Search the hub
Showing results for tags 'Information sharing'.
Found 325 results
-
Content Article
.png.38e124dbc4d893cebb5b01f281b93bce.png)
The Office for National Statistics estimates that in December 2021, 1.2 million people in the UK were living with Long Covid. Long Covid is a condition characterised by ongoing symptoms that last for months and even years after an initial Covid-19 infection. It is a difficult condition to diagnose, and nearly two years since it was first seen, medical understanding of Long Covid is still limited. People living with Long Covid often express frustration at misconceptions about the condition that are prevalent amongst medical professionals, policy makers and the general public. In this article, we highlight some of these myths, explain why they are inaccurate and describe the damage they can cause to people living with the condition. -
Content Article
The 12 days of digital patient safety
Clive Flashman posted an article in Digital health and care service provision
A couple of weeks ago, I presented some of the ideas I’ve had around digital clinical safety. This was seasonally branded, ‘The 12 days of Digital Patient Safety’. The 12 issues that were on my list comprised: AI – regulation, ethics and testing. Patient safety not built into the innovation process (co-design and co-production with patients is required). Patient safety (in use) not effectively built into the digital health compliance systems. Poor user experience (design). The safety of medical devices, e.g. remote hacking. Privacy and consent around data. Fragmentation of patient records and data. Lack of interoperability. Cybersecurity. Patient digital and health literacy. Clinician attitudes and knowledge of digital technologies. The barriers to EHR integration (and poor use of patient-generated data). There was only time on the webinar to cover points 2, 3, 6 and 10; I hope that we can have further session in 2022 where we can discuss the others. -
Content ArticleWomen are entitled to clear information on the risks and benefits of different options in order to make informed decisions about the birth of their babies. Rates of induction are rising. One in three pregnancies is induced in Great Britain, according to most recent data. Earlier this year Patient Information Fortum (PIF) members raised concerns about availability of information to support decision-making on induction of labour. PIF responded by collaborating on a survey with maternity charities including Tommy’s, Bliss and Birthrights. The results are sobering and show there is much to do to put personalised care and shared decision making into practice in maternity care.
-
Content Article
This is the first of a short series of blogs in which we take a look back at our work in five areas of patient safety during 2021. This blog explores how the hub has encouraged collaboration, connection and the sharing of patient safety solutions. Through our work, Patient Safety Learning seeks to harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. We believe patient safety is not just another priority; it is a core purpose of health and social care. Patient safety should not be negotiable. -
Content Article
ABPI: What is legitimate interests? (9 December 2021)
Patient-Safety-Learning posted an article in Good practice
Disclosure UK is the Database on which all pharmaceutical companies abiding by the Association of the British Pharmaceutical Industry (ABPI) Code of Practice must disclose ‘transfers of value’ to healthcare professionals, other relevant decision makers and healthcare organisations in the UK. Where possible, companies do this by naming the individuals and organisations and according to GDPR law, companies must identify an appropriate lawful basis before they process an individual's information. This guidance document by the ABPI is aimed at pharmaceutical companies using Disclosure UK. It explains and promotes the choice of the basis of 'legitimate interests' for disclosure, with the aim of increasing transparency in the relationships between healthcare professionals, other relevant decision-makers and the industry. -
Content ArticleThe Health System Response Monitor (HSRM) has been designed in response to the COVID-19 outbreak to collect and organise up-to-date information on how countries are responding to the crisis. It focuses primarily on the responses of health systems but also captures wider public health initiatives. This is a joint undertaking of the WHO Regional Office for Europe, the European Commission, and the European Observatory on Health Systems and Policies.
-
Content ArticleThese free e-learning courses about communicating the potential harms and benefits of treatment to patients have been produced by the Winton Centre for Risk & Evidence Communication, the Academy of Medical Royal Colleges in the UK and the Australian Commission on Safety & Quality in Healthcare.
-
News Article
Did bad vaccine advice cost Samantha Willis her life?
