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Showing results for tags 'Patient engagement'.
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Content ArticleLast year, a report from the Health Foundation looked at quality measurement—including patient experience—across a range of healthcare services. It described a “measurement maze”, with multiple sources and numerous national bodies presiding over data collection. The potential usefulness of the data for trusts was “limited by the data being hard to locate online, with multiple spreadsheets to choose from and large Excel workbooks to download and navigate.” The Patient Experience Library wanted to find a solution to this, to find a way to organise all the data such that every Trust could get one-click access to everything it might need.. Miles Sibley, Director of the Patient Experience Library, explains what they did.
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Content ArticleIn this issue of Patient Experience you can find topics discussed by the people who are living inside the health and care systems and are sharing their stories.
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Content ArticleThis is the first report from the patient experience programme, Being A Patient, which explores what it means to be a patient and how understanding of the patient experience is used by the health service.
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Content ArticleThis interactive webinar was part of the world tour series designed by the World Health Organization's Patients for Patient Safety (PFPS) Global Network and hosted by Patients for Patient Safety Canada, the patient-led program of the Canadian Patient Safety Institute, a WHO Collaborating Centre on Patient Safety and Patient Engagement. Watch on demand and download slides from the webinar.
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Content ArticleThe NHS has been fighting for our lives for the last few weeks and months. Throwing all its resources at the COVID-19 pandemic. The millions of health and care workers involved have been magnificent and we must resource them better for the future. And it’s been up to us, the general public, how far and how fast the virus spreads. There will still be a vital role for us when this pandemic is over because the NHS can’t by itself deal with many of today’s major health problems such as loneliness, stress, obesity, poverty and addictions. It can only react, doing the repairs but not dealing with the underlying causes. There are people all over the country who are tackling these causes in their homes, workplaces and communities. People like the Berkshire teachers working with children excluded from school, the unemployed men in Salford improving their community; and the bankers tackling mental health in the City. They are not just preventing disease but creating health. And they take pressure off the NHS, so it is always there when we need it. Health is made at home challenges us to set aside our normal assumptions and take off our NHS spectacles to see the world differently and take control of our health. And it calls for a new partnership between the NHS, government and the general public to build a healthy and health creating society.
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Content ArticleIn this blog, published by In Health Associates, David Gilbert discusses some of the frustrations that he has with NHS Trusts who say they want patient involvement but pay lip service or who decline offers of help. This blog invites you to comment, to discuss and debate this issue. David Gilbert is a patient director at Sussex MSK Partnership. This is a new and pioneering role in the NHS. David has strategic leadership of how the Partnership relates with patients, carers and the communities they serve, including: learning from what people think of our services (patient experience) patients as partners in care decisions (Information, choice and shared-decision making) helping people look after themselves and care for their own condition (supported self-management) patients as partners for change (patient and public engagement; patient leadership).
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Content ArticleThe COVID-19 pandemic has suddenly challenged many healthcare systems. To respond to the crisis, these systems have had to reorganise instantly, with little time to reflect on the roles to assign to their patient safety (PS) and quality improvement (QI) experts. In many cases, staff who had a background in clinical care was called to support wards and critical care. Others were deemed “non-essential” and sent back to work from home, while their programmes were placed in hibernation mode. This has meant that many QI and PS experts with skills to offer in their field have ended up carrying out tasks unrelated to the current crisis.
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Content ArticleThis ‘Erice Call for Change’ is a report from a group of experts, patients and patient representatives who met in Erice in September 2019 following previous similar meetings after the original Erice Declaration (1996). The aim of the meeting was to discuss the challenge of causal complexity and individual variation in modern healthcare. The group’s concern was the impact that new clinical decision-making tools, based on statistical correlations in large databases, could have on individual patient care if they replace other types of clinical investigation and knowledge. The group calls for a change in the approach to the care of the individual patient, and indicates some specific challenges to overcome for such changes to happen.
