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Content ArticleThe aim of integrated care is to improve people’s outcomes and experiences of care by bringing services together around people and communities. This means addressing the fragmentation of services and lack of co-ordination that people often experience by providing person-centred, joined-up care. This practical guide aims to provide partners working in integrated care systems (ICSs) with ideas on how they can ensure they identify and meet the needs of the people they serve.
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Content ArticleIntegrated care systems (ICSs) are partnerships of health and care organisations that come together to plan and deliver joined up services and to improve the health of people who live and work in their area. This guidance outlines how partners in an ICS should agree how to listen consistently to, and collectively act on, the experience and aspirations of local people and communities.
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Content ArticleThis framework produced by the Royal College of Paediatrics and Child Health (RCPCH) aims to improve how healthcare organisations recognise and respond to children at risk of deterioration. A safer system can work in partnership with families and patients, develop a patient safety culture and support ongoing learning. The framework covers: Patient safety culture Partnership with families Recognising deterioration Responding to deterioriation Open and consistent learning Education and training
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Content ArticleThe aim of this study in Australian Critical Care was to develop an evidence-based paediatric early warning system for infants and children, that takes into consideration a variety of paediatric healthcare contexts and addresses barriers to escalation of care. The development process resulted in an agreed uniform ESCALATION system incorporating a whole-system approach to promote critical thinking, situational awareness for the early recognition of paediatric clinical deterioration as well as timely and effective escalation of care. Incorporating family involvement was an important and new component of the system.
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Content ArticleCo-production is a way of working that involves people who use health and care services, carers and communities in equal partnership; and which engages groups of people at the earliest stages of service design, development and evaluation. This poster by NHS England and the Coalition for Personalised Care outlines five values and seven practical steps to help create a culture where co-production becomes an integral part of health systems and organisations.
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Content ArticleThis guideline describes good patient experience for babies, children and young people, and makes recommendations on how it can be delivered. It aims to make sure that all babies, children and young people using NHS services have the best possible experience of care. It includes recommendations on: overarching principles of care communication and information planning healthcare consent, privacy and confidentiality advocacy and support improving healthcare experience, including healthcare environments accessibility, continuity and coordination
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Content ArticleThis National Institute for Health and Care Excellence (NICE) guideline covers the components of a good experience of service use. It aims to make sure that all adults using NHS mental health services have the best possible experience of care. It includes recommendations on: access to care assessment community care assessment and referral in crisis hospital care discharge and transfer of care assessment and treatment under the Mental Health Act
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Content ArticleThis National Institute for Health and Care Excellence (NICE) guideline covers the components of a good patient experience. It aims to make sure that all adults using NHS services have the best possible experience of care. It includes recommendations on: knowing the patient as an individual. essential requirements of care. tailoring healthcare services for each patient. continuity of care and relationships. enabling patients to actively participate in their care, including communication and information.
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Content ArticleThis document outlines the Escalation Policy for Leicester Children’s Emergency Department. It identifies five particular factors that lead to difficulty within the department. Acknowledging that these issues can be closely interlinked and may not occur in isolation, it provides practical way to deal with these factors to try and prevent secondary events. Staffing Overcrowding Inflow Outflow Acuity
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Content ArticleAppreciative Inquiry (AI) is a research approach that aims to create practical and collaborative change by taking participants through an in-depth exploration of their organisation, team or role. This article in the European Journal of Midwifery reflects on the process of using AI in a study that explored staff wellbeing in a UK maternity unit. The authors share key lessons to help others decide whether AI will fit their research aims, and highlight issues in its design and application.
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Content ArticleThis video filmed at The Beryl Institute 2011 Patient Experience Conference captures different patient experience experts' views on the definition of 'patient experience'. The video is accompanied by written information on how the Institute developed its definition of patient experience.
