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EventuntilCare experienced young people are much more likely to experience poorer health, wellbeing, social and educational outcomes compared with the general population. These inequalities are not new, but were exacerbated by Covid-19 as care leavers experienced disrupted relationships and reduced access to support services. Specific groups of care leavers are likely to face additional disadvantages, such as those from ethnic minority backgrounds, unaccompanied refugee and asylum seeking children and/or disabled young people. Yet the health and health inequalities of young care leavers have largely been ignored within policy and practice. As part of AYPH’s youth health inequalities programme we reviewed the available evidence and undertook a youth engagement project with young people to draw together what we know. In this webinar you will hear directly from young people who will share their experiences of the barriers they face in leading healthy lives and accessing healthcare services. We will also highlight the latest available data on care leavers and health outcomes, demonstrating where inequalities exist for young people aged 10-25. During the event we will be launching two major publications that explore in more detail the role of care experience in understanding young people’s health, this will be the first opportunity to hear the learnings and recommendations from this research. The webinar is hosted jointly by the Association for Young People's Health and Coram Voice and will be co-chaired by a young person with experience on this topic. We will be joined by a range of expert speakers – more information to follow soon. Register for the webinar
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Content Article
Constipation can be a life–threatening issue for people with a learning disability who are at heightened risk from complications if it is left untreated. This campaign has been developed by NHS England to support people with a learning disability, their carers and people who work in primary care to recognise the signs of constipation. Resources have been co–created with input from the Down’s Syndrome Association, Mencap and Pathways Associates to ensure that they are fit for purpose. The resources aim to: Drive awareness of the seriousness of constipation Help people recognise the signs of constipation at an early stage Empower people to take action and ensure that people with a learning disability experiencing constipation get the right health support straight away Raise awareness of the steps which can be taken to prevent constipation. -
Content Article
As reported recently, the Scottish Healthcare Workers Coalition called upon the Scottish Government to reinstate 'universal masking' in health and social care settings. In this statement written in support of their campaign, an occupational safety and health practitioner, David Osborn, explains the legal requirements for risk assessments that the Government ought to have undertaken before reaching such a decision that exposes healthcare staff to the life-changing consequences associated with repeat Covid-19 infections. He also explains the legal duty of the Government to consult with workers before implementing changes that may affect their health and safety. Neither duty (risk assessment nor prior consultation with workers) appears to have been well met, putting the Scottish Government and Health Boards in breach of UK-wide health and safety law. -
Content ArticleThe Safe Care at Home Review is an important reminder that people with care and support needs may experience abuse and neglect, sometimes under the guise of ‘care’. Older people, or people with disabilities, may be particularly vulnerable to harm because of their dependence on others and the complexity of their care needs. They might rely on other people for physical, mental or financial support, and may face difficulties recognising or reporting harm. The review draws on a range of evidence, including the Home Office funded Vulnerability Knowledge and Practice Programme, which has highlighted that one in six domestic homicides involved people who were cared for by, or caring for, the suspect.
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News Article
NHS health chiefs demand an ‘urgent’ plan to tackle the social care crisis
Patient Safety Learning posted a news article in News
Healthcare leaders have called for an urgent plan to tackle the social care crisis, warning Rishi Sunak there is “clear concern” over an ongoing failure to tackle staff shortages. The warning from Matthew Taylor, chief executive of NHS Confederation which represents hospitals and community services, comes after the publication of the long-awaited £2.4bn NHS workforce plan, which committed to 300,000 extra nurses and doctors in the coming years. Mr Taylor said any benefits to improve NHS staffing will be “limited” without an equivalent strategy for the social care sector, which currently has 165,000 vacant posts. Health bosses, represented by NHS Confederation, have now written to the prime minister asking for “urgent intervention” and calling for a clear plan for improving pay and conditions to attract staff. Martin Green, chief executive for Care England that represents care homes, warned that the sector “is in the midst of a workforce crisis, which is going to get worse not getting better”. He welcomed the NHS Confederation’s letter and said unless similar improvements were made within social care, there would be more “cancelled operations, more people languishing in hospital when they don’t need to and the whole breakdown of the system”. Read full story Source: The Independent, 2 July 2023 -
Content ArticlePersonalised Care will benefit up to 2.5 million people by 2024. It aims to give people the same choice and control over their mental and physical health that they have come to expect in every other aspect of their life. Personalised care is based on ‘what matters’ to people and their individual strengths and needs. This webpage by NHS England contains information about the following aspects of personalised care: Patient choice Shared decision making Patient activation and supported self-management Social Prescribing and community based support Personalised care and support planning Personal health budgets
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Content Article
UK Covid-19 Inquiry website
Patient Safety Learning posted an article in Covid-19 Inquiry
The UK Covid-19 Inquiry has been set up to examine the UK’s response to and impact of the Covid-19 pandemic, and learn lessons for the future. The Inquiry’s work is guided by its Terms of Reference. -
Content ArticleUnpaid carers provide significant levels of support to family or friends–equivalent to four million paid care workers. Carers often need support with their own health and wellbeing, but they are not always able to access this. Researchers from The King's Fund interviewed commissioners and providers of support to unpaid carers, ran focus groups with unpaid carers in four areas of England, spoke to national stakeholders and reviewed existing literature and national data sets, in order to understand the current picture of local support available for unpaid carers in England.
