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Showing results for tags 'Database'.
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News Article
NHS cancer gene database to identify patients at risk
Patient Safety Learning posted a news article in News
A new NHS database of genes linked to cancer could enable patients and their families in England to find out whether they are at risk of developing the disease. People will be able to have their genetic information compared to the world-first register of 120 genes known to increase the likelihood of getting cancer, NHS England has said. Those identified as having an inherited risk will be offered routine check-ups and screening for certain cancers, including breast and prostate cancer. Patients could also be tested to see whether they would respond better to particular treatments, allowing for personalised care. Health Secretary Wes Streeting said the "life-changing and life-saving" tool would fast-track screening and allow more cancers to be caught sooner. Tens of thousands of cancer patients and those with a family history of the disease already undergo genetic testing on the NHS every year. Those known to have a higher risk profile will be added to the new register. They will be given tailored information about what they can do to lower their chance of developing cancer or detect it early. NHS England's national cancer director told BBC Radio 4's Today programme it was "the first time any health care system has brought together all the information about all the genetic risk into a single place." Prof Peter Johnson said it pulled together the tests patients were already offered to check their cancer susceptibility into a single register, "so that we can contact people to offer them screening and in some cases preventative treatment". Read full story Source: BBC News, 24 January 2026 -
Content ArticleThe US Agency for Healthcare Research and Quality (AHRQ) has established the AHRQ Surveys on Patient Safety Culture® (SOPS®) Ambulatory Surgery Center Database as a central repository for survey data from ambulatory surgery centres (ASCs) that have administered the AHRQ patient safety culture survey instrument and choose to submit their survey data to the AHRQ SOPS Ambulatory Surgery Centre Database. The database serves as an important resource for patient safety culture improvement. Participation is free and open to all SOPS ASC Survey users, provided the questionnaires are administered in a manner consistent with SOPS guidance and survey data are submitted according to SOPS specifications. The SOPS ASC Database contains data voluntarily submitted by participating ASCs and is not representative of all U.S. ASCs.
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Content ArticleThis guide published by NHS England & Improvement describes the validation rules relating to the LFPSE project, specifically around submitting an Adverse Event via the Adverse Event Application Programming Interface (API). It covers several types of validation rules, which have been split into three sections. Bespoke business validation rules which have been implemented based on the dependencies between responses and extensions that cannot be captured by the FHIR resource validation. FHIR validation responses which may be returned from the API when native FHIR validation checks the submission body against the LFPSE FHIR profiles defined for an adverse event. Invalid operations and similar responses which are external to validation of the submission, including responses pertaining to permissions, personal information and any other responses that do not fit into the two categories above.
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Content Article
Disclosure UK
Patient_Safety_Learning posted an article in Data and insight
Disclosure UK is part of a Europe-wide initiative to increase transparency between pharmaceutical companies and the doctors, nurses, pharmacists and other health professionals and organisations it works with. They want to ensure that patients and others have confidence that this relationship is open and transparent and this is why the pharmaceutical industry is taking the lead on disclosing details of payments and other benefits in kind made by industry to healthcare professionals and healthcare organisations. This information will be published on the database - Disclosure UK. -
Content ArticlePennsylvania is the only state that requires acute care facilities to report all events of harm or potential for harm. The Pennsylvania Patient Safety Reporting System (PA-PSRS) is the largest repository of patient safety data in the United States and one of the largest in the world, with over 4.5 million acute care event reports dating back to 2004. Herein, we examine patient safety event reports submitted to the PA-PSRS acute care database in 2022 and compare them to prior years. The authors extracted data from PA-PSRS and obtained data from the Pennsylvania Health Care Cost Containment Council (PHC4). Counts of reports were calculated based on report submission date, and rates were calculated based on event occurrence date and calculated per 1,000 patient days for hospitals or 1,000 surgical encounters for ambulatory surgical facilities (ASFs). The study found there was a decrease in the number of incident reports submitted to PA-PSRS in 2022 and an increase in serious and high harm event reports.