Patient Safety Learning posted a news article in News
When the UK’s jab programme began, expectant mothers were told to steer clear – so Samantha decided to wait until she had had her baby. Two weeks after giving birth, she died in hospital from Covid. Samantha was unvaccinated – she had received advice against getting jabbed at an antenatal appointment. When the Covid vaccine programme began in the UK on 8 December 2020, pregnant women were told not to get vaccinated. But in October 2020, the Royal College of Obstetricians and Gynaecologists (RCOG) published guidance warning that “intensive care admission may be more common in pregnant women with Covid-19 than in non-pregnant women of the same age” and that pregnant women with Covid were three times more likely to have a preterm birth. Further evidence emerged in 2021 indicating that pregnant women were particularly vulnerable to Covid, especially in their final trimester. Research from the University of Washington, published in January, found that pregnant women were 13 times more likely to die from Covid than people of a similar age who were not pregnant. But throughout February and March, the JCVI’s scientists did not appear especially concerned about examining the case for vaccinating pregnant women. Priority in the early stages of the vaccine programme was being given to older people, so many pregnant women remained towards the back of the queue. The maternity campaign group Pregnant Then Screwed said: “If you look at who was on the Covid war cabinet and leading the daily briefing, it was nearly all men,” says Joeli Brearley, its founder. “Pregnant women were treated as if they were very similar to the general population, rather than being seen as a special cohort that needs special consideration. They were just not a priority.” Read full story Source: The Guardian, 23 November 2021 -
News Article
Patient Safety Learning joins the National Voices coalition
Patient Safety Learning posted a news article in News
Press release: 23 November 2021 We are pleased to announce that Patient Safety Learning is now a member of National Voices, the leading coalition of health and social care charities in England. Members of National Voices work together to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them. Commenting on today’s announcement, Patient Safety Learning’s Chief Executive Helen Hughes said: “We are delighted to have joined National Voices. To reduce avoidable harm in health and social care we all need to work in partnership to identify patient safety concerns, highlight where changes are needed and share good practice, to help deliver the systemic change required to create a patient-safe future. We look forward to working closely with partners in National Voices going forward to help improve patient safety.” Notes to editors: Patient Safety Learning is a charity and independent voice for improving patient safety. We harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change and the reduction of avoidable harm. National Voices is the leading coalition of health and social care charities in England. We have more than 180 members covering a diverse range of health conditions and communities, connecting us with the experiences of millions of people. We work together to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them. -
Content ArticleThere has been little applied learning from organisations engaged in making evidence useful for decision makers. More focus has been given either to the work of individuals as knowledge brokers or to theoretical frameworks on embedding evidence. More intelligence is needed on the practice of knowledge intermediation. This paper from Tara Lamont and Elaine Maxwell describes the evolution of approaches by one UK Centre to promote and embed evidence in health and care services.
-
Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help family members and carers of severe stroke patients under 60 understand the risks and benefits of decompressive hemicraniectomy, so that they can make an informed decision about treatment.
-
Content ArticleThis patient decision aid from the National Institute for Health and Care Excellence (NICE) aims to help patients with high blood pressure understand the risks and benefits of different treatment options so that they can make an informed decision about their care.
-
Content Article
Positive patient safety: how Mustard can help
HelenH posted an article in Improving patient safety
In this blog Patient Safety Learning’s Chief Executive, Helen Hughes, reflects on her recent experience attending a meeting of the Patient Safety Management Network and hearing about the work of the Quality and Safety Department at the Sussex Community NHS Foundation Trust. -
Content ArticleThis is a presentation given by the Quality and Safety Department at the Sussex Community NHS Foundation Trust to the Patient Safety Management Network on 22 October 2021. It provides an overview of how they have been developing the Trust’s approach to patient safety, focusing on safety culture, learning for improvement and aiming to raise the profile of patient safety within their organisation.
-
Content Article
In this blog, Claire Cox, Quality Improvement and Patient Safety Manager at Guys and St Thomas' Hospital NHS Foundation Trust, explains why and how she developed the Patient Safety Management Network. She looks at why the network is needed, what it has achieved so far, its aims for the future and how patient safety managers can get involved. -
Content ArticleA Patient Safety Huddle is a brief multidisciplinary daily meeting held to discuss threats to patient safety and actions to mitigate risk. This evaluation of The Huddle Up for Safer Healthcare (HUSH) project in BMC Health Services Research aims to assess the impact on teamwork and safety culture of the project, which implemented PSHs in 92 wards at five hospitals, across three NHS Trusts. This paper also seeks to add to the evidence-base around huddles as a mechanism for improving safety.
-
Content ArticleToo often in healthcare, when effective solutions to prevent avoidable harm are found, there is a lack of means to share these more widely. This gap between learning and implementation means that while we may we know what improves patient safety, this information can often remain siloed in specific organisations and health care systems. This results in patients continuing to experience harm from problems that have already been addressed by others. This article published in the Journal of Patient Safety and Risk Management describes how the charity Patient Safety Learning created the hub, a platform to encourage and support shared learning for patient safety. Designed by and for patient safety professionals, clinicians and patients, the hub offers a powerful combination of tools, resources, stories, ideas, case studies and good practice to anyone who wants to make care safer for patients.
-
Content ArticlePatients and their families are usually the first to notice new or changing symptoms and they can play an important role in preventing diagnostic errors. This blog in BMJ Opinion describes how researchers, healthcare professionals and patients worked together to develop OurDX, an online tool designed to improve the efficiency of medical appointments and reduce diagnostic errors.