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News Article
Ministers seek volunteer social care army to speed up hospital discharges
Patient Safety Learning posted a news article in News
Health ministers are to recruit a new volunteer army for social care to ferry medical equipment and drugs to people’s homes in a bid to free up congested hospital wards. Under the plan, members of the public will be able to sign up on the GoodSam app for roles such as “check in and chat”, which involves support over the phone for people struggling with loneliness. There will also be the chance to “pick up and deliver”, helping to transport medicines or small items of medical equipment to people’s homes from NHS sites so they can be discharged from hospital, and “community response” roles will involve collecting and delivering shopping and prescriptions. The joint NHS and social care volunteers responders programme for England is being launched on Wednesday amid a social care staffing crisis with 165,000 vacancies and millions of hours of care needs not being met. At the end of April, 49,000 people every day had to stay in NHS hospitals in England despite no longer meeting the criteria to be there. News of the planned announcement from the care minister, Helen Whately, has sparked concern among workers in the sector, who warned that volunteering could not solve the social care recruitment and retention crisis. Helen Wildbore, director of Care Rights UK, which represents relatives and residents, said it “feels like a desperate measure to try and save a system that is crumbling”. Read full story Source: The Guardian, 6 June 2023 -
Content Article
The TEC Action Alliance, in partnership with over 30 organisations, has released a challenge paper titled “Technology-Enabled Lives: Delivering Outcomes for People and Providers.” The paper highlights the lack of widespread adoption of digital social care services despite the public’s desire for technology to better support those who draw on social care and health services. The paper reveals that only a handful of councils, housing, and care organisations are delivering digital care in people’s homes at scale. This is despite evidence that using technology in social care keeps people safe, healthy, and happy at home. -
Content Article
At Patient Safety Learning we believe that sharing insights and learning is vital to improving outcomes and reducing harm. That's why we created the hub; providing a space for people to come together and share their experiences, resources and good practice examples. Dementia is an umbrella term for a number of diseases that affect the brain, with Alzheimer’s disease its most common cause. We have picked nine resources and reflections about keeping people with dementia safe in health and care settings, and when considering medication choices. -
News Article
What the NHS is learning from Brazil
Patient Safety Learning posted a news article in News
Knocking on doors to check on people's health and catch problems before they escalate is common practice across Brazil. But could that approach work in the UK? Comfort and Nahima are two out of four door-knockers on round Churchill Gardens, a council estate in the Pimlico neighbourhood of London, visiting residents as part of a proactive community healthcare pilot. They can help with anything from housing issues which impact health, such as overcrowding, or pick up the early signs of diabetes by chatting informally to residents about their lifestyle. These community health workers are partly funded by the local authority and partly by the NHS so they can co-ordinate between the local GP surgery and other social services. Local GP Dr Connie Junghans-Minton says the proactive approach had led to fewer requests for appointments The National Institute for Health Research helped crunch the data from the pilot. Households which had been visited regularly were 47% more likely to have received immunisations and 82% more likely to have taken up cancer screening, compared to other areas. The idea to import this model to the UK came from Dr Matthew Harris, a public health expert at Imperial College London who worked as a GP in Brazil for four years. There, community health workers have been credited with achieving a drop of 34% in cardiovascular deaths. "In Brazil they have scaled this role to such degree that they have 270,000 community health workers across the whole country, each of which looks after 150 households, visiting them at least once a month," Dr Harris said. "They've seen extraordinary outcomes in terms of population health in the last two or three decades. We think we've got a lot to learn from that." Read full story Source: BBC News, 9 May 2023 -
News Article
‘A fundamental lack of awareness that these people are actually human’
Patient Safety Learning posted a news article in News
The Government’s “blanket erasure” of older people with learning disabilities is leaving a growing population unsupported and piling further pressure on family carers, new research will warn. Byline Times has seen early findings from a forthcoming national study which outlines the urgent need to avoid a crisis by creating a government strategy for this unacknowledged community. With around 1.5 million people with learning disabilities in the UK, Manchester Metropolitan University (MMU)’s ‘Growing Older Planning Ahead‘ research lays bare the Government’s short-sighted approach to learning disability support. The study estimates around 81,000 over-50s within this population in England alone, many of whom are not in contact with services. In addition, figures show that between 2012 and 2030 in England, the number of learning disabled people needing social care will have increased by almost 70% (from more than 140,000 to 235,000). Sara Ryan, MMU Professor of Social Care who led the three-year project, said: “Ageing opens up all sorts of different things, you turn down the dial on some things and up on others. If you’re lucky enough, you have a lot to look forward to – but for people with learning disabilities, there’s a blanket erasure of age.” Read full story Source: Byline Times, 3 May 2023 -