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Content ArticleIntrahospital transport is a common occurrence for many hospitalised patients. Critically ill children are an especially vulnerable population who experience preventable adverse events at least once a week, on average. Transporting these patients throughout the hospital introduces additional hazards and increases the risk of adverse events. The transport process can be decomposed into a series of steps, each incurring specific risk. These risks are numerous and few of these risks are specific to the transport process. There is a paucity of literature available on paediatric intrahospital transport and related adverse events. Elliot et al. recently reviewed the Wake Up Safe database, a paediatric anesthesia quality improvement initiative across member institutions to disseminate information on best practices, for paediatric perioperative adverse events associated with anaesthesia-directed transport. The authors present several examples of airway and respiratory events taken from the database and discuss the complexity of the transport process.
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Content Article
AHRQ: Network of Patient Safety Databases
Patient Safety Learning posted an article in Data and insight
The US Department of Health & Human Services was directed in the Patient Safety and Quality Improvement Act of 2005 to create and maintain a Network of Patient Safety Databases (NPSD) to provide an interactive, evidence-based management resource for healthcare providers, Patient Safety Organisations (PSOs) listed by the Agency for Healthcare Research and Quality (AHRQ), and others. AHRQ, the lead agency for patient safety in the USA implements the NPSD. Initially, the NPSD contains non-identifiable data derived from patient safety work product submitted by PSOs from across the country. This rich data source makes it possible to identify and track patient safety concerns for the purpose of learning how to mitigate patient safety risks and reduce harm across healthcare settings nationally. -
Content ArticleThis state-of-the-nation report from the National Hip Fracture Database (NHFD) focuses on the period from 1 January to 31 December 2022. It shows that the number of people who died in the month following a hip fracture now stands at 6.2%; down from 10.9% in 2007, when the NHFD was set up. However, the report also finds that it took longer for patients to reach a ward where a hip fracture team can work together (where there is the best chance of recovery) in 2022. It also states that fewer patients received prompt surgery to repair their broken hip by the day after they presented to hospital. There was an improvement in how many people with hip fracture received bone strengthening medicines to avoid future fractures in 2022, but some hospitals continue to report that none of their patients receive such treatment. The report calls for hospitals to improve how they move patients to the right ward, operate and get patients out of bed promptly, recommending that hip fracture teams: review the care provided in the Emergency Department (ED), so that patients are seen promptly, offered pain relief, and admitted to an appropriate specialist ward within four hours. use the NHFD website to see why surgery is delayed, and work together so that this happens by the day after patients present with a hip fracture. use the NHFD website to see what more can be done to avoid patients becoming confused in hospital and to ensure that they are well enough to get out of bed on the day after their operation.
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Content ArticleStandardised data and integration of systems are vital for full traceability, improving patient safety, and enabling swift action in healthcare incidents. The PIP breast implant scandal was not the first and transvaginal mesh will not be the last. In fact, the next national patient safety scandal is likely manifesting today. “There needs to be better processes to ‘track and trace’ patients who have received a device when a problem arises,” says Professor Sir Terence Stephenson, Nuffield professor of child health at UCL Great Ormond Street Institute of Child Health and chair of the Health Research Authority for England, in the Scan4Safety 2020 report. “Clear strategies and channels are needed to inform patients, the public and clinical professionals to help improve safety.” One common denominator among such incidents is the lack of traceability – limited visibility of the devices used, when and where they are used and, most importantly, in or on which patients. This is where standardised data comes into play. There is no shortage of data in the NHS. However, the ability to standardise and share that data between systems and organisations is something the health service as a whole still lacks. Today, achieving full traceability remains a key challenge for the NHS, with repercussions that continue to have a detrimental effect on patient care.
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Content ArticleShould new draft legislation around the use of mesh in women regarding incontinence or prolapse and a new guidance on a national registry meaning every woman choosing mesh in the future must be logged on a database be extended? Haydn Wheeler argues that a broader database is in need.