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Content ArticleThis document by the World Health Organization (WHO) outlines an easy to follow country approach to developing or adapting an infection prevention and control guideline. It gives guidance on five steps countries can take: Prepare for action Baseline assessment Develop/adapt and execute Evaluate impact Sustain over the long term
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Content ArticleThe number of people on NHS Wales waiting lists for treatment has reached record levels. This problem has worsened since the Covid-19 pandemic, with the average wait time for treatment more than doubling since December 2019. This report by the Welsh Centre for Public Policy identifies five key areas in which policy could be developed to improve outcomes and reduce waiting times. These areas target the underlying factors causing increased waiting times, and are likely to both improve the overall performance of the health system, and to impact outcomes which matter to patients, resulting in a more patient-centred approach: Workforce capacity Digital technology Reimagining primary care Systems collaboration Follow-up care
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Content ArticleNHS Confederation chair Lord Victor Adebowale and chief executive Matthew Taylor wrote to Rt Hon Rishi Sunak MP on his appointment as Prime Minister. Their letter both highlights the critical role of health in driving growth and sets out urgent action needed to help relieve some of the pressures on the NHS this winter, including: support for the NHS workforce urgently bolstering social care capacity protecting the NHS's capital budget supporting communities during the cost of living crisis asserting the government’s commitment to health protection and prevention.
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Content ArticleThis article describes how a radiology group in Arizona allegedly missed dozens of breast malignancies, some of which were obviously cancer. Breast surgeon Dr Beth Dupree and a team of expert radiologists identified 25 missed cancer diagnoses that required either surgery, chemotherapy, radiation or a mastectomy at Northern Arizona Healthcare between 2016 and 2018. The team felt that there was a high chance of the number of women with missed cancers being higher than those uncovered by the review, but their request to expand the investigation did not go ahead.
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Content Article
Blog - Positivity in adversity (24 October 2022)
Patient-Safety-Learning posted an article in Patient stories
Matt Eagles was only seven when he was diagnosed with Parkinson's disease. Now an adult, Matt uses his experiences of healthcare, to help other patients learn how to better communicate with healthcare professionals. In this blog, he talks about his experiences of living with Parkinson's and the work he does to raise awareness of the condition. -
EventuntilThis participatory event, concerning research undertaken on patient safety, will consist of a 45 minute talk followed by a Q&A/interactive discussion about how hospital care can be improved and how the public can be empowered to be involved in their care. The talk will specifically draw upon Dr Elizabeth Sutton's recent research, which explored how patients understood patient safety, and how this affected the ways that they were involved in their care when hospitalised. The Head of Patient Safety at University Hospitals of Leicester NHS Trust will be participating in the event and there will be a screening of an animated video based upon Dr Sutton's research on patient perceptions and experiences of involvement in their safety. What’s it about? We are all likely to receive hospital care at some point in our lives or have relatives who have experienced hospital care. This makes it vitally important that we are well informed about what patients experience when hospitalised and how best to improve that care. This event aims to highlight what patient safety means to patients, why it matters and to find ways of empowering the public to be involved in their hospital care. I want to find out whether these experiences resonate with you. How could patient safety be improved? What would you like to see happen? How can we best help patients to speak up about their care when hospitalised? As an attendee, you will hear about research on this topic and have the opportunity to ask questions and put across your point of view. This event will be led by Dr Elizabeth Sutton, Research Associate, University of Leicester. It will be of particular interest to anyone who has experience of hospital care or whose relative has received hospital care and patient groups. Book a place a the event
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EventuntilThis participatory event, concerning research undertaken on patient safety, will consist of a 45 minute talk followed by a Q&A/interactive discussion about how hospital care can be improved and how the public can be empowered to be involved in their care. The talk will specifically draw upon Dr Elizabeth Sutton's recent research, which explored how patients understood patient safety, and how this affected the ways that they were involved in their care when hospitalised. The Head of Patient Safety at University Hospitals of Leicester NHS Trust will be participating in the event and there will be a screening of an animated video based upon Dr Sutton's research on patient perceptions and experiences of involvement in their safety. What’s it about? We are all likely to receive hospital care at some point in our lives or have relatives who have experienced hospital care. This makes it vitally important that we are well informed about what patients experience when hospitalised and how best to improve that care. This event aims to highlight what patient safety means to patients, why it matters and to find ways of empowering the public to be involved in their hospital care. I want to find out whether these experiences resonate with you. How could patient safety be improved? What would you like to see happen? How can we best help patients to speak up about their care when hospitalised? As an attendee, you will hear about research on this topic and have the opportunity to ask questions and put across your point of view. This event will be led by Dr Elizabeth Sutton, Research Associate, University of Leicester. It will be of particular interest to anyone who has experience of hospital care or whose relative has received hospital care and patient groups. Book a place a the event
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Content ArticleEmer Joyce is a Cardiologist at Mater University Hospital in Dublin who developed myocarditis as a result of a Covid-19 infection. This article by Professor Joyce in the European Journal of Heart Failure aims to "give a birds-eye view of the physician as patient, the sub-specialist as sub-specialist condition sufferer, the one on the far side of the bed as the one in the bed." She also looks at the pattern of previously healthy, highly active healthcare professionals developing serious long-term health issues as a result of Covid-19.
