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Found 1,204 results
  1. Content Article
    A patient shares her experience of life-changing complications after a hysterectomy she had at a private hospital and the lack of follow up and help she's received since. She highlights the actions she would like to see in place for private hospitals around informed consent, follow up and support after surgery, and accountability. The patient wishes to remain anonymous.
  2. Content Article
    Blind and partially sighted people have a legal right to receive accessible health and care information. The RNIB has launched the #MyInfoMyWay campaign, and how to request information in a format you can read. Accessible health and care information allows people with sight loss to manage their health and care with the same level of independence and privacy as everyone else.
  3. Content Article
    This is part of our series of Patient Safety Spotlight interviews, where we talk to people working for patient safety about their role and what motivates them. Stephen talks to us about his time as turnaround Chair of Mid Staffordshire NHS Foundation Trust, how NHS boards can ensure they live their values and why creating a safe space to share concerns improves patient safety.
  4. Content Article
    This guide aims to help health and social care workers provide dementia care, which corresponds to the needs and wishes of people from a wide range of ethnic groups, especially minority ethnic groups.
  5. Content Article
    Approximately 8% of US doctors experience a malpractice claim annually. Most malpractice claims are a result of adverse events, which may or may not be a result of medical errors. However, not all medicolegal cases are the result of medical errors or negligence, but rather, may be associated with the individual nature of the patient-doctor relationship. The strength of this relationship may be partially determined by a physician’s emotional intelligence (EI), or his or her ability to monitor and regulate his or her emotions as well as the emotions of others. This review evaluates the role of EI in developing the patient-physician relationship and how EI may influence patient decisions to pursue medicolegal action.
  6. Content Article
    This series of blog posts is written by a patient who experienced life-changing complications after surgery went wrong. In her posts, they explore the psychological needs of patients following healthcare harm, which are often overlooked during physical rehabilitation. "I believe that the emotional support given to the patient during those first few weeks can make a significant difference to their long term quality of life. That’s why I decided to write this blog, to give constructive feedback to help medical professionals learn from my experiences."
  7. Content Article
    Health literacy, defined as an individual's ability to access, understand, and use health information to make informed decisions about their health and healthcare, plays a critical role in determining health outcomes. Wider determinants of health, on the other hand, refer to a range of social, economic, and environmental factors that influence an individual's health status. This article aims to explore the relationship between health literacy and the wider determinants of health, and how understanding this connection can contribute to more effective population health management and health equity.
  8. Content Article
    Guidance needs to be applied in a careful, caring and person-centred way to ensure that patients benefit from, and are not harmed by, healthcare. In this blog, Dr Sam Finnikin, an academic GP in Sutton Coldfield, uses the story of 86 year-old Joan to illustrate the importance of shared decision-making in ensuring patients receive the most appropriate care. Joan was prescribed multiple medications by the hospital cardiology team after being diagnosed with acute coronary syndrome and a severely impaired left ventricle, but the medications made her feel very unwell and inhibited her quality of life. Joan then reached out to her GP surgery as she wanted to stop taking them, and Dr Finnikin realised that she and her family were unaware of the the reason each medication had been prescribed and the potential benefits and side effects of each one. After a long conversation about her priorities, Joan stopped the medications that were not benefitting her symptoms and died in peace and comfort at home a few weeks later. Dr Finnikin argues that shared decision-making is not an optional extra, but must be considered a vital part of healthcare, stating that "omitting shared decision making can be just as harmful to patients as being ignorant of clinical recommendations."
  9. Content Article
    In this blog, interdisciplinary humanistic, systems and design practitioner Dr Stephen Shorrock explores the dangers of project leaders relying on assumptions about work-as-imagined, detached from the reality of contextualised work-as-done. He describes his experience working on a project in which he discovered that operational staff felt anxious and unprepared for the major changes to come. This was unacknowledged by management, and he ascribes their lack of awareness to a failure to physically and empathetically engage with the workers in the reality of the processes and systems management had designed. He highlights the importance of empathy and asks the question, "In your worlds, how connected are managers and other non-operational specialists with operational staff and the operational environment, where changes ultimately end up? Those who wish to support operational staff through change must take the role of pupil, or apprentice – not master."