-
News Article
Pregnant women at risk from NHS workers’ mixed messages over safety of jab
Patient Safety Learning posted a news article in News
Pregnant women are being advised by some health professionals not to have the Covid vaccine despite an edict from the NHS that they should encourage them to get the jab. One in six of the most critically ill Covid patients requiring life-saving care are unvaccinated pregnant women, figures released last week show. Yet messages sent to the Vaccines and Pregnancy helpline, launched on 20 August to help pregnant women navigate information about the vaccine, suggest that some midwives are advising against the jab. One said: “I was initially keen to have the vaccine and then advised by a midwife not to have it.” Another wrote: “I had my first dose before I knew I was pregnant. Now I’m pregnant I’ve been told I’m not allowed my second.” Another reported: “I’ve been advised by midwives not to get the vaccine due to the impact on ovulation and menstruation.” The helpline was set up by the organisation Full Fact in partnership with the campaign group Pregnant Then Screwed. Many of those contacting it complained of conflicting advice while others were pushed from pillar to post. One said: “I’m pregnant and really confused about getting the vaccine. I’ve spoken to my health visitor, who said speak to your GP, the GP said speak to your midwife, and the midwife said they can’t advise me.” Full Fact’s deputy editor, Claire Milne, said the helpline was established to counter misinformation about the vaccine. She explained: “It’s not right so many pregnant women have been left scared for their safety and that of their unborn children. “Messaging around the safety of the vaccines in pregnancy has been, at times, confused. It’s vital that up-to-date information is available – especially when speaking with health professionals.” Read full story Source: The Guardian, 17 October 2021 -
Content ArticleLegal expert David Reissner runs through new guidance recommending the appointment of Caldicott Guardians, who are responsible for advising organisations on the ways they hold and process confidential patient information.
-
Content ArticleThe Medicines & Healthcare products Regulatory Agency (MHRA)'s first 'Patient Involvement Strategy' sets out how they will engage and involve the public and patients at each stage of the regulatory journey. The MHRA involved patients throughout the process of developing this strategy and carried out a final public consultation before it was published. The strategy identifies five priority areas for the MHRA: Patient and public involvement Responsiveness Internal culture Measuring outcomes Partnerships.
-
News Article
NHS needs to ‘radically simplify’ data sharing rules, says tech chief
Patient Safety Learning posted a news article in News
A national tech chief has called for a ‘radical simplification’ of the way in which NHS patients can opt out of having their data shared. NHSX chief executive Matthew Gould today said the current system was “overly complicated” with “too many different opt out mechanisms” and it needs to be made “super simple” for the public. His comments come as NHSX, NHS Digital and the Department of Health and Social Care are working on the much-delayed and controversial GP data-sharing programme. The scheme was paused indefinitely this summer after backlash from GPs and campaigners. Speaking at the Healthcare Excellence Through Technology conference, Mr Gould said the NHS had a “rich history of misfiring” on getting the public’s trust for data-sharing projects, which included the recent furore around the paused General Practice Data for Planning and Research. He said: “Where we are at the moment is an overcomplicated overlap of too many different opt out mechanisms and we’re trying to work out how to radically simplify this." Read full story (paywalled) Source: HSJ, 28 September 2021 -
Content Article
.png.87eec759da0e5059941ea9b3bb4306f4.png)
Did you know unsafe care is one of the ten leading causes of death and disability worldwide?[1] Or that it is estimated this leads to 11,000 avoidable deaths per year in the UK?[2] At Patient Safety Learning our vision is for a world where patients are free from avoidable harm. We want to bring people together, to harness the knowledge, enthusiasm and commitment of healthcare organisations, professionals and patients, for system-wide change. That's why we created our patient safety platform - the hub. Find out more about the benefits and how you can join… -
News Article
TikTok video of IUD removal at home prompts warning from health authorities
Patient Safety Learning posted a news article in News
A TikTok user who went viral with a video of herself removing her implanted birth control device has prompted calls among sexual health experts for better monitoring of social media platforms. In a video which has gained over 178,000 likes, TikTok user Mikkie Gallagher is filmed performing a ‘DIY IUD removal’ wearing medical gloves, writing on top of the post: “A lot easier than I thought TBH,” and “Catch of the day: Mirena IUD, 2 inches”. An intrauterine device (IUD) is inserted into the uterus to prevent pregnancy and sometimes assist in relieving period pain. They usually need to be taken out every five to 10 years depending on the type. Women can choose when to have them removed. Family Planning Victoria CEO, Claire Vissenga, said she found it very concerning that “DIY could pass as healthcare or professional assistance”. “... it’s just a ridiculous thing to do. Removing an IUD potentially does physical damage, and could complicate contraception,” says Vissenga Family Planning medical director, Kathleen McNamee, said 80% of DIY IUD removals failed, leading to GP or emergency visits. “If the person dislodges the IUD in a failed attempt, it could no longer be effective as a contraceptive method and result in an unwanted pregnancy,” she said. Read full story Source: The Guardian, 24 September 2021 -
EventuntilThis online event is an important update for prescribers, and for those who take prescribed medicines, on the RPS Prescribing Competency Framework. This framework was originally produced in by the National Prescribing Centre as a competency framework for all prescribers, and updated by the Royal Pharmaceutical Society (RPS) in 2016. Join this event to: Hear about the changes to the RPS competency framework for all prescribers. Hear how others in pharmacy and other healthcare professions are using the framework. Ask questions to colleagues who were involved in updating the framework. Register
.png.38e124dbc4d893cebb5b01f281b93bce.png)
.png.87eec759da0e5059941ea9b3bb4306f4.png)
