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Showing results for tags 'Patient engagement'.
Found 1,334 results
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Content ArticleA 3 minute, plain English video from Dr Jackie Barker of the nine roles public contributors play when they get involved with health organisations, from the BMJ Open paper titled "Developing a typology of the roles public contributors undertake to establish legitimacy: a longitudinal case study of patient and public involvement in a health network".
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Content ArticleThe shift towards a digital-first healthcare system has accelerated during the COVID-19 pandemic, demonstrating that, given the opportunity for better access, people will engage in new ways with their health and wellbeing services. However, while many individuals have developed a greater awareness of their health and taken meaningful steps to improve it, the pandemic has exposed, and potentially increased inequalities in health outcomes due, in part, to inequalities in access to the technologies, connectivity, and digital and/or health literacy needed to improve outcomes equitably. The move to Integrated Care Systems (ICS) provides an opportunity to give greater priority to patient engagement and to integrate services around a 360 degree view of patient’s needs, focusing on how people experience their lives and health conditions, rather than on specific treatment/disease areas or pathways. This blog from Catherine Skilton, Deloitte, discusses what ICSs can do to realise the long-held vision of a person-centric health and care system.
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Content ArticlePatient complaints are associated with adverse events and malpractice claims but underused in patient safety improvement. The objective of this study, published in BMJ Quality and Safety, was to systematically evaluate the use of patient complaint data to identify safety concerns related to diagnosis as an initial step to using this information to facilitate learning and improvement. Authors conclude that health systems could systematically analyse available data on patient complaints to monitor diagnostic safety concerns and identify opportunities for learning and improvement.
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The theme for this year’s World Health Day (7 April) is building a fairer and healthier world for everyone. Making sure all patients can access and understand healthcare information is absolutely key to this. In this interview, anaesthetist Rachael Grimaldi tells us about CardMedic, the organisation she founded to empower staff and patients to communicate across any barrier. Rachael explains how their tools can be used to support vulnerable groups and reduce inequalities. -
Content ArticleIn this BMJ article, Brenda Denzler describes how earlier traumatic experiences of medical treatment continue to have an impact on her to this day and how medical professionals can make patients feel empowered and in control.
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Content ArticleA glimpse of moving and powerful Rounds discussions that took place at the Massachusetts General Hospital Cancer Center and at Emerson Hospital in Concord, MA, USA
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Content ArticleThe Essentials of Safe Care is a practical package of evidence-based guidance and support that enables Scotland’s health and social care system to deliver safe care.
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Content ArticleThis blog, written by Rageshri Dhairyawan and Darren Chetty for the Cost of Living website, argues that we must reframe conversations on racialised health inequalities. Drawing on COVID-19 as an example, they state: "How we choose to frame conversations about racialised health inequalities is crucial to ensure that historically underserved communities are not further disadvantaged."
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Content ArticleIn my tweets and posts I have suggested that patients themselves need to take more responsibility for the medicines they are prescribed. But what about vulnerable groups who may depend on decisions being made for them, and in their best interests? Whilst there are circumstances where antipsychotic (psychotropic) medicines are an appropriate option for people with autism and learning disabilities, these occasions are limited. In all cases the patient matters most, and any decision to prescribe must be part of a team based, patient-led decision, which is regularly reviewed.
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Content ArticleIn this blog, Patient Safety Learning outlines the key points included in its response to the Care Quality Commission’s (CQC) consultation on their new strategy from 2021, identifying the opportunities this presents for the health and social care regulator to help improve patient safety.
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Content ArticleDr S. Vincent Rajkumar is a Professor of Medicine at the Mayo Clinic in Rochester, Minnesota. In this account, originally published via a Twitter thread, Dr Rajkumar remembers how the insight of Mike Katz, a patient with myeloma, left an incredible legacy for patient safety.
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Content Article
Patient Leadership Training Programme (InHealth Associates)
Patient Safety Learning posted an article in Leadership
Patient Leadership signals a breakthrough in healthcare that moves beyond traditional engagement and uncovers the pioneering and transformative work of patient leaders - those affected by life-changing illness, injury or disability who want to lead change in the healthcare system. Or ‘those who have been through stuff, who know stuff, who want to change stuff’. This course lays the foundation for understanding patient leadership – it is designed for both patients and non-patients to explore together different facets of this emerging social movement. It is for Patient and Carer Leaders, health professionals, managers, non-clinical staff and those from the independent, voluntary and charitable sector. And open to international attendees. 4 x weekly sessions of 2.5 hours £195 delivered by David Gilbert, InHealth Associates Director. -
Content ArticleThe human element can give us kindness and compassion; it can also give us what we don't want— mistakes and failure. Leilani Schweitzer's son died after a series of medical mistakes. In her talk she discusses the importance and possibilities of transparency in medicine, especially after preventable errors. And how truth and compassion are essential for healing.
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Content ArticleDespite decades of research, improving healthcare safety remains a global priority. Individual studies have demonstrated links between staff engagement and care quality, but until now, any relationship between engagement and patient safety outcomes has been more speculative. This systematic review and meta-analysis from Gillian et al. assessed this relationship and explored if the way these variables were defined and measured had any differential effect. Despite a limited and evolving evidence base, they cautiously conclude that increasing staff engagement could be an effective means of enhancing patient safety. Further research is needed to determine causality and clarify the nature of the staff engagement/patient safety relationship at individual and unit/workgroup levels.
