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Showing results for tags 'Children and Young People'.
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Content Article
Andrew Stroud's daughter Bia has type 1 diabetes, and in this blog, Andrew talks about his family's experiences supporting Bia to manage her diabetes. He describes the huge value of technology in improving diabetes management and reducing the mental burden of the condition on people with diabetes and their parents and carers. However, like all technology, medical devices for diabetes can fail, and Andrew highlights the need to be prepared for this situation to ensure the person with diabetes is safe while they cannot use the devices they rely on every day. -
Content ArticleThis QualityWatch report, ‘Focus on: Emergency hospital care for children and young people’, shows changes in patterns of use over time and provides the basis for discussion about the quality of care for children and young people. The report analyses Hospital Episode Statistics from 2006/07 to 2015/16, giving a picture of how children and young people used emergency care at NHS hospitals over the past 10 years, what conditions they needed care for, and what may be happening to care quality in some areas. It finds that some age groups saw significant rises in emergency admissions, and many children were hospitalised for conditions that could be treated in other settings. The report, therefore, also raises questions about where children and young people can access high quality treatment outside the hospital emergency care setting.
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Content ArticleThe Royal College of Paediatrics and Child Health (RCPCH) is issuing the UK’s paediatricians with detailed advice on how they can help households in poverty. It has drawn up a series of resources, including advice for doctors treating children to use appointments to talk sensitively to their parents about issues that can have a big impact on their offspring’s health. These include diet, local pollution levels, socio-economic circumstances and difficulties at home or school, which are closely linked to children’s risk of being overweight, asthmatic or stressed.
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EventThis Westminster Health Forum conference will discuss the priorities for improving the health outcomes in babies and young children and the next steps for policy. It is taking place as The Rt Hon Andrea Leadsom MP, Government's Early Years Health Adviser - who is a keynote speaker at this conference - leads a review into improving health outcomes in babies and young children as part of the Government’s levelling up policy agenda. With the first phase of the review expected in early 2021, this conference will be an opportunity for stakeholders to discuss the priorities and latest thinking on improving health outcomes. The discussion is bringing together stakeholders with key policy officials who are due to attend from DHSC and the DfE. The agenda: The priorities for improving health outcomes for babies and young children. Understanding the importance of the first 1,000 days in child development' Improving child public health, reducing inequalities and the impact of social adversity in childhood. Identifying measures for supporting vulnerable and disadvantaged young children and families - and learning from the COVID-19 pandemic. Priorities for system-wide collaboration to address underlying health inequalities and key opportunities for improving health outcomes in young children going forward. Next steps for the commissioning of health services for children in the early stages of life. Improving health outcomes for young children across health and care - integrating services, care pathways, workforce training, and partnership working. Register
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EventuntilA webinar to mark the launch of the Patient Information Forum's updated 'Producing Health Information for Children and Young People' guide. The guide has been reviewed and updated for 2020 by an expert panel and will be published in November. The guide retains much of its core content but reflects new priorities including using digital tools, mental health, violence reduction and working with CYP from seldom heard groups, including looked after children and young carers. Registration
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Content ArticleRobbie Powell, 10, from Ystradgynlais, Powys, died at Swansea's Morriston Hospital, of Addison's disease in 1990. Four months earlier Addison's disease had been suspected by paediatricians at this hospital, when an ACTH test was ordered but was not carried out. Although Robbie's GPs were informed of the suspicion of Addison's disease, the need for the ACTH test and that Robbie should be immediately admitted back to hospital, if he became unwell, this crucial and lifesaving information was not communicated to Robbie's parents. At the time of Robbie's death, the Swansea Coroner refused the Powells' request for an inquest claiming that the child had died of natural causes. However, the Powells secured a 'Fiat' [Court Order] from the Attorney General in 2000 and an inquest took place in 2004, fourteen years after Robbie died. The verdict was 'natural causes contributed by neglect' confirming that an inquest should have taken place in 1990. Since Robbie's death, his father Will Powell, has mounted a long campaign to get a public inquiry into Robbie's case.