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Content Article
Diagnostic Errors: Technical Series on Safer Primary Care (2016)
Patient-Safety-Learning posted an article in WHO
This document from the World Health Organization raises awareness about strategies that could reduce diagnostic errors in primary care. It highlights the importance of examining diagnostic errors, identifies the most common types of diagnostic error in primary care and describes potential solutions. -
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Co-producing COVID-19 recovery (June 2020)
PatientSafetyLearning Team posted an article in Patient recovery
There is an increasing amount of evidence that co-producing change and improvement in health care leads to new approaches that are more likely to succeed and be sustained. This blog, by the US-based Institute for Healthcare Improvement, asks: 'As health care systems grapple with planning for an uncertain future during the COVID-19 pandemic, how do we ensure that people with lived experience are real partners in what comes next?' -
Content ArticleProviding patients with access to electronic health records (EHRs) may improve quality of care by providing patients with their personal health information and involving them as key stakeholders in the self-management of their health and disease. With the widespread use of these digital solutions, there is a growing need to evaluate their impact, in order to better understand their risks and benefits and to inform health policies that are both patient-centred and evidence-based. The objective of this paper, published by BMJ Quality & Safety, was to evaluate the impact of sharing electronic health records (EHRs) with patients and map it across six domains of quality of care: patient-centredness effectiveness efficiency timeliness equity safety.
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Content ArticleThe call for meaningful patient and family engagement in healthcare and research is gaining impetus. Healthcare institutions and research funding agencies increasingly encourage clinicians and researchers to work actively with patients and their families to advance clinical care and research. Engagement is increasingly mandated by healthcare organizations and is becoming a prerequisite for research funding. In this article, Burns et al. review the rationale and the current state of patient and family engagement in patient care and research in the ICU. The authors identify opportunities to strengthen engagement in patient care by promoting greater patient and family involvement in care delivery and supporting their participation in shared decision-making. They also identify challenges related to patient willingness to engage, barriers to participation, participant risks, and participant expectations. To advance engagement, clinicians and researchers can develop the science behind engagement in the ICU context and demonstrate its impact on patient- and process-related outcomes. In addition, the authors provide practical guidance on how to engage, highlight features of successful engagement strategies, and identify areas for future research. At present, enormous opportunities remain to enhance engagement across the continuum of ICU care and research.
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Content ArticleTo deliver a new normal that serves patients we must grab this opportunity to bake patient involvement into new structures, processes and cultures within the NHS, writes Rachel Power, Chief Executive at the Patients Association, in this HSJ article. In responding at scale and pace to coronavirus – discharging patients, cancelling operations, changing how patients access services – the NHS avoided becoming overwhelmed. However, changes were delivered without allowing the patients affected a say. Given the emergency, that was probably necessary and people were largely supportive. But as the NHS looks ahead to what the “new normal” might be, if its recent experience has given it a taste for bold, clinically led change, then the NHS needs to think again.
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Content ArticlePatients have a legal right to know when something goes wrong with their care. But previous research has shown that they do not always get a satisfactory explanation. This article looks at research conducted by University of Leeds and Bradford Institute for Health Research, discusses the difference to what patients want and expect when things goes wrong and the barriers to why healthcare staff do not satisfy their expectations.
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News ArticleMichael Seres, an entrepreneur, patient advocate, husband and father of three, died on Saturday in Orange County, California, of a sepsis infection. He was 51. Seres was widely considered to be one of the first and most prominent “e-patients,” a term which has become popular to denote patients who are informed and engaged in their health, often sharing their experiences online. He is also one of a small number of patient inventors who helped design and build a medical device – a digitally enhanced ostomy bag – that got FDA clearance in 2014. His invention eased the suffering of millions of people with bowel injuries, chronic gut illnesses and cancer. Source: CNBC, 2 June 2020 Read more about Michael and his innovative patient work in our hub blog
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Content Article
Michael Seres – the passing of a patient champion
Clive Flashman posted an article in Patient engagement
Michael Seres was a husband, a father, a successful entrepreneur and many more things. Most importantly in some ways, he was a lifelong Chrohn's patient who finally succumbed to an associated cancer last weekend. His loss has hit hard those who knew and admired him and the tributes have been numerous and from both clinicians and other patients. His death is a real loss for anyone interested in promoting patient engagement, and the involvement of patients in safer medical practise. -
Content ArticleThis study, published in Health Services and Delivery Research, found the patient experience feedback cycle was rarely completed, and despite diverse approaches to gathering feedback in inpatient settings, approaches to analysing and using this information remain underdeveloped.
