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Showing results for tags 'Health inequalities'.
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Content ArticlePeople with a learning disability are more than twice as likely to die from avoidable causes than the rest of the population. Actor Tommy Jessop and BBC Panorama investigated some of the stories of families who say they were let down by their medical care.
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Content ArticlePeople with developmental disability have higher healthcare needs and lower life expectancy compared with the general population. Poor quality of care resulting from interpersonal and systemic discrimination may further entrench existing inequalities.
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Content ArticleMandy Anderton is a Clinical Nurse specialising in learning disability and a hub Topic Leader. Last month we asked her how GP practices can help improve health outcomes for people with learning disabilities. In this new blog, Mandy talks in depth about the cross-system programme they launched in Salford to improve the health of people with learning disabilities and reduce inequalities across primary care. Mandy shares their award-winning poster (attached), summarising the programme’s activities and outcomes, and gives her top tips for delivering a successful patient safety improvement project.
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Content ArticleDeveloped by David Havard, this poster shows a number of ways in which reasonable adjustments can easily be made for patients with a learning disability.
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Content ArticleSinead Heneghan is a GP based in the North West of England with a passion for reducing health inequalities. In this interview for Patient Safety Learning, Sinead tells us how she made sure COVID-19 vaccinations were prioritised for people with learning disabilities, when national guidance advised otherwise. She also explains how they took the opportunity locally to combine these face-to-face immunisation appointments with annual health checks, identifying unmet health needs that needed addressing.
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Systemic safety inequities for people with learning disabilities: a qualitative integrative analysis of the experiences of English health and social care for people with learning disabilities, their families and carers (28 January 2022)
Patient-Safety-Learning posted an article in Learning disabilities
This study in the International Journal for Equity in Health aimed to understand the care experiences of people with learning disabilities, and explore the potential patient safety issues that they and their carers raised. The authors examined the lived experience of care for people with learning disabilities through focus groups and narratives posted on the public platform Care Opinion. The study identified a series of safety inequities and gaps in systems affecting people with learning disabilities. The authors recommend considering interventions to protect against these inequities at a policy and organisational level and highlight that policy needs to span both health and social care.- Posted
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Content ArticleIn this Episode of the 'This Is Nursing' podcast series, Gavin Portier speaks to Amanda McKie, Matron -for Learning Disabilities & Complex Needs Coordinator at Calderdale & Huddersfield NHS Foundation Trust. In this episode Amanda talks about health inequalities, mental capacity, advocacy and high profile key documents such as Death by Indifference, the LeDer Mortality programme and the current case of Oliver McGowan. Learning disabilities is a life long condition and they can present in any areas of health care. In this podcast we discover how important it is to have an understanding an appreciation and insight into the care experience of a person with a learning disability and their parents or carers.
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Content ArticleBased on extensive interviews with the leaders of seven trusts in the NHS providing good or outstanding care to people with a learning disability and people with autism, and broader ongoing engagement with trusts providing these services, this report from NHS Providers sets out in detail the common themes behind high-quality care, offering detailed case studies of how these services have succeeded.
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- Learning disorders
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Challenging discrimination and stigma: Dementia
Claire Cox posted an article in Learning disabilities
This resource, produced by the MacIntyre Dementia Project, is designed to provide: An understanding of what discrimination and stigma is and how it can affect a person. Knowledge of how to recognise when a person is being discriminated against. Knowledge of who to report concerns to.- Posted
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Content ArticleThis review covers the impact the Eastern AHSN has delivered throughout the East of England and beyond in 2022/23, including an increased focus on fostering an innovation culture, tackling health inequalities, and supporting innovators to turn their ideas into positive health impact.
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Content ArticleThis guidance from the Chartered Institute of Ergonomics and Human Factors (CIEHF) outlines how human factors as a discipline can help address issues relating to equality, diversity, and inclusion (EDI). It looks at situations that cause EDI issues, including: confusing user interface language and terminology. ill-fitting personal protective equipment (PPE). biases in equipment design. It also examines the role of human factors in overcoming these issues, by: adopting a systems approach. using a participatory design process. applying specific HF methods to enhance EDI delivery.
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- Health inequalities
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Content ArticleThe #SolvingTogether platform is a place for people to post their ideas on how to recover services, redesign care delivery and address health inequalities. #SolvingTogether invites colleagues working on elective recovery to contribute their experiences, good practices, ideas, and comments on these challenges before it is opened for contributions more widely. Once #SolvingTogether is fully live, all stakeholders will have the opportunity to contribute and engage through tweet chats and a range of connect sessions.
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- Patient engagement
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Content ArticleThe Collaboration for Change is a group of two UK universities, nine community organisations and two small and medium size enterprises, who have conducted research on how to improve vaccine uptake among ethnic minority groups. This report outlines the results of a co-produced research study by the Collaboration for Change that combines research, evidence and lived experience to understand and improve vaccine uptake in ethnic minority communities. The report highlights the following factors influencing vaccine uptake: Using trusted messengers to encourage vaccine uptake may be a useful strategy to increase uptake in communities with low vaccination rates A lack of trust in the organisations and individuals encouraging vaccine uptake impacts vaccine uptake across many ethnic minority communities People are less likely to accept the offer of vaccination if little culturally and linguistically appropriate information is available to them, especially when their concerns are not covered Alongside the report, the Collaboration for Change has produced some recommended strategies to improve vaccine confidence and uptake.