  10. Content Article
     Failure to rescue is defined as mortality after complications during hospital care. Incidence ranges 10.9%–13.3% and several national reports such as National Confidential Enquiry into Patient Outcomes and Death and National Institute of Clinical Excellence CG 50 highlight failure to rescue as a significant problem for safe patient care. To avoid failure to rescue events, there must be successful escalation of care. Studies indicate that human factors such as situational awareness, team working, communication and a culture promoting safety contribute to avoidance of failure to rescue events. Understanding human factors is essential to developing work systems that mitigate barriers and facilitate prompt escalation of care. This qualitative evidence synthesis identifies and synthesise what is known about the human factors that affect escalation of care.
  11. News Article
    Masks worn by doctors "aggravated" a miscommunication over the dose of an anti-epileptic drug that resulted in a man's death, a coroner has warned. John Skinner died at Watford General Hospital in May 2020. A coroner has written a Prevention of Future Deaths Report (PFDR) saying he feared the same could happen at other hospitals if action was not taken. Assistant Coroner for Hertfordshire, Graham Danbury, said in the report: "As a result of failure in verbal communication between the doctors, aggravated as both were masked, a dose of 15mg/kg was heard as 50mg/kg and an overdose was administered." Mr Danbury, writing to NHS England, said: "This is a readily foreseeable confusion which could apply in any hospital and could be avoided by use of clearer and less confusable means of communication and expression of number." A spokesperson for West Hertfordshire Hospitals NHS Trust said: "A comprehensive action plan is in place to ensure that lessons are learned from this incident." Read full story Source: 15 February 2022
  12. News Article
    Barts Health NHS Trust has been told to take action to prevent future deaths after an elderly woman was unlawfully killed at one of its hospitals. East London acting senior coroner Graeme Irvine sent a report to the trust in which he raised concerns over the death of 78-year-old Surekha Shivalkar in 2018. The report follows an inquest into Mrs Shivalkar's death, which reached a narrative conclusion incorporating a finding of unlawful killing. A Barts spokesperson said the trust had made a number of changes after carrying out an investigation. Mrs Shivalkar underwent hip replacement revision surgery at Newham Hospital on September 28, 2018 in a procedure estimated to last between four and five hours, the coroner wrote. She had a number of serious conditions, including ischaemic heart disease, osteoporosis and chronic obstructive pulmonary disorder. But Mr Irvine said an inaccurate risk of death of less than 5% was given, as no formal risk assessment tool was used. The surgery took longer than seven and a half hours, during which time Mr Irvine said Mrs Shivalkar sustained a "prolonged and dangerous" period of hypotension, or low blood pressure. He said the anaesthetist failed to communicate this to the surgical team and agreed to prolong surgery at the six hour point. Mr Irvine said: "Poor communication between the orthopaedic surgical team and the anaesthetist during surgery led to a collective failure to identify a critically ill patient." Read full story Source: Newham Recorder, 17 January 2022
  13. News Article
    NHS leaders have been accused of downplaying the impact of the Covid crisis and putting hospitals under scrutiny for declaring critical incidents and postponing surgeries. A leaked email urges hospitals to use the “correct terminology” and make NHS leaders aware when declaring their status. Sources said the message was a “thinly veiled threat” and that there was “subtle pressure” amid rapid spread of Omicron. At least 24 trusts have declared critical incidents this week, including one in Northamptonshire on Friday afternoon, while new figures show a 59% rise in staff absences in just seven days. Trusts in London were told hospitals will be scrutinised for declaring a critical incident if there is “doubt” over the decision, according to an internal email sent from NHS England on Wednesday. In light of media coverage, it would be “valuable” to “raise awareness of the key terminology and encourage you to ensure that you are clear ... when considering a declaration,” it said. “National scrutiny on the declaration on incidents has heightened ... and [senior managers] will need to make additional enquiries where there is doubt as to the status of an organisation’s incident.” Shadow health secretary Wes Streeting said: “We know that the NHS is under enormous pressure and it is important that local trusts are able to be honest and open with parliament and the public about the challenges they’re facing. We are increasingly concerned that ministers are more interested in covering up problems than solving them.” Daisy Cooper, the Lib Dem Health spokesperson, said: “This is an insult to every health worker who has given their all, and every patient with cancelled appointments and delayed surgeries. Read full story Source: The Independent, 9 January 2022