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Content ArticleThis webinar is part of a series of seminars from the Yorkshire Quality and Safety Research Group. Jo Wailing, Registered Nurse, Research Fellow and Facilitator, talks about her work exploring the potential of restorative approaches to support healing following adverse clinical events. Jo draws on the lessons learned from investigations into the use of, and harm caused by, surgical mesh.
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Content ArticleThe Patients Association had not previously carried out work with patients on the topic of accredited registers, so in order to inform their response to this consultation they conducted an online survey of our members and supporters. Here are the results.
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Content ArticleHow do we know how a patient is coping with their medicines once they have left our care? How do we know that they are using their medicines safely at home? Surprisingly few medicine errors in children in the home setting are reported, yet evidence suggests that parents sometimes struggle here. We can tackle this hidden medicines safety issue by putting families’ insight at the heart of our interventions. We have to ask. And not least for our infant, children and young adult patients, and their families. Medicines use in this patient group has long been known to be challenging, and many families continue to struggle to use medicines safely at home. But a collaborative approach between healthcare professionals and families can remedy this.
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Content ArticleA recent survey of over 1,700 patient groups around the world has revealed the true toll the COVID-19 pandemic has had on patient communities, with many individuals feeling more vulnerable, confused and uncertain about the consistency and continuity of their care. Now, more than ever, the life sciences industry has a responsibility to listen to the unique and changing needs of patients. They must continue to work with patient organisations on their vital work to safeguard continued access to treatment and to understand their need for holistic support ‘beyond the pill’. Dr Berkeley Phillips, Country Medical Director of Pfizer UK, explains in this article how Pfizer continues to partner with patient organisations across a broad spectrum of conditions from cancer to rare diseases, ensuring patients feel equipped, informed and empowered despite the uncertainty.
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The Patients Association: World Patient Safety Day 2021
Patient Safety Learning posted an article in Maternity
While childbirth in the UK is generally a safe event, progress to improve safety seems to have stalled, and how safe mums and babies are depends on where you are and who you are, writes the Patients Association in this article for World Patient Safety Day. The Patients Association firmly believe that involving patients in their care improves outcomes and safety. Mums-to-be developing plans with the midwives and obstetricians seems a perfect example of this. However, research shows that clinicians meaningfully partnering with patients is not mainstream practice. "It will take leadership, training and funding to make patient partnership in maternity care everyday practice", says the Patient Association. "This World Patient Safety Day we call on all those in a position to bring about change in how maternity care is delivered and to pledge to introduce true patient partnership." -
Content ArticleAt the age of 15, Helen Haskell's son, Lewis, died due to treatable surgical complications. Following a routine elective surgery, he developed signs of sepsis, a life-threatening response to infection. Like most patients in postsurgical distress, Lewis deteriorated slowly. As he became weaker and weaker over the course of many hours, his bedside caregivers downplayed the significance of his mounting pain and unstable vital signs. Finally, his blood pressure became undetectable and he went into cardiac arrest, from which he could not be saved. His death, like thousands of others, was preventable. In this article, Helen discusses the erosion of patient safety reporting at the United States' CMS. Each year, CMS proposes changes to quality reporting programmes. Longstanding evidence-based patient safety measures, especially those used to detect harm to patients, are gradually being removed. These measures are largely extrapolated from hospital records and do not add to the workload of hospital staff. But they are embarrassing to hospitals, and hospital representatives lobby against them. The trend of downgrading patient safety is concerning.
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Content ArticleIn this blog Barbara Melville-Jóhannesson, Long Covid campaigner, highlights the importance of including lived-experience in research and service-design. She lays out six actions for organisations to help ensure that involvement is not just a tick-box exercise.
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Content ArticleHealthcare organisations strive to improve patient care experiences. One way is to use one-on-one provider counselling (shadow coaching) to identify and target modifiable provider behaviours. Quigley et al. examined whether shadow coaching improves patient experience across 44 primary care practices in a large urban US health centre. They found that shadow coaching improved providers' overall performance and communication immediately after being coached. However, these gains disappeared after 2.5 years. Regularly planned shadow coaching "booster" sessions might maintain or even increase the improvement gained in patient experience scores, but research examining additional coaching and optimal implementation is needed.
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Content ArticleAs part of a Patient Safety in Surgery Webinar Series held by Massachusetts General Hospital’s COMPASS (Center for Outcomes and Patient Safety in Surgery), Vivian Lee, president of Verily Health Platforms, shares strategies for leading quality improvement and change to work toward a healthcare system that provides better care, more efficiently and at a lower cost.
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Patients For Patient Safety US
Patient Safety Learning posted an article in International patient safety
Patients for Patient Safety US (PFPS US) is a network of people and organisations aligned with the World Health Organization (WHO) and focused on making healthcare safe in the United States. It is led by people who have experienced medical error as a patient or in their families, and is committed to implementing the World Health Organization Global Patient Safety Action Plan in the USA. Read their 'Stories That Impacted Change' -
Content ArticleIn this short film, Susanna Stanford and Sarah Seddon share a positive message about managing adverse events in healthcare. Drawing together the patient and clinician perspectives, they discuss how clinicians and other healthcare professionals can prepare for the inevitability of things going wrong, and how both patients and clinicians need the same things in the aftermath of adverse events.