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Content Article
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Pain is spoken about often within health and social care. Patients might be asked to locate our pain during examinations, to rate our level of pain or to describe the type of pain we are feeling. They may be forewarned of the possibilities of pain occurring during or after procedures or operations. Medical consent forms often include reference to the risk of pain and require a signature to confirm they have been appropriately ‘informed’. Pain can be acute (lasting less than 12 weeks) or chronic (lasting more than 12 weeks), and the way we experience it, our thresholds, can also vary. It can be our body’s way of warning us of potential damage, yet it can also occur when no actual harm is happening to the body.[1] It can cause trauma, physiological reactions, mental health difficulties and chronic fatigue, and can have a huge impact on someone’s quality of life and ability to perform daily tasks.[2] Pain is undoubtedly complex, but is it a patient safety issue?[3] -
Content ArticleThis report is an update on the Care Quality Commission's (CQC's) work looking at the quality of, and access to, mental health services for children and young people.
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Content ArticleThis Royal College of Nursing (RCN) publication highlights the specific needs of children and young people undergoing day surgery, outlining pre- and post-operative aspects of care and preparation, parental involvement and facilitating discharge.
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Content ArticleParents know better than anyone if their child is not behaving as they usually do or seem different in some way. Studies have shown that caregivers are often the first people to spot changes in the health of their child, even when in a clinical environment. You should feel able to raise any concerns if you think something is ‘just not right’ with your child. Great Ormond Street Hospital has produced guidance on what to look out for and how to raise a concern if you are worried about your child when in hospital.
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Content ArticleThis self-help guide contains useful information for parents or guardians who are acting on behalf of babies or children who have been affected by avoidable harm in healthcare. If you have any further questions, please visit the Action Against Medical Accidents (AvMA) website where you will find more advice and a range of specialised self-help guides. Or you can call their helpline on 0845 123 2352.
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Content ArticleIn this chapter, Wilkinson and Savulescu describe the background to the Charlie Gard case and how it played out over the first half of 2017. They will look at how decisions about medical treatment are normally made and the role of the court in decisions. They outline some of the important ethical questions raised by the Gard case.
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Content ArticleOn 8 June 2017, the Supreme Court in the United Kingdom rejected a legal appeal in the high-profile case of Charlie Gard, a British infant with a severe genetic disorder whose parents had disagreed with medical professionals and were requesting treatment that the doctors believed was futile. The case was the latest in a series of UK legal cases where courts have authorised withdrawal of treatment against the wishes of parents. In such disputes, British judges have, with rare exception, sided with health professionals. In contrast, in North America when disputes have reached the court, the courts have invariably sided in favour of life-sustaining medical treatment requested by a loving family. Paris et al. discuss the case of Charlie Gard.
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Content ArticleOn 24 July 2017, the long-running, deeply tragic and emotionally fraught case of Charlie Gard reached its sad conclusion. Following further medical assessment of the infant, Charlie’s parents and doctors finally reached agreement that continuing medical treatment was not in Charlie’s best interests. Life support was subsequently withdrawn and Charlie died on 28 July 2017. This paper from Dominic Wilkinson and Julian Savulescu summarises the case and looks at the key factual and ethical questions arising from the Charlie Gard case, and parents’ role in decision-making for children.
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Content ArticleIt can be confusing to know what to do when your baby or child is unwell during the coronavirus pandemic. The Royal College of Paediatrics and Child Health has developed posters for families living in England, Scotland, Wales (in English and Welsh languages) and Northern Ireland about when and how to get medical help for your child, or for your young baby, or for yourself as a young person.
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Content ArticleAs the UK emerges from the COVID-19 pandemic ‘Build Back Better’ has become the mantra. Important, but we need to Build Back Fairer. The levels of social, environmental and economic inequality in society are damaging health and wellbeing. The aim of this report from the Institute of Health Equity is three-fold: To examine inequalities in COVID-19 mortality. Focus is on inequalities in mortality among members of BAME groups and among certain occupations, alongside continued attention to the socioeconomic gradient in health – the more deprived the area, the worse COVID-19 mortality tends to be. To show the effects that the pandemic, and the societal response to contain the pandemic, have had on social and economic inequalities, their effects on mental and physical health, and their likely effects on health inequalities in the future. To make recommendations on what needs to be done.