Content ArticleUnpaid carers play a substantial and vital role in meeting social care needs. The care they provide has enormous value, both for the people they care for and for wider society. Many carers experience great satisfaction from their role, and through the help and support they provide to friends and family members they may also reduce the costs of formal social care provision. At the same time, caring responsibilities can come at a high personal and financial cost, despite the 2014 Care Act giving carers the right to receive support. 1 in 5 carers report feeling socially isolated and 4 in 10 report financial difficulties because of their caring role. This report by The Health Foundation aims to explore national data on the number of unpaid carers and trends over time, as well as which groups are more likely to have caring responsibilities and who they provide care for. It gives an overview of the types of support available to carers, and what we know–and don’t know–about how many carers are accessing support.
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News Article
'Care homes are being deprived of dental services'
Patient Safety Learning posted a news article in News
A care home manager said it had become an "impossibility" to get NHS dentists to visit her elderly residents when they needed treatment. Liz Wynn, of Southminster Residential Home, near Maldon in Essex, said she had battled for years for site visits. It comes as a health watchdog revealed that 25% of care home providers said their patients were denied dental care. NHS Mid and South Essex said it was considering a number of approaches to improve access for housebound patients. Ms Wynn said the shortage of NHS community dentists available to come into the home to carry out check-ups and treatment had been an "on-going concern" for almost 10 years. Ms Wynn said the home relied on its oral care home procedures - such as checking residents' mouths daily - to prevent problems from escalating. However, she said while its residents were "our family", conditions such as dementia made it difficult to spot when patients were in pain. She also said poor dental hygiene in the elderly could result in a number of potentially life-threatening infections. Read full story Source: BBC News, 24 April 2023 -
News Article
Half of UK public fear family would not be well looked after in care homes
Patient Safety Learning posted a news article in News
Trust in care homes has slumped, leaving half of the British public lacking confidence that friends or family would be well looked after. Nationwide polling for the Guardian revealed 9 out of 10 older people believe there are not enough care staff, and half have lost confidence in the standard of care homes since the start of the pandemic. The survey conducted by Ipsos this month follows a doubling in public dissatisfaction in the NHS and exposes deepening fears about the fitness of a social care sector that had its weaknesses exposed by Covid-19, which claimed 36,000 lives in care homes in England alone. The Relatives and Residents Association (RRA) said the polling tallied with calls to its helpline about the “harm and anguish caused by poor care and frustration at the inconsistency in standards”. “We must weed out the poor providers and invest in skills – care workers must become our most valued workers, not the least,” said Helen Wildbore, the RRA’s chief executive. “Tomorrow, any one of us could need them.” Read full story Source: The Guardian, 24 April 2023 -
Content ArticleBetween 2000 and 2010, multi-year funding increases and a series of reforms resulted in major improvements in NHS performance. However, performance has declined since 2010 as a result of much lower funding increases, limited funds for capital investment and neglect of workforce planning. Constraints on social care spending have also resulted in fewer people receiving publicly funded social care and a repeated cycle of governments promising to reform social care but failing to do so. As a result, the health and social care sector now finds itself facing unprecedented challenges, from increasing demand and growing waiting lists, to a workforce in crisis. This report by Chris Ham, former Chief Executive of The King’s Fund, analyses how a major public service that is highly valued by the public was allowed to deteriorate. It focuses on the period since 2010 and the factors that contributed to the decline of the NHS after the progress that had been made in the previous decade. While the current situation can feel overwhelming, the improvements that occurred between 2000 and 2010 show that change is possible where the political will exists. The paper concludes by setting out what now needs to be done to sustain and reform the NHS, with a focus on spending decisions, moderating demand and sharing responsibility with patients and the public, alongside a long-term perspective.
