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Found 179 results
  1. Content Article
    This quick guide from the NHS explains what to expect if you need to stay in hospital for a period of time.
  2. Content Article
    The Information Commissioners Office (ICO) gives guidance on how to handle information about people's healthcare and medical affairs.
  3. Content Article
    This joint statement from the Health Research Authority and the Medicines and Healthcare products Regulatory Agency, supported and endorsed by the Devolved Administrations, sets out the legal and ethical requirements for seeking and documenting consent using electronic methods. This statement is aimed at electronic signatures obtained for clinical trials.
  4. Content Article
    Since the rise of COVID-19 in the UK, many consultations between surgeons and patients take place remotely, via phone or video. These consultations include pre-operative assessments, discussions between surgeons and patients about the benefits and risks of their surgery, and gaining the patient’s consent to proceed with treatment.  This transition to remote consultations has been central in the healthcare system’s effort to prevent transmission of COVID-19, and has required a series of adjustments by patients, hospitals and members of the surgical team. However, when it comes to the consent process, the same principles and requirements should apply as set out by the GMC and The Royal College of Surgeons of England, regardless of whether the conversation takes place face-to-face or via phone or video. In addition, during the COVID-19 period, the consent discussion should include further considerations to ensure that patients have the necessary information to make an informed decision about their treatment. This guide sets out the main principles of the consent process and provides advice on what additional information should be included in conversations with patients while COVID-19 is still prevalent in society.
  5. Content Article
    Now that hospitals are resuming elective surgery, what should surgeons tell patients about the perioperative risks of COVID-19? Many surgeons are now resuming elective work, yet some make no mention of the additional covid-related risks. Although the British Association of Spine Surgeons and some private hospitals have produced information sheets for patients undergoing surgery during the pandemic, to our knowledge no formal guidance has been issued by the General Medical Council or the Royal College of Surgeons on obtaining consent in such circumstances. The surgical community remains unclear as to what to tell patients about to undergo elective surgery. In this BMJ Opinion article, Daniel Sokol  and Rupen Dattani argue that patients who undergo elective surgery should be told that, despite measures to limit the risk of infection, there remains a risk of contracting covid-19 in hospital, whether before, during or after the operation. 
  6. Content Article
    These controversial implants are used by medical professionals to treat stress incontinence and pelvic organ prolapse, both of which can occur after childbirth. But there’s a darker side to the mesh story, with many women left in excruciating pain, suffering long-term health problems as a result of being fitted with them. This article in Woman & Home explores the issues around vaginal mesh implants and speaks to women and campaigners.
  7. Content Article
    Consent to treatment means a person must give permission before they receive any type of medical treatment, test or examination. This must be done on the basis of an explanation by a clinician. Consent from a patient is needed regardless of the procedure, whether it's a physical examination, organ donation or something else. The principle of consent is an important part of medical ethics and international human rights law.
  8. Content Article
    This leaflet, produced by the Royal College of Obstetricians and Gynaecologists and the British Society for Gynaecological Endoscopy, is for individuals who have been offered hysteroscopy as an outpatient. It may also be helpful if you are a partner, relative or friend of someone who has been offered this procedure.
  9. Content Article
    This article, published by the Royal College of Obstetrics and Gynaecology (RCOG), talks about the 2015 Supreme Court decision on Montgomery vs NHS Lanarkshire. The Ruling has significant implications for doctor–patient communications, information sharing and informed consent. Since the ruling, the College leadership has been meeting with medico-legal experts to fully understand the impact on the profession and to determine the RCOG’s role in supporting our members to work within a shared decision-making model.
  10. Content Article
    This leaflet, produced by Kingston Hospital, is designed to prepare women for hysteroscopy procedures that are performed in the gynaecology outpatients department. Join the conversation on the hub about hysteroscopies.
  11. Content Article
    In this blog for the Citizens Commission on Human Rights, Jane London shares her account of how electroconvulsive therapy (ECT) has affected her life since early adulthood, resulting in severe memory loss and heart problems. Jane shares how her physical medical problems including appendicitis and a severe heart attack were put down to depression, and how she was nearly forced to have ECT against her will in England in 1966. When her abusive marriage ended in 1968 and Jane returned to Australia her mother insisted she have ECT, despite her depression being temporary and related to her marriage ending. After 14 treatments, Jane left the treatment facility and received talking therapy to help her recover. Jane talks about the dramatic adverse effect ECT has had on the rest of her adult life.
  12. Content Article
    This blog published by the Irish Health Service Executive (HSE) tells the story of Mark, who was diagnosed with schizophrenia 15 years ago, aged 15. It describes the issues he and his mother faced in getting him the care he needed, including being treated inappropriately and without dignity during emergency department visits, problems accessing ongoing community support and a reluctance to assist him with reducing his medication dosage. It also highlights how his family were not included in care plans and treatment decisions, and their needs as carers were rarely considered.
  13. Content Article
    The word 'controversy' almost always accompanies any reference to electroconvulsive therapy (ECT). It has a dark history and remains a deeply contentious practice. For many, ECT is seen as outdated, forever linked with frightening images of medical abuse, cruelty and even punishment. In this programme for BBC Radio 4, Professor Sally Marlow met her friend Dr Tania Gergel at King’s College London, which forced her to reassess everything she thought she knew about ECT. Tania told Sally that ECT had saved her life on numerous occasions and that ECT is the only treatment that can bring her back to health after episodes of severe depression, psychosis and mania. Tania is Director of Research at Bipolar UK. She’s a philosopher and an internationally respected medical ethicist. She also lives with a serious mental illness; an unusual mixed type of bipolar disorder. During her last period of illness a year ago, Tania kept an audio diary., which she shares extracts from throughout the programme in order to break down stigma around both mental illness and ECT.
