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Found 7 results
  1. Content Article
  2. Content Article
    You can also download it from the attachment.
  3. Content Article
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  5. Content Article
    There is a substantial need for continued research and renewed policy focus into rare diseases. As such, the report makes five recommendations. Implementing these recommendations will help to improve the lived experiences of rare disease patients: Recommendation one: Review and refresh the UK Strategy for Rare Diseases before the end of 2020. The strategy has become obsolete as technologies, policies and systems have moved on. Its commitments urgently need updating to ensure rare disease patients receive high quality services, treatment and support regardless of where they live in the UK
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