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Content ArticleIn England and Wales, coroners are required to write Prevention of Future Deaths reports when a death is deemed preventable so that action is taken to avert similar deaths. Since July 2013, Prevention of Future Deaths reports have been openly available via the Courts and Tribunals Judiciary website (https://www.judiciary.uk/prevention-of-future-death-reports/). However, their presentation to date have been insufficient to identify trends and learn lessons. The authors of this paper designed a web scraper to create the Preventable Deaths Tracker. On 22 June 2022, 4001 PFDs were scraped, analysed, and compared to the Office of National Statistics’ preventable mortality statistics. This commentary, published in Medico-Legal Journal, summarises the key findings and offers recommendations to improve the Prevention of Future Deaths system so lessons can be learnt to avert preventable deaths.
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Content ArticlePennsylvania is the only state that requires acute healthcare facilities to report all events of harm or potential for harm. With over 3.6 million acute care event reports, the Pennsylvania Patient Safety Reporting System (PA-PSRS) is the largest repository of patient safety data in the United States and one of the largest in the world. This report analyses the serious events and incidents from the database.
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Content ArticleThis article, published by the Journal of Clinical Nursing, argues there can be no healthy patient safety culture where Datix or other electronic incident reporting systems (EIRS) are trivialised and weaponised. Nurses at every level can support and enable the blame free culture where nurses use Datix to genuinely promote patient safety. Follow the link below to download the full article. Other blogs you may also be interested in: “I’m going to Datix you” – a blog from Datix’s former chief executive and now chairman of Patient Safety Learning, Jonathan Hazan Silent witness: My experience when filing an incident report – newly qualified nurse describes what happened when she reported her first Datix for a serious incident. Marking your own homework – an anonymous blog
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Content ArticleThe Patient Safety Database (PSD), previously called Anesthesia Safety Network, is committed in the delivery of better perioperative care. Its primary goal is to make visible the lack of reliability of healthcare and the absolute necessity to build a new system for improving patient safety. They have begun by developing an open and anonymous incident reporting system focused on non-technical skills. Each quarter they summarise in their newsletter cases reported on the platform. Read the latest newsletter.
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Content Article
Uppsala Monitoring Centre: VigiBase
Patient Safety Learning posted an article in Adverse interactions
VigiBase is the Uppsala Monitoring Centre (UMC)’s starting-point for the journey from data to wisdom about safer use of medicines and wise therapeutic decisions in clinical practice. It is the driving-force at the heart of the work of UMC and the WHO Programme. The purpose is to ensure that early signs of previously unknown medicines-related safety problems are identified as rapidly as possible. VigiBase is the unique WHO global database of individual case safety reports (ICSRs). It is the largest database of its kind in the world, with over 20 million reports of suspected adverse effects of medicines, submitted, since 1968, by member countries of the WHO Programme for International Drug Monitoring. It is continuously updated with incoming reports. -
Content Article
NHS Workforce Race Equality Standard (WRES)
PatientSafetyLearning Team posted an article in Health inequalities
The Workforce Race Equality Standard (WRES) is a set of metrics that would requires NHS organisations to demonstrate progress against a number of indicators of race equality, including a specific indicator to address the low representation of black and minority ethnic (BME) staff on Boards. NHS providers are expected to show progress against a number of indicators of workforce equality, including a specific indicator to address the low numbers of BME board members across the organisation. Follow the link below to find out more about WRES and to access the annual reports. -
Content ArticleProviding patients with access to electronic health records (EHRs) may improve quality of care by providing patients with their personal health information and involving them as key stakeholders in the self-management of their health and disease. With the widespread use of these digital solutions, there is a growing need to evaluate their impact, in order to better understand their risks and benefits and to inform health policies that are both patient-centred and evidence-based. The objective of this paper, published by BMJ Quality & Safety, was to evaluate the impact of sharing electronic health records (EHRs) with patients and map it across six domains of quality of care: patient-centredness effectiveness efficiency timeliness equity safety.