  14. Content Article
    Self-binding directives instruct clinicians to overrule treatment refusal during future severe episodes of illness. These directives are promoted as having the potential to increase autonomy for individuals with severe episodic mental illness. Although lived experience is central to their creation, the views of service users on self-binding directives have not been seriously investigated. This study in The Lancet Psychiatry aimed to explore whether reasons for endorsement, ambivalence or rejection given by service users with bipolar disorder can address concerns regarding self-binding directives, decision-making capacity and human rights.
  15. Content Article
    Mandy Anderton is a Clinical Nurse specialising in learning disability and a hub Topic Leader. In this new blog, Mandy explains how they are using shared decision making and reasonable adjustments to implement a new care pathway, where patients with a learning disability needing to undergo a medical investigation can receive deep sedation within their own home.  Working with patients, carers, relatives, anaesthetists and others, the aim is to improve access to important medical investigations with minimal distress, where other avenues have been exhausted. 
  16. Content Article
    The Accessible Information Standard gives disabled people and people with sensory loss the right to get healthcare information they can understand and communications support if needed. A survey conducted by HealthWatch between February and May 2022 aimed to investigate whether the standard is being delivered by health services, and whether it offers enough support to patients. While the survey participants were self-selected, their views are likely to reflect those of a significant group of people who need communications support. HealthWatch hopes that the survey's findings will help NHS and social care decision-makers hear what is working and what could be better from the public's perspective.
  17. Content Article
    This article by the Royal College of Obstetricians & Gynaecologists and The My Body Back Project provides tips for healthcare professionals to make cervical cancer screening attendees feel as comfortable as possible during their appointments. Cervical screening can be very daunting for some women, and for those who have experienced sexual violence it can be triggering and cause emotional distress. The article provides the following tips, with more detailed guidance: Communication – language and listening - build trust by listening and acknowledging rather than downplaying any concerns. A sense of calm – how can you can make the environment feel calm and safe? Share control – Consider how you can demonstrate shared control within the consultation and examination. Position – a good position can make all the difference to their comfort and your ability to visualise the cervix. It’s about time…. Offer a double appointment so there is time to check in, build trust and for the woman or person with a cervix to feel ready to be examined.
  18. Content Article
    This innovative educational initiative was developed as a direct and constructive response to the communication inadequacies exposed by the Montgomery case, and subsequent legislation. While it is not difficult to give ‘more information’ it is harder for surgeons and patients to achieve a decision partnership. The ICONS workshop content has been informed by internationally recognised experts in Shared Decision Making, by consensus among senior practising surgeons, by patients and by professional experts in risk management and risk communication. Delegates on the ICONS workshops will acquire skills and knowledge to implement best practice in sharing the complex decisions surrounding informed consent. By participating in a workshop, they will also contribute to the development of resources for future training in the important area of informed consent.
  19. Content Article
    It is important that patients and their medical team work in partnership when making decisions about using antibiotics, whether that’s when a GP prescribes an antibiotic or if you’re in hospital and need antibiotics. The Patients Association has developed these resources to help patients make informed decisions about taking antibiotics. They were developed in partnership with patients, carers, healthcare professionals and Pfizer Ltd., who funded and supported the project. The information will help patients partner with their medical team when deciding about using antibiotics. These resources focus on when a patient is in the hospital, but they may also be used as a helpful reminder whenever you are considering taking antibiotics. The resources include a patient leaflet and animated video.
  20. Content Article
    In this blog for The Patients Association, Patient Safety Commissioner Henrietta Hughes looks at the importance of patient involvement in improving patient safety. She argues that patient voices should be embedded in the design and delivery of healthcare, and highlights that services and organisations need to seek feedback from patients from a wide variety of backgrounds. She also outlines why shared decision making and consent are vital to ensure patients are safe and have more control over their care and treatment.
  21. Content Article
    Shared decision making (SDM) is when patients and clinicians work together to make evidence-based decisions based on patient values and preferences. This may be to select a test or intervention, such as going ahead with surgery. SDM ensures individuals are supported to make decisions which are right for them. The Centre for Perioperative Care has a number of resources on their website on shared decision making.
  22. Content Article
    The Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
  23. Content Article
    This report from the Patients Association describes shared decision making and its benefits, before going on to assess how it has been formally embedded in NHS programmes and practice. It identifies the barriers preventing shared decision making becoming a reality for patients as a matter of course, and possible solutions.
  24. Content Article
    Primary care services are the front door to the NHS - they are the first port of call when we feel unwell and the main coordinator of care when we are living with health conditions. The primary care team have an important role in making people feel welcomed, listened to and taken seriously. Yet we often hear examples about people who have not had their communication needs met within primary care. This includes people with sensory impairments, people with learning disabilities, autistic people, people living with dementia, people who don’t speak English fluently, people with low or no literacy, people who are digitally excluded, people living nomadically, people experiencing homelessness and many others.   This report sets out the key issues faced by people with specific communication needs within primary care and what they feel would make the biggest difference, as well as key actions primary care leaders and teams can take to support inclusive communication. 
  25. Content Article
    This video introduces the SingHealth Patient Advocacy Network (SPAN), a patient-led collaborative that encourages patients and caregivers to be actively involved in their care. SPAN is co-chaired by two patients and aims to rethink traditional models of care. The network wants to improve the quality and design of healthcare so that it encompasses the needs and desires of patients and their caregivers.
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