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News Article
A&E staff in England struggling to spot abuse cases in infants, says watchdog
Patient Safety Learning posted a news article in News
Staff in hospital emergency departments in England are struggling to spot when infants are being physically abused by their parents, raising the risk of further harm, an investigation has found. Clinicians often do not know what to do if they are concerned that a child’s injuries are not accidental because there is no guidance, according to a report from the Healthcare Safety Investigation Branch (HSIB) that identifies several barriers to child safeguarding in emergency departments. Matt Mansbridge, a national investigator, said the report drew on case studies of three children who were abused by their parents, which he said were a “hard read” and a “stark reminder” of the importance of diagnosing non-accidental injuries quickly, since these are the warning sign in nearly a third of child protection cases for infants under the age of one. “For staff, these situations are fraught with complexity and exacerbated by the extreme pressure currently felt in emergency departments across the country,” Mansbridge said. He said the clinicians interviewed wanted to “see improvement and feel empowered” to ask difficult questions. “The evidence from our investigation echoes what staff and national leads told us – that emergency department staff should have access to all the relevant information about the child, their history and their level of risk, and that safeguarding support needs to be consistent and timely/ Gaps in information and long waits for advice will only create further barriers to care,” he said. Read full story Source: The Guardian, 13 April 2023 -
News Article
Former nursing home manager fined £40,000 after death of two residents
Patient-Safety-Learning posted a news article in News
A former nursing home manager has been fined £40,000 after pleading guilty to two offences of failing to provide safe care and treatment to two residents at Rossendale Nursing Home in Lancashire. Caroline Taylforth, who established her first residential care home in 1997, was prosecuted by the CQC. She was the registered manager at Rossendale Nursing Home at the time of the incidents, and admitted mistakes she had made that meant two residents did not receive safe care and treatment, and resulted in "avoidable harm" while in her care, said a CQC spokesperson. The first offence was for failures in the care of resident Patricia Sutton, aged 77, who was admitted to the home on 11 October 2018 and had a significant medical history. On 6 November 2019, Patricia Sutton was eating dinner in the dining room and started choking. She was taken to hospital and died later that day. Ms Sutton had previously been involved in three other choking incidents and should have been referred to a speech and language therapist after the second one occurred to properly assess the risks, said the CQC. However, Ms Taylforth "did not safely assess, monitor or manage the risk or make this referral", the CQC concluded. The CQC also prosecuted Ms Taylforth for another incident concerning Dereck John Chapman, aged 82, who was admitted to the home on 22 October 2019 with multiple health issues and was also prone to having falls. Following admission to the home, Mr Chapman suffered at least 14 falls. Ms Taylforth "failed to mitigate" the risk of falls and "failed to ensure" Mr Chapman was promptly referred to appropriate services, such as the falls team, GP, and local authority following known incidents, particularly those resulting in injuries, criticised the CQC. Read full story Source: Medscape, 6 April 2023 -
News Article
Fury greets cuts to funding for social care’s contribution to integration
Patient-Safety-Learning posted a news article in News
Confirmation the government has cut hundreds of millions from budgets partly designed to boost health and care integration has been met with fury, with the decision described as leaving the social care reform agenda in ‘tatters’. It was revealed last month that the £1.7bn promised in 2021’s social care white paper to strengthen the sector, and especially its contribution to more integrated services, was set to be drastically cut by ministers. Today’s announcement has confirmed the investment originally ear-marked for “investment in knowledge, skills, health and wellbeing, and recruitment policies [to] improve social care as a long-term career choice” has been cut from £500m to £250m, the £300m promised to “integrate housing into local health and care strategies" cut to zero. The white paper also promised “at least £150m” for investment in digital and technology, but today’s government announcement has capped this at £100m. Overall cuts to the series of reform programme are in the region of £600m. Only £520m has been allocated, and it is unclear where the rest of the original £1.7bn will be spent. Sarah McClinton, president of the Association of Directors of Adult Social Services, said the plan “takes us backwards” and “leaves the government’s vision for reform in tatters”, adding that it “ducks the hard decisions and kicks the can down the road again until after the next election.” Read full story (paywalled) Source: HSJ, 4 April 2023 -
News Article