  14. News Article
    A mum-of-four said she felt "fat-shamed" at a pregnancy scan and during follow-up appointments. Alexandra Dodds said her weight was raised at every appointment, and circled with a pen so vigorously in her notes that she wanted to lose them. "It was just kind of jokes, like 'hope you've stopped the Christmas snacks', or 'make sure you've thrown the box of chocolates away'," said Ms Dodds. "I didn't feel like it was said in a spiteful way to try to upset me, it was like banter, but I don't feel like you can banter about that," she added. Baby Brianna was born healthy at home before a midwife could arrive in July, last year. Alexandra said she only felt able to speak out about what she wanted during her pregnancy and labour because of three previous pregnancies. "If I feel any level of shame, that's just a clear indication that I have to talk about it, because it means I'm not the only person and other people will understand," she added. Joint research by Cardiff University and the British Pregnancy Advisory Service (BPAS) found women with higher BMIs felt stigmatised by risk messaging in maternity care. The Wrisk Project, which surveyed more than 7,000 women, looked at how risk is communicated in pregnancy following concerns it didn't always "reflect the evidence base". Clare Murphy, director of BPAS, said the work showed they hadn't got it right. "Pregnant women are often infantilized, and it feels like sometimes decisions are made about them, for them," she said. The Royal College of Midwives (RCM) said care should be based on respect and understanding of women's needs. Read full story Source: BBC News, 3 January 2021 Related resources My ob-gyn kept shaming me for my weight gain during pregnancy - patient video
  15. News Article
    ‘Unprofessional’ behaviours, a lack of compassion, and tension among staff and managers are all contributing to pockets of ‘poor culture’ at an acute trust. A Freedom to Speak Up report presented to the board of Buckinghamshire Healthcare Trust found there had been an increase in bullying and reports of staff members being “humiliated” during the last three months. The report, which covers the first two quarters of 2021-22, highlighted a “lack of compassion, kindness, and understanding” between colleagues and noted “increasing levels of frustration” that people are not being held to account for “unprofessional” poor behaviours. The report added the findings were not surprising due to the pressures of the pandemic experienced by staff. It found: “There appears to be an increase in the proportion of concerns around interpersonal behaviours and communication issues as well as levels of frustration and tension amongst staff and managers.” Read full story (paywalled) Source: HSJ, 24 November 2021
  16. News Article
    A management coach and adviser to the Care Quality Commission has been appointed as the new ‘national guardian’ for the ’freedom to speak up’ programme. Jayne Chidgey-Clark will take up her new role on 1 December. The national guardian’s office leads, trains and supports the network of over 700 freedom to speak up guardians in England, as well as providing “challenge and learning to the healthcare system”. Ms Chidgey-Clark, a registered nurse, has served as a specialist adviser to the CQC since 2017. She has run her own coaching, consultancy and interim management business since 2009. She was a clincial adviser to NHS England’s new care models programme for three years until 2018 and the director of the end of life care modernisation project at Guy’s and St Thomas’ Foundation Trust between 2008 and 2011. Her appointment comes after Henrietta Hughes announced in June she was stepping down from the role after five years. Ms Chidgey-Clark, who is the third appointee to the position, said: “I feel excited and privileged to have been appointed as the new National Guardian for the NHS. I am passionate about, and committed to, making a real difference in people’s lives through the planning and delivery of the highest quality, effective care with excellent outcomes for people who use our health services, and their families.” Read full story (paywalled) Source: HSJ, 11 November 2021
  17. News Article
    The NHS and private hospitals need to improve how they work together after the death of an NHS patient treated privately during the pandemic, a watchdog has warned. An investigation by the Healthcare Safety Investigation Branch (HSIB) found some private hospitals took on more complex patients than they were used to, while problems with communication and confusion over responsibilities created safety risks. It has called on the Care Quality Commission to do more to inspect how the two sectors work together and how patients are transferred between hospitals safely. It launched an inquiry after the death of a patient, known as Rodney, aged 58, who was due to have keyhole surgery to remove part of his bowel due to cancer. His NHS operation was cancelled and rebooked at a nearby private hospital after cancer services were transferred to the independent hospital due to COVID-19. Rodney was asked to sign a consent form for open bowel surgery, rather than the less invasive keyhole procedure, due to guidance at the time around a "potentially increased risk of COVID-19 transmission with laparoscopic surgery", the HSIB said. The cancerous part of his bowel was removed but eight days later his condition he deteriorated rapidly and was transferred to the local hospital so he could receive intensive care - which was not available at the private hospital. When he arrived at the NHS hospital, a scan and more surgery showed a leak in his bowel which led to sepsis and organ failure. He died later that day. As a result of the case, the HSIB launched a wider investigation into NHS surgical services being carried out in independent hospitals. Read full story Source: The Independent, 28 October 2021