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Content Article
As college students return, a crisis in campus care awaits
lzipperer posted an article in Coronavirus (COVID-19)
Health services in college and university campuses are under pressure to respond to COVID-19 with patient safety in mind. This article from Abelson et al. in The Seattle Times discusses weakness in university health services that undermine their ability to do so. It shares interviews with students that discuss misdiagnosis and diagnostic delays due to the impact of the pandemic. -
Content Article
Prevention of Future Deaths report: Karanbir Cheema
PatientSafetyLearning Team posted an article in Coroner reports
On 28 June 2017, 13 year-old Karanbir Cheemer was at school when another pupil threw a small piece of cheese at him. He was known to be allergic to cheese and he went into anaphylactic shock. Karanbir later died. In this report, senior coroner ME Hassell, highlights a number of patient safety concerns relating to his death and calls for action to prevent future deaths. -
Content ArticleAuthors of this article, previous argued that inadequately managed pain in children should be considered an adverse event, a harmful patient outcome. They argued that inadequately managed pain meets the definition of an adverse event and further hypothesised that treating pain as an adverse event may improve care by raising health care administrators and quality improvement experts’ awareness of this issue. In this article, published in the Journal of Child Care Health five years on, they reflect on the progress made in both moving this proposition forward and testing out the concept. They then move on to look at what still needs to be done to ensure that children’s pain is managed effectively.
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Content ArticleThe coronavirus (Covid-19) pandemic will leave a deep and lasting scar on the mental health of millions in this country. The devastating loss of life, the impact of lockdown and loneliness, and the inevitable recession that lies ahead will affect all of us. New mental health problems have developed as a result of the pandemic and existing mental health problems have gotten worse. To understand how they can best support people during this uncertain time, Mind carried out research to understand the experiences of people with pre-existing mental health problems, the challenges that they are facing, the coping strategies that they are using, and the support they would like to receive.
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Content Article
Remaking a children's hospital in Minecraft
Claire Cox posted an article in Patient recovery
Microsoft teamed up with staff at Great Ormond Street Hospital for Sick Children to recreate the hospital in minecraft so that children visiting have a 'virtual tour' before arriving. -
Content Article
Children with Cancer: A day in the life Laraib
Claire Cox posted an article in By patients and public
Children with Cancer UK is a charity whose mission is to improve survival rates and the quality of survival in young cancer patients, and to find ways to prevent cancer in the future. They fund groundbreaking research to help children with cancer. They,raise awareness to inspire others to help, and they support families with our welfare projects. In these videos, follow Laraib, an inspiring child diagnosed with acute lymphoblastic leukaemia (ALL), through a 24-hour window into her life. Understand what it means to be a child living with cancer and learn about the vast support network that’s needed to care for those affected by the disease. -
Content ArticleA communication passport is a way of supporting a vulnerable person with communication difficulties when they have to transition through different events, such as changing schools, or their first job. Ryan’s family made a specific communication passport for his medical file so that all the medical professionals could learn a little about Ryan before they met him and therefore be better prepared and able to interact with him. Here, his mum shares their example to illustrate how it can be used to improve quality of care.
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Content ArticleSam Morrish, a three-year-old boy, died from sepsis on 23 December 2010. An investigation, undertaken by the Parliamentary and Health Service Ombudsmen (PSHO) in 2014, found that had Sam received appropriate care and treatment, he would have survived. Yet, previous NHS investigations failed to uncover that his death was avoidable. So the family asked PSHO to undertake a second investigation to find out why the NHS was unable to give them the answers they deserved after the tragic death of their son.
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Content Article
Re-ACT Talks – child deterioration: human factors (March 2015)
Claire Cox posted an article in Paediatrics
Child deterioration: human factors is a presentation by Peter-Marc Fortune, Consultant Paediatric Intensivist, Associate Clinical Head, Royal Manchester Children’s Hospital.
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