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- Vaccination
- Ethnicity
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Content ArticlePeople with eating disorders often find it difficult to get help and treatment from the health system because of pervasive stigma, misinformation and stereotypes around eating disorders. In this blog, Hope Virgo, an eating disorder survivor and mental health campaigner, looks at the barriers people face when they try to access support, and talks about her own experience of being told she was ‘not thin enough for support’. She calls for long-overdue action on funding, training and awareness of eating disorders within the NHS.
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Content ArticleIn this episode of the Wild Card - Whose Shoes? podcast, Rachel Power, CEO of the Patients' Association talks about the importance of treating patients as equal partners in the health service. She shares insight on how to measure impact in difficult areas and overcoming barriers to shared decision making.
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- Patient engagement
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Content ArticleIn this blog for The Patients Association, Patient Safety Commissioner Henrietta Hughes looks at the importance of patient involvement in improving patient safety. She argues that patient voices should be embedded in the design and delivery of healthcare, and highlights that services and organisations need to seek feedback from patients from a wide variety of backgrounds. She also outlines why shared decision making and consent are vital to ensure patients are safe and have more control over their care and treatment.
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Supporting equity-centred engagement
Patient_Safety_Learning posted an article in Patient engagement
This guide was developed through a collaboration between the Public and Patient Engagement Collaborative (PPEC) and the Public Engagement in Health Policy (PEHP) Project at McMaster University. As groups and organisations seek to bring a stronger equity focus to their engagement work, there are many things to consider and a growing number of resources to support this work. The aim of this guide is to help you navigate the many helpful resources that exist to help centre equity in your engagement work. -
Content ArticleThis report by the user-led non-profit organisation Shaping Our Lives examines the results of a 2021 survey that explored people’s experiences of service user involvement. This research shows the current picture of involvement and explores the barriers that deaf and disabled people face when wanting to share their lived experience. The report contains recommendations for organisations that want to run truly inclusive, meaningful involvement to shape and improve their services.
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Content ArticleThis 1-page infographic makes the case for the development of health literate information. It sets out the average UK skills for literacy and numeracy, the impact this has on health and what information producers can do to develop information that works for everyone. The principles for development echo the PIF TICK criteria. They can be applied to all health information, in all formats whatever the topic – from vaccines to verruca. The infographic has been designed in response to member demand. It makes the case that health literate information is not 'dumbed down', rather it helps level up.
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- Health literacy
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Content ArticlePatient Information Forum (PIF) have launched a new website to help people find trusted health information. The PIF TICK website allows members of the public to see which organisations have the PIF TICK – the UK quality mark for health information – and offers advice on how to find trust health information.
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- Health literacy
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Content ArticleIf the NHS doesn't fund the medical treatment you need in your area, or you are unhappy about where you are going to be treated on the NHS, you have the legal right to go elsewhere and still be treated by the NHS, even if it's outside your local NHS Trust area. In this short blog, patient Verite Reily Collins writes about the rights patients have to choose where they receive their care, and how this may help overcome barriers in access to treatment.
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- Patient engagement
- Decision making
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Content ArticleEpistemic injustice sits at the intersection of ethics, epistemology, and social justice. Generally, this philosophical term describes when a person is wrongfully discredited as a knower; and within the clinical space, epistemic injustice is the underlying reason that some patient testimonies are valued above others. The following essay, published in Philosophy, Ethics, and Humanities in Medicine, seeks to connect patterns of social prejudice to the clinical realm in the United States: illustrating how factors such as race, gender identity, and socioeconomic status influence epistemic credence and associatively, the quality of healthcare a person receives.
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Content ArticleThe Patient Information Forum (PIF) has launched an update to the UK’s only assessed quality mark for print and digital health and care information. The update places a greater emphasis on inclusion and reflects the huge evolution in health and care information since the PIF TICK was launched in 2020.
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- Communication
- Organisation / service factors
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Content ArticleThe Accessible Information Standard is a set of principles for the presenting, sharing and discussing information with patients. It aims to make sure that people who have a disability, impairment or sensory loss get information that they can access and understand, and any communication support that they need from health and care services.
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- Patient engagement
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Content ArticleIn this blog, Dr Amy Proffitt, Royal College of Physicians (RCP) patient involvement officer, explores how the patient voice is represented in patient safety. She highlights the importance of engaging patients from a diverse range of backgrounds and responding to research that highlights particular populations who are experiencing worse outcomes. Eddie Kinsella, chair of the RCP’s Patient and Carer Network, then goes on to share his thoughts on patient safety, highlighting the role of patient partners in bringing about culture change in the NHS, and as advocates for the wider community, especially those who are most disadvantaged.
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- Patient engagement
- System safety
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