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Content ArticleSince the Institute of Medicine’s 1999 report To Err is Human, it has been known that upwards of 100,000 deaths due to preventable medical errors occur each year. In the twenty years since then, little progress has been made in the way of reducing the number of these deaths and estimates now suggest between 200- 440,000 Americans are dying preventably each year. One major component many believe is lacking in the United States is a national agency that focuses on responsibility and accountability for patient safety. The Patient Safety Movement Foundation has published a white paper assessing the feasibility of creating a National Patient Safety Board to reduce preventable medical errors in facilities across the country.
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Content ArticleThis article describes the qualitative methodology developed for use in CIRAS (Confidential Incident Reporting and Analysis System), the confidential database set up for the UK railways by the University of Strathclyde. CIRAS is a project in which qualitative safety data are disidentified and then stored and analysed in a central database. Due to the confidential nature of the data provided, conventional (positivist) methods of checking their accuracy are not applicable; therefore a new methodology was developed – the Applied Hermeneutic Methodology (AHM). Based on Paul Ricoeur’s ‘hermeneutic arc’, this methodology uses appropriate computer software to provide a method of analysis that can be shown to be reliable (in the sense that consensus in interpretations between different interpreters can be demonstrated). Moreover, given that the classifiers of the textual elements can be represented in numeric form, AHM crosses the ‘qualitative–quantitative divide’. It is suggested that this methodology is more rigorous and philosophically coherent than existing methodologies and that it has implications for all areas of the health and social sciences where qualitative texts are analysed.
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Content ArticleAuthors of this article, published by Health Europa, argue that proactive patient safety and risk prevention are key to helping healthcare organisations surveil and mitigate global and local risks.
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Content Article
Acute Data Alignment Programme (ADAPt)
Claire Cox posted an article in Data and insight
The Acute Data Alignment Programme (ADAPt) is a joint programme between NHS Digital and the Private Healthcare Information Network (PHIN) which is looking to adopt common standards for data collections and performance measures across both the NHS and private healthcare. This will ensure that relevant information is consistently recorded and available so it can be more easily analysed and compared. The aims of ADAPt: To make it easier to monitor the quality and safety of services by including private healthcare data within healthcare reporting systems. To help staff keep accurate and complete records when a patient journey spans both private and public providers. To ensure transparency for patients by publishing comparable performance measures relating to quality of care and patient safety for both privately funded and NHS funded healthcare. To identify where the burden of data collection and reporting by NHS and private care providers can be reduced. Find out via the link below. -
Content ArticleNHS Digital are proposing to make changes in how private healthcare data is collected and with whom it is shared. This will involve trialling the suitability of existing NHS systems for the collection of private healthcare data and bringing it into line with the standards, processes and systems used for NHS funded care. These proposed changes are based on feedback the Acute Data Alignment Programme (ADAPt) programme has already received from a wide range of stakeholders. Wider insight from private and NHS healthcare providers, clinicians, the public and other key stakeholders is now welcomed as part of this consultation to ensure that we address any significant issues and concerns which could prevent the successful implementation of these changes. We expect this survey will take no more than 20 minutes to complete but will vary depending on the level of detail in your response.
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Content Article
Monitoring joint replacement surgery (August 2019)
Claire Cox posted an article in Research, data and insight
Thousands of people have joint replacement surgery every year and the National Joint Registry gathers together data on the outcomes of these surgeries. This allows surgeons and hospitals to monitor the success of their operations and ensure that the devices used are safe and effective. Individuals can also use the Registry to inform themselves better about the surgery which they are having. This short video explains what data is used and, more importantly, how it is used to ensure best outcomes for patients. -
Content Article
Why do we need to talk about patient data?
Claire Cox posted an article in Actions in response to data
This short video, by Understanding Patient Data, shows people talking about why it's important to use patient data, and why we need to better explain the benefits and safeguards. -
Content ArticleIn this US-based article, Christopher Jason discusses recent evidence that highlights how electronic health records (EHRs) have the potential to cause patient harm in various ways.