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Content Article
Considering Valproate video (February 2022)
Patient-Safety-Learning posted an article in Medication
Sodium valproate is a medication used to treat epilepsy, bipolar disorder and migraines, but it can cause birth defects, learning disabilities and developmental problems in babies if taken during pregmamcy. This video by Central and North West London NHS Foundation Trust discusses the various effects of using valproate, including the potential harmful effects the medication can have on unborn foetuses. It features a conversation between a pharmacist and patient discussing the need for a valproate pregnancy prevention programme if the patient is to be prescribed valproate. -
Content ArticleClinical trials are the foundation of modern medicine, but regulators, doctors and patients often do not get to see the full picture about how safe and effective drugs and treatments are. The results of around half of all clinical trials remain hidden and there are international efforts to resolve this issue; even government agencies often lack access to the information they need to decide whether treatments are safe and effective. The paper analyses six case studies in which lack of transparency in medical research has directly harmed patients, taxpayers and/or investors. It illustrates how these harms could have been avoided through three simple solutions promoted by the AllTrials campaign: trial registration, results posting, and full disclosure of trial reports.
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Content ArticleIn 2021. the National Quality Board (NQB) refreshed its Shared commitment to quality, which describes what quality is and how it can be delivered in integrated care systems (ICSs). It reflects the ambition set out by the NQB in 2015: "We want improving people’s experiences to be as important as improving clinical outcomes and safety." This document provides an overarching context for work on improving experience of care as a principal and integral part of delivering safe and effective care. It sets out a shared understanding of experience and what the best possible experience of care looks like, and outlines key components for delivering the best possible experience of care: Co-production as default for improvement Using insight and feedback Improving experience of care at the core priority work programmes The NQB was set up in 2009 to promote the importance of quality across health and care on behalf of NHS England and Improvement, NHS Digital, the Care Quality Commission, the Office of Health Promotion and Disparities, the National Institute for Health and Care Excellence, Health Education England, the Department of Health and Social Care and Healthwatch England.
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Content ArticleThis guidance by the Department of Health and Social Care (DHSC) provides guidance on how to proceed in situations where NHS patients want to buy additional secondary care services that the NHS does not fund. Key messages: NHS organisations should not withdraw NHS care simply because a patient chooses to buy additional private care. Any additional private care must be delivered separately from NHS care. The NHS must never charge for NHS care (except where there is specific legislation in place to allow charges) and the NHS should never subsidise private care. The NHS should continue to provide free of charge all care that the patient would have been entitled to had he or she not chosen to have additional private care. NHS Trusts and Foundation Trusts should have clear policies in place, in line with these principles, to ensure effective implementation of this guidance in their organisations. This includes protocols for working with other NHS or private providers where the NHS Trust or Foundation Trust has chosen not to provide additional private care. Strategic Health Authorities (SHAs) and Primary Care Trusts (PCTs) should work together to ensure that the guidance is being implemented properly in their local areas.
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Content ArticleVaginal mesh implants were introduced in the late 1990s as a routine treatment for stress urinary incontinence and pelvic organ prolapse, common complications following childbirth. However, these flexible plastic scaffolds have led to life-altering complications for many women including nerve damage, chronic pain, and several reported deaths. This blog outlines the story of vaginal mesh, from the 1990s to the present day.