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Content ArticleIn this commentary published in the Journal of Patient Safety and Risk Management, Gurses et al. describe how human factors and ergonomics (HFE) can contribute to the COVID-19 pandemic response. Specifically, the authors provide an example of how HFE methodologies informed workflow redesigns implemented as part of COVID-19 pandemic preparations in an academic paediatric ambulatory clinic. They identify key mechanisms and areas where HFE can contribute to and improve the effectiveness of a pandemic response: Just-in-time (JIT) training development, adapting workflows and processes, restructuring teams and tasks, developing effective mechanisms and tools for communication, engaging patient and families to follow the recommended practices (e.g., social distancing, revised hospital visitation policies), identifying and mitigating barriers to implementation of plans, and learning from failures and successes to improve both the current and future pandemic responses.
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Content ArticleHealthcare Improvement Scotland is currently working with the Scottish Government to develop COVID-19 specific Anticipatory Care Planning (ACP) templates and guidance. ACP is a person-centred approach to help people to plan for their future. The essence of ACP is to encourage individuals to think ahead to help ensure that in the event of a change in their health or care needs, including loss of capacity, the right thing is done at the right time by the right person with the right outcome. ACP can benefit many individuals, from those with early onset of long-term conditions to people with chronic and complex illnesses, to plan ahead for care needs. ACP can be beneficial to individuals towards the end of their life, however the process can be more effective if started earlier in their journey. The link below takes you to an online resource that is designed to be used in conjunction with practitioner judgement, and is not for sole use by individuals and their families without guidance.
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Content ArticleCOVID-19 brings an enormous set of challenges to hospitals around the world. One challenge in particular, the current mental state of healthcare workers, is now taking centre stage as clinicians face delivering difficult news to patients and their families about what is happening, what to expect, and how to prepare. ECRI and RLDatix came together to deliver a special webcast led by Dr Tim McDonald, an expert on Communication and Optimal Resolution (CANDOR). A recording of the webinar can be viewed below.
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Content Article
Mesothelioma UK: My Mesothelioma Care Passport
Patient Safety Learning posted an article in Cancers
The 'My Mesothelioma Care Passport' is a pack designed to help patients keep up-to-date with the planned care that they have discussed and agreed with healthcare professionals. -
Content Article
When and how should we transition safely into ‘normal work’ in healthcare?
Claire Cox posted an article in Blogs
In her latest blog, Claire reflects on the last few months working as a critical care outreach nurse during the pandemic and looks to the future and how we can transition into the new 'normal'. She urges us all to work together to redesign our health and social care services, building a service that meets all our needs.- Posted
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Content ArticleSimon Whitely in this video responds to some of the comments received on his last video, where he talk about a high-level HCS Model of the Healthcare System and how interactions with the general public are key for patient safety. He also talks about the challenges between managing safety and the potential impacts upon the overall economy.
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Content ArticleIn this episode of VISION ZERO Podcast, Dr Abdulealah Alhawsawi interviews Susan Sheridan, a family member of two medical error victims and a global patient safety advocate. In this podcast they explore how we can prevent such medical errors and harm from happening again and the importance of patient / family empowerment.
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Content ArticleA blog from the charity, Picker, on the benefits of patient-centred care and the new challenges the coronavirus pandemic brings. Picker is an independent charity which uses patient experience of healthcare to identify priorities in delivering the highest care quality.
