed, shared decisions with healthcare professionals. Search their library of leaflets by condition or treatment by clicking on the link below. -
Content ArticleInvolvement activities enable people to influence and improve policies and services that affect their lives through activities such as focus groups, patient involvement forums and research studies. My Involvement Profile is a tool for lived experience experts to record and share their access needs when taking part in involvement activities in health and social care. My Involvement Profile has two parts: A personal information form to record your contact details and other experience you have A form to record your access and support requirements.
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Content ArticleThe Patient Information Forum (PIF) has launched an update to the UK’s only assessed quality mark for print and digital health and care information. The update places a greater emphasis on inclusion and reflects the huge evolution in health and care information since the PIF TICK was launched in 2020.
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Content ArticleHappy Patient is a three-year project co-funded by the European Union, that seeks to reduce the impact of antimicrobial resistance (AMR) by decreasing the inappropriate use of antibiotics for the management of common community-acquired infection. Up to 25,000 people die every year in Europe as a direct consequence of the misuse of antibiotics, a figure that rises up to 30,000 in the United States (European Centre for Disease Prevention and Control). The Happy Patient Website offers a variety of communication tools for healthcare professionals and patients, including: Leaflet - Viruses or bacteria: What caused your infection? Urinary tract infections: A leaflet for older adults and their families Antibiotics prescription pad 5 myths about urinary tract infections (UTIs) in nursing home residents What you need to know if you have been prescribed an antibiotic
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Content ArticleThe non-profit Patient Information Forum (PIF) has published a new one-page guide to Body Mass Index (BMI). The poster was developed following user engagement sessions with patients and healthcare professionals which highlighted the amount of misinformation surrounding BMI. It is free to download and share and can be used directly by patients or a resource for healthcare professionals. Welcoming the publication of 'BMI – What you need to know', Dr Juhi Tandon said: “As a GP for more than a decade, I still struggle to have the BMI conversation with patients. Discussing someone’s BMI can easily make them feel uncomfortable as they feel like they are being judged. It will be very helpful to share a clear fact sheet to help patients understand more about BMI in a non-judgemental way.”
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Content ArticleYou're still entitled to free NHS care if you choose to pay for additional private care. This guidance from the NHS outlines how receiving both private care might affect treatment on the NHS. It looks at the following points: What does 'as clear a separation as possible' mean? Receiving private and NHS care at the same time What treatments can my doctor tell me about? What if I have complications?
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Content ArticleOur Health Our Knowledge (OHOK) is a short web-based course developed by patients and GPs to help people make healthcare choices. OHOK is available in English and Welsh, is free to use and is backed by the Royal College of General Practitioners, the Welsh Value in Health Centre/Canolfan Gwerth mewn lechyd Cymru, Realistic Medicine and the Academy of Medical Royal Colleges.