  18. News Article
    In a bid to fight against misinformation about the coronavirus vaccines, a group of scientists from all over the world have created an online guide to building a ‘truth sandwich’. The guide serves to arm people with practical tips, up-to-date information and evidence to talk reliably about the vaccines, and enable them to constructively challenge associated myths. The scientists, led by the University of Bristol, are appealing to everyone to understand the facts set out in the 'COVID-19 Vaccine Communication Handbook', follow the guidance and spread the word. Professor Stephan Lewandowsky, the lead author of the guide, said: “Vaccines are our ticket to freedom and communication about them should be our passport to getting everyone on board." “The way all of us refer to and discuss the COVID-19 vaccines can literally help win the battle against this devastating virus by tackling misinformation and improving uptake, which is crucial." Read full story Source: The Independent, 7 January 2021
  19. News Article
    A mother of a young boy with Down's syndrome is helping to teach people about appropriate language, after being hurt by words people often used. Becca, from Cornwall, uses flashcards to make sure people are aware to say things like saying someone "has Down's syndrome", rather than "suffers with Down's syndrome". The campaign is being rolled out in hospitals for midwives and other healthcare workers to use, with many in the profession talking about it on social media. A children's clothing company has offered to run it, with her son Arthur as the model, and she has been asked to translate it into other languages. Source: BBC News, 15 October 2020
  20. News Article
    The stress and anxiety caused to patients by "poor communication" from NHS bodies in England during the covid pandemic has been criticised by MPs. While recognising the huge burden placed on the NHS, their report said cancelled treatments and surgery had left some "in limbo" and others "too scared" to seek medical help. The report also questioned why weekly testing of NHS staff had not yet begun. And it called for their mental and physical wellbeing to be supported. Jeremy Hunt, who chairs the Health and Social Care Committee, which compiled the report, praised the "heroic contribution" made by front-line NHS staff during the pandemic, which had saved many lives. But he said the pandemic had "massively impacted normal NHS services" and this situation could have been improved with clearer communication to patients and better infection control measures in hospitals. The report, based on evidence from doctors, nurses, patient groups and NHS leaders, said the case for routine testing for all NHS staff in all parts of the country was "compelling" and it should be introduced as soon as possible before winter to help reduce the spread of the virus. The government and NHS England told the committee they wanted to bring in routine testing of staff but any plans depended on the capacity available. Read full story Source: BBC News, 1 October 2020
  21. News Article
    Infant mortality is not "openly discussed" among some communities, a charity worker in Birmingham said, as the city attempts to tackle a long-standing problem. For the last decade, Birmingham has had one of the highest rates of infant mortality in England. The city council has set up a taskforce in a bid to halve the number of deaths. It heard rates were highest in deprived areas and among Black, Pakistani, and Bangladeshi heritage families. Shabana Qureshi is the women wellbeing manager for the Ashiana Community Project, a charity which works to improve quality of life for those living in Sparkbrook. Figures from the 2011 census show 87% of its population identified as being from an ethnic group other than White British, with the largest ethnic group being Pakistani. Many of women she works with, she said "don't know how to ask the right questions" and so are "not informed" about issues. Many people in the communities they work with, she said, have low education levels and are more likely to suffer with maternity health issues, but find it difficult to access services. "[Infant mortality] is not something that is discussed openly," she said. "A lot of women live within extended families and are sometimes not aware of the risks, they live with these conditions and health inequalities." She said any services which hope to tackle these problems need to involve communities, and be designed to be relatable, culturally sensitive and maintain trust. Read full story Source: BBC News, 22 April 2021