Social care workforce funding halved for England, government confirms
Patient Safety Learning posted a news article in News
Funding promised to develop the social care workforce in England has been halved, the government has confirmed. In 2021 the government pledged "at least" £500 million for reforms, to be spent on training places and technology over three years. But that figure is now £250 million, according to the Department of Health. A coalition of charities said this cut is "just the latest in a long series of disappointments" over social care. The government said its reforms would give care "the status it deserves" but some organisations in the sector say they fall short of what is needed. Caroline Abrahams, co-chair of the Care and Support Alliance - which represents more than 70 charities - and charity director of Age UK, said the measures "aren't remotely enough to transform social care". Millions of older and disabled people and their carers "needed something far bigger, bolder and more genuinely strategic to give them hope for the future", she said. Read full story Source: BBC News, 4 April 2023 -
News Article
Inside one hospice as struggling sector faces turning the dying away
Patient Safety Learning posted a news article in News
Hospices will be forced to turn dying patients away because they are struggling with steeply rising costs at a time when the NHS is not increasing funding. Hospices look after 300,000 patients and families every year across the UK. It costs about £1.5 billion a year for them to provide this care, with only a third of that coming from the NHS. The rest relies on charitable donations and fundraising in local communities as well as sales in charity shops. As hospices battle to keep going, the Treasury has rejected pleas for a £30 million rescue package this year. The money, those in the sector say, would prevent some from having to close inpatient units and beds or reduce their hospice-at-home teams, which care for patients in the community. Some are already making staff redundant and getting rid of beds. Toby Porter, chief executive of Hospice UK, said the government was making “a huge avoidable mistake”, adding: “People will have a lesser experience at an incredibly important moment and it will lead to system pressures affecting the whole health system.” Read full story (paywalled) Source: The Times, 26 March 2023 -
EventuntilCommunities are playing an increasingly important role in improving health and meeting the wellbeing needs of people locally, highlighted in part by their role in the response to the Covid-19 pandemic. Integrated care systems (ICSs) need to recognise the role communities can play in improving and sustaining good health, and as part of this they need to seek greater involvement with local voluntary, community and social enterprise (VCSE) groups at the place and neighbourhood level, where the link local communities is at its strongest. This conference will provide an opportunity to discuss the impact of community-led and person-centred approaches to improving health and wellbeing, and to explore what more can be done to build on community interventions, assets and solutions that developed as a response to the pandemic. It will also consider the challenges of demonstrating value and of working with communities to assess need and provide services. You will hear from community groups who have worked with others – including their ICS, local health system or local authority – to develop a collaborative approach to tackling health inequalities.
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Content ArticleNuffield Trust’s fifteenth annual Summit took place in March 2023. These videos feature highlights of the speaker sessions: Diagnosing the NHS Priorities in social care Community and rehabilitation services - the key to easing gridlock? Addressing inequalities in general practice - politics, policy and reality Solving the workforce burnout crisis Improving communication between the NHS and the public Changing the centralised culture of the NHS
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Content ArticlePeter Seaby had Down's Syndrome and autism and was cared for at home by members of his family for 62 years. However, in 2017, Peter was removed from the home he shared with his sister Karen, who was his full time carer, and placed in a care home. Karen and Peter's brother Mick were not told by social services why Peter was moved. Within six months of being in the home, Peter choked on a carrot and died. Karen and Mick found the subsequent inquest into Peter's death in July 2021 to be inadequate and launched a Judicial Review challenge which was successful in quashing the findings of the initial inquest. A new inquest was held in February 2023 Journalist George Julian has been following and reporting on Peter's second inquest and has written several blog posts about the case, highlighting serious failings in his care that led to his death: Peter Seaby’s 2nd inquest – how he came to be in the care of the Priory Group Peter Seaby’s 2nd inquest “I have stood on my own in this” Peter Seaby’s 2nd inquest – the SALT plan Peter Seaby’s 2nd inquest – record keeping and decision making Peter Seaby’s 2nd inquest – April 2018 Peter Seaby’s 2nd inquest – May 2018 Peter Seaby’s 2nd Inquest – Conclusion