  22. News Article
    A ‘flurry’ of whistleblowers have raised concerns about the culture within an NHS trust which is grappling with finance and governance problems, its directors were told today. Staff at Cornwall Partnership Foundation Trust have reported a “command and control” culture at the trust, which last week apologised to its employees for overtime payments made to board members for extra hours worked during the first peak of the pandemic. It comes as the trust’s new chair and interim chief executive both pledged to communicate “openly and honestly” with staff. Read full story (paywalled) Source HSJ, 12 April 2021
  23. News Article
    A doctor told a panel investigating an NHS trust there has been a "cultural shift" in the way staff communicate with patients and their families. Southern Health NHS Foundation Trust is being investigated after failures in its care of five patients who died between 2011 and 2015. Dr Susie Carman said staff went through a "rough patch" when they "felt worried about doing the wrong thing". She said there was "more confidence" among staff to communicate better. The inquiry, which is due to last six weeks, is probing how the trust currently handles complaints, communicates with families of patients, and carries out investigations. It follows a report by Nigel Pascoe QC that found Southern Health, one of the biggest psychiatric trusts in England, acted with "disturbing insensitivity and a serious lack of proper communication" to family members. Dr Carman said there had since been a "genuine culture shift from the top of the organisation". She believed the trust could "still do things better" in its communication methods but said there was "more will about understanding why it (communication) is so important". The inquiry heard that a patient's "consent to share" information or not could present an "obstacle" in communicating with families and carers. Ahead of the inquiry, the bereaved families decided to withdraw from the process after they claimed to have been "misled, misrepresented and bullied" by the NHS. Read full story Source: BBC News, 10 March 2021
  24. News Article
    The unlawful or inappropriate use of “do not attempt cardiopulmonary resuscitation” (DNACPR) orders by some clinicians risks undermining the care of terminally ill patients, almost 40 leading doctors, nurses and charities have warned. During the coronavirus pandemic repeated examples of unlawful decisions have emerged including widespread blanket orders on care home residents and patients with learning disabilities. Now the charity Compassion in Dying along with Marie Curie, Hospice UK and Sue Ryder, as well as more than 30 GPs, nurses and doctors, are warning more must be done to listen to patients and their families. In a joint statement, signed by more than 30 clinicians, they warn: “There have been examples of poor practice in relation to DNACPR decision-making during the pandemic, and the distressing impact this has had on patients and families cannot be underestimated. It is essential to thoroughly understand and learn from these cases to ensure that they do not happen again." “We are aware that the benefits of DNACPR decisions can be easily undone if they are not accompanied by honest, open and sensitive communication with a person’s healthcare team. To ensure that everybody who encounters a DNACPR discussion has a positive experience, we need to do more to listen to individuals and their families; their wishes must be sought and documented, their questions answered and their feelings acknowledged. “A DNACPR decision must always involve the person, or those close to them, and should be part of a wider conversation about what matters to that individual.” Read full story Source: The Independent, 8 March 2021
  25. News Article
    People living with HIV in England and Wales can now choose to have their Covid vaccine through specialist clinics, without notifying their GP. NHS England has updated its guidance for people not comfortable with sharing their status. Everyone with HIV should be in vaccine priority groups four or six, and offered a jab by mid-April at the latest. But campaigners worried stigma would cause some to miss out. The updated guidance, obtained by the i newspaper, follows the lead of NHS Wales which put the same measures in place last week. Head of leading HIV charity the Terrence Higgins Trust, Ian Green, said: "Some may be surprised to hear that a significant number of people living with HIV feel unable to talk to their GP about their HIV status, but this underlines how much stigma still surrounds the virus even in 2021." "This is great news and the right decision from the NHS as it means people living with HIV will be able to take up the potentially life-saving Covid-19 vaccine at their earliest opportunity. We are working towards a society where everyone living with HIV feels comfortable sharing their status with their doctor and other health professionals, but we're not there yet and we welcome this fast, pragmatic action." Read full story Source: BBC News, 22 February 